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Title: What exactly goes on at Conventions? Post by HypnoticFreddy on Apr 1st, 2004, 7:03pm Hi everybody. I am back and.....well, I am back. I just have a simple question. What kinds of activities go on at the CH conventions? -Freddy |
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Title: Re: What exactly goes on at Conventions? Post by FZfan on Apr 1st, 2004, 7:08pm Hey Fred, how's it goin'? Never been to a convention, but I might try to make it to this one - depends on several things. How's the h/a's? |
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Title: Re: What exactly goes on at Conventions? Post by BobG on Apr 1st, 2004, 7:11pm Usually there is (are) speakers with knowledge in the subject of the care and feeding of clusters. Doctors, insurance reps, drug manufacturer reps, etc. And of course there the serious stuff........ Singing and table dancin', fartin', smiling and cryin', porchin', talkin' and listenin', drinkin' and smokin', playing grab-ass, eating, picture takin', wimmin watching, man-baiting..........the list is endless :o |
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Title: Re: What exactly goes on at Conventions? Post by HypnoticFreddy on Apr 1st, 2004, 7:11pm Hi FZfan, I just posted on the Medication Board. The CHs are doing better. From about 2/day to 2 everyother day. I have been on Topamax as a preventative for just over a week. It is working. Side-effects are very tolerable. Yeah, I have been really reading and I am just curious as to what kind of format of activities go on at these conventions. Must be real interesting. -Freddy |
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Title: Re: What exactly goes on at Conventions? Post by jonny on Apr 1st, 2004, 7:45pm on 04/01/04 at 19:11:05, HypnoticFreddy wrote:
Im sorry if this makes you mad, Freddy, but chronics are invited to the convention too :'( ...........................................jonny |
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Title: Re: What exactly goes on at Conventions? Post by HypnoticFreddy on Apr 1st, 2004, 7:48pm Jonny, It doesn't make me mad at all. I am not going to make anything here make me mad anymore. I have read a lot of posts. I see people have a lot of personalities. If I can learn some things that are helpful great! I realize you are very proactive in the CH movement. I didn't realize that before. So, still what goes on? -Fred |
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Title: Re: What exactly goes on at Conventions? Post by jonny on Apr 1st, 2004, 7:52pm on 04/01/04 at 19:48:54, HypnoticFreddy wrote:
Ok, ever meet another clusterhead? Ever meet, 20, 30, 40 or more of them at one time? What more do I need to say? .....................jonny |
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Title: Re: What exactly goes on at Conventions? Post by Luke63 on Apr 1st, 2004, 7:54pm Freddy...Im going....It will be my first time...and I think we owe it to ourselves to go...now get with it...I think we'll loveit!! Luke |
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Title: Re: What exactly goes on at Conventions? Post by HypnoticFreddy on Apr 1st, 2004, 7:56pm No Jonny. I never actually (knowingly) have met any clusterheads face-to-face. I guess that is your message. I used to attend conferences for chemists. Not that they were my type of people but I guess I know what you mean. -Freddy |
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Title: Re: What exactly goes on at Conventions? Post by BlueMeanie on Apr 1st, 2004, 8:42pm on 04/01/04 at 19:03:07, HypnoticFreddy wrote:
Welcome back Freddy. Lots of fun stuff gonna happen. Can't/won't mention it here. If I do they'll have to kill me. Come on and check it out for yourself. |
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Title: Re: What exactly goes on at Conventions? Post by KingOfPain on Apr 1st, 2004, 9:30pm It's Classified. http://headachesupportgroups.com/echat45/spy.gif http://smileys.smileycentral.com/cat/29/29_1_10.gif [smiley=oops.gif] :-X If we told you, http://smileys.smileycentral.com/cat/4/4_11_4.gif we would have to kill you. http://smileys.smileycentral.com/cat/14/14_6_5.gif http://headachesupportgroups.com/echat45/guillotine.gif JUST KIDDING! ;;D |
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Title: Re: What exactly goes on at Conventions? Post by Woobie on Apr 1st, 2004, 9:42pm on 04/01/04 at 19:48:54, HypnoticFreddy wrote:
Good!! on 04/01/04 at 19:48:54, HypnoticFreddy wrote:
LOL - SOME of us have more than others!!! Welcome back!! Glad you're feeling better!!! I've never been to a convention - but I was at DavCon04 - (about 30 people met in Iowa in January) What happened there was a lot of talking, crying, drinking, smoking, laughing, hugging, talking, drinkin, and picture taking. I'm pretty sure if you just add in a couple of speakers about CH... that's what a convention is. I hope I can go. You SHOULD go if you're able. Meeting another clusterhead ... and another supporter is the best. tina :-* |
