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Title: One Year and Counting......... Post by Tiannia on Jul 12th, 2004, 1:19am Well, it is official. It has been one year ago that I had my first dance with the Beast. And he made sure that I remembered it well today. Got a visit from him 4 times today (2 k7+) and I fully explect at least one more tonight. :-/ We will see... I wont concider myself chronic. I have had a total of 3 breaks inthe past year. In Oct I got 12 days PF, and I got 4 days each end of Dec and end of Feb. But considering I have only finally been with a neuro for 2 months. So there is still losts to figure out and try and management. So I am still just a Clusterhead and dont know yet if my first cycle is just a long one or if in fact I am a chronic. A refuse to consider this an anniversary, cause that should be something happy. So if you all dont mind, I wait 6 weeks and consider that my CH Anniversary cause that is when I found this board and posted that I was new to these and was very happy to have found some people who might be able to help me learn more about them and how to deal with them. Cheers to many more years that I am a member of this wonderful family and thank you for all of your support. -Tia |
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Title: Re: One Year and Counting......... Post by purpleydog on Jul 12th, 2004, 1:38am Sorry you're getting hit Tia. Hopefully this is a temporary thing. :) purpleydog |
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Title: Re: One Year and Counting......... Post by miapet on Jul 12th, 2004, 2:13am sorry Tiannia . .we hope you get relief soon . . . *positive light and energy* miapet |
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Title: Re: One Year and Counting......... Post by alleyoop on Jul 12th, 2004, 6:12am I, too am sorry you're getting hit Tia! I am also sorry you can't make Nashville. I would really like to meet you! I hope I am wrong, but as a diagnosed chronic myself, you sure sound chronic to me. Wishing and hoping that you are ECH............. .............................................alley :) |
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Title: Re: One Year and Counting......... Post by don on Jul 12th, 2004, 7:23am Chronic = less than 30 days pain free in the course of 1 year. You decide. |
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Title: Re: One Year and Counting......... Post by Woobie on Jul 12th, 2004, 8:05am :'( :'( :'( Sorry T. |
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Title: Re: One Year and Counting......... Post by Gator on Jul 13th, 2004, 4:38am You can be whatever you want to be babe. I'm just sorry you're getting hit so hard. If'n you ever need to bend an ear, I'm here for you. Gator |
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Title: Re: One Year and Counting......... Post by Prense on Jul 13th, 2004, 10:23am Hang in there Tia! This time next week, I'll be unemployed. I have about 60 injections to last until I get a job and wait for what ever "preexisting" condition clause to expire from the potential new insurance. I'm losing my O2 this week. It's cheap enough to keep out of pocket, but it really wasn't working very effectively. I am back to no preventative meds, because they were not working. Anyway, just letting you know things can always be worse. Chris *Edit* I need sympathy about as much as another attack. Please don't... |
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Title: Re: One Year and Counting......... Post by Tiannia on Jul 13th, 2004, 12:34pm on 07/13/04 at 10:23:18, Prense wrote:
No sympathy Chris... just understanding. It is why this board has helped. That I know that I can keep going no matter what. |
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Title: Re: One Year and Counting......... Post by broomhilda on Jul 13th, 2004, 12:46pm Tia, I am so sorry :'( Hugs [smiley=hug.gif] |
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Title: Re: One Year and Counting......... Post by Cerberus on Jul 13th, 2004, 7:16pm Dang it gal....I Tried to get to ya when I was in Vegas.... Hope yer not chronic and hope this cycle ends for ya soon. :-/ :-* Ramon |
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Title: Re: One Year and Counting......... Post by Charlie on Jul 13th, 2004, 7:29pm Rats. Sorry about this but you sound like you're doing fine. Your coming here shows that. Try to keep the beast on the run but don't catch him. Charlie |
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Title: Re: One Year and Counting......... Post by cootie on Jul 13th, 2004, 10:06pm Sorry Tia...hopein yer not chronic and it all goes away as fast as it came !!! |
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Title: Re: One Year and Counting......... Post by Tiannia on Jul 13th, 2004, 11:47pm on 07/13/04 at 19:16:09, Cerberus wrote:
Ramon I am so sorry - but I have to work and middle of the week is so hard. I will meet more people. I did enjoy at least talking to Tina. Make sure you send me pictures |
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