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        New Message Board Archives >> 2004 Posts >> Clusterheadaches on the news.!!!!
        
(Message started by: Jayne on Jul 9^th, 2004, 5:59pm)

Title: Clusterheadaches on the news.!!!!
Post by Jayne on Jul 9^th, 2004, 5:59pm

well the story aired 2 nights ago. They did not mention the convention, but I was told the other news channel would. I know this is not perfect and they got a couple of things wrong, but all in all I thought it was a good spot for awareness. I was nervous.

http://www.wsmv.com/Global/category.asp?C=9758&nav=1TcU

Title: Re: Clusterheadaches on the news.!!!!
Post by psycofemale0403 on Jul 9^th, 2004, 6:05pm

has the press been invited to the convention? Even though I wouldn't be able to make it, it would be cool.

Title: Re: Clusterheadaches on the news.!!!!
Post by Svenn on Jul 9^th, 2004, 6:09pm

why do i have a tear in my eye every time i read or see about the hell we are living in,on the newspaper or TV ?

This was great to see

Svenn

Title: Re: Clusterheadaches on the news.!!!!
Post by jonny on Jul 9^th, 2004, 6:10pm

That was FUCKENEH AWESOME, Jayne!!!!!

You did GREAT!!!!

.............................jonny

Title: Re: Clusterheadaches on the news.!!!!
Post by BlueMeanie on Jul 9^th, 2004, 6:13pm

OUTFRICKIN Standing Jayne. That was awsome. You didn't even look nervous.

:o :o :o :o :o

Title: Re: Clusterheadaches on the news.!!!!
Post by 1MajorPain on Jul 9^th, 2004, 6:14pm

Great job Jayne, glad to see the word is getting out!

Major

Title: Re: Clusterheadaches on the news.!!!!
Post by BonnieW on Jul 9^th, 2004, 6:24pm

Way to go Jayne - I thought you did a great job!!

Title: Re: Clusterheadaches on the news.!!!!
Post by forgetfulnot on Jul 9^th, 2004, 6:31pm

COOOOOOOOOOOOOL Jayne, great job, thanks.

Lee

Title: Re: Clusterheadaches on the news.!!!!
Post by Lizzie2 on Jul 9^th, 2004, 6:36pm

FUCKENEH Jayne!!!!!!!!!

That was totally awesome!!!

Thanks for getting out the word!!!!

Hugz,
Lizzie :)

Title: Re: Clusterheadaches on the news.!!!!
Post by UN_SOLVED on Jul 9^th, 2004, 6:37pm

Great job Jayne :D

Unsolved

Title: Re: Clusterheadaches on the news.!!!!
Post by KingOfPain on Jul 9^th, 2004, 7:00pm

[smiley=bow.gif] [smiley=sayyes.gif] [smiley=thumb.gif]

Superb job Jayne!!

Totally awesome.

http://pahlow.net/ch/ch_images/jayne.JPGhttp://smileys.smileycentral.com/cat/102.gif

http://smileys.smileycentral.com/cat/29/29_4_34.gif

Can I have your autograph?

Title: Re: Clusterheadaches on the news.!!!!
Post by vig on Jul 9^th, 2004, 7:01pm

Way to go Jayne!

Title: Re: Clusterheadaches on the news.!!!!
Post by Tim_Z on Jul 9^th, 2004, 7:15pm

Wow, why do I get so many mixed emotions when I watch something like that?

That was excellent. Thank you Jayne way to go. :)

Tim

Title: Re: Clusterheadaches on the news.!!!!
Post by Redd715 on Jul 9^th, 2004, 7:20pm

The kids even came to the screen to watch the clip Jayne....

my son said about a few of the "wrong" parts...

"that's a lie..." so much for 14 years old...however, they were impressed. I agree with them. Great job GF!!!!

