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        New Message Board Archives >> 2004 Posts >> CH poll (dont kill me)
        
(Message started by: Leesa on Apr 7^th, 2004, 3:02pm)

Title: CH poll (dont kill me)
Post by Leesa on Apr 7^th, 2004, 3:02pm

How many of you suffer from Migraines as well as CH??
Dave has both and I know of one other person that does also. Just wanted to know. I know this has more then likely been asked before. But please dont kill cuz I asked it again. Thanks
Leesa, whos ducking the arrows as I type this..... ;;D

Title: Re: CH poll (dont kill me)
Post by Opus on Apr 7^th, 2004, 3:03pm

I did, but they are gone now that I found all of food triggers.

Opus/Paul

Title: Re: CH poll (dont kill me)
Post by echo on Apr 7^th, 2004, 3:13pm

I suffer from:

Chronic Clusters

and

SRH

Title: Re: CH poll (dont kill me)
Post by thomas on Apr 7^th, 2004, 3:26pm

I'm not sure, lately I've had some really weird stuff happening with my head, I think I also have cph, and I've been getting this weird headache on the top of my head, they hurt, but I've had ch so long that my pain tolerance is otherworldly to say the least. I don't take anything for them, I think maybe they are tension ha's, but they don't bother me enough to worry. ;;D

Title: Re: CH poll (dont kill me)
Post by floridian on Apr 7^th, 2004, 3:29pm

I get aura, but it never has developed into a migraine. It occurs randomly through the year, or if I over-exert myself. The aura is never connected to clusters either (the beast only visits in the summer).

Title: Re: CH poll (dont kill me)
Post by Lizzie2 on Apr 7^th, 2004, 3:31pm

I have clusters along with New Daily Persistent Headache w/migraine. Had migraine first since I was 8, got NDPH when I was 20, and CH at 22.

Lizzie

Title: Re: CH poll (dont kill me)
Post by Samantha_Smith on Apr 7^th, 2004, 3:31pm

Yes, I get 'em all baby--tension, migraine, and CH. Guess I'm just lucky.

Title: Re: CH poll (dont kill me)
Post by tsayswhy on Apr 7^th, 2004, 3:37pm

Hi Leesa

I suffer both, i get hit with migraines about every other month. But after the pain from CH :'( I never complain about the migraines.

Title: Re: CH poll (dont kill me)
Post by renny on Apr 7^th, 2004, 3:55pm

Leesa, I don't guess I'd know a migraine if I fell over one...I know I've never had a HA last more than 2-3 hours, and I've never vomited from one. So my answer is negative, count me lucky just to have good ole' CH.
karen :)

Title: Re: CH poll (dont kill me)
Post by genss on Apr 7^th, 2004, 4:30pm

I only get migraines when I go for too long without eating and then I drink a lot of caffeine. I've had about 4.

Title: Re: CH poll (dont kill me)
Post by suzy617 on Apr 7^th, 2004, 4:41pm

No migraines for me. Just CH is all.
Oh yea, I also suffer from CRS ;;D

Suzy

Title: Re: CH poll (dont kill me)
Post by john123 on Apr 7^th, 2004, 5:04pm

I am not sure what a migraine would feel like, I assume that means I have not had one.

Title: Re: CH poll (dont kill me)
Post by Rock_Lobster on Apr 7^th, 2004, 5:29pm

Just CH.
Sinus on the CH side just fired up a bit for no good reason... but that fire is easy to put out.

Rock Robsta

Title: Re: CH poll (dont kill me)
Post by Pinkfloyd on Apr 7^th, 2004, 5:35pm

on 04/07/04 at 15:29:21, floridian wrote:

I get aura, but it never has developed into a migraine.

Those ar enormally termed "silent" migaines.

BobW

Title: Re: CH poll (dont kill me)
Post by brain_cramps on Apr 7^th, 2004, 5:40pm

Besides CH, I had never had a headache until a couple weeks ago (unless ya count hangovers ;;D but those are gone).

Caffeine withdrawal headaches for the last couple weeks but after the first few days, they've been a walk in the park. hopefully, they're gone soon.

grant

Title: Re: CH poll (dont kill me)
Post by broomhilda on Apr 7^th, 2004, 6:03pm

ECH here since December 27th 2003, shadows a looming, I get migraines and I get those" honey I have a headache" things too! Not sure what those are called yet?

