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        New Message Board Archives >> 2004 Posts >> Please read: Christopher, honorary Clusterhead
        
(Message started by: ClusterChuck on Apr 15th, 2004, 8:41pm)
Title: Please read: Christopher, honorary Clusterhead
Post by ClusterChuck on Apr 15th, 2004, 8:41pm
This following email is from our Honorary Clusterhead's family.  Please send a card to our dear Christopher.  Let's inundate him with cards!  Please do it NOW, don't put it off!  His address is:
Christopher Smith
1003 Dellville Road
Duncannon, PA 17020

Here is the email that was sent out:



Quote:
A Card Shower!
For: Chris, age 16, and his family, Dad and Mom; Chris and Marianne,    brother and sister; Adam, and Kaitie.
Reason: Chris was diagnosed with Ewings Sarcoma, a form of bone cancer, eight months ago. Chris has fought a hard battle, but the doctors have given up. Chris was recently informed that he had now only three to six months to live. Will you take time out of your busy life and send a card to Chris? It will be greatly appreciated.
When: As soon as possible

For more information contact one of the following:
              Tabitha- Hisdaugher1986@aol.com
              Megan- megafry87@yahoo.com    
              Ashley-  JoyJoy1687@yahoo.com
              Jess-     giantsnjunipers@pa.net
              Caiti -   pocho2628@hotmail.com
              Amy -    myredeemerlives4@hotmail.com
              Dani-    mwsfan86@hotmail.com


Note: Please pass this one to anyone who you think would like to bless the Smiths by sending them a card. If you are interested please e-mail me back @ kidfarm@pa.net or JoyJoy1687@yahoo.com, and i will send you a reply letter...Thanks so much!
REMEBER: this card shower is a surprise, do not e-mail this to the smiths...thanks..Ashley


Thank you fellow family members!

Chuck
Title: Re: Please read: Christopher, honorary Clusterhead
Post by BobG on Apr 15th, 2004, 8:54pm
Damn I hate messages like this. It make it hard to see the keyboard with moisture on my glasses.

Thanks for the message Chuck.

Consider a card sent.
Title: Re: Please read: Christopher, honorary Clusterhead
Post by kimh on Apr 15th, 2004, 8:56pm
Thanks for puttin that out Chuck - it's important.
Title: Re: Please read: Christopher, honorary Clusterhead
Post by cootie on Apr 15th, 2004, 9:33pm
Good job Chuck........he's well worth it !! Pam that is grateful to of at least known of this wonderful kid
Title: Re: Please read: Christopher, honorary Clusterhead
Post by wsnyder on Apr 15th, 2004, 9:59pm
Could somebody give some of us thoroughly dedicated newbies some background about this, please.

Bill
Title: Re: Please read: Christopher, honorary Clusterhead
Post by Cathi04 on Apr 15th, 2004, 10:10pm
Bill...and all that are new and dedicated..

Christopher is  the nephew of one of our Clusterheads....Clusterville has "adopted ' him, so to speak, as he fights this.....
The rest is pretty well explained in the post Chuck put up.
My card is in the morning mail...
cathi
Title: Re: Please read: Christopher, honorary Clusterhead
Post by BobG on Apr 15th, 2004, 10:12pm
Hey Bill,
Go back to page 3 of these General posts, scroll down close to the bottom and look for a message titled Honorary Clusterhead Christopher.
hat's the best I can do right now. I can't remember where the 1st string is or when.
Title: Re: Please read: Christopher, honorary Clusterhead
Post by wsnyder on Apr 15th, 2004, 10:17pm
My nephew married a beautiful woman last summer with Ewings Sarcoma. She was only in her mid-20s. She wasn't with us for Christmas. She faught a mighty battle.

Bill

PS: Cathi,  BobG, and ClusterChuck, thanks!
Title: Re: Please read: Christopher, honorary Clusterhead
Post by ClusterChuck on Apr 15th, 2004, 10:18pm
Bill, and all newbies ... The following is an update that I posted in the beginning of April.  

Also, our King, Jonny, declared him an honorary clusterhead back in October or November.  A certificate was made up and sent to him in late November.  He REALLY got a kick out of it.  He treasures his mail that he gets from his cluster buddies.  This is the link to see the certificate (thanks Michelle): http://www.maplefallswebdesign.com/misc/christopher.htm


Quote:
Hopefully most of you remember our Honorary Clusterhead, Christopher, who is OneEyeBlind’s (Nancy) nephew.

For the newbies that don’t know him, let me give you a quick summary.  Christopher is a charming, gregarious, joyous 16 year old lad.  He had cancer many years ago that caused him to loose one leg.  He then went into remission for many years.  Ah, the joy of those years!  He never let his missing leg get him or those around him, down, or slow him down.  Unfortunately, cancer returned last year.  He has a cancer on his lungs, and another one in his brain.  He went in for treatment, again.  He went through some VERY rough times.  He had many problems, and downslides.  The radiation and chemo helped the one in his brain, after some very bad times.  Unfortunately, the growth on his lungs did not get better.  Through most of it, he kept a great outlook, and faith in his God that there was some sort of plan here.  Then they discovered more cancer in his stomach area, on his spine, and other areas.  He was told that they could prolong his life, but did not think they could cure him.

Well, at this point, he made a decision that he does not want to go through any more chemo.  He realized what his life would be like, and has now made that decision.  I, and his family fully support his decision.  It is his life, he has the right to make that choice.

So now he is getting radiation to try to keep him out of pain.  He had to go in for surgery to remove the growth on his spin, as it had paralyzed him from the waist down.  They had to install a feeding tube a couple months ago, to maintain his body as well as possible.  That is still there and in use.

