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Title: There is a defenitive cause Post by toddlouky on Apr 27th, 2004, 12:19am I dont accept the offerings of doctors and sufferers that this is a random phenomenom. All CH sufferers have something in common other than the obvious. EVERYTHING happens for a reason, a specific reason, perhaps to complex to understand, or perhaps so simple as a behavioral or environmental characteristic. Thanks everyone for the welcome. I came to the site last year during a cycle. Funny how I only come back twice a year, if that. I want to get answers, to help myself, and help everyone else. |
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Title: Re: There is a defenitive cause Post by BlueMeanie on Apr 27th, 2004, 12:29am Sorry but if you can find a definitive cause please let us know. There have been more guesses & theories on this site than you could ever imagine. No-one has came up with anything that makes since yet. |
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Title: Re: There is a defenitive cause Post by Kevin_M on Apr 27th, 2004, 12:45am on 04/27/04 at 00:19:49, toddlouky wrote:
If you can uncover some some simple behavioral aspect we may all have let me know. I can't seem to find any behavioral common denominator amongst the variety of ramblings posted on even one single thread. :o Environmental characterics, I'll bet not all of us recycle. Although if you want to see a common behavioral thread in a common environment, come to Nashville. Welcome aboard, the oars have handles. Check the OUCH board too. Kevin M *edit* I must have missed Blue Meanie at the school of random phenomenality, but I think we both attended. |
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Title: Re: There is a defenitive cause Post by Big Dan on Apr 27th, 2004, 1:14am Why not 'Addictive Personalities'?... An assload of us smoke.. and assload of us drink... -Big Dan |
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Title: Re: There is a defenitive cause Post by Racer1_NC on Apr 27th, 2004, 1:19am I for one feel there has to be a definitive cause that can be identified. Now as to what the hell it is or when it will be found, I have no idea. We may have to wait to see Dr. McCoy on the Enterprise in order to find out. Bill |
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Title: Re: There is a defenitive cause Post by Kevin_M on Apr 27th, 2004, 1:25am on 04/27/04 at 01:19:34, Racer1_NC wrote:
"Bones!!?? "Damn it Jim, I'm only a doctor!" |
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Title: Re: There is a defenitive cause Post by Linda_Howell on Apr 27th, 2004, 1:47am Beam me up Scottie.... Quote:
[smiley=ohjez.gif] Linda |
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Title: Re: There is a defenitive cause Post by sandie99 on Apr 27th, 2004, 6:00am How about the study made in London? About all clusterheads having weird brain cells in the area of hypothalamus? (Well, my brain will be scanned tomorrow so I'll see once for all if I have some!). best wishes & Pfdays! sandie99 |
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Title: Re: There is a defenitive cause Post by BobG on Apr 27th, 2004, 11:14am Something we have in common? on 04/27/04 at 01:14:47, Big Dan wrote:
I've been preaching this for years now.............. But, nobody ever listens to me anyway. 8) Stay stressed. ::) |
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Title: Re: There is a defenitive cause Post by UN_SOLVED on Apr 27th, 2004, 11:17am Let us know when you figure it out. Unsolved |
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Title: Re: There is a defenitive cause Post by Redd715 on Apr 27th, 2004, 11:32am on 04/27/04 at 01:14:47, Big Dan wrote:
But what about the people who have never smoked nor drank that are afflicted? It blows that "one common cause" clear outta the water". My father smoked like a chiminy and drank like it was water and never had so much as a freaking hang over...let alone CH and it was the booze that finally took his mind and life. No I don't think we can use tobacco and alcohol as causes, but they may aggrivate an already underlying problem. Just my probably illogical [smiley=twocents.gif]. |
