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Title: Honorary Clusterhead Christopher Post by ClusterChuck on Apr 3rd, 2004, 10:43am Hopefully most of you remember our Honorary Clusterhead, Christopher, who is OneEyeBlind’s (Nancy) nephew. For the newbies that don’t know him, let me give you a quick summary. Christopher is a charming, gregarious, joyous 16 year old lad. He had cancer many years ago that caused him to loose one leg. He then went into remission for many years. Ah, the joy of those years! He never let his missing leg get him or those around him, down, or slow him down. Unfortunately, cancer returned last year. He has a cancer on his lungs, and another one in his brain. He went in for treatment, again. He went through some VERY rough times. He had many problems, and downslides. The radiation and chemo helped the one in his brain, after some very bad times. Unfortunately, the growth on his lungs did not get better. Through most of it, he kept a great outlook, and faith in his God that there was some sort of plan here. Then they discovered more cancer in his stomach area, on his spine, and other areas. He was told that they could prolong his life, but did not think they could cure him. Well, at this point, he made a decision that he does not want to go through any more chemo. He realized what his life would be like, and has now made that decision. I, and his family fully support his decision. It is his life, he has the right to make that choice. So now he is getting radiation to try to keep him out of pain. He had to go in for surgery to remove the growth on his spin, as it had paralyzed him from the waist down. They had to install a feeding tube a couple months ago, to maintain his body as well as possible. That is still there and in use. The doctors have given him 3 to 6 months to live. He is at home, most of the time. They are working hard to give him some dignity for the end of his short life, and keep him as pain free as possible. For a lot of the time, he still has his charming and upbeat personality and outlook. He and his family have accepted the future. They are at peace with his decision. It is now just a matter of time, and just keep him as comfortable as possible. I just wanted to pass the above on to our cluster family. I know many of you have prayed for him, and sent cards letters, and Christmas gifts. Let’s keep our prayers for him and his family, and accept his decision. The Lord has his reasons for this to happen, and we will never really know what those reasons are. I have accepted it, and very much respect Christopher’s decision. I regret that I will never get to meet this wonderful person. And here I thought I had problems. Humbled Chuck |
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Title: Re: Honorary Clusterhead Christopher Post by Superpain on Apr 3rd, 2004, 11:32am Fuck... :'( Prayers to Christopher... |
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Title: Re: Honorary Clusterhead Christopher Post by Melissa on Apr 3rd, 2004, 11:40am That poor kid, :'(. I am so sorry this is happening, but I wish him complete pain free time and a load of happiness and peace till the end. prayers goin up... mel |
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Title: Re: Honorary Clusterhead Christopher Post by Luke63 on Apr 3rd, 2004, 11:43am My prayers and support to Christopher and his family. |
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Title: Re: Honorary Clusterhead Christopher Post by pubgirl on Apr 3rd, 2004, 11:51am A brave and amazing kid. I wish I could have met him. I am also sending my prayers and wishes for his family, carers and friends. Particularly one who may not read this :'( Wendy |
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Title: Re: Honorary Clusterhead Christopher Post by Lizzie2 on Apr 3rd, 2004, 12:03pm My prayers continue to be with Christopher and his entire family every day. It makes me so sad to hear stories like this, but he has been such an incredible fighter and so strong through all of this! He deserves every moment of peace and happiness that he can have during his time left. Christopher was right down the hall from my little buddy Jared at Hershey Med Center, and Jared passed away on February 2nd at the age of 9. Going to his funeral was one of the hardest things I've ever done, but these young kids teach us more than anything else ever could. They have taught me to be strong and be thankful for what I have. And to make the most of every day. When Jared passed away, someone said that up in heaven there is a room all blue and white (Penn State colors) where only THON kids (part of a PSU fundraiser that supports Four Diamonds kids and families which Jared was a part of and Christopher is a part of) can play and everyone is happy because there is no more cancer. I have seen that death from cancer is not a defeat. All of these kids have survived and won simply by the strength and fight inside of them. Christopher has won, and he has shown that the cancer does not control him, because he has made his choices, and I believe in him. All the love and thoughts and prayers I have are with him and his family. Love, Lizzie |
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Title: Re: Honorary Clusterhead Christopher Post by cootie on Apr 3rd, 2004, 12:21pm THANKS for the update Chuck...I was wondering how he was doin at this point in his young life. If only miracles could happen I would wish him a long healthy life Pam |
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Title: Re: Honorary Clusterhead Christopher Post by Jackie on Apr 3rd, 2004, 12:32pm Our prayers are with Christopher and his family. Bless all their hearts. Jackie |
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Title: Re: Honorary Clusterhead Christopher Post by bobkip on Apr 3rd, 2004, 1:41pm I feel like the proverbial man who complained that he had no shoes. Kip |
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Title: Re: Honorary Clusterhead Christopher Post by jonny on Apr 3rd, 2004, 1:58pm :'( |
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Title: Re: Honorary Clusterhead Christopher Post by ShariRae on Apr 3rd, 2004, 2:55pm Although Christopher wouldn't want it this way..the tears just keep streaming down my face. I just hope & pray he can be comfortable & not in a great deal of pain. Your decision is indeed a brave one my young friend. Huggs Shari |
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Title: Re: Honorary Clusterhead Christopher Post by suzy617 on Apr 3rd, 2004, 3:52pm Nancy please know that Christopher, you and your family are in my thoughts and prayers. :'( Suzy |