Title: Re: Clusterheadaches on the news.!!!!
Post by Jimmy_B on Jul 9^th, 2004, 7:31pm

One thing about Cluster Sufferers........we are a Great Looking bunch, aren't we? ;)

Great Job

Jimmy

Title: Re: Clusterheadaches on the news.!!!!
Post by jonny on Jul 9^th, 2004, 7:39pm

What sucks is that they wont let you save it to target.....Punks!!! (As far as I can tell)

................................jonny

Title: Re: Clusterheadaches on the news.!!!!
Post by broomhilda on Jul 9^th, 2004, 7:41pm

Jayne, awesome job!!!!!!!

As many said, you did not even look nervous! Its so great to see it in the news!!!

Thanks for all your great work!

Hugs

Andrea

Title: Re: Clusterheadaches on the news.!!!!
Post by helpless23 on Jul 9^th, 2004, 7:41pm

JAYNE!

I'M SO PROUD OF YOU!!!! YOU WERE AWESOME!!!

I am all choked up just knowing that a part of OUR family did this...!

You rock!!!!

Huge Hugs,
Toni

Title: Re: Clusterheadaches on the news.!!!!
Post by Charlie on Jul 9^th, 2004, 7:43pm

Nice going Jayne!

I'll take your word for it. I gave up after 30 minutes download.

Charlie

Title: Re: Clusterheadaches on the news.!!!!
Post by Roxy on Jul 9^th, 2004, 7:49pm

Very cool Jayne......ya done good!!

8)

Title: Re: Clusterheadaches on the news.!!!!
Post by Darleen on Jul 9^th, 2004, 7:51pm

Jayne,

That was excellent..

You did an awesome job!!!

D ;;D

Title: Re: Clusterheadaches on the news.!!!!
Post by bluesunshine on Jul 9^th, 2004, 8:05pm

Thank you Jayne!

This will surely help someone somewhere

Again, Great job!

Title: Re: Clusterheadaches on the news.!!!!
Post by OneEyeBlind on Jul 9^th, 2004, 8:14pm

What a spectacular job ! OMG, you rock Jane !!!!!!!

Title: Re: Clusterheadaches on the news.!!!!
Post by Giovanni on Jul 9^th, 2004, 8:29pm

Outstanding!!

John

Title: Re: Clusterheadaches on the news.!!!!
Post by Root on Jul 9^th, 2004, 8:33pm

Even with the mistakes. You did really well [smiley=thumb.gif]

Title: Re: Clusterheadaches on the news.!!!!
Post by cathy on Jul 9^th, 2004, 8:34pm

Bravo!!!! Spiffing good show ;;D

Title: Re: Clusterheadaches on the news.!!!!
Post by Melissa on Jul 9^th, 2004, 8:35pm

Jayne, you did an excellent job, you couldn't even tell if you were nervous or not. Except for a small booboo on the reporter's part, the whole piece was done quite well.

Thank you so much for being pro-active and willing to take one for the team (unlike pathetic losers such as myself ::)). I really do appreciate it very much and am grateful to people like yourself who help to make things happen.

:)mel

Title: Re: Clusterheadaches on the news.!!!!
Post by Little Deb on Jul 9^th, 2004, 9:01pm

Totally cool, Jayne! Can't wait to meet a real movie star!!

honored to know you................Little Deb

Title: Re: Clusterheadaches on the news.!!!!
Post by don on Jul 9^th, 2004, 9:11pm

You just did more for misdiagnosed sufferers in 3minutes and 50 seconds than most Doctors have done in their entire career.

You are my heroine !

Title: Re: Clusterheadaches on the news.!!!!
Post by Mastifflvr28 on Jul 9^th, 2004, 9:32pm

WOW Jayne,
EXCELLENT job!!

OMG, it's 87 degrees in Nashville at 8:30 pm, LOL
Mast

Title: Re: Clusterheadaches on the news.!!!!
Post by Allen_A on Jul 9^th, 2004, 9:47pm

Jayne, I thought cluster sufferers were supposed to be 6+ ft. white males with prominent jaws and coarse-skinned faces?.... You don't fit profile at all....NOPE, NOT AT ALL! !!!! ;) Seriously, I am sure you have helped many people. Hopefully, people dont have to go 5 or 10 years of undiagnosed pain like many of us did in the past. You are a wonderful spokeswoman and a lifesaver I am sure!!!! Allen

Title: Re: Clusterheadaches on the news.!!!!
Post by Ueli on Jul 9^th, 2004, 10:01pm

Congratulations Jayne for becoming a TV star!

