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        New Message Board Archives >> 2004 Posts >> clusters and chemo
        
(Message started by: janet on May 8^th, 2004, 3:19pm)

Title: clusters and chemo
Post by janet on May 8^th, 2004, 3:19pm

I am 61 years old....was in remission for 18 years from clusters following menopause....in December I had mastectomy, and in February started chemo...clusters returned in April....anyone else have experience of clusters following chemo? Thanks for your help. Janet

Title: Re: clusters and chemo
Post by bobkip on May 8^th, 2004, 3:29pm

Sorry to hear the beast has returned but you've come to the right place. No, I've never been on chemo. Good luck to ya.
Kip

Title: Re: clusters and chemo
Post by Svenn on May 8^th, 2004, 6:26pm

Hi there

As far as i know there is 2 major things with cluster

PAIN and a lot of IF`s and maybe`s

Here in Norway i have some 30 clusterheads on my memberlisst here.From those 30+ members there are around 20 that was diagnosed back in the late 86/87.

We have always asked ourself if this "outbreak"of cluster here can have something with the downfall-area for the Tjernobyl reactor disaster in 86.

A lot of places in the south,east middle of Norway was in the area from that downfall-shit

Seems that those that suppose to know eather cant or wont give us any answer on that ?

Another thing you should remember is that the human body have this strange and irrasionell way to react to chemical`s what so ever so its just plain impossible to give you an answer that you can relate too.

Im so sorry that i can`t give you any help here ,but i`m so glad you found us.You are among the best of friends here that are trying to help you in any way they can

The word friends is to cheap,we are just FAMILY plain and simple

The very best from Svenn

Title: Re: clusters and chemo
Post by BobG on May 8^th, 2004, 7:13pm

As far as I know, and I don't know much, nitroglycerin (sp?) is the only chemical that will trigger a clusterheadache even in those people that are not in a cycle.

Is nitroglycerin part of your chemo treatment?

18 years pain free and now this. It totally sux.

Title: Re: clusters and chemo
Post by Svenn on May 9^th, 2004, 3:57am

They use nitro here in Norway to diagnose Cluster.
My neuro tells me that is the easyest way

Svenn

Title: Re: clusters and chemo
Post by OneEyeBlind on May 9^th, 2004, 6:41am

Janet, sorry I can't help. Don't know anyone that has had clusters triggered by chemo. But I do send lots of healing vibes your way !!!!!!!!