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Title: Re: Honorary Clusterhead Christopher Post by Elaine on Apr 3rd, 2004, 5:16pm I did not want to open this post and skiped around it all day. I am so sorry and I am praying. I know He has chose the way thats right for him and I am glad they are all at peace with it. My prayers never have stopped and they won't for him and his family. |
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Title: Re: Honorary Clusterhead Christopher Post by BobG on Apr 3rd, 2004, 7:27pm I hate to read posts like this. But, at the same time I know it is part of life. Thanks Chuck for posting it. Prayer are being sent from our home to you, Christopher and his family. Now I just have to remember to tell my self each day.... "It's only a headache. It won't kill me. Get over yourself Bob" |
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Title: Re: Honorary Clusterhead Christopher Post by 9erfan on Apr 3rd, 2004, 8:32pm :'( My prayers are with Christopher, Nancy, and the entire family. I don't have the words to say how sorry I am. Virginia |
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Title: Re: Honorary Clusterhead Christopher Post by broomhilda on Apr 3rd, 2004, 10:55pm :'(Chuck, please send my prayers to Christopher and his family and yourself, what a brave and strong young man! Andrea |
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Title: Re: Honorary Clusterhead Christopher Post by Edna on Apr 4th, 2004, 12:41am WOW, what strength young Christopher has. My heart is warmed and I can truly smile inside, though sad, to know Christopher has perhaps lost his battle to conquer cancer, but in doing so will gain something far greater. Truly, God has a special plan for Christopher! My hope is that God grant his family and friends the strength they will continue to need to cope. For Christopher and his family, I continue to pray. Thanks Chuck for passing on the news. EDNA |
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Title: Re: Honorary Clusterhead Christopher Post by Mikey on Apr 4th, 2004, 12:54am Thanks Chuck for informing us of this update. I'm sending more prayers than Christopher, Nancy, and the whole family can handle!!!!! I wish him all pain free time from here on!!! I hope that the Docs are wrong, and he has more quality time left than they think he does! :'( :'(...Humbled Mikey, :'( :'( |
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Title: Re: Honorary Clusterhead Christopher Post by Turts on Apr 4th, 2004, 1:20am :'( |
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Title: Re: Honorary Clusterhead Christopher Post by Charlie on Apr 4th, 2004, 6:39am Christopher has caused a lot of clusterheads to take stock of themselves. It's during that little inward look that we get mad. At least I do at things like this. My best wishes and thanks for the update. Charlie |
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Title: Re: Honorary Clusterhead Christopher Post by Mastifflvr28 on Apr 4th, 2004, 4:18pm Thanks for the update Chucky. Sending up vibes and prayers. Mast http://www.maplefallswebdesign.com/misc/christopher.htm |
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Title: .Re: Honorary Clusterhead Christopher Post by thomas on Apr 5th, 2004, 10:38am Thanks for the update, Chuck........... :'( |
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Title: Re: Honorary Clusterhead Christopher Post by Linda_Howell on Apr 5th, 2004, 11:45am Like Elaine, I skirted around this post for a few days not wanting to open it. Now that I have, all I can do is come up with are expletives, like DAMNIT! [smiley=furious.gif] I know, that helps no one, but my heart just breaks for him and his family. I hope I remember this when I'm feeling so darn sorry for myself. LindaH |
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Title: Re: Honorary Clusterhead Christopher Post by echo on Apr 5th, 2004, 12:30pm I too blew by this thread on several occassions. Sorry that Chris has been dealt this hand. Prayers to Chris, Nancy and family. |
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Title: Re: Honorary Clusterhead Christopher Post by ClusterChuck on Apr 7th, 2004, 11:34pm Michelle, thanks for putting that certificate up for those that never saw it. For those that were not here at the time, by decree of our royal majesty, King Jonny, Christopher was made an honorary Clusterhead. From what I hear, he really got a kick out of that certificate. One was mailed to him while he was in the hospital, during a real rough period. Christopher: God bless you, and I hope you enjoy your Easter gathering with your large family. I think of you constantly, and I am SO impressed with the way you have dealt with this whole episode. You are a hero in my book. Chuck |
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Title: Re: Honorary Clusterhead Christopher Post by Cathi04 on Apr 7th, 2004, 11:42pm Here, Here!!! Standing next to Chuck on this one..... To Nancy, and Red, and Christopher and the entire huge family.....a blessed Easter to you all, and a quiet reminder that miracles happen in so many different ways.....hoping for your miracle, Nan.... Nan....you know I stand close, ready for anything.... Cathi |
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Title: Re: Honorary Clusterhead Christopher Post by CLR on Apr 8th, 2004, 1:43pm Nan and Family are always in my prayers. Chuck, your heart is a big one. Love and peace for all in need. Cindra |
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Title: Re: Honorary Clusterhead Christopher Post by Thorns on Apr 8th, 2004, 2:14pm I hated reading that b/c cancer has taken my mother and I hate to see it take someone so young. I hope and pray that he and his family's suffering is removed with the peace and happiness of knowing that he will soon be in a better place. :) Reading about someone with so much courage when facing so much pain and the realization of the end of their life drawing near really gives me the strength to believe that I can find some way to survive these things (CH). Thorns |
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Title: Re: Honorary Clusterhead Christopher Post by cathy on Apr 8th, 2004, 4:15pm Nancy Christopher has touched the hearts and lives of many, you are all in my thoughts and prayers i'll hug you in June.... Cathy |
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Title: Re: Honorary Clusterhead Christopher Post by ZAIRA on Apr 8th, 2004, 5:12pm We care and always pray to God for Christopher and his family. Zaira |
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