As everybody is full of praise, I would like to see this file as well. But I need some

HELP

for that fucking Media Player.

When I click the link using Opera 7.23 I'm told to downgrade to the browser from the last millennium.
When I use that crapware I get a black rectangle with "Playing" in the top left corner and a small window saying "Loading...". But when all the ads are loaded there is no longer any traffic.
With FireFox 0.9.2 or Mozilla 1.7.1 the crappy Media Player opens, but says "type not registered".
Closest I came with Opera 7.52. Here the Media Player started loading and even showed about 5 seconds of the video, but then came the Blue Screen Of Death. >:(

Why can't Bill Gates make working software and why make people videos in that idiotic MP format instead of good old .mpeg or .avi files that can be played with any program?

PFNADs
Ueli [smiley=smokin.gif]

Title: Re: Clusterheadaches on the news.!!!!
Post by Jayne on Jul 9^th, 2004, 10:05pm

Ueli I wish I could help you my dear, but I would probably lead you down the garden path and help you step in some dog poo.

Title: Re: Clusterheadaches on the news.!!!!
Post by UN_SOLVED on Jul 9^th, 2004, 10:22pm

Ueli,

You must have Windows Media Player 7 or higher to view this video.

Sorry ... thank Bill Gates

Unsolved

Title: Re: Clusterheadaches on the news.!!!!
Post by kissmyglass on Jul 9^th, 2004, 11:54pm

Awesome Job Jayne!! Whoo Fuckin Hoo! You should be proud of yourself! :-*

Kev

Title: Re: Clusterheadaches on the news.!!!!
Post by Racer1_NC on Jul 10^th, 2004, 12:46am

Great job!!!!!!!!!!!!! I sent the link to many of my friends.....

Bill

Title: Re: Clusterheadaches on the news.!!!!
Post by Tiannia on Jul 10^th, 2004, 12:51am

Very cool hun. You have no idea how much this will actually help me at work. One of the owners is very understanding, but he relats it to his wifes migrains and so "sort of" understands, the other does not really think that it is real. SO I have forwarded this link to them and asked themt o watch it. It will make it real for him. Thank you so much for doing this.

-Tia

Title: Re: Clusterheadaches on the news.!!!!
Post by Kevin_M on Jul 10^th, 2004, 1:10am

Unable to view but you're a doll, so it was good. Guess I'll just have to wait to view you in person in a week. Glad you've been PF for so long. Thank you for all the great work.

the unblurbable

Kevin M

Title: Re: Clusterheadaches on the news.!!!!
Post by Edna on Jul 10^th, 2004, 1:29am

GREAT JOB JAYNE

Thank you

EDNA

Title: Re: Clusterheadaches on the news.!!!!
Post by Gator on Jul 10^th, 2004, 1:38am

Not that I saw much (I did hear a lot of it) with this 24k connect, but what I heard sounded great. Nice job, Jayne!

I'm with jonny. Whay can't they just make the clips downloadable. Not everyone is blessed with broadband. Even if I could afford it, I can't get it where I live.

Gator

Title: Re: Clusterheadaches on the news.!!!!
Post by Big Dan on Jul 10^th, 2004, 1:51am

Jayne... you're all that and a bag of baked Lay's....

you rock....

... and damn, woman.. you're finer than frog hair...

;;D

-Big Hopes

Title: Re: Clusterheadaches on the news.!!!!
Post by maria9 on Jul 10^th, 2004, 1:52am

Thanks Jayne for getting the word out about cluster headaches and I might also at this time thank Bill Gates for allowing my husband and I the opportunity to make the donation to "get the ball rolling" so to speak with regards to the shroom treatment and cluster headaches.

Hey, really, we could not have done it without Bill.

Marsha

Title: Re: Clusterheadaches on the news.!!!!
Post by Big Dan on Jul 10^th, 2004, 1:56am

Marsha...

... Bill Gates is the devil.... c'mon.. we need to go talk....

