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        New Message Board Archives >> 2004 Posts >> KNOCK ON WOOD!
        
(Message started by: alleyoop49 on Jul 3rd, 2004, 1:06am)
Title: KNOCK ON WOOD!
Post by alleyoop49 on Jul 3rd, 2004, 1:06am
I'm really not superstitious, but when it comes to these HAs I'm sure you'll all understand...........

I've been afraid to post about this, but here goes. For those who aren't aware, I was diagnosed chronic about four years ago. The longest break I enjoyed in the last five or so years was ten days when I first started verapamil. My memory sucks but I think that was about two years ago. Anyway I won't go into a lot of detail here, but sufice it to say that as of 65 minutes ago, I just went THIRTEEN DAYS without a hit! Talk about a monkey off your shoulders!

Hey, I know it won't last but I just had to let everyone know. If I waited until after I got hit again to let ya'll know, it just wouldn't be the same. We'd just be hashing over the medications, and it'd just be a memory.

Instead of sticking to the dosages my neuro prescribed, I've been experimenting a little. But I didn't do it blindly. I went over and over these boards, reading and listening(and yea, throwing my two cents in here and there- but I can't help it, that's just me). If I get hit six times tomorrow, it's ok because I've tasted something wonderful.

Anyway, I just wanted to let ya'll know and THANK YOU!

Bob  :)
Title: Re: KNOCK ON WOOD!
Post by Grandma_Sweet_Boy on Jul 3rd, 2004, 6:53am
Great news  :D
Title: Re: KNOCK ON WOOD!
Post by don on Jul 3rd, 2004, 7:09am
Thats great but it might help a few others if you divulge some of your secrets to success.
Title: Re: KNOCK ON WOOD!
Post by alleyoop49 on Jul 3rd, 2004, 7:55am

on 07/03/04 at 07:09:13, don wrote:
Thats great but it might help a few others if you divulge some of your secrets to success.


More than happy to, Don. It's simple, really. The neuro had me on 1500 mg lithium daily. I had such bad hand tremor, I cut it back to 1200 one day, 900 the next, 12, 9,12, 9, etc. But what I think really did it was the verap. He had me taking only 480 mg daily. I learned from ya'll that wasn't enough. I went to 720 mg a day. I can't say for sure that any of this is it. But one of (what I feel is) my major triggers- stress- has certainly not been removed. I am under more of that now than ever!

I don't know for sure what it was. The last time I got hit (twice) was at a wedding I was in (not mine) June, 19. I may get clobbered today, but it sure has been nice!
Title: Re: KNOCK ON WOOD!
Post by don on Jul 3rd, 2004, 7:59am
You will not get clobbered today.

You will not get clobbered today.

You will not get clobbered today.

You will not get clobbered today.

(I'm trying here)

You will not get clobbered today.
Title: Re: KNOCK ON WOOD!
Post by alleyoop49 on Jul 3rd, 2004, 8:01am
THANKS!!!  ;;D
Title: Re: KNOCK ON WOOD!
Post by Pegase on Jul 3rd, 2004, 9:06am
fingers crossed...  8)

Pegase
Title: Re: KNOCK ON WOOD!
Post by purpleydog on Jul 3rd, 2004, 9:16am
Congratulations Bob!  Ahhh sweet freedom... :)

Here's to making it to 14 and 15 and16...   8)

purpleydog
Title: Re: KNOCK ON WOOD!
Post by Jeepgun on Jul 3rd, 2004, 11:39am
Magnificent!! May the memory of what a cluster headache feels like swiftly vanish in your rearview mirror. Keep on keepin' on, bro'. I'm so happy for you.  :)
Title: Re: KNOCK ON WOOD!
Post by alleyoop49 on Jul 3rd, 2004, 12:09pm
Thanks to all of you!!! ;;D [smiley=cool2.gif] ;;D
Title: Re: KNOCK ON WOOD!
Post by forgetfulnot on Jul 3rd, 2004, 3:56pm

on 07/03/04 at 07:55:46, alleyoop49 wrote:
More than happy to, Don. It's simple, really. The neuro had me on 1500 mg lithium daily. I had such bad hand tremor, I cut it back to 1200 one day, 900 the next, 12, 9,12, 9, etc. But what I think really did it was the verap. He had me taking only 480 mg daily. I learned from ya'll that wasn't enough. I went to 720 mg a day. I can't say for sure that any of this is it. But one of (what I feel is) my major triggers- stress- has certainly not been removed. I am under more of that now than ever!

