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Title: Head check... Post by Mark C on Apr 6th, 2004, 1:48pm So.....how are YOU feeling? CCH or ECH? ME? ECH...pain free since October! |
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Title: Re: Head check... Post by echo on Apr 6th, 2004, 1:51pm Nightly dance on my end. Gotta love it. Shoot me! |
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Title: Re: Head check... Post by Melissa on Apr 6th, 2004, 1:54pm ;;D |
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Title: Re: Head check... Post by JDH on Apr 6th, 2004, 1:57pm ECH and I've been PF since Feb '03!!! with a little maintenance here and there I'm hoping the major battles are ancient history ;) Jim |
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Title: Re: Head check... Post by Luke63 on Apr 6th, 2004, 2:01pm I feel absolutely wonderful until 12:22AM every nite!!!! |
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Title: Re: Head check... Post by ClusterChuck on Apr 6th, 2004, 2:32pm Head check? Ok, last I checked I had two ... Neither one works very well ... The one on my shoulders has CCH, so not much changes there, and let's not go into why the other doesn't work! Chuck |
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Title: Re: Head check... Post by Karla on Apr 6th, 2004, 2:41pm I am cch. I quit taking all meds for my ch 3 weeks ago in an attempts to step out in faith and believe in God for a healing from these curresed attacks. I have been pain free since. This is the longest I have been pain free in 6 years without meds. I don't know if I am just having a little break here before it kicks back in full cycle or if I am turning eposodic or if in fact I am healed. I will take it one day at a time and time will tell. Either way I am gratefull to God for not having to dance or take the heavy narcotics I was on. |
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Title: Re: Head check... Post by brain_cramps on Apr 6th, 2004, 2:46pm ECH and PF since Oct 2002. guess i shouldn't be jinxing myself. :-X grant 8) |
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Title: Re: Head check... Post by thomas on Apr 6th, 2004, 3:14pm Ech, doin' fine ;;D |
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Title: Re: Head check... Post by wsnyder on Apr 6th, 2004, 3:27pm Ech - in cycle since mid-Novemver 2003 - longest cycle I have ever lived through - had several k9s and k10s this time. Very worn out. Am now on the down slope. Have been PF since 6:15 this morning. Slight shadows all day. Bill |
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Title: Re: Head check... Post by Cerberus on Apr 6th, 2004, 3:30pm ECH....Pf since late December '03. And hoping to stay that way... :) Ramon |
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Title: Re: Head check... Post by Linda_Howell on Apr 6th, 2004, 3:34pm If you want to know how my head is, it's been fine for the last hour. Now. ECH ????? Is that some Canadian expression? LindaH |
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Title: Re: Head check... Post by Melissa on Apr 6th, 2004, 3:38pm yes Linda, I'm gonna stick that onto all the ends of my sentences ech. What do you think ech? Sounds like I got a furball ech. |
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Title: Re: Head check... Post by suzy617 on Apr 6th, 2004, 4:10pm ECH and pf since March 12th. :D Suzy |
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Title: Re: Head check... Post by KingOfPain on Apr 6th, 2004, 4:22pm Thanks for asking Mark C. Nice thread. :) |
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Title: Re: Head check... Post by Charlie on Apr 6th, 2004, 5:07pm 13 years this month. Episodic...very so far. Trade ya some for a better brain that I can depend on. Wish I could do it. :-/ Charlie |
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Title: Re: Head check... Post by ckelly181 on Apr 6th, 2004, 5:18pm ECH - PF since November - thank God. Seriously. Chris |
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Title: Re: Head check... Post by Prense on Apr 6th, 2004, 5:42pm CCH...what does PF mean? ;;D I get by just fine... |
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Title: Re: Head check... Post by stevegeebe on Apr 6th, 2004, 5:49pm ECH...drinking beer since end of November. Last year, cycle started at the end of April. That's why I've been drinking beer since the end of November. Steve G |
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Title: Re: Head check... Post by FZfan on Apr 6th, 2004, 5:56pm ECH PF since March 20. Next cycle due...??? my remissions are rather irregular. not unlike my emissions. ;;D Interesting thread. :) |
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Title: Re: Head check... Post by jonny on Apr 6th, 2004, 5:59pm CCH....Drinking beer since 1974 ;;D Better days out weigh the bad ones 4 to 1, maybe even more. .............................jonny |
