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        New Message Board Archives >> 2004 Posts >> Zomig Nasal Trials at NECH
        
(Message started by: Roxy on Jun 22^nd, 2004, 10:07pm)

Title: Zomig Nasal Trials at NECH
Post by Roxy on Jun 22^nd, 2004, 10:07pm

The New England Center for Headache asked that I post this on the board. Please call them if you are in the area and in cycle.

June 22, 2004

We have received final approval and medications for the Cluster Nasal spray study and are ready to enroll patients. The New England Center for Headache located in Stamford, CT is now accepting calls and will start screening possible candidates. If you live within the CT/Metro area and would like to participate, please call Lori, Lisa or GeorgeAnn at 203-322-2748 Monday through Thursday.

You can either have chronic or episodic (please be in cycle) to enroll. You will be required to make 2 visits to our Center and will treat 3 cluster headaches.

So for more information call Lori, Lisa or GeorgeAnn at 203-322-2748.

Title: Re: Zomig Nasal Trials at NECH
Post by Woobie on Jun 23^rd, 2004, 1:37am

Wish we lived closer........

BUMP

Title: Re: Zomig Nasal Trials at NECH
Post by Kevin_M on Jun 23^rd, 2004, 1:46am

Not in my NECH of the woods either.

the NECHID truth

Kevin M

Title: Re: Zomig Nasal Trials at NECH
Post by thomas on Jun 23^rd, 2004, 10:10am

bump. Thankx Roxy.

Title: Re: Zomig Nasal Trials at NECH
Post by kissmyglass on Jun 23^rd, 2004, 4:04pm

Hey T, Are you going to be in the study??

K

Title: Re: Zomig Nasal Trials at NECH
Post by kissmyglass on Jun 24^th, 2004, 12:10pm

Just talked to Lori and will meet with her on the 30th @ the NECH.....I'll keep ya posted...

Kev

Title: Re: Zomig Nasal Trials at NECH
Post by BlueMeanie on Jun 24^th, 2004, 12:33pm

Great job Roxy getting this all set up for us.

Wish I lived closer too. Hope there are enough clusterheads participating. That'll be great when this med gets added to the list.

Title: Re: Zomig Nasal Trials at NECH
Post by jonny on Jun 24^th, 2004, 6:40pm

on 06/22/04 at 22:07:14, Roxy wrote:

(please be in cycle) to enroll.

No thanks ;;D

...............................jonny

Title: Re: Zomig Nasal Trials at NECH
Post by Roxy on Jun 24^th, 2004, 9:20pm

on 06/23/04 at 16:04:57, kissmyglass wrote:

Hey T, Are you going to be in the study??

I'm going to see if they'll let me Kev. I'll have to fly in for the visits, and I'm not sure I can always fly in when they need me to. Going to have to talk this over with Lori.

But, if I can't.....it's really going to piss me off. We need this med listed as a ch treatment.

T ;;D

Title: Re: Zomig Nasal Trials at NECH
Post by thomas on Jun 25^th, 2004, 8:59am

on 06/23/04 at 16:04:57, kissmyglass wrote:

Hey T, Are you going to be in the study??

K

Not in the area and not in cycle. ;;D

Title: Re: Zomig Nasal Trials at NECH
Post by Ree on Jun 26^th, 2004, 9:34am

WooooooooooooooHoooooooooo Thomas good for you...

Great study Rox... wrong year for us though Dave is in remission ... He is having another surgery though this time on his shoulder... pray hard that the anesthesia doesnt trigger a cycle........love to you Ree

Title: Re: Zomig Nasal Trials at NECH
Post by Mr. Happy on Jun 29^th, 2004, 11:32pm

Out of all the THOUSANDS of folks that pass thru here, it's sort of inconceivable that we can't come up with a couple dozen unrepentant sinners to try free snorts of the Nectar of the Gods, and thus further our cause.

Why ain't I surprised,
RJ

http://drfeller.com/despair/achievement.jpeg

Title: Re: Zomig Nasal Trials at NECH
Post by thomas on Jun 30^th, 2004, 12:20pm

on 06/29/04 at 23:32:50, Mr. Happy wrote:

Dude, if I was in cycle, I'd be there, no matter where "there" was, to participate.

Title: Re: Zomig Nasal Trials at NECH
Post by kissmyglass on Jul 5^th, 2004, 2:03pm

Met with Lori on the 30th..The trial is underway, I'm test subject #01. Had to fill out papers with Lori & answer some questions, than an EKG, then Dr. Volcy gave me a pretty thorough neurological exam. Then they gave me the nasal sprays & I was on my way. Took about an hour. Quick & painless. They need more people so please do whatever you can & try to call Lori.

Kev

Title: Re: Zomig Nasal Trials at NECH
Post by Roxy on Jul 8^th, 2004, 12:48am

Way to go Kev.....I'm so glad you've signed up. I owe you a big smack....( :-* this kind, not a [smiley=hewey.gif] kind ).

I spoke with Dr. Ninan Mathew of the Houston Headache Clinic last week. The are signing people up for their trial beginning this week. If anyone is interested, call Paula at 713-528-1916 (they also have an office in Dallas, for those that are too far from Houston).