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Title: Re: What exactly goes on at Conventions? Post by TxBasslady on Apr 1st, 2004, 10:08pm Hey Tina............ I miss my Wooooobbbbie! [smiley=bigcry.gif] Much love..... Jean |
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Title: Re: What exactly goes on at Conventions? Post by Woobie on Apr 1st, 2004, 10:15pm http://www.clusterheadaches.com/public_html/yabbimages/smileys/bigcry.gif http://www.clusterheadaches.com/public_html/yabbimages/smileys/bigcry.gif I miss you too!! Couple of us been discussing DavCon'05. .... Freddy - there's nothing like meeting others.... TRUST ME tina :-* |
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Title: Re: What exactly goes on at Conventions? Post by cootie on Apr 2nd, 2004, 12:01am Well Freddy my first CH convention was in NY......um.......it's not like me to travel 'that' friggin far to meet a bunch of perfect strangers and HOPE we all 'or sum' click or will give me the time of day so I don't feel STUPID.....I don't like feelin stupid and avoid it at all costs. We drove 10 hours to git there too. Welp......we git there and it is INSTANT freindship "all crap aside". Dam......freaked me out cuz I am used to bein in big groups knowin practically everyone. It's very casual.....very comfortable ! We all got settled in and sat on a cabin porch and talked about everything......drank and smoked.....it was halarious with all the jokein and laughin and stories.......real happy stuff ! Sat around BS'n Friday nite then had the doc give the seminar Sat.......which was very interesting. Ate in the resturant and hung out......drank and smoked sum more but ya don't have to do that to fit in. (pop and candy cigs work fine) Had a real nice dinner Sat and they did the awards and door prize deal.....yakked and yukked it up some more.....Sat nite we had a sumwhat jam nite on the porch with guitars and harmomica......if ya play sumthing BRING WHAT YA PLAY. (can ya do that in a hotel ?) Sum did some site seein and golf Sat.......all met later for nuther one on one yak gab joke session. Lotta people got hit and did there thing......we've never seen anyone else go thru that before ....Sunday was laid back. Wasn't a stuffy stuck up deal.......all wallflowers welcome. Jonny got tabbed ! Pam that is lookin fer her plastic jesus (had to be there) Welp that's the convention accordin to the coots in a NUT SHELL from a nut shell ;;D |
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Title: Re: What exactly goes on at Conventions? Post by renny on Apr 2nd, 2004, 12:07am hey Pam....lmao, that was great...I was asked to write about going to Texas M&G for OUCH as newbie, shit you just blew my rough draft outta the water, you hit on EVERYTHING, and I was only there 5 hours ....DAMN, Donna D, use her experience over my lame writing!!! good job there cootie karen, who should be in bed |
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Title: Re: What exactly goes on at Conventions? Post by ClusterChuck on Apr 2nd, 2004, 12:18am Just to add, again, to the same that others have said. There is NOTHING like meeting other Clusterheads! It is something that any Clusterhead or supporter MUST do! Once you have done it, you won't be able to wait till the next get together or convention! To Your Royal Highness, Jonny: Is it time to make a royal decree that ALL clusterheads and supporters MUST attend? Chuck, that is adicted to meeting Clusterheads |
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Title: Re: What exactly goes on at Conventions? Post by Superpain on Apr 2nd, 2004, 12:20am Sitting around watching each other get hit all night sounds like a blast. [smiley=laugh.gif] :( |
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Title: Re: What exactly goes on at Conventions? Post by ClusterChuck on Apr 2nd, 2004, 12:28am I know from experience, it is the ONLY place you can get hit, and everyone will understand, and no one will freek out. If you want company while getting hit, you will have it. If you want to be left alone (that is what I prefer) then you will be left alone. If you run short on O2, it will be taken care of. The love and the vibes that are around when a group of ch'ers get to gether is AWESOME. There is no other word for it. And they must work, as when I was at the two get togethers that I went to, my ch hits were much fewer than normal. It must have been the love and vibes that did it. Chuck |
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Title: Re: What exactly goes on at Conventions? Post by renny on Apr 2nd, 2004, 12:33am PERFECTLY stated, thank you C-Chuck. Am reigning in my feelings, trying to maintain control. LOL karen |
