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Title: Advice please!!!!!!!!!! Help & Thanks Post by E-Double on Jun 13th, 2004, 11:13pm Going through a doozy right now!!!!!! Have my first Dr. appt. tomorrow but right now I'm in agony! Advice please. Pacing not helping. No heat! no steam! not pressure! anything I can do without meds????????? I have vicadins for my back but I don't want to pass out only to get an even worse rebound! Thanks so much Eric |
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Title: Re: Advice please!!!!!!!!!! Help & Thanks Post by Charlie on Jun 14th, 2004, 12:25am Sorry you're getting hit. One thing that has worked for some is fairly violent exercise. It draws blood away from the head. Cold water or anything that requires more circulation has helped. So has this technique: Dr. Wright’s Circulatory Technique; What follows is a technique learned from a neurologist: I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. It can described as a conscious circulatory flexing. Increased circulation will result in a reddening and warming of the hands. Try to think of it as filling your hands with redirected blood. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice. I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain. Perhaps it will help if you think of it as trying to fill the arm as if it is were an empty vessel. I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working. This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance. I hope this technique is helpful and I wish you the best of luck Charlie |
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Title: Re: Advice please!!!!!!!!!! Help & Thanks Post by OneEyeBlind on Jun 14th, 2004, 12:42am Charlie is right. I do jumping jacks like crazy when in cycle. Also, if hot does not work for you, try cold. Icy cold. Hope that helps and gets ya through the night ! |
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Title: Re: Advice please!!!!!!!!!! Help & Thanks Post by ave on Jun 14th, 2004, 3:50am Try this: go to the OUCH site (button on the left). In the Navigation bar press cluster help. In the drop down menu there is a list of nonmedical home remedies that have at some time helped some people, if not to kill the pain, at least to help you cope. And (otc) pain killers do not help at all, is the experience of most of us here. Alternatively, try oxygen. Go to your local fire station,. explain you need oxygen FAST, with a preferably non-rebreather mask and at 10-15 liters p.m. Check the button Oxygen info left of this board. Good luck |
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Title: Re: Advice please!!!!!!!!!! Help & Thanks Post by Jeepgun on Jun 14th, 2004, 1:06pm I have an inversion table. Trust me, whatever method you try, do NOT, I repeat DO NOT try turning yourself upside down! >:( :'( :o ;;D |
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Title: Re: Advice please!!!!!!!!!! Help & Thanks Post by Luke63 on Jun 14th, 2004, 1:23pm A frozen bag of peas on the face helps a little...not much....work it from the face to the back of the neck.... |
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Title: Re: Advice please!!!!!!!!!! Help & Thanks Post by byron_clusterhead on Jun 15th, 2004, 2:12pm hiya me new here nice 2 meet ya ice bag helps slow ur breathin down deep breaths and most important clear ya head of all toughts when ya no they cumin take ur meds asap glgl all hope ya ave pfd's tc |
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Title: Re: Advice please!!!!!!!!!! Help & Thanks Post by cootie on Jun 16th, 2004, 12:10am shew betcha it was a rough one...hope ya made it thru it ok and get some meds that work to have on hand available when needed from the doc........good luck........painful Pammie Hi Byron................welcome to ya.............. |
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