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Title: Two new Points to Consider Post by ClusterChuck on Apr 2nd, 2004, 6:06pm On Wednesday of this week, I went to, what I was told, was a headache clinic. That proved to be a false statement. It was just the neurology department at the hospital/university. Over all, it was a wasted trip. There were two points that the neuro brought up that I thought are worth passing on. One is a VERY new treatment that seems to be showing some positive results for the treatment of cluster headaches. It is the Hyperbaric Oxygen Therapy treatment. This is normally used in treating "the bends" (decompression sickness) (a condition caused by rising too fast from great depths of underwater diving). It seems to break the cycle, somehow. It possibly has to do with this quote from science.Howstuffworks.com site: Quote:
She is going to look into it for my treatment. The second interesting observation she stated was this: We were talking about OUCH and ch.com. I told her how often we heard horror stories of being misdiagnosed. She told me that from her experience and observation, it is just the opposite. She sees that it is being OVER diagnosed! She says it seems to be the latest "convenient" handle to put on any odd type headache! Seems to me, we have seen a few come here with what we perceive as being misdiagnosed. Oh well, I just thought I would pass these points across to y'all. Chuck |
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Title: Re: Two new Points to Consider Post by FZfan on Apr 2nd, 2004, 6:19pm Thanks Chuck. Real interesting. Hope you get to try the hyperbaric thingy. I think your doc might have a point on that second item also. I've had the same feeling and I haven't been here that long. Of course, even if that were true, it would still be part of the overall misdiagnosis problem. Seems misdiagnosis can work both ways. |
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Title: Re: Two new Points to Consider Post by Kevin_M on Apr 2nd, 2004, 6:30pm Hyperbaric I think is a lot more expensive. The one by my house says they treat many professional athletes. He mentioned something about going into a separate room or something. I didn't inquire further because it didn't seem what I was looking for at the time. A prescription for that seems would be hard to get. I finally got O2 today. I'm already outdated???? Sounds like something to try, if it happens Chuck, of course you'll let us know. Kevin M |
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Title: Re: Two new Points to Consider Post by Charlie on Apr 2nd, 2004, 6:30pm Quote:
She lives here on earth, right? Where do we write to get her license revoked? She can be counted as one who thinks nothing of her patients and of course assumes we are illiterate as well. http://www.netsync.net/users/charlies/gifs/MAD IGNORE.gif Charlie |
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Title: Re: Two new Points to Consider Post by Luke63 on Apr 2nd, 2004, 6:30pm Sounds goodto me...we can all have a convention in the caribbean......go deep sea diving...get a big banger goin..then get in the decopression cahmber and see if it works [smiley=laugh.gif]...just kidding...very interesting Chuck...gonna check out that site...Luke |
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Title: Re: Two new Points to Consider Post by Luke63 on Apr 2nd, 2004, 6:32pm Im sorry curiosity gets the best of me......Hey FZ...what does FZfan stand for anyhow?...Luke |
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Title: Re: Two new Points to Consider Post by Melissa on Apr 2nd, 2004, 6:32pm A hyperbaric chamber? I wonder if any of us clusterheads have tried that yet... |
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Title: Re: Two new Points to Consider Post by Lizzie2 on Apr 2nd, 2004, 6:40pm It may be just a random bad fact coming from my memory, but aren't there some pretty big risks with using a hyperbaric chamber? Not that big risks haven't been taken before in an attempt to relieve CH. I'd want to look into that some more and try to remember where I heard that from! See, Chucklzz...your visit wasn't a complete waste!! You learned 2 new facts!! Am sorry that it wasn't very useful for you though. :( Hugz, Lizzie :) |