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Title: Re: Head check... Post by tsayswhy on Apr 6th, 2004, 6:17pm on 04/06/04 at 15:34:26, Linda_Howell wrote:
LIKE YA I AM ECH LIKE YA PF SINCE SEPT. 2003 |
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Title: Re: Head check... Post by cootie on Apr 6th, 2004, 6:31pm I suppose the E ch means eposodic and the c ch means chronic.....ech.......am I rite ? Don't blame me cuz I'm stupid.....jus a supporter and Brad is a-ok for now.....he has nuther year yet and hopein LONGER. Thanks fer askin.........time is tickin away Pam |
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Title: Re: Head check... Post by Kevin_M on Apr 6th, 2004, 6:42pm ECH, ending a sticky bout started last October. Getting to where last seven days only had three hits that required abortives. I think it's just bored with me, I'm too easy. I need a vacation. Kevin M |
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Title: Re: Head check... Post by Roxy on Apr 6th, 2004, 6:45pm on 04/06/04 at 15:34:26, Linda_Howell wrote:
Ain't that the truth, except mine has been good for about three hours now. CCH and thank God alcohol doesn't trigger....... ;;D |
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Title: Re: Head check... Post by andy on Apr 6th, 2004, 6:54pm ECH, PF for 11 months. I still carry my 02 everywhere, its good for hangovers too ;;D ..........andy |
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Title: Re: Head check... Post by Opus on Apr 6th, 2004, 7:04pm CCH, almost a year..... Opus/Paul |
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Title: Re: Head check... Post by fubar on Apr 6th, 2004, 7:11pm ex-CCH. I say ex because I went pain free for more than 3 months. Unfortunately, things are cranking up again and I haven't had any chance to take care of it yet. I'm not worried because I know I can slap this down as soon as I get a night to myself. I guess I would be called episodic now. Never thought *that* would be cool, but it is. -Fu |
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Title: Re: Head check... Post by BobG on Apr 6th, 2004, 7:35pm Still getting the daily shadows that started last November plus 2 or 4 wake-up calls a week. Mostly minor though. |
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Title: Head Lice Check... Post by Mr.Happy on Apr 6th, 2004, 8:02pm ECH.............CH PF for the last 14 months, only 19 months to go til the next Bandito session. No hurry, RJ |
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Title: Re: Head check... Post by bobkip on Apr 6th, 2004, 8:31pm ECH for now, PF for about 5 weeks now. Some shadows now and then but they're a piece of cake. Hopin' for another 2 1/2 year remission like the last one. Kip |
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Title: Re: Head check... Post by Jayne on Apr 6th, 2004, 8:56pm CCH, Pain free since Dec21st thanks to Lithium and verapamil. I can also have a bevvy too. So I am as happy as a pig in poo about this. |
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Title: Re: Head check... Post by Thorns on Apr 6th, 2004, 9:28pm ECH, PF for 10 days thanx to prednisone and verap. Shadows creepn' back though >:( Thorns |
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Title: Re: Head check... Post by Rock_Lobster on Apr 6th, 2004, 9:50pm ECH... PF for *brings up the log* 62 hours...longest since Jan 7th. [smiley=thumb.gif] Just jinxed the crap out of that, huh? So much for the groundhog going back into his burrow for 3 more years. Rocks! |
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Title: Re: Head check... Post by Lizzie2 on Apr 6th, 2004, 11:55pm First CH cycle...started in November...hoping it ends soon! :) |
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Title: Re: Head check... Post by Jimi on Apr 7th, 2004, 12:14am PF since July 2000............... Longest I have ever been. [smiley=wow.gif] |
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Title: Re: Head check... Post by Mac on Apr 7th, 2004, 12:18am CCH. I've been getting hit twice a day for the last 8 days. Is there such a thing as an episodic/chronic? I normally get 5 or 6 a week. |
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Title: Re: Head check... Post by Dave_Emond on Apr 7th, 2004, 2:07am Hmm ... average 4 attacks per every day/night since January 2001. January through March, then again in September average close to 15 attacks? per day/night, can't count them during these times. As we're now in April I'm waiting to go back to "normal" and "only" have about 4 attacks per day/night again. Down to about 10 per over the the last week, so a bit frustrated that's it not dropping quicker as in previous years. But 5 less is a lot less! The thing that really impresses me about this thread is to see so many who are pain free, yet stick around and support everyone! Amazing group we have here! And thanks to those who do that! Dave |
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Title: Re: Head check... Post by sandie99 on Apr 7th, 2004, 5:39am ECH, cycle going on.... :( |
