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        New Message Board Archives >> 2004 Posts >> I just had to tell y'all, I cried at the doctors
        
(Message started by: Tiannia on Apr 2^nd, 2004, 10:42pm)

Title: I just had to tell y'all, I cried at the doctors
Post by Tiannia on Apr 2^nd, 2004, 10:42pm

I finally got into see the PCP that Gregg (LasVegas) refered me to. My appt was at 3:30pm. Sat in the waiting room, and kept thinking. "oh God, here I go again. Another doctor that is going to see me for 3 mins and then pat me on the head and say Women cant have clusters." :-/

Well the nurse got me, got my BP and vitals. And actually sat with me for like 15 mins, while I went over everything. When they started all of the meds that I have tried and what has or has not been done. What all the docs have told me or laughed at me, everything. Then she took my hand and said, "Don't worry. You are in the right place."

2 mins later the doctor came in. And then he asked me to go over everything. Describe the headaches. When they hit, all of the physical stuff, how long and all of it. Then we went over meds, doctors, Nerve blocks, Radio frequency, all of it. 30 mins later he says, "Have you seen a neuro?" "No, I cant get a referal." "Well I'm sending you now." And filled out the paperwork right there. Then he filled out for a CAT scan and told me to get my MRI and results from August. Then he told me that he wants me to test for sleep apnea to make sure that I am not triggering the 3am attack because of lack of Oxygen. The took me off the Gabitril and is starting me on Neurontin (100 mg 1 week, 200 mg 1 week, then 400 mg) and Nasonex NS. He is keeping me on the Inderal 80 mg at night because my bp was 160/110. He re took it when we where all done and it was 150/100, but he wants to make sure that it was anxiety driven and not that i have developed high BP.

Then he says ok, I want to see you after you see the Neuro. Then he said that, "You have delt with this long enough without anyone helping you, lets get this under control." That was when I started crying. I was so damn happy to have found a doctor that actually listened to me. I feel like i might actually get my life back. I left at 5pm, so it was a 1 1/2 hour appointment. :D

I just had to say. THANK YOU GREGG. :-* And thank all of Clusterville for telling me to keep looking for a doctor until I found a good one.

Hoping you all have a great PF Weekend.
-Tiannia

Title: Re: I just had to tell y'all, I cried at the docto
Post by Ree on Apr 2^nd, 2004, 10:51pm

You deserve that T good for you... Dave went on Neurontin and thats when he had his first successes fighting CH... good luck and if you have any questions about Neurontin you can ask Dave.........love to you ree

Title: Re: I just had to tell y'all, I cried at the docto
Post by PittsburghJoe on Apr 2^nd, 2004, 10:53pm

Tia, that's beautiful! I just wanna hug you now!

Good luck with the neuro... and this PCP sounds like a real keeper!

Joe

Title: Re: I just had to tell y'all, I cried at the docto
Post by cootie on Apr 2^nd, 2004, 11:17pm

Dam....that is such a great feelin to have a doc you like and one that seems to like you...and listen !!! Good for you !!! Neurotin makes me drunk......I'm onea the "few" that can't take it......I'm of course a supporter and took it for other reasons. Have heard alot of good about it.......wierd Pam drug drunkeness ;)

Title: Re: I just had to tell y'all, I cried at the docto
Post by Melissa on Apr 2^nd, 2004, 11:17pm

Oh Tia!! I teared up when I read you have FINALLY gotten the right help!! I'm soooooooo happy for you!!! [smiley=sayyes.gif] [smiley=thumb.gif] [smiley=hug.gif]

;;Dmel

Title: Re: I just had to tell y'all, I cried at the docto
Post by Kevin_M on Apr 3^rd, 2004, 12:43am

Tia,

Good for you Tia and I am really glad for you.

Better winning bet in Vegas than I've ever made.

Hope the meds work out for you too.

Kevin M

Title: Re: I just had to tell y'all, I cried at the docto
Post by pubgirl on Apr 3^rd, 2004, 12:46am

I'm so happy for you Tia, a doctor that works with you and listens to you is almost everything in the world when you have CH.

Wendy

Title: Re: I just had to tell y'all, I cried at the docto
Post by Superpain on Apr 3^rd, 2004, 2:18am

Coolness! Congrats! Good ch docs are harder to find than well... pretty much anything!

Guess I got lucky. I made my own appt with the neuro and bypassed the regular dumdum doc... :)

Title: Re: I just had to tell y'all, I cried at the docto
Post by helpless23 on Apr 3^rd, 2004, 7:56am

Tia,

I'm so happy for you. I don't post much on the board, but I read it every single day! It's great that you listened to everyone here and never gave up hope, kept fighting and looking and it turned out wonderful for you! There ARE great dr's out there that are so educated about CH - it's just hard and very frustrating to find them sometimes.

I'm glad to hear that you stayed strong and found what you needed!

