Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2004 Posts >> CatLind (DHE this weekend)
        
(Message started by: Anthem on Jun 26^th, 2004, 8:40am)

Title: CatLind (DHE this weekend)
Post by Anthem on Jun 26^th, 2004, 8:40am

Cat went in yesterday to start a three-day treatment of DHE. It happened pretty quick. She had a Dr's appointment yesterday at 1100am and was admitted for the DHE by 7PM.

Hopefully, if all goes well, she could be pain free for some extended time ;;D (I guess Don went 3 years PF after DHE??).

She won't be back home until Monday evening (if all goes well).

Best regards,
Clark

Title: Re: CatLind (DHE this weekend)
Post by Kevin_M on Jun 26^th, 2004, 8:54am

Thanks Clark,

Glad she has this option available to her and she was not turned down for this treatment.
Hope it gives her lasting results.

Kevin M

Title: Re: CatLind (DHE this weekend)
Post by UN_SOLVED on Jun 26^th, 2004, 9:03am

Everyone deserves a break from the beast from time to time. Hope she gets some R & R !

Unsolved

Title: Re: CatLind (DHE this weekend)
Post by Mastifflvr28 on Jun 26^th, 2004, 9:07am

HUGE vibes going up to CAT!! Thanks alot for the update Clark, and keep us updated.
Mast

Title: Re: CatLind (DHE this weekend)
Post by Woobie on Jun 26^th, 2004, 9:17am

WOO HOO!!

I hope you get yeaaaaaaaaarrrrrrrsssss of PF time!!!!

Vibes comin!
tina :-*

Title: Re: CatLind (DHE this weekend)
Post by Ree on Jun 26^th, 2004, 9:38am

Clark, We here in our family will be praying that the DHE helps............. God bless her impatient heart, she has been suffering too long. You are the strongest supporter on this board... Kiss those kids and know we are cheering for her... Love to you all Ree

Title: Re: CatLind (DHE this weekend)
Post by Little Deb on Jun 26^th, 2004, 9:45am

Prayers and vibes to Cat.........thanks Clark.

Give her a big hug, and take her some good food!!!

Big Hugs to Cat...................Little Deb [smiley=hug.gif]

Title: Re: CatLind (DHE this weekend)
Post by miapet on Jun 26^th, 2004, 11:10am

We're thinking of you, Cat, and your family. And sending lots of *positive light and energy*
D/miapet

Title: Re: CatLind (DHE this weekend)
Post by Not4Hire on Jun 26^th, 2004, 3:32pm

thanks Clark.... I got all MY digits crossed that my lil seester will get some TIME OFF....

and of course, having her out of the the house will give YOU:
-time to play golf, (do the dishes),
-play some pool with yer bros, (take out the garbage),
-hang out at the strip club, (mow the lawn),
-go fishin', (scrub the toilets),
-and ALL that other fun stuff.....

seriously: tell her to call.... and if YOU need any-fookin-thing, ya got my #

n4

Title: Re: CatLind (DHE this weekend)
Post by pubgirl on Jun 26^th, 2004, 3:40pm

Best thoughts, wishes and prayers from over the pond. Hope the effects last as long as possible

Wendy

Title: Re: CatLind (DHE this weekend)
Post by Charlie on Jun 26^th, 2004, 4:06pm

Good to hear about this kid.

Here's hoping she wll be PF for about 500 years.

Lotta vibes.

Charlie

Title: Re: CatLind (DHE this weekend)
Post by firebrix on Jun 26^th, 2004, 5:41pm

Thanks for posting Anthem.
Hope all's well with you and that Cat becomes pf forever.
Give her our love
firebrix

Title: Re: CatLind (DHE this weekend)
Post by TxBasslady on Jun 26^th, 2004, 9:26pm

Clark,

Thanks for letting us know.

Tell Cat I will call her Tuesday.

If you need anything, you have my #.

Lots of love to you and Cat

Jean

Title: Re: CatLind (DHE this weekend)
Post by Sean_C on Jun 26^th, 2004, 9:29pm

Vibes comin Cat, hang in there

Sean

Title: Re: CatLind (DHE this weekend)
Post by Edna on Jun 26^th, 2004, 10:32pm

Thanks for letting us know Clark.

Cat, hope you get some much deserved pf time real soon, and that it sticks around for a long time for you.

big vibes headed your way,
EDNA

Title: Re: CatLind (DHE this weekend)
Post by Elaine on Jun 26^th, 2004, 11:07pm

Prayers coming your way . Hope this works for you and you and your family will be able to have some pain free time.

