Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2004 Posts >> Fighting for sleep
        
(Message started by: Carl_D on May 2^nd, 2004, 3:01am)

Title: Fighting for sleep
Post by Carl_D on May 2^nd, 2004, 3:01am

The fricken beast is keeping me from getting normal sleep, but hey, what's new? I get my 'Trex refilled Monday, and not a day too soon either. One thing I have been trying is, since I am getting attacks on the left side, is when I lie down, instead of lying flat on my back I lie on my right side. Seems to work for awhile, until I wake up reaching for the 'Trex with another attack.
I have to call this week to find out if the fricken Neuro's office ever got the written referral from my GP so I can get a damn appointment. I swear people in the medical system drag thier asses. I'm just hoping this hack can do something for me, as opposed to the last Neuro who just shrugged his shoulders with an "I dunno" answer to every question. Sometimes think I'd be better off seeing Dr. Krevorkian.

Peace,
Carl D

Title: Re: Fighting for sleep
Post by wsnyder on May 2^nd, 2004, 9:08am

Have you tried sleeping in a chair? I did this last cycle and it really helped. I slept in my home "office" chair for about 7 weeks with my O2 tank by my side. It cut down on the number of attacks during the night and when they awakened me the tank was there for the instant gas-up I needed. I got more sleep than I would have going back and forth to bed, I think. I pulled out a desk drawer and placed a gardening knee pad on it for a foot rest. It wasn't great, but I know I got more rest than I ever had before during a bad cycle.

Bill

Title: Re: Fighting for sleep
Post by miapet on May 2^nd, 2004, 11:17am

Hang in there Carl .. .and ride the gp's butt about getting what you need . . .do it like: where are we in the process? what can i do to help expidite this? and call daily . . .I know it's a pain . . but it works.
As for sleep .. . D has worn out more glider-rockers . . . but, he could at least get some rest . . .Maybe try leaning forward, with pillows for supports?
*positive light & energy*
miapet

Title: Re: Fighting for sleep
Post by Svenn on May 2^nd, 2004, 3:46pm

Hi there amigo

Verapamil Retard 120mgX5-7/daily during cycle
Oxygene alone at 10ltm for at least 15 minutes on a nonbreathermask or combined with imitrex-shots does miracles.The shots should start working in 6-9minutes.a few seconds after that you are almost painfree
Prednisolone in high doze for 10 days 80mg
then over a 3 weeks periode step down like 60-40-30-20-10-5mg every 3dh day
Tapering down the verap im on full dozage 7 days after my last hit,then over the next 5 weeks im down to 1/daily.
after 1 week on Verap retard 120mgX1 and still no hits i can quit that to

The very best from Svenn

Title: Re: Fighting for sleep
Post by Charlie on May 2^nd, 2004, 5:45pm

Damn Carl.

All I had was my recliner but I got some good sleep that way. One less each night as a rule. Of course it was probably my Martha Stewart videos that did the trick. ::)

Charlie