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Title: Re: Two new Points to Consider Post by ClusterChuck on Apr 2nd, 2004, 6:53pm The Hyperbaric Oxygen Therapy is NOT a treatment for home use! (unless you are VERY rich!) (And if you are VERY rich, are you single?) It is a sealed chamber that you lie down in (sort of like an oversized beer can) and they increase the pressure and fill it with pure O2. With the increased pressure and pure O2, it is suppose to get into your system better and cure lots of evils. Try looking here: http://science.howstuffworks.com/framed.htm?parent=question493.htm&url=http://www.woundcare.org/newsvol1n3/ar8a.htm BUT, it is a VERY new application to use it for cluster headaches. There is very little (if anything) written up about it. Chuck |
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Title: Re: Two new Points to Consider Post by pubgirl on Apr 2nd, 2004, 6:58pm Chuck Hiya babe. How are you? Actually I think I agree with her. The most incredibly frustrating feeling I have at the moment is that I believe two things are happening. 1. The crap doctors are still not diagnosing CH correctly, and if they are, are often treating it wrongly. 2. The rest of the crap doctors have now finally heard of CH and are diagnosing almost every unilateral headache as CH. and missing other more treatable headache conditions. Consequently many, many people could be pain free and aren't. Just my opinion, but I see more and more evidence of it here and on OUCH UK Wendy |
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Title: Re: Two new Points to Consider Post by bobkip on Apr 2nd, 2004, 7:08pm Being a former rabid SCUBA diver, I did notice a decrease in beast activity when I was diving a lot locally. Most of the dives we did here were deep (90 to 120 feet) and it's amazing what comes out of your head after one of those dives. Tho not on pure O2, the compression (4+ atmos) might have had something to do with it. Shallower dives did not seem to have any effect. Kip |
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Title: Re: Two new Points to Consider Post by Mr.Happy on Apr 2nd, 2004, 7:10pm The hyper-barbaric O2 thing goes back decades. And maybe 10 years more than that. Our illustrious president (N4H) included MASS Quan-titties of compression chamber info on the O2 info page, but it was vetoed in the name of brevity. If you know a navy seal or two, yer in like Flint. Otherwise, it cost's thousands per treatment (several hours in a torpedo tupe pumped up with canned O2.) Nuthin new under the sun, RJ |
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Title: Re: Two new Points to Consider Post by ClusterChuck on Apr 2nd, 2004, 7:25pm on 04/02/04 at 19:10:02, Mr.Happy wrote:
Damn! I thought it was new, and that is what she told me, too. I had never heard of it. All the other treatments that she talked to me about, I had at least heard of. Not so with this one. Oh well ... But when I heard of it, I thought of Mikey (especially Mikey, with his low blood oxygen saturation), Tim_W, and Zazi, who, like me, are chronic and get hit SO MANY times, that maybe this was something new to try! SHIT! Oh, well, it may still prove worthwhile ... Has anyone heard of any clusterhead that has tried this? And Kip, I am trying to remember if I noticed any difference in my hits when I was into diving, but I only got down to 100 feet, once. Most of my diving was in shallower dives. Very intereseting observation. Anyone else experience this? Chuck |
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Title: Re: Two new Points to Consider Post by Mikey on Apr 2nd, 2004, 7:52pm Chucky, i'm sorry that Baptist Hosp. at Wake Forest Univ. wasn't what you thought it was, or was it Duke Univ-Durham? But UNC-Chaple Hill is! It's a sure fire Headache Clinic headed up by Dr. Alan Finkle, Head of Neurology and the Headache Clinic there. It is a teaching hospital, just like Baptist, or Duke is. Dr. Finkle is my Neuro there. Call me about it Chuck, and i'll explain more to you. If anyone else is interested, it is a pretty decent place to go. I've had some good treatments done to me there, and they are pretty knowledgeable on the entire front of CH, from Diagnosis to treatment. Dr. Finkle is the one who gave me my secound opinion. As for the Chamber, I wonder how it would effect someone like myself who has Hypoxemia ( low blood oxygen level). It would be interesting to find out, cause that's why 02 does nothing for me now. Very interesting info you picked up on Chuckles, never would have thought of trying a Hyper Chamber for CH. Just goes to show ya, ya never know where info will come from, or what strange things that already exist that might be used for the treatment of CH. Mikey, ;;D Modified due to Chucky Boy: You posted as i was writing mine!! I'm slow as hell today anyway, not your fault Bro!! |
