Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2004 Posts >> From a friend, food for thought
        
(Message started by: thomas on Jun 24^th, 2004, 2:55pm)

Title: From a friend, food for thought
Post by thomas on Jun 24^th, 2004, 2:55pm

on 06/24/04 at 14:27:43, wrote:

All of you provide support, love, information and such insight into this rare and horrific condition, your love and support at times, unconditional, the struggle is too see the abuse of that priviledge... the welcoming of all, the support of all, underlying is deceit, deception and manipulation by some to join, whether it is by means of their own despair, loneliness or misdiagnosis, I struggle in seeing this abuse of your love and frienship daily....

Title: Re: From a friend, food for thought
Post by Jeepgun on Jun 24^th, 2004, 3:40pm

I don't understand the comment about deceit, deception, and manipulation. What's that all about?

Title: Re: From a friend, food for thought
Post by Gator on Jun 24^th, 2004, 3:51pm

Does this friend go on to say what if anything we should do about it?

Misdiagnosed people are one thing. We do a pretty darn good job of correcting misinformation. Most people, when they realize they have been misdiagnosed, either by themselves or by a doctor, move on to a place better suited to their needs.

For these people who are lonely and/or in despair, what could we do about it? What would we really want to do? Anyone of moderate intelligence can read the plethora of information available here and "Fake it," though some are better at it than others. People have a strong need to belong to and be accepted by a group. Hell, that's one reason why we are here and why it feels so good when we find this place. Some people are so lonely in their lives, either due to shyness or actual dejection, that they will pretend to be something they are not in order to gain acceptance from a group - any group. The internet makes this much easier, since there is no face to face contact. I realize this is not the "Cluster Headaches and Lonely Hearts Club." The question is, what harm do they actually do, versus the good we do by giving them that acceptance and thereby keeping them from possibly sinking deeper into their despair.

Gator
Or do we hunt them down and kill them? ;;D

Title: Re: From a friend, food for thought
Post by thomas on Jun 24^th, 2004, 3:57pm

Hey, it's food for thought, I have my own opinion on what the statement is worth, I think it has merit. You may not, do with it what you will.

Title: Re: From a friend, food for thought
Post by Rock_Lobster on Jun 24^th, 2004, 3:58pm

Areway ouyay ayingsay atthay onnyjay isway akingfay itway?

Title: Re: From a friend, food for thought
Post by jonny on Jun 24^th, 2004, 4:01pm

on 06/24/04 at 15:51:20, Gator wrote:

The question is, what harm do they actually do

Hmmmm, Maybe start giving med advice about something they know nothing about to newbies that dont know any better?

...........................jonny

Title: Re: From a friend, food for thought
Post by thomas on Jun 24^th, 2004, 4:01pm

on 06/24/04 at 15:58:59, Rock_Lobster wrote:

Areway ouyay ayingsay atthay onnyjay isway akingfay itway?

He's gonna kill you, dude. ;)

Title: Re: From a friend, food for thought
Post by Jeepgun on Jun 24^th, 2004, 4:02pm

Shit... You mean there are people here who don't have cluster headaches, or aren't supporters of clusterheads? [smiley=huh.gif]

I must be naive or something... :-[

Title: Re: From a friend, food for thought
Post by don on Jun 24^th, 2004, 4:05pm

Quote:

Hmmmm, Maybe start giving med advice about something they know nothing about to newbies that dont know any better?

That is one issue that me and the tatooed brother will always be on the same page about

Title: Re: From a friend, food for thought
Post by Prense on Jun 24^th, 2004, 4:07pm

[quote author=Jeepgun link=board=general;num=1088103351;start=0#7 date=06/24/04 at 16:02:38]Shit... You mean there are people here who don't have cluster headaches, or aren't supporters of clusterheads? [smiley=huh.gif]

I must be naive or something... :-[/quote]

I wouldn't doubt it, but I wont lose any sleep over it.

Chris

Title: Re: From a friend, food for thought
Post by Rock_Lobster on Jun 24^th, 2004, 4:09pm

My wife has a semi-friend with Munchausen Syndrome.
Different rare disease every 6 months, though no obvious outward symptoms aside from whining.
Had two major house fires in the past 20 months.
You know the story.

Title: Re: From a friend, food for thought
Post by Gator on Jun 24^th, 2004, 4:10pm

on 06/24/04 at 16:01:10, jonny wrote:

Hmmmm, Maybe start giving med advice about something they know nothing about to newbies that dont know any better?