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Title: Re: What exactly goes on at Conventions? Post by DJ on Apr 2nd, 2004, 12:33am on 04/02/04 at 00:20:25, Superpain wrote:
SP, seeing someone else go through the the same pain you're so used to is a life altering experience! It will make you completely understand what your family/supporters feel like. When I saw Elaine go through an attack for the first time, I was overwhelmed. I even called my ex-wife on the phone and apologized to her because I never knew what it was like for her to see me go through that for so many years. Words cannot explain it....... DJ |
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Title: Re: What exactly goes on at Conventions? Post by Callico_Kid on Apr 2nd, 2004, 12:36am Freddy, Glad you are back and that you are reading. If you have been to chemist conventions you have no idea what you are in for. There is absolutely nothing like walking into a room with a bunch of other people who are there only because of a crazy medical condition that no one else understands. When you meet another clusterhead you don't shake hands, you hug. Davcon 04 was like nothing I have ever been to and I was only able to be there for three hours. My wife can tell you that I almost cried all the way home. and for about a week afterward. To meet someone else who understands what it is you go through and CARES will blow you away. To sit talking with a couple of others and get hit with a mild one and be able to try to maintain a conversation without having to excuse yourself and go hide is priceless. I have been hit at church and I get looks of pity and feel like someone in a freak show (my selfconsciousness not their rudeness. they just don;t know how to deal with me) With other clusterheads they just take it in stride and wait for you to get over it. Right now I'm homesick for that bunch and would not trade that experience for any meds the Dr might prescribe. Plan to make the trip. If you don;t like it you don't have to go back next year. Sorry for being so verbose, but I can't help it. Jerry |
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Title: Re: What exactly goes on at Conventions? Post by Superpain on Apr 2nd, 2004, 12:36am I didn't mean anything maliscious by that remark... I truly think it would be an interesting, insightful perspective which I have never had. I've just seen me get hit, and it's fuckin ugly! I'd have to leave, you guys would all make fun of me. :'( I really puss out. All the groaning and screaming and such... But yeah, I bet it'd be easy to get an abortive pretty quick! Wish I could go... Maybe next year. I vote for a winter conference in Scottsdale! |
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Title: Re: What exactly goes on at Conventions? Post by cootie on Apr 2nd, 2004, 12:38am Oh and hey "don't foget".....there's talk of a go cart race somewhere......Brad squeeled like a pig when I told him about that......he said he thinks it'll be a frickin HOOT for everyone to do or jus stand and watch. I'll have to take dramamine to watch cuz I get dizzy takein out the trash ! Us girls can be the CH cheer leaders ! Rah rah siss boom bada-bah Pam |
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Title: Re: What exactly goes on at Conventions? Post by Superpain on Apr 2nd, 2004, 12:40am on 04/02/04 at 00:33:45, DJ wrote:
That's really kind of what I was thinking... I just should've said it better. Didn't mean to get any/everybody fired up. :) My apologies renny... |
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Title: Re: What exactly goes on at Conventions? Post by DJ on Apr 2nd, 2004, 12:46am on 04/02/04 at 00:40:08, Superpain wrote:
You didn't get me "fired up" SP, like I said.... words cannot explain what it's like to feel that instantaneous connection. It really is incredible. DJ |
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Title: Re: What exactly goes on at Conventions? Post by Superpain on Apr 2nd, 2004, 12:50am I have no doubt... BTW, I've never thanked you for the sight. THANKS A MILLION!!! You've done a great thing here. I'd say you have singlehandedly helped more people with these clusters than all the docs we've ever seen put together! Who know's maybe I can pull a wad of cash out of my ass, and try to get some time off and come meet you crazy cluterheads... If not, next year for sure... ;) |
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Title: Re: What exactly goes on at Conventions? Post by ClusterChuck on Apr 2nd, 2004, 12:54am on 04/02/04 at 00:50:57, Superpain wrote:
Glad I don't have to handle that cash! I wonder if that is why some money handlers wear gloves? Chuck |