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Title: Re: Two new Points to Consider Post by fubar on Apr 2nd, 2004, 8:38pm I am a SCUBA diver and certified rescue diver. I have to admit I've never been hit with CH during a dive. This has always puzzled me since the pressure is so great when you are down deep (60-90ft). I think it's one of the reasons I use pressure so much when I am in pain (squeezing my neck and head, hard) I also agree that it is probably being over-diagnosed these days. It's so unknown, it's an easy out diagnosis. -Fu |
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Title: Re: Two new Points to Consider Post by Mark C on Apr 2nd, 2004, 8:57pm I wonder if it is the same reason O2 works at 12-15lpm in a non-rebreather mask. There is quite a good bit of info, even on the OUCH site! ;;D Thanks Chuck. A controlled study was done with the aim of assessing the efficacy of hyperbaric oxygen (HBO2) in cluster headache and of studying the possible influence of this therapeutic approach on serotonergic pathways. Fourteen patients, aged between 26 and 56 yr, suffering from the chronic form of cluster headache were treated with HBO2 (n = 10) or environmental air (placebo) ( n = 4) during the 15 sessions of exposure (lasting 30 min each) in the hyperbaric chamber. (http://www.clusterheadaches.org/library/serotonin/hyperbaric_O2.htm) In controlled studies,29 30 a single treatment of hyperbaric oxygen therapy, in which the patient is placed in a chamber with highly concentrated oxygen, has been found to help decrease pain and prevent recurrence of cluster episodes in some patients for several days. (http://www.vitacost.com/science/hn/Concern/Cluster_Headache.htm) Those patients who did not find significant relief from normobaric oxygen were given hyperbaric oxygen as above. All nine found significant relief. The results suggest that hyperbaric (but not normobaric) oxygen may be useful in the abortive management of migraine headache. (http://www.strokedoctor.com/hbo22.htm) Hyperbaric oxygen therapy in cluster headache (http://www.richmond-hyperbaric.com/RHHC.studies.Headaches.htm) A patient with severe cluster headaches was treated in a Hperbaric Oxygen chamber on two occasions. Her symptoms had been refractory to other treatment modalities including conventional oxygen therapy. On both occasions her pain was promptly relieved while breathing 100% oxygen at two atmospheres of pressure. This is the first known reported case of a cluster headache treated with hyperbaric oxygen. A prospective study is needed to substantiate the efficacy of this treatment modality for cluster hedaches. (http://www.hbot4u.com/cluster.html) |
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Title: Re: Two new Points to Consider Post by forgetfulnot on Apr 2nd, 2004, 11:40pm Mark, good stuff. I just want to know one thing, how the hell do you get the 2 to drop on O2? That's been bugging the crap out of me. Lee |
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Title: Re: Two new Points to Consider Post by Gator on Apr 3rd, 2004, 2:44am on 04/02/04 at 23:40:01, forgetfulnot wrote:
Just highlight what you want superscript or sunscripted and click the sup or sub buttons to the right of the "Add YABBC tags:" line. O2 O2 |
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Title: Re: Two new Points to Consider Post by Mark C on Apr 3rd, 2004, 11:37pm For more Yabb (Yet another Bulletin Board) stuff visit here (http://www.yabbforum.com/). To view mine or anyone else's source hit the quote button and any "tags" will be revealed. Thanks Gator! Mark |
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Title: Re: Two new Points to Consider Post by HypnoticFreddy on Apr 4th, 2004, 12:19am Hey..if Michael Jackson does it and it makes him look, feel, and act the way he does then I'd surely give it a go! -Freddy |
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Title: Re: Two new Points to Consider Post by jonny on Apr 4th, 2004, 12:54am on 04/04/04 at 00:19:46, HypnoticFreddy wrote:
If thats your thinking you are a sick m*th*rf**k*r. Christ!, how many things can you say that just dont fit to the norm.......Unreal!!!!! ...................................jonny |
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