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Title: Re: There is a defenitive cause Post by floridian on Apr 27th, 2004, 11:45am Well, random is an interesting idea. My crypto/math friends spend a lot of time debating randomness - does it exist, can it be detected. I am going on the assumption that there are causes, but the causes may be different for different people. And it is complex. One problem with cluster headaches is that it is so 'rare' - and/or poorly diagnosed. Its relatively hard to do a study on CH compared to many other diseases. The disease also has irregular patterns over time - this makes the research very 'noisy' from a statistical standpoint. Was this medicine somewhat helpful or was it just the end of the cycle? Hard to tell without lots of subjects. Genetics play a role. But I don't think it isn't a simple dominant or recessive gene. I think there are several genes, and a person has to get two (or three?) to be a clusterhead. Maybe getting the genes is not enough to guarantee being a cluster head - it may just make us susceptible. Most people are not born with CH - they develop it, and it comes and goes. So something environmental is also likely. Injuries to the head, sinus problems and crappy dental work may play a role. Not sure. Diet? No agreement, not much research. I think it may aggravate or trigger, but is not the cause. Lots of people disagree with me. Caffeine and nicotine might play a role in causing the disease, or it may be the other way around - it may be that our genetic condition affects the neurotransmitters and makes us more susceptible to addiction. Alcohol can trigger when we are susceptible, but for episodics, alcohol is no problem out of cycle. Serotonin disorders are strongly implicated - triptans (5ht1 drugs) abort headaches quickly. 5ht2 drugs (psilocybin, etc) seem to prevent the headaches. Melatonin (a serotonin derivative) is messed up in clusterheads (episodics show low melatonin year round) and taking melatonin helps many people. Heart disease is a more common multivariable disease. Genetics, diet, vices, exercise, injury, stress, etc etc all affect the heart. Sometimes when a person gets heart disease you can pinpoint the one prime cause. Other times, you can't. |
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Title: Re: There is a defenitive cause Post by BobG on Apr 27th, 2004, 11:45am on 04/27/04 at 11:32:48, Redd715 wrote:
I don't think Big Dan meant smoking and drinking were "causes" of clusters. He was referring to toddloudky's "perhaps so simple as a behavioral or environmental characteristic." Addictive doesn't have to mean a bad habit like smoking. Do you feel you must check in at this site each day, or many times a day? Addicted to it? Or maybe you must read the news paper with your morning coffee. Lots of addictions and habits we all seem to have. But none of them cause clusters. Just seems to be a fairly common personnality trait here. The cause is a broken hypothalawhatevermus. |
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Title: Re: There is a defenitive cause Post by Redd715 on Apr 27th, 2004, 11:53am on 04/27/04 at 11:45:49, BobG wrote:
Good freeking..... anyway... Yeah I know. At least that is the latest research and it is as close as anyone has come to a logical answer. All I was saying about the high numbers of us taht do smoke and/or do enjoy a drink...that these substances may aggrivate that area of the hypothalawhatevermus that is "broken". Redd/Pegg in an overly anylitical mood this morning. PF for 3 days now but still sleep deprived. Or maybe I'm just depraved I don't know...ROFLMFAO. |
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Title: Re: There is a defenitive cause Post by john123 on Apr 27th, 2004, 12:53pm I used to think that way, but the folks on this board have enlightened me. If there is one definitive thing about CH it is the pain that results, tracing back from that you have a commonality in the specific nerves that are affected. But I am willing to bet that if you trace back much further, it splinters into many things. Just MHO. John |
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Title: Re: There is a defenitive cause Post by Big Dan on Apr 27th, 2004, 1:11pm Hmpf... I don't see the glass half empty, or half full... it's got some effing water in it, and that's all that matters... I've got episodic CH, and I've learned to deal with it in my own way.... I’m not so optimistic that there will ever be a cure, but I’m not so pessimistic that I think the rest of my life is going to be ruined by it... -Big Dan |
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Title: Re: There is a defenitive cause Post by echo on Apr 27th, 2004, 1:15pm on 04/27/04 at 13:11:44, Big Dan wrote:
But ----- Is the water pure? Is it from a spring fed mountain stream? That is what truly matters in the greater skeem of things. Aye captain, the anti-matter matters as well. |
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