I don't know for sure what it was. The last time I got hit (twice) was at a wedding I was in (not mine) June, 19. I may get clobbered today, but it sure has been nice!


Must be something to it, that's exactly the same thing I did last March.

Good luck, hope it continues to help.

Lee
Title: Re: KNOCK ON WOOD!
Post by alleyoop49 on Jul 3rd, 2004, 4:51pm

on 07/03/04 at 15:56:22, forgetfulnot wrote:
Must be something to it, that's exactly the same thing I did last March.


How long were you PF, Lee?
Title: Re: KNOCK ON WOOD!
Post by forgetfulnot on Jul 3rd, 2004, 5:25pm

on 07/03/04 at 16:51:00, alleyoop49 wrote:
How long were you PF, Lee?


Chronic for 20 years, enter mushies, PF 3 years, last bout lasted from E-Jan thru M-May. After about a month of the elivated verapamil and pain free I backed down to 480mg, also backed down lithium to 600mg. So far no breakthroughs but again added mushies to the mix.

Hope that helps.

Lee
Title: Re: KNOCK ON WOOD!
Post by jonny on Jul 3rd, 2004, 5:27pm
More than 29 years chronic and ive been PF for over four months now.......dont ask me how or why cause I got no fucking idea.

...................................jonny
Title: Re: KNOCK ON WOOD!
Post by forgetfulnot on Jul 3rd, 2004, 5:30pm

on 07/03/04 at 17:27:58, jonny wrote:
More than 29 years chronic and ive been PF for over four months now.......dont ask me how or why cause I got no fucking idea.

...................................jonny


It's cause your such a nice guy jonny, that must be what did it for me too......................

Lee
Title: Re: KNOCK ON WOOD!
Post by Kevin_M on Jul 3rd, 2004, 6:13pm
Congratulations Don,

The right med combos can do wonders.  Hope it keeps going.  Your initiative with experimenting a bit seems to have paid off for you.  This is an unuuuuuusual affliction.

No pain is good to hear.

Kevin M
Title: Re: KNOCK ON WOOD!
Post by alleyoop49 on Jul 3rd, 2004, 6:52pm

on 07/03/04 at 17:25:19, forgetfulnot wrote:
Chronic for 20 years, enter mushies, PF 3 years, last bout lasted from E-Jan thru M-May. After about a month of the elivated verapamil and pain free I backed down to 480mg, also backed down lithium to 600mg. So far no breakthroughs but again added mushies to the mix.

Hope that helps.

Lee


It does help. Thanks!

I'm working on procuring some mushies, myself. Although illegal in my state(inc. spores), they grow wild all over the place. Being PF is wonderful, but it would be even better to toss the verap and lithium away! I hate what that stuff does to me!

Don't want to blow anyone's image, but I'd be willing to bet my last dollar that you and Jonny both are a couple of the nicest guys on the planet! ;;D

Alley

ps
Don't forget to access my PayPal account.
Title: Re: KNOCK ON WOOD!
Post by miapet on Jul 3rd, 2004, 7:56pm
*YAY*
*HAPPY DANCE* for you alley!!!
I hope each day is a successive day of p/f for you!
*positive light and energy*
miapet
Title: Re: KNOCK ON WOOD!
Post by ClusterChuck on Jul 3rd, 2004, 9:14pm
I'm knocking away on all the wood I can find, for you Bob!

I love reading posts like yours!

Chuck
Title: Re: KNOCK ON WOOD!
Post by Jayne on Jul 3rd, 2004, 10:58pm
Hey beast. Go to the corner, shut the f&ck up and do as you're told.

I LOVE IT!!!!!!!!!!!!
Title: Re: KNOCK ON WOOD!
Post by jonny on Jul 4th, 2004, 10:08am

on 07/03/04 at 18:52:01, alleyoop49 wrote:
Don't want to blow anyone's image, but I'd be willing to bet my last dollar that you and Jonny both are a couple of the nicest guys on the planet! ;;D


Lee and I go way back, back to the school yard.....LOL

Hope your still PF, Alley!!

...................................jonny
Title: Re: KNOCK ON WOOD!
Post by alleyoop49 on Jul 4th, 2004, 10:23pm
Mia, Chuck, Jayne-

THANKS and PFNAD to each and everyone of you!



.......................................................................alley :D


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