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Title: Re: Head check... Post by genss on Apr 7th, 2004, 4:39pm PF since March. Still recovering from the friggin prednisone. |
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Title: Re: Head check... Post by Gena on Apr 7th, 2004, 4:50pm ECH - [smiley=hammer.gif] |
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Title: Re: Head check... Post by 9erfan on Apr 7th, 2004, 4:51pm CCH, last pain-free day was in February, 2001. |
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Title: Re: Head check... Post by john123 on Apr 7th, 2004, 4:57pm to the chronics, God bless ECH, full blown CH-Free since 1999 believe it or not, before that episode was the last one was 1994 I had episodes at least three times a year from 1986-1994 I am having shadows right now and for the past several weeks |
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Title: Re: Head check... Post by kissmyglass on Apr 7th, 2004, 5:29pm Chronic & lovin Lithium.... Kev |
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Title: Re: Head check... Post by LadyLuv on Apr 7th, 2004, 6:03pm ;)Pain free for two weeks - just got comfortable enough to lay flat in the bed a week ago... Thank God for what ever days I might continue to be pain free... |
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Title: Re: Head check... Post by broomhilda on Apr 7th, 2004, 6:08pm ECH since December 2003! Congrats to all those pain free so nice to see!!!!!!! ;;D |
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Title: Re: Head check... Post by Linda_Howell on Apr 7th, 2004, 6:42pm O.K. See, this is a good test of how comfortable I feel around you guys. I'm actually gonna tell you that I had no idea of what Mark was talking about. ECH? CCH?? Looks like Cootie and I were the only ones that didn't get it. sigh. oh....and CCH LindaH, who has blonde moments more and more frequently these days. |
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Title: Re: Head check... Post by HypnoticFreddy on Apr 7th, 2004, 9:09pm Hi. I am a little mixed-up on the acronyms myself but.... Besides earlier this evening when I felt a strong shadow I have gone a full week PF!!!!!! And it looks like it is because Topamax. -Freddy |
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Title: Re: Head check... Post by Not4Hire on Apr 7th, 2004, 9:48pm ....episodic... PF since...lessee, oh, October 2002... maintenance performed with some random regularity...and a bit of hilarity.... still rowin' and accepting applications.... http://www.clusterheadaches.org/ http://www.clusterheadaches.org/members/cgi-bin/yabb/YaBB.cgi PF allayez..... notfer |
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Title: Re: Head check... Post by Callico_Kid on Apr 8th, 2004, 3:50am CCH and the Verap and Lithium seem to have quit working. Getting hit about 5-6times a night and 2-3 during the day. I also say thanks to those of you who are pf and stay around. You guys are about all that is left holding my sanity together. jc |
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Title: Re: Head check... Post by Kirk on Apr 8th, 2004, 4:15am CCH and still sane [smiley=smokin.gif] TTFN |
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Title: Re: Head check... Post by buckeyescooter on Apr 8th, 2004, 4:28am Started out CCH in my 20's....crossed over to ECH in my 30's....am nearing the end of a cycle that started in January, my first since Summer 2001. That's the longest I've ever gone between cycles. I don't know how I went from chronic to episodic, I do know that I was taking Verapamil, and Lithium when it happened. Chronics define character and courage on a daily basis....at least in my eyes they do. |
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Title: Re: Head check... Post by PittsburghJoe on Apr 8th, 2004, 12:25pm ECH for 20 years, get a cycle about every 18 months. Relative PF for the last week, thanks to verap and melatonin. Some shadows here and there, but those are just an annoyance. Not ready to say this cycle is over yet, though. |
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Title: Re: Head check... Post by ZAIRA on Apr 8th, 2004, 5:08pm CCHandsohappytobe,infactmorehe-shebeats-hurtsme,moreIfeelalive!Whattowantmorefromlife?? ;;D >:( :'( |
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Title: Re: Head check... Post by Tom on Apr 8th, 2004, 6:30pm sorry your friend died... |
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Title: Re: Head check... Post by Gator on Apr 9th, 2004, 11:38am From some of your posts, even the ECH bouts can last for months, so I think it's too soon to tell yet. My first CH bout lasted approximately 6 weeks, then about a 2 week reprieve, then constant background with 3 to 5 major attacks per day since end of January 2004. Been on the edge looking down a few times. My wife and this website are about all that keeps me sane (relatively speaking anyways) Gator |
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