...........................jonny

Point taken. While I would hope they wouldn't, I'm sure they are doing so even as we speak.

Gator

Title: Re: From a friend, food for thought
Post by kissmyglass on Jun 24^th, 2004, 4:12pm

Imagine how f_cked up someone has to be to fake being a Clusterhead? I say hunt them down & kill em

Does Jonny read pig latin?? ;;D

K

Title: Re: From a friend, food for thought
Post by Gator on Jun 24^th, 2004, 4:17pm

on 06/24/04 at 16:12:20, kissmyglass wrote:

Imagine how f_cked up someone has to be to fake being a Clusterhead? I say hunt them down & kill em

Does Jonny read pig latin?? ;;D

K

Not yet. This too will angechay. [smiley=worried.gif] LOL Rock!

Gator

Title: Re: From a friend, food for thought
Post by Superpain on Jun 24^th, 2004, 4:25pm

I don't get it. [smiley=huh.gif]

WTF is this conversation about?

Med advise to newbies has been discussed... We're not writing scripts, just discussing things that work...

Quote:

Does that make sense to anyone? Is english the primary language for the person that wrote that? I'm gonna run it through Babblefish and see if that helps...

Clueless... [smiley=huh.gif]

Title: Re: From a friend, food for thought
Post by Rock_Lobster on Jun 24^th, 2004, 4:28pm

on 06/24/04 at 16:12:20, kissmyglass wrote:

Imagine how f_cked up someone has to be to fake being a Clusterhead?

That said, it is pretty easy to fake. Crippling affliction, but you could not pick one off the street unless you had Mel's gift for spotting the droopy eye at 100 meters.

The perfect 'woe is me' malady. By our nature we tend to isolate ourselves when being hammered by one. I can count on one hand the number of people who have seen me get hit hard.

Wrok

Title: Re: From a friend, food for thought
Post by thomas on Jun 24^th, 2004, 4:31pm

This person can speak English quite well.

Title: Re: From a friend, food for thought
Post by jonny on Jun 24^th, 2004, 4:33pm

No, we are not writing scripts, but can you imagine what could happen if someone that we let hang here (That does not have CH or supports) PM's a newbie that is desperate for any relief that they should try another triptan along with the one they are taking?

This newbie will see this person as a regular here and think they know what they are talking about.

.................................jonny

Title: Re: From a friend, food for thought
Post by Superpain on Jun 24^th, 2004, 4:44pm

on 06/24/04 at 16:33:05, jonny wrote:

Well, I agree that would be assinine... Hopefully that doesn't happen much, the person or people involved are smarter than that, or at least the doc doesn't let that happen. So we are in agreement about that...

But this is a secondary conversation....
Could someone please translate the quote? What the fuck does it mean? What is the food for thought? Right now it looks like one of those blended "shakes" they drink on fear factor, full of dog penises and eyeballs and stuff. I don't get it.

Title: Re: From a friend, food for thought
Post by thomas on Jun 24^th, 2004, 4:46pm

If you don't get it, there is no way that I can explain it to you.

Title: Re: From a friend, food for thought
Post by Superpain on Jun 24^th, 2004, 5:00pm

C'mon. Just paraphrase it...
I love making long sentences and using lot's of "...'s", and fancy words, but that quote just makes my brain spin. Simply put, what is the point?

We are some evil cult looking to recruit people hiding our true intentions under the guise of support, love and friendship? And this person is "struggling" with this?

I can very effectively discern even the most subtle nuances of meaning in 17th century poetry, but this quote leaves me feeling ignorant. Is it just that it's taken out of context? Is there some preceding topic or conversation that I missed?

What are your thoughts about this ambiguous topic? Are you in agreement? Is this an attack against you? What's the morale of the story here?

Title: Re: From a friend, food for thought
Post by thomas on Jun 24^th, 2004, 5:06pm

No, you have it all backwards, the person is struggling with those who would take advantage of the love and support that goes on here, under the false pretenses that they are afflicted with this condition. And yes there is more to the conversation, however, I chose not to release this person's identity. Because they said what they said out of love and respect for those here who do support others.