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Title: Re: What exactly goes on at Conventions? Post by Mastifflvr28 on Apr 2nd, 2004, 1:58am http://www.headachesupportgroups.com/convention02/convention02A.htm http://www.headachesupportgroups.com/convention03/pics/convention2003.htm Not conventions, but some gatherings: http://www.maplefallswebdesign.com/misc/DC/DC.htm http://www.maplefallswebdesign.com/misc/iowa/davenport1.htm http://www.maplefallswebdesign.com/misc/txch/txch.htm Oh...btw words cannot explain... Mast |
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Title: Re: What exactly goes on at Conventions? Post by Charlie on Apr 2nd, 2004, 7:16am Quote:
First afternoon we spend going though mandatory body cavity searches. Hap loves this part. Evening is spent getting to know new members and taking measurements for uniforms. The last Upstate NY Hitler Youth remembrance theme was fun for all and we got our pictures in lots of local papers. On day two, each is expected to demonstrate his or her sex toys and other kinky items brougt along while enjoying this year's theme of famous country music performers relating their drug rehab stories. The late afternoon concludes with the drawing to determine who gets to be hunters and who becomes the hunted in this annual event. Newbies are encouraged as there are fewer participants every year it seems. The day ends with Jonny's yearly auction of his wonderful homemade bondage equipment made in his shop. A catalog should be available soon. If you stick around for a third day you can participate in various medical experiments performed by DJ and his band of merry men and women. The men get that way after the experiments usually. DJ is such a barrel of laughs. Fun is had by all and collections for bail are made and of course the kitchen and dinning room clinics will be free of charge once again. I for one had a wonderful time in 2003 and have more or less recovered. Seriously: It was fun actually and Jonny and DJ are right. I had never met a clusterhead and I saw several people get hit. The reactions are wonderful though. Everyone gets it. Awful to see but how great it is to know that there are scores of clusterheads who know what to do and more importantly: What not to do. It is unique. We had a good talk by a doctor and nurse who study CH and are well-versed in this horror and are truly interested in us and what we have to say. They learned a lot from us and we from them. There was lots of drinking, too much smoking and hours of yakking and fun. The thing I found is that I felt so at home that I nearly forgot what I was there for until I saw some hits. Clusterheads seem to know how to have fun. Just some impressions. Charlie |
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Title: Re: What exactly goes on at Conventions? Post by Elaine on Apr 2nd, 2004, 7:23am There is nothing like meeting another clusterhead. The supporters you meet teach us so much. You have a feeling of belonging and no one is a stranger. The conventions are fun, they are educational, they are heart breking also. You leave with a feeling thats wonderful but sad because you don't want to leave. You come back with a better understanding of what this site and OUCH really means. You truely know everyone is real and every one hurts even the supporters. You walk in a supporters shoe as well as a cluster head. Its WONDERFUL! |
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Title: Re: What exactly goes on at Conventions? Post by Margi on Apr 2nd, 2004, 9:50am on 04/02/04 at 00:33:45, DJ wrote:
Freddy, if you have the chance to go - take it. It truly is a life altering experience meeting other clusterfolk. You really can't describe the feeling. Kinda like meeting folks from your home planet after living with aliens all your life. I guarantee you, you will feel emotions you've never felt before and you WILL hug total strangers, laugh with them as if they're long lost family (they really are) and you'll cry when it's over. Saying goodbye at a convention sucks. Then there's the post-convention blues. The only cure for that is to go to another one! And, SP, if you get hit at a convention - the whole group feels it and will do whatever it takes to help you, even if that means leaving you totally alone and just standing guard at the door. You will have total respect and support like you've never felt before. |
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Title: Re: What exactly goes on at Conventions? Post by stuey on Apr 2nd, 2004, 10:03am Sure makes me wish I could go. Freddy, good to hear you are starting to do better. Be well. |
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Title: Re: What exactly goes on at Conventions? Post by Jeepgun on Apr 2nd, 2004, 10:36am If I can possibly swing it, I am SOOOOO there. :) |
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Title: Re: What exactly goes on at Conventions? Post by cootie on Apr 2nd, 2004, 11:03am I'll bring my spurs and cowboy hat.......jonny will bring the whips for the evening games of cheap thrills on the bar. Hop along Pammie ;;D |
