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        New Message Board Archives >> 2004 Posts >> Woo Hoo Neuro Appt finally - Monday the 14th 
        
(Message started by: Tiannia on Jun 7^th, 2004, 1:26pm)

Title: Woo Hoo Neuro Appt finally - Monday the 14th
Post by Tiannia on Jun 7^th, 2004, 1:26pm

I finally got my appointment with the Neuro. It is Monday the 14th at 1:30. They are right up the street so the drive will be short. Hoping that I will get right in as my appointment is right after he gets back from lunch.

Maybe I can talk him into treating these rather then, docs just trying to mask it.

Although I have to admit that I am a little nervous. I'm always so afraid when I see a new doc that they are not going to help me or listen to me. Or just make it worse. But I will do my best to be positive. ;)

PF Wishes Clusterville -
-Tia

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by thomas on Jun 7^th, 2004, 1:32pm

Go in armed and prepared, girl. Hopefully this neuro can help.

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by Filbert on Jun 7^th, 2004, 1:35pm

Good luck with the neuro appointment Tiannia!! I know what you mean about getting nervous I used to get in a complete tangle and never said what I quite wanted to ::) In the end I wrote all the key points I wanted to make on a bit of paper-made me look a bit stupid but who bloody cares if you get what you want. I was quite happy to look like a nob as long as I got the right meds!!

All the best Filbert.

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by broomhilda on Jun 7^th, 2004, 1:35pm

Whoo hoo!!! :D Great news Tia, like Thomas said go in armed and dangerous that will empower you so much more!!!!

Please let us know how it goes and best of luck to you!!!!

Andrea

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by UN_SOLVED on Jun 7^th, 2004, 2:05pm

on 06/07/04 at 13:32:20, thomas wrote:

Go in armed and prepared, girl. Hopefully this neuro can help.

Ditto. Let this neuro know that you are well educated about CH and won't except a half-ass treatment !
Goodluck
Unsolved

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by Jeepgun on Jun 7^th, 2004, 2:46pm

Tiannia, good luck. When I went to see my GP, I printed off the study by the two physicians in the UK, and then went through and highlighted my own signs and symptoms, and highlighted the effective treatments for cluster headaches. This impressed my physician enough so that she actually read it, and we were able to design a course of treatment. Again, I wish you the very best of luck. Vaya con Dios, mi amiguita. :)

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by echo on Jun 7^th, 2004, 2:59pm

Always better to come across as the knowledgeable active participant rather than the passive spectator when it comes to your treatment for CH.

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by Luke63 on Jun 7^th, 2004, 3:04pm

Good luck and lots of vibes!!!

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by Tiannia on Jun 7^th, 2004, 4:05pm

on 06/07/04 at 14:05:12, UN_SOLVED wrote:

Ditto. Let this neuro know that you are well educated about CH and won't except a half-ass treatment !
Goodluck
Unsolved

I will hun. I just hate the fact that the last set of docs I had where wishy washy on my disgnosis so I will have to head with that. But I would still get the "weel you'ra a women" line from timet o time. I m hoping that that never somes out of this mount.

I plan on priting up everything. and having it all in a folder to hand to him. His copies at least. I always keep a copy myself. I guess a good sign is that he does not book himself up 3 months in advance. The nuse said that he always leaves appointments open for people who call like me.

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by Cerberus on Jun 7^th, 2004, 9:04pm

Since my diagnosis, I have found it to be rater helpfull to offer a new physician a set of easy choices in the interest of making my treatment as effective as possible for the both of us....keeping in mind of course that making the wrong choices will invoke the disclaimer...

Disclaimer:
Ignorance or Refusal to listen to the patient can result in serious bodily injury including but not limited to: disorientation, ear pain, eye pain, loss of voice, numbness or soreness in the extremities, hair loss, rash, headache, nausea, vomiting, stiff or swollen joints, erectile dysfunction, loss of motor function, dizziness, nervousness, difficulty sleeping, difficulty urinating or swallowing, uncontrollable shaking of the limbs, loss of appetite, heart palpitations or murmers, heartburn, ulcers, loss of vision, loss of hearing, spastic colon, or sudden and immediate death.
If you should experience any of these symptoms and they do not subside or remain persistant, please refer to the instructions given to you and contact your patient immediately. Abuse of this patient may hinder or impair your ability to operate heavy machinery or drive a car, please be sure of how this treatment effects you before you attempt to do so. Avoid taking with alcohol, As with any other treatment, check with your patient first if you think you may be pregnant or nursing a baby.

Now Doc.... Cake or Death? ;;D ;;D

Good Luck Tia!

Ramon

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by Charlie on Jun 7^th, 2004, 9:05pm

Good luck and I hope you'll be able to get in when you want from now on. These guys can be strange but very good too.

Don't forget to let him know that you know WTF this is and isn't.

Charlie

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by OneEyeBlind on Jun 8^th, 2004, 4:01am

Good luck Tia ! I took the "cluster head quiz" questions with me along with my answers. I also took my headache diary !

Armed and dangerous is always a good way to go !

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by Gator on Jun 8^th, 2004, 11:58am

Good luck Tiannia. I hope all goes well for you.

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by Tiannia on Jun 14^th, 2004, 2:26pm

ok I am all set and ready for my 1:30 apt. Got everything printed out and have made a copy of my HA journal so that he can see the frequency of the hits. After 11 months I am ready for a break. Wish me luck. I will let you all know what happens.

Sort of wish I could see him now, as I have shadows from hell. Would like to be able to walk in with a screamer just so they dont think I am bullshitting them.

PF Wishes my friends.
-Tia

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by Jeepgun on Jun 14^th, 2004, 2:49pm

Very best wishes. I dearly hope your neurologist is receptive.

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by Superpain on Jun 14^th, 2004, 2:50pm

Just drink a glass of red wine before you go in. :P

Title: Re: Woo Hoo Neuro Appt finally - Monday the 14th
Post by Tiannia on Jun 14^th, 2004, 3:06pm

on 06/14/04 at 14:50:07, Superpain wrote:

Just drink a glass of red wine before you go in. :P

Sure I have a bottle chilling at my desk at work. ;;D

Actually I am just hoping to get off inderal on verap and on O2. If I can get those 3 things to happen I will be a happy camper.