Title: Re: From a friend, food for thought
Post by Rock_Lobster on Jun 24^th, 2004, 5:07pm

http://www.whir.org/images/photos/2003-06-04/thumbs/superpain.jpg

Title: Re: From a friend, food for thought
Post by Superpain on Jun 24^th, 2004, 5:10pm

I see... :D

CH groupies... ::)

Title: Re: From a friend, food for thought
Post by Superpain on Jun 24^th, 2004, 5:15pm

Alright, that's it! The paint can is the last straw! What the hell does that mean? I just had it all figured out and you go throw in a can of paint? WTF!? I'm outta here! >:(
I'm gonna go read some medical abstracts, or maybe learn Chinese, or something not so confusing... :)

Title: Re: From a friend, food for thought
Post by jonny on Jun 24^th, 2004, 5:19pm

on 06/24/04 at 17:10:07, Superpain wrote:

CH groupies... ::)

Yep, and it only takes one of those to think they have read enough to offer advice on meds and get someone killed......No one here that has CH would ever offer advice on meds they have never taken.

............................jonny

Title: Re: From a friend, food for thought
Post by Superpain on Jun 24^th, 2004, 5:23pm

Word... [smiley=hammer.gif]

Title: Re: From a friend, food for thought
Post by thomas on Jun 24^th, 2004, 5:26pm

on 06/24/04 at 17:07:12, Rock_Lobster wrote:

http://www.whir.org/images/photos/2003-06-04/thumbs/superpain.jpg

LMMFAO !!!!!!!!!!!!!! WROCK you rock!

Title: Re: From a friend, food for thought
Post by BlueMeanie on Jun 24^th, 2004, 5:27pm

Doesn't it say on the home page that we are not doctors and only offer our opinions on what works and doesn't work for us ?

Welcoming people who come here saying they have Cluster Headaches is my way of saying to them that yes, I know how they feel and if they are in NEED of support, I am here for them.

In most cases posts say something to the effect to check with your doctor or neuro before trying anything. It is illegal to take ANY prescription drug without a prescription. That is their problem if they choose illegal drugs just because of some interent sight. No doctor is going to prescribe Imitrex or any other triptin without checking their patient first. If they do, who's to blame ?

PF to those who really have Clusters. For those of you that are hiding behind your computer pretending, find another site.

Quote:

I see exactly what you see and read in that. It is some, very beautiful words. And actually, I haven't seen it as well said before in quite that way. Thanks Thomas.

Maybe I don't understand this topic either. Confused ! :o

Title: Re: From a friend, food for thought
Post by E-Double on Jun 24^th, 2004, 5:34pm

As a "newbie"

I gotta tell you that as desperate as we all are I think when you are completely clueless and you really can't get that help right away that is when you are most Susceptible!!

Quote:

"This newbie will see this person as a regular here and think they know what they are talking about.

.................................jonny

Bust my balls for this one but 30 odd posts ago for me I asked about home remedies and did a search... The amonia thing... Could have really fucked my self up!!!!!
But desperate.

Now I am becoming more educated and will continue to educate others properly.

The fact that people are so fucked up is just damn wrong. Behavior change!!! That's my field of expertise.

For those who have sent me on the right path I thank you and for certain not a very nice persons: F U !!

Eric

Title: Re: From a friend, food for thought
Post by BobG on Jun 24^th, 2004, 5:38pm

on 06/24/04 at 17:07:12, Rock_Lobster wrote:

http://www.whir.org/images/photos/2003-06-04/thumbs/superpain.jpg

It is whitewash or just another obstacle to trip over in our path the health and eternal salvation? ::)

Dang! I don't know nothing. [smiley=huh.gif]

Title: Re: From a friend, food for thought
Post by Superpain on Jun 24^th, 2004, 5:38pm

http://www.moviewavs.com/cgi-bin/spark.cgi?Episode_206_The_Mexican_Staring_Frog_Of_Southern_Sri_Lanka=206_beavers.wav

Title: Re: From a friend, food for thought
Post by Prense on Jun 24^th, 2004, 6:31pm

I have no reason to doubt any member of this board... Until someone gives me a reason, I'll remain this way. Even if I suspected someone as an "imposter", there is not a damn way I could know for sure. Why worry about things you cannot control?? Along the same lines, why worry about the "what ifs"? I got enough to do trying to live my own life. I damn sure am not about to try to live someone else's.

If you are an "imposter" reading this, I really don't give a shit; unless I find out...

Chris

Title: Re: From a friend, food for thought
Post by Kevin_M on Jun 24^th, 2004, 6:54pm

Thomas,

Quote:

Hey, it's food for thought, I have my own opinion on what the statement is worth, I think it has merit. You may not, do with it what you will.

I see exactly what you see and read in that. It is some, very beautiful words. And actually, I haven't seen it as well said before in quite that way. Thanks Thomas.

Takes one to know one Thomas. ;)

Kevin M