The doctors have given him 3 to 6 months to live.  He is at home, most of the time.  They are working hard to give him some dignity for the end of his short life, and keep him as pain free as possible.  For a lot of the time, he still has his charming and upbeat personality and outlook.  He and his family have accepted the future.  They are at peace with his decision.  It is now just a matter of time, and just keep him as comfortable as possible.

I just wanted to pass the above on to our cluster family.  I know many of you have prayed for him, and sent cards letters, and Christmas gifts.  Let’s keep our prayers for him and his family, and accept his decision.  The Lord has his reasons for this to happen, and we will never really know what those reasons are.  I have accepted it, and very much respect Christopher’s decision.  I regret that I will never get to meet this wonderful person.

And here I thought I had problems.

Humbled Chuck


Hope this gives you an idea as to who he is.  He has worked his way into most of our hearts with the courage and determination that he has shown.  Please send him a card, and put on it, somewhere, Clusterhead or Clusterbuddy, so that he knows it comes from his ch family.

Thanks,
Chuck
Title: Re: Please read: Christopher, honorary Clusterhead
Post by Linda_Howell on Apr 15th, 2004, 11:21pm

Another card will be in the mail tomorrow.  I will try not to have tears all over it.


LindaH
Title: Re: Please read: Christopher, honorary Clusterhead
Post by ChrisUhl on Apr 16th, 2004, 3:41am
This young lad is about to get himself a cross-atlantic post card. Fighting a battle as tough as this at such young age is an inspiration to us all. Escpecially since he's been able to keep his spirit high.

Prayers and postcards from Denmark.

Christian

PS. Prayers for the familiy as well. No parents should endure such pain. It's just not fair.
Title: Re: Please read: Christopher, honorary Clusterhead
Post by suzy617 on Apr 16th, 2004, 4:39am
Thanks Chuck.  The card is on its way.  I am at a loss for words at the moment.

Suzy
Title: Re: Please read: Christopher, honorary Clusterhead
Post by Svenn on Apr 16th, 2004, 5:10am
on its way with a lot of  wibes

thnx Chuck

Svenn
Title: Re: Please read: Christopher, honorary Clusterhead
Post by Turts on Apr 16th, 2004, 5:25am
1 card cover in aussie postage stamps on its way.


Turts
Title: Re: Please read: Christopher, honorary Clusterhead
Post by Little Deb on Apr 16th, 2004, 9:57am
Thanks for posting this Chuck.  So sorry to hear the news though.  I will pick up a card when I am out today.

Can we get this post pinned at the top for awhile????

Bill, sorry to hear about your nephew's wife as well.

prayers out to Christopher and family.....Little Deb :'(
Title: Re: Please read: Christopher, honorary Clusterhead
Post by 9erfan on Apr 16th, 2004, 11:55am
Thanks for updating us Chuck.  I will get a card today.  :'(
Title: Re: Please read: Christopher, honorary Clusterhead
Post by Gator on Apr 16th, 2004, 2:01pm
[smiley=thumb.gif]  Done!

Gator
Title: Re: Please read: Christopher, honorary Clusterhead
Post by ZAIRA on Apr 16th, 2004, 3:36pm

Already done!

Why so much suffering? Why to the good people?
Hey God, are you there?
PLS, help him!

Thanks Chuck!  :'(
Title: Re: Please read: Christopher, honorary Clusterhead
Post by Cathi04 on Apr 16th, 2004, 6:16pm
Headed-for-the-weekend BUMP
Title: Re: Please read: Christopher, honorary Clusterhead
Post by Charlie on Apr 16th, 2004, 6:54pm
On its way tomorrow and a nice idea for a tough kid who needs one hell of a break.

Charlie
Title: Re: Please read: Christopher, honorary Clusterhead
Post by Kevin_M on Apr 16th, 2004, 7:44pm
I seem always hesitant about cards for some situations being I am so awkward with words for Christopher.  He will get a big beautiful card though.  Honorary Clusterhead fighting the bravest fight.  

Still no words

Kevin M
Title: Re: Please read: Christopher, honorary Clusterhead
Post by Mastifflvr28 on Apr 17th, 2004, 11:33pm
a bump and a card out this weekend.
Thanks for all YOU are doing Chuck,
Mast
Title: Re: Please read: Christopher, honorary Clusterhead
Post by Little Deb on Apr 23rd, 2004, 5:35pm
Givin' it a BUMP for the weekend.....


Little Deb
Title: Re: Please read: Christopher, honorary Clusterhead
Post by cootie on Apr 23rd, 2004, 5:46pm
Card bump......I jus picked out a real nice one yesturday at a special store I been wanting to get out too. Will be gettin it in the mail here shortly ! Card nimph Pam
Title: Re: Please read: Christopher, honorary Clusterhead
Post by Little Deb on Apr 24th, 2004, 10:37am
I got a nice note from Christopher's mom.  She was very touched that the prayers and wishes are coming from so far.
Keep up the good work everyone.  

Little Deb
Title: Re: Please read: Christopher, honorary Clusterhead
Post by Callico_Kid on Apr 25th, 2004, 12:24am
One card going out tomorrow.  Will try to get our youth group to send one also.  They have prayed for him.

Jerry
Title: Re: Please read: Christopher, honorary Clusterhead
Post by Little Deb on May 4th, 2004, 1:59pm
Every day brings something more.  Sadness, happiness, loneliness, hope....

we are all busy, preoccupied, excited, curious....

Please take a moment to re-read this thread that Chuck has posted for us.  

As we go on day by day, let us remember that tomorrow is never guaranteed.  Life is not to be taken for granted.

I thought this deserved a BUMP.

Christopher and family, you are in our prayers.

one day at a time...Little Deb


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