;;DAndrea

Title: Re: CH poll (dont kill me)
Post by HypnoticFreddy on Apr 7^th, 2004, 9:13pm

I actually get 2-3 textbook migraines per year too.

They only started to happen after I had a photoinduced-seizure from TheSuperMind (a machine that flashes a light at high frequencies and is supposed to do something with your brains alpha waves). That was in 1993.

My parents think that whole incident are the reasons for me having cluster headaches. Not too sure.

At the time, after a battery of tests (EEGs, MRIs, etc.,), the prognosis, "stay away from blinkin lights kid!"

-Freddy

Title: Re: CH poll (dont kill me)
Post by pubgirl on Apr 7^th, 2004, 9:16pm

I get both (CH and "classic" migraine), but have the migraines pretty much under control now

Wendy

Title: Re: CH poll (dont kill me)
Post by ckelly181 on Apr 7^th, 2004, 9:17pm

ECH here, with fairly regular tension headaches, no migraine.

Chris

Title: Re: CH poll (dont kill me)
Post by Karla on Apr 7^th, 2004, 9:27pm

I have cronic ch and yes I get migraines. I used to get aprox 6 a month. But after I had my hysterectomy they slowed down to 1 every 4 or 5 months.

Title: Re: CH poll (dont kill me)
Post by HypnoticFreddy on Apr 7^th, 2004, 9:30pm

I see it sort of has been discussed, but has there been medical evidence of gynecological procedures effecting different headaches?

Interesting.

-Freddy

Title: Re: CH poll (dont kill me)
Post by pubgirl on Apr 7^th, 2004, 9:38pm

Freddy

Migraine in many women is hormone triggered, but before you ask about Ch and hormones, this has been discussed many times before on here

Wendy

Title: Re: CH poll (dont kill me)
Post by Lizzie2 on Apr 7^th, 2004, 9:40pm

on 04/07/04 at 21:30:32, HypnoticFreddy wrote:

I see it sort of has been discussed, but has there been medical evidence of gynecological procedures effecting different headaches?

Interesting.

-Freddy

Freddy, I've heard a variety of answers regarding this issue. I wouldn't think that it would help clusters, but maybe for some people? However, sometimes people do wind up getting them for certain types of migraine. Actually, it is usually that something else goes wrong and they have to do the surgery, and then the migraine is effected by it. Menstrual migraine is the main one I heard could be relieved by the surgery, however some of the people who I know who've had it done said their migraines got worse, and some said they stayed the same. It's always disappointing when that happens when the doc assures them beforehand that this is going to take the migraines away or at least make them a lot less frequent!

I don't think I'll be trying this any time soon...unless I would absolutely have to!

Lizzie :)

Title: Re: CH poll (dont kill me)
Post by rumplestiltskin on Apr 7^th, 2004, 9:42pm

Not me butt G does...she has every kinda headache imaginable. Some 24/7 for weeks...months.

not pretty

den
G's other headache

Title: Re: CH poll (dont kill me)
Post by HypnoticFreddy on Apr 7^th, 2004, 9:47pm

Wow. That is real interesting. Thanks for the info PubGirl and Lizzie. I will look some of this up in the Medical literature tomorrow at work. The body works in mysterious ways.

-Freddy

Title: Re: CH poll (dont kill me)
Post by Melissa on Apr 7^th, 2004, 9:53pm

I got migraines about twice a month until my clusters started at age 16. Since then, they've dwindled down to nothing. Last time I had a migraine was last year, and that was brought on by Frova.

:)mel

Title: Re: CH poll (dont kill me)
Post by no-one on Apr 7^th, 2004, 9:54pm

Hi,
I have cch, migraines and cdh, I've been blessed X3 aren't I lucky

Title: Re: CH poll (dont kill me)
Post by Callico_Kid on Apr 8^th, 2004, 3:53am

I used to get migraines as a kid, morphed into CH in my mid twenties. I occasionally get them now, but usually only in the rare times without CH. I will usually get a migraine if I have gone for more than two days without CH, but the severity is much less than when I was a kid, or my tolerance has gotten greater.

jc

Title: Re: CH poll (dont kill me)
Post by sandie99 on Apr 8^th, 2004, 6:54am

I suffer from both. Migraines all my life, Ch since 2001. They have this deal: only one of them bothers me at the time.