Title: Re: CatLind (DHE this weekend)
Post by Jackie on Jun 27^th, 2004, 9:01am

Thanks for keeping us posted, Clark....

Give Cat our love....

Love to you and the family....

Jacks 8)

Title: Re: CatLind (DHE this weekend)
Post by BlueMeanie on Jun 27^th, 2004, 1:40pm

Thanks for letting us know Clark. I sure hope this works for her. Sending vibes that Cat stays PF forever. After all she's been through God knows she deserves PF time.

Title: Re: CatLind (DHE this weekend)
Post by Big Dan on Jun 27^th, 2004, 1:42pm

Good luck Cat...

Hope this does the trick for ya!

-Big Dan

Title: Re: CatLind (DHE this weekend)
Post by Rick_K on Jun 27^th, 2004, 5:18pm

Good luck Cat........

Wishing you a loooooong PF time

Rick

Title: Re: CatLind (DHE this weekend)
Post by TomM on Jun 28^th, 2004, 11:08am

Hey Clark. Tell Cat that I say 'Hi' and that I hope she does better.
TomM

Title: Re: CatLind (DHE this weekend)
Post by Woobie on Jun 28^th, 2004, 11:21am

:-* :-* :-*

Title: Re: CatLind (DHE this weekend)
Post by catlind on Jun 30^th, 2004, 8:06pm

Hi folks

They let me loose finally :)

The bad part is that I started having chest pains and a *ahem* slightly elevated blood pressure (normal bp for me is 90's/60's it hit 209/156 :o ) so they had to discontinue the DHE.

After 6 different IV sites that went bad, and managing to get a total of 3mg of DHE into me, we had to give it up. That was the condition of them letting me try it - even the slightest blip on the cardiac monitor was an immediate halt. While I was in the hospital and they were watching my astronomical blood pressure, it decided to go back to it's normal lows and bottomed out at 72/36 giving the poor nurses on the cardiac floor heart attacks of their own hehe. I just like to be difficult ;)

Needless to say, it hasn't given me the reliefI hoped for, and they started a medrol taper, that doesn't seem to have helped but has turned me into a bitch from hell - gotta love the rage of steroids.

I'm not giving up, and because it was a university hospital I got to educate 12 up and coming neuros and they learned alot ;)

My neuro here is out of ideas and suggested surgery - gamma rhizotomy etc. but I'm not there yet, I told him about psilocin and he said if I could get into the trials he would back it and follow it with his students very carefully.

They blew the entire network of veins in my arms so they couldn't do the steroid drip but I've let them know that there's still options out there. Unfortunately I couldn't convince them to let me use triptans again *sigh*. Ah well, I'll find the magic bullet, I know it's out there :)

Hope all is well with everyone, and if you decide to do a DHE treatment - I hope you don't have as wacky a blood pressure as I do ;)

Cat

Title: Re: CatLind (DHE this weekend)
Post by jonny on Jun 30^th, 2004, 8:20pm

Damn it!!! :-/

......................................jonny

Title: Re: CatLind (DHE this weekend)
Post by Woobie on Jun 30^th, 2004, 8:51pm

oh MAN Cat!!!!!!!!!

Dammitol.!

Title: Re: CatLind (DHE this weekend)
Post by Grandma_Sweet_Boy on Jun 30^th, 2004, 9:37pm

Girl, you've been to hell and back in the last while. I sure hope they find something that works for you. Good thoughts and vibes coming your way from Canada.

Title: Re: CatLind (DHE this weekend)
Post by catlind on Jun 30^th, 2004, 9:50pm

on 06/30/04 at 21:37:03, Grandma_Sweet_Boy wrote:

Girl, you've been to hell and back in the last while.

Grandma - that's the problem - Everytime I show up in hell they send me back - something about me taking over or some such thing ;)

I was getting a little tired of the nurses asking me if I was being abused because of all the bruising and swelling on my arms and foot because of the IV's hehe, but a positive attitude and knowing that the end of the line is LONG way away help me carry on. I've spent my share of time on the pity pot and asking why me, and then Slammy and Jonny kicked my ass and got me over it, and now I see this challenge as a gift. I've been given friendships and love from a family that I would never have known if I'd not had CH. It's all in how ya look at it :)

Cat

Title: Re: CatLind (DHE this weekend)
Post by Big Dan on Jun 30^th, 2004, 9:58pm

Quote:

Ah well, I'll find the magic bullet, I know it's out there

You're fuckeneh right it is. Too bad more people don't have the spirit you have, Cat...

... if one only found their relief during the final minutes of their natural life, it'd be worth the wait....

-Big Dan