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        New Message Board Archives >> 2004 Posts >> Letter to family and friends of ch'ers
        
(Message started by: Roxy on Jun 13^th, 2004, 12:48pm)

Title: Letter to family and friends of ch'ers
Post by Roxy on Jun 13^th, 2004, 12:48pm

I'm not sure if the information about the new collegues letter on the OUCH site has ever been posted here.....but it is an excellent letter.

My husband always carried around a stack of Simon's letter off the UK website to hand out to people when they asked about my head, now he prints off this one. He thought it was much better than trying to explain about ch's. He lets them read, and then answers any questions they have. In this way, he hopes the letter gets spread around a little bit, and helps more people become aware of our affliction.

This new letter (based on Simon's) is wonderful. There isn't any way to bookmark the site, it goes into download when you click on it.

If you go to the OUCH website http://www.clusterheadaches.org/, click on OUCH on the navigation bar, you will get a drop down menu. Click on Colleagues Letter.

Just print that off, and let your family and friends read it....it might help.

T...... :)

Title: Re: Letter to family and friends of ch'ers
Post by JDH on Jun 13^th, 2004, 1:34pm

Yep, IMO that's the best description there is.
I've given it to family, friends and coworkers.

Jim

Title: Re: Letter to family and friends of ch'ers
Post by Gator on Jun 14^th, 2004, 3:43am

I've sent this, well actually the Simon letter, to all my family and friends and even to my supervisor and my hr department at work. It seemed to bring a little understanding to my condition.

Try this link to go straight to it:

http://www.clusterheadaches.org/Cluster%20Headache%20Syndrome.doc

Title: Re: Letter to family and friends of ch'ers
Post by totka on Jun 14^th, 2004, 4:37am

Excellent explanation. I'm translating it for our website. Steve

Title: Re: Letter to family and friends of ch'ers
Post by Jeepgun on Jun 14^th, 2004, 10:08am

*printing* Thank you!

Title: Re: Letter to family and friends of ch'ers
Post by Leesa on Jun 14^th, 2004, 9:44pm

BTDT one step a head of the game!! Printed this off as soon as Simon told Dave about it!! Been several yrs. ago. Its an awesome letter!!
Leesa ;;D