PFDs,
sandie99

Title: Re: CH poll (dont kill me)
Post by deacon on Apr 8^th, 2004, 8:09am

I get both, have had migrains for 30 years and clusters from the early 1990s.

Deacon

Title: Re: CH poll (dont kill me)
Post by Pegase on Apr 8^th, 2004, 10:00am

Well... For my information... besides the time issue... what is the difference between CH and migraine??

Pegase

Title: Re: CH poll (dont kill me)
Post by Leesa on Apr 8^th, 2004, 12:38pm

Pegase, I dont have CH but Dave has both. I just get the Migraines they make me weak, vomit, eyes go blurey, and cant lift my head off the damn pillow. I can be that way for DAYS!!! Longest Ive had was 2 weeks when my oldest 2 kids were little (ages 3 and 4) Ive lost work over it, even a job over it! Cant eat a damn thing, cant even cry cuz it hurts so damn bad I just cant and wont move not even to pee!!!! The only thing that helps me is a DARK room, no noise at all, and something to knock my ass out for a few hours or days. I dont care what pain you suffer CH, migraine, CPH, or any other head ache, its still fucking hurts!!! Pain is PAIN no matter how you look at it!!! But thats just me a little ole Migraine sufferer. Ill go to my corner now. Thank you.
Leesa

Title: Re: CH poll (dont kill me)
Post by miapet on Apr 8^th, 2004, 1:16pm

D wears the triple crown . . .CCH, migraine, and tension . . .

me . . i'm the lucky one . . only migraine and tension *L*

miapet

Title: Re: CH poll (dont kill me)
Post by Big Dan on Apr 9^th, 2004, 10:38pm

I had migraine when I was a young child, up until I turned 14 or so...

... guess the shit mutated....

-Big Dan

Title: Re: CH poll (dont kill me)
Post by jonny on Apr 11^th, 2004, 1:23pm

on 04/08/04 at 10:00:45, Pegase wrote:

Well... For my information... besides the time issue... what is the difference between CH and migraine??

Pegase

Your kidding, right?....Thats a joke, right?

............................jonny

Title: Re: CH poll (dont kill me)
Post by Sean_C on Apr 12^th, 2004, 1:02am

Just Clusters for me Leesa........

PFDAN to all

Sean

Title: Re: CH poll (dont kill me)
Post by bobkip on Apr 12^th, 2004, 3:58am

OKAY, you dead yet?
Kip

Title: Re: CH poll (dont kill me)
Post by stuey on Apr 13^th, 2004, 10:29am

Pegase, migraines last up to three days in some, cause naseau, vomiting in some, some have auras, some people smell things (I smell bleach when I get them), and to me what I've noticed is that I am very sensitive to light and sound. When I have CH attacks I also avoid light and noise but with migraines I remain absolutely still and lie down, while CH you gotta keep moving and pacing which you already know and you curse GOd much more.

Title: Re: CH poll (dont kill me)
Post by wsnyder on Apr 13^th, 2004, 11:18am

ECH only. And that's enough. And that's the truth.

Bill

Title: Re: CH poll (dont kill me)
Post by Drk^Angel on Apr 14^th, 2004, 1:29am

I've had ECH since I was 11, and I've had non-remitting chronic tension type headaches since 13. During my cluster cycles, I sometimes get some migraine-like sysmptoms between attacks, but I don't think I've ever actually had a migraine.

PFDAN.................................... Drk^Angel

Title: Re: CH poll (dont kill me)
Post by Charlie M on Apr 14^th, 2004, 9:02am

I'm happy to say CH is the only one I get. I rarely get headaches or after CH the shadows and tension are a walk in the park

Title: Re: CH poll (dont kill me)
Post by Leesa on Apr 14^th, 2004, 9:07am

Well family thanks for the info. I aint dead!! WOOOOOOHOOOOOO *happy dance* I didnt get hung from the gallows!! I thought I would be hangin after I asked this one. *WHEW* Thanks again family!!
Love to all, Leesa ;;D