-Big Micro$oft

Title: Re: Clusterheadaches on the news.!!!!
Post by vig on Jul 10^th, 2004, 12:51pm

Maybe the Bill and Melinda Gates Foundation would like to contribute to our cause!

(for causing so many headaches!)

Title: Re: Clusterheadaches on the news.!!!!
Post by nancyc on Jul 11^th, 2004, 10:56am

I was finally able to view it, sis...YOU were fabulous...I am so proud of you...thanks for all you have done for your family! We do love you, gal! smiles,nancyc

Title: Re: Clusterheadaches on the news.!!!!
Post by suzy617 on Jul 11^th, 2004, 12:41pm

You did an absolutely wonderful job Jayne.
Many thanks to you,

Suzy

Title: Re: Clusterheadaches on the news.!!!!
Post by maria9 on Jul 11^th, 2004, 8:12pm

Okay Big Dan,

Why is Bill the Devil? Do you know something about Bill that I don't know? Is it inherently evil to amass the kind of fortune he has through all the proper channels? Did you know that he has professed to giving away all but 10% of his fortune to charities and under-funded medical conditions that could potentially affect millions of people?

Marsha ;;D

Title: Re: Clusterheadaches on the news.!!!!
Post by Mark C on Jul 12^th, 2004, 5:45am

http://www.drfeller.com/Mark/clapping.gif

;;D ;;D ;;D ;;D ;;D

Title: Re: Clusterheadaches on the news.!!!!
Post by Jim R on Jul 12^th, 2004, 6:37am

Excellent interview, Jayne. I thought you did marvelously and I couldn't agree more - you have to do the research yourself. I went to several doctors, including neurologists before I found the answers that were shortly thereafter confirmed that I did, indeed, suffer from cluster headaches. You got an important point across to those afflicted but don't yet know what they are experiencing. Good going!!

Best,

Jim R

Title: Re: Clusterheadaches on the news.!!!!
Post by alleyoop on Jul 12^th, 2004, 6:59am

on 07/12/04 at 06:37:31, Jim R wrote:

My thoughts exactly Jim! Except you didn't mention how stunning she looked on camera! Can't wait to meet you in person Jayne. Can I have your autograph?

Really good job!

..............................alley [smiley=inlove.gif]

Title: Re: Clusterheadaches on the news.!!!!
Post by Pinkfloyd on Jul 12^th, 2004, 10:32am

on 07/09/04 at 17:59:26, Jayne wrote:

http://www.wsmv.com/Global/category.asp?C=9758&nav=1TcU

Great job Jayne.

I finally got to see the spot.
I tried every radio station on my dial and never could see the segment. I don't know what Marconi was thinking. Whadda jerk...

PF

Title: Re: Clusterheadaches on the news.!!!!
Post by Big Dan on Jul 12^th, 2004, 10:59am

on 07/11/04 at 20:12:54, maria9 wrote:

Jesus' cousin, Joe told me.

-Big Dan

Title: Re: Clusterheadaches on the news.!!!!
Post by floridian on Jul 12^th, 2004, 11:29am

on 07/11/04 at 20:12:54, maria9 wrote:

Agree with you on atleast half of this, Maria. As a philanthropist, Bill Gates has done a good job. He's probably not the devil, I think my next door neighbor is. But then again, I have never seen my neighbor and Bill together at the same place/time ;)

The blue screen of death is pretty rare with new versions of Windows. But I still think Microsoft leveraged their monopoly to stick it to their competitors. On security issues, digital rights mangagement, file format compatibility, and a host of other topics, Microsoft is not user user friendly - not necessarily evil, just not what I want.

I like the GNU and the penguin. But the Microsoft = evil equation is too simple. Walmart, McDonalds, and Microsoft all take heat simply because they are large, easy targets. Computer doesn't work?? Blame da Man. Bill is a lightning rod for the problems of complex computer ecosystem.

Title: Re: Clusterheadaches on the news.!!!!
Post by E-Double on Jul 12^th, 2004, 10:04pm

That's unreal!!!
Good for you and great for all of us :)

Thank you

Eric