Good luck!
Hugs,
Much Love,
Toni

Title: Re: I just had to tell y'all, I cried at the docto
Post by Luke63 on Apr 3^rd, 2004, 8:40am

GREAT.........Hugs to you......you do deserve it..now go kill that Fuckin Beast!!!!!! Love ya...Luke

Title: Re: I just had to tell y'all, I cried at the docto
Post by Woobie on Apr 3^rd, 2004, 8:44am

WOO HOO!! Good for you! I know everything will work out and you'll get some PF time!!!

Tina :-*

Title: Re: I just had to tell y'all, I cried at the docto
Post by Pegase on Apr 3^rd, 2004, 9:24am

Im so happy for you Tia... finding a good PCP is great... BTW why did he gave you Nasonex... My PCP gave me the same thing at first bu when i saw my neuro he tols i could stop taking it... Im not even sure why i was taking it?? Doh ;-)

Pegase

Title: Re: I just had to tell y'all, I cried at the docto
Post by ShariRae on Apr 3^rd, 2004, 10:22am

YAYyyyyyyyyyyy Tia.. that is great news! Sounds like you are on the right track...keep us posted...Huggs & Best Wishes
Shari

Title: Re: I just had to tell y'all, I cried at the docto
Post by ZAIRA on Apr 3^rd, 2004, 10:23am

I'm really glad for you, Tia!!!

[smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]

Title: Re: I just had to tell y'all, I cried at the docto
Post by Jeepgun on Apr 3^rd, 2004, 12:59pm

Magnificent, Tia!! Congratulations!! *HUGS!*

-Frank

Title: Re: I just had to tell y'all, I cried at the docto
Post by bobkip on Apr 3^rd, 2004, 1:28pm

Fantastic Tia. Hang onto that PCP unless, of course he'd like to relocate to Florida. lol
Kip

Title: Re: I just had to tell y'all, I cried at the docto
Post by jonny on Apr 3^rd, 2004, 1:46pm

ROCK-N-ROOOOOL!!!!

Thats great news, Tia....With alittle luck and the right med combo you will be able to answer the door when the beast knocks and PUT A BOOT IN HIS ASS!!!!! ;;D

...................jonny

Title: Re: I just had to tell y'all, I cried at the docto
Post by Elaine on Apr 3^rd, 2004, 4:05pm

I am so happy for you. I know those tears!
Sounds like you have a good doctor!

Title: Re: I just had to tell y'all, I cried at the docto
Post by broomhilda on Apr 3^rd, 2004, 6:35pm

Tia, I am soooooo happy for you! Congrats, I cried with you reading your post! Yay!!!!!!!!!

Hugs from Canada!

Andrea

Title: Re: I just had to tell y'all, I cried at the docto
Post by Renee on Apr 3^rd, 2004, 7:47pm

Tia,

Congrats!!!

I hope the Neurontin works on you. I had to go off of it...one of many for me.

Good luck with the neuro and keep us posted!

Hopefully he'll give you a great big suit of armor to kick the beast's ass!

renee

Title: Re: I just had to tell y'all, I cried at the docto
Post by Tiannia on Apr 3^rd, 2004, 11:00pm

on 04/03/04 at 09:24:34, Pegase wrote:

BTW why did he gave you Nasonex... My PCP gave me the same thing at first bu when i saw my neuro he tols i could stop taking it... Im not even sure why i was taking it?? Doh ;-)

Pegase

I'm really not sure. I thing that he is hopeing my clearing my sinuses, it will help. Figure I will try it and we will see. The thing that really surprised me is this. He said "Well night now we have to do a lot of research and it will be a trial and error to see what will work, because each person reacts to meds differently." You know I almost thought he might have actually been here doing some reading. Someone here says that same thing every day.

Thanks guys. I just had to tell you all. At least when I got slammed last night, I could look forward to hoefully not having to deal with this much longer. he he Have to try and stay positive. THat is the hardest part sometimes.

PF Wishes guys.
-Tia

Title: Re: I just had to tell y'all, I cried at the docto
Post by Charlie on Apr 4^th, 2004, 7:14am

http://www.netsync.net/users/charlies/gifs/Smiley Hug Group.gif

As they say: A real keeper. Good for you and great to read something this good here.

Charlie 8) http://www.netsync.net/users/charlies/gifs/PASS OUT SURPRISE.gif

Title: Re: I just had to tell y'all, I cried at the docto
Post by Jeepgun on Apr 7^th, 2004, 9:04am

Tia, I did too. Yesterday, I went to my GP, took the medical printout from the medical info link, hi-lighted my symptoms, hi-lighted Verapamil, injectable Imitrex, and O2 therapy. I was sitting in a chair and my GP was sitting on a stool, just a couple of feet from me. She looked over my chart, looked at the printout that I gave her, and said with a wonderfully compassionate smile, "Okay. I'm willing to work with you on this. Let's knock it out." (I'm welling up with tears all over again as I type this.) I started crying. Not sobbing... Just... My eyes filled up with tears of relief and gratitude, and all I could say was, "Thank you. Thank you..." It felt so good to finally FINALLY talk to someone who was willing to really listen. Maybe I'll buy her a bouquet of flowers or something... I don't think she'd appreciate THIS, [smiley=lick.gif] though. ;;D