Thanks again big guy,
T

Title: Re: Zomig Nasal Trials at NECH
Post by Samantha_Smith on Jul 11^th, 2004, 10:24pm

My neuro is at Spaulding Rehab Hospital in Boston. I think he mentioned that a Zomig trial was happening there also. Am I right? Did anyone hear this? Just wondering..... Thanks. Samantha

Title: Re: Zomig Nasal Trials at NECH
Post by Mr. Happy on Jul 13^th, 2004, 4:05am

Sam,

If in doubt, drop a note to Kev. He's a total racist sexist white male pig, but he speaks English and can give you a 25 words or less answer. We need to provide 20+ warm bodies for these trials (per testing site), or all is for naught. It has to do with shitting, or getting off of Pot......or some damned thing.

One Man's Opinion,
RJ
(What the heck was I doing awake at 5:05 AM?)

Title: Re: Zomig Nasal Trials at NECH
Post by Roxy on Jul 23^rd, 2004, 8:27pm

Lori reminded us at the convention that they still needed a good number of ch patients to sign up. She said the trial will be ongoing, as long as six months.

If you aren't in cycle now.....but will be in the next six months or so.....please call them.

We need to supply the people for this trial. Lets help OUCH all we can.

Title: Re: Zomig Nasal Trials at NECH
Post by cbolony on Jul 24^th, 2004, 6:05am

Tracy started tuesday :)

Title: Re: Zomig Nasal Trials at NECH
Post by Tom K on Sep 4^th, 2004, 2:41am

Anyone know if there are trials going on in the Chicago area?

Title: Re: Zomig Nasal Trials at NECH
Post by catlind on Sep 4^th, 2004, 8:48am

Sorry Tom, as far as I know the trials are in Connecticut, Philadelphia, Houston and Scottsdale AZ.

If you are interested and have the means to travel to one of these locations I would suggest you contact Lori Choyce to discuss your options.

Cat

Title: Re: Zomig Nasal Trials at NECH
Post by Tom K on Sep 4^th, 2004, 8:50am

NP, just my luck...I go into cycle and want to try the Mig NS, and can't get to where it is at...kinda funny...the Beast know's all >:(

Title: Re: Zomig Nasal Trials at NECH
Post by Bec on Sep 4^th, 2004, 2:55pm

Tom,
You can get your Dr. to write the RX for you, you just wont be part of the study.

Title: that's one small snort for mankind
Post by rumplestiltskin on Sep 23^rd, 2004, 9:58am

OK....I start the trial in Houston Monday. Thanks Roxy.

Good grief
den

Title: Re: Zomig Nasal Trials at NECH
Post by Jim R on Sep 23^rd, 2004, 9:26pm

Hi all,

I've just tried this... It is faster acting than Amerge, but still took half an hour to kick in, but then worked well. My new neuro has given me two trials o Imitrex, something everybody else said I couldn't take due to family history ofheart diease - she said there was really no differnece in risk - if I ahd taken Amerge and Zomig, there souldn;t be a problem with Imitrex. So, I'll let you know how the trex works when I try it....

Jim R

Title: Re: Zomig Nasal Trials at NECH
Post by athos on Sep 28^th, 2004, 4:03am

I had heard that there was going to be a trial in the Mayo in AZ with Dr. DoDick..... did that happen or will it happen?

I wouldl ike to follow up with him.. He was the doc that diagnosed me a few years back... i would like to see him again.

Title: Re: Zomig Nasal Trials at NECH
Post by catlind on Sep 28^th, 2004, 7:42am

Ken the contact number for the other sites used to be listed on the OUCH site, if not go ahead and call and see if they are taking patients. Last I had heard only Jefferson didn't have their study up and running yet.

Cat

Title: Re: Zomig Nasal Trials at NECH
Post by athos on Sep 28^th, 2004, 11:48am

i would not dare actually participate in the study, I am allergic to Triptans, they make me stop breathing. I would like to see how things are going though.

--Ken

Title: Re: Zomig Nasal Trials at NECH
Post by Judo_Tom on Oct 7^th, 2004, 12:26pm

does anyone know who i can call about the trials in philly. if they are still goingon i would love to be a part of it

thanks

Title: Re: Zomig Nasal Trials at NECH
Post by Lizzie2 on Oct 8^th, 2004, 1:23am

Tom,

They actually haven't started in Philly yet, but hopefully they will be soon. I will get you the contact info as soon as they say they are ready to recruit some more people! I'm in contact with Jefferson frequently to help recruit for cluster studies both to help out Jefferson and on behalf of OUCH! :)

Carrie

Title: Re: Zomig Nasal Trials at NECH
Post by Judo_Tom on Oct 8^th, 2004, 8:48am

Great Thanks Lizzie!!!

If you hear of anything in the philly area please let me know.

Title: Re: Zomig Nasal Trials at NECH
Post by sevlow on Nov 7^th, 2004, 8:59pm

My Neuro gave me two sample shots of Zomig (along with three other samples of different things) when I met him for the first time last week. Took a shot of it a couple of days ago. Dried my throat out and left a really funky taste, but aborted within minutes from KIP 7-8 to near nothing.

Title: Re: Zomig Nasal Trials at NECH
Post by JenniferD on Nov 17^th, 2004, 4:51pm

In cycle and nowhere near a trial. Figures. But those of you who are participating.....thank you, thank you, thank you, thank you, thank you and thank you.

And by the way: Thank You.

You all are our Champions and we are with you in spirit.