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Title: Re: What exactly goes on at Conventions? Post by Tiannia on Apr 2nd, 2004, 11:33am on 04/02/04 at 00:36:38, Superpain wrote:
If they do hit the desert / west coast, then maybe us and the kids could go. I wish we could be there, I felt so left out after the Iowa M&G. It was amazing to meet Bob, Gregg, Oz and others here in Vegas. I can still hear their voices and the advice they gave. :) It helps so much to know that I was not crazy, that other people can Really understand and not just stare and ... Well you all know what I mean. :-/ -Tia PS... I think it would do my husband so much good to actually meet other people (especially husbands) who are aupporters. It is so hard for him to feel helpless and want nothing more then to find a way to fix it. If for no other reason but that, I wish we could go. |
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Title: Re: What exactly goes on at Conventions? Post by Linda_Howell on Apr 2nd, 2004, 12:04pm Chris, there's no need to apoogize for your remark at all. No one took that wrong. At the last convention in NY I came to the realization that I did indeed need my friends to be there for me during a hit. Who better to get me my meds, get the 02 fixed when it wasn't working right, hold my hand as I was coming down from a "10" and then laugh with afterwards? No one understands us better than US and when I went home and had to get hit alone...I felt cheated. Charlie? I am lmao @ you. LindaH |
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Title: Re: What exactly goes on at Conventions? Post by Woobie on Apr 2nd, 2004, 12:32pm [smiley=bigcry.gif] [smiley=bigcry.gif] [smiley=bigcry.gif] [smiley=bigcry.gif] |
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Title: Re: What exactly goes on at Conventions? Post by Melissa on Apr 2nd, 2004, 12:57pm on 04/02/04 at 12:04:53, Linda_Howell wrote:
Hey Charlie, Linda's laughing AT you, not WITH you.... hehehehehe [smiley=sgrin.gif] |
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Title: Re: What exactly goes on at Conventions? Post by Tim_w on Apr 2nd, 2004, 2:40pm A Convention is Like a family reuion A family that you want to see :-* not one that you have too :-/ Timw Happy Pappy |
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Title: Re: What exactly goes on at Conventions? Post by Superpain on Apr 2nd, 2004, 3:44pm on 04/02/04 at 07:16:58, Charlie wrote:
I was just kidding about pulling the wad of cash from my ass! :o |
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Title: Re: What exactly goes on at Conventions? Post by Luke63 on Apr 2nd, 2004, 4:05pm I mean this in seriuosness..I really do. I want to see someone else get hit..and I want them to invite me to watch..becuase I have never seen anyone but me. I truly believe this will be an experience you will never forget. My cycle is goin strong now....so July(knock-knock on wood) wont be my time...but Im sure I will see plenty. Question.......so best place to stay around the most people will be which hotel? Luke |
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Title: Re: What exactly goes on at Conventions? Post by Melissa on Apr 2nd, 2004, 4:12pm That would probably be the Holiday Inn Nash-Vanderbuilt. The same one that's on the convention sign up page at OUCH. :)mel |
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Title: Re: What exactly goes on at Conventions? Post by jonny on Apr 2nd, 2004, 6:17pm on 04/02/04 at 16:05:28, Luke63 wrote:
Dude, your a sick mother fucker!!!!!! ............................jonny |
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Title: Re: What exactly goes on at Conventions? Post by ClusterChuck on Apr 2nd, 2004, 6:22pm on 04/02/04 at 18:17:07, jonny wrote:
Yeah, he probably is ... but rumor has it, that he DOES have a cute ass! Chuck, the PROvert (a preevert is worse than a pervert, and a PROvert is a professional preevert!) (or at least, according to Paigelle, who says I am a PROvert) |
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Title: Re: What exactly goes on at Conventions? Post by Roxy on Apr 2nd, 2004, 7:11pm on 04/02/04 at 16:05:28, Luke63 wrote:
Take your pick....that would more than likely be me or Linda...... :-/. We seem to make a habit of doing it. |
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Title: Re: What exactly goes on at Conventions? Post by Elaine on Apr 2nd, 2004, 7:24pm Quote:
Now I will laugh all night ! I read this to Buddy and he all excited and ready to go ROTFLMAO |
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Title: Re: What exactly goes on at Conventions? Post by ClusterChuck on Apr 2nd, 2004, 7:32pm on 04/02/04 at 19:24:55, Elaine wrote:
Hmmm .. Elaine, what part did he get the MOST excited about?? BTW, did you tell Buddy he has no choice but to go? He HAS to be there! He has NO CHOICE in the matter! We need to see our buddy Buddy again, damnit! on 04/02/04 at 19:11:55, Roxy wrote:
Unfortunately, Tracy, unless things change, I will probably be right there with you, dancing the day/night away! Chuck |
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Title: Re: What exactly goes on at Conventions? Post by Mikey on Apr 2nd, 2004, 8:15pm on 04/02/04 at 16:05:28, Luke63 wrote:
Dude, let me tell you something damnit!!! I will never just stand and watch another clusterhead get hit EVER! Like Jonny said, that's some fuckin sick shit! What the hell are you on anyway? If you was to watch me get hit, i would probably knock the beast out of you!@*$@!!! Mikey, [smiley=sgrin.gif] |
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Title: Re: What exactly goes on at Conventions? Post by jonny on Apr 2nd, 2004, 8:26pm What got me was "and I want them to invite me to watch" With 99.95% of clusterheads wanting to be alone when they get hit what makes anyone think they will be invited to watch? WTF!!!!!!? ............................jonny |
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Title: Re: What exactly goes on at Conventions? Post by Mikey on Apr 2nd, 2004, 8:33pm BINGO Jonny!!!! My sentiments exactly!! Just to see someone else get hit is one thing, but to watch or stare for the hell of it is something else!! Mikey, [smiley=sgrin.gif] |
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Title: Re: What exactly goes on at Conventions? Post by PittsburghJoe on Apr 2nd, 2004, 8:41pm Well, first I have to find a job and get moved into the new house. But if at all possible, (i.e. money & time off) I'll be there. Save me a seat at the pervert table! [smiley=laugh.gif] Joe |
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Title: Re: What exactly goes on at Conventions? Post by jonny on Apr 2nd, 2004, 8:58pm on 04/02/04 at 20:41:13, PittsburghJoe wrote:
No prob, Joe......Im the king of the perv table ;;D Joe, Did you see my post about getting rid of you puter probs?.....If not I can post them again, Dude. ..............................jonny |
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Title: Re: What exactly goes on at Conventions? Post by PittsburghJoe on Apr 2nd, 2004, 9:05pm Jonny, yeah I saw the message. HA's and shadows have been kicking my ass the last day or two so I haven't devoted time to it yet, but I know I can kick its ass now. Thanks bud! And if you're at the head of the tble, I may have to kneel at the foot! hehehe (No worries man, I won't make you question your orientation... LOL) Joe |
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Title: Re: What exactly goes on at Conventions? Post by jonny on Apr 2nd, 2004, 9:16pm on 04/02/04 at 21:05:35, PittsburghJoe wrote:
ROTFFLMMFAO ;;D Orientation? If you are not a blonde (Female) standing six foot tall I'll probably end up bitch slapping you. Unreal!!! ..............................jonny |
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Title: Re: What exactly goes on at Conventions? Post by PittsburghJoe on Apr 2nd, 2004, 9:19pm LOL Dude, I figgered that would get a laugh outta you. Trust me, straight guys make great friends, but they're boring in the sack (in my experience anyhow...). It would be fun as hell to watch the women draped on you though! Besides, I'm not a cheater. My "hubby" would be a bit peeved if I was hitting on the guys there! Joe |
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Title: Re: What exactly goes on at Conventions? Post by jonny on Apr 2nd, 2004, 9:30pm Nah, theres no draping.....these bitches talk tough here but fail when the time comes to put up or shut up.......LOL ;;D Thats cool, cause I aint into fighting 16 husbands at once.....;;D ...........................jonny |
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Title: Re: What exactly goes on at Conventions? Post by Charlie on Apr 2nd, 2004, 11:11pm Okay we've had our fun. Luke is a clusterhead. Time to let up a bit. Charlie |
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Title: Re: What exactly goes on at Conventions? Post by cootie on Apr 2nd, 2004, 11:30pm I'd have to stand on a bar stool ta bitch slap anyone.......not that I'd want to...........Pam that bows to no one Don't worry Luke.......there jus givein ya a lesson here and gawd knows we've all had one.....you'll be ok ! ;) |
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Title: Re: What exactly goes on at Conventions? Post by TENYBENYBABY on Apr 3rd, 2004, 12:36am NEW AT THIS, WILL SOME ONE PLEASE TELL ME ABOUT WHAT U R TALKING ABOUT PLEASE. BABY |
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Title: Re: What exactly goes on at Conventions? Post by cootie on Apr 3rd, 2004, 12:47am Hey.....it's a convention for all of us here that can make it.....everyone gets to meet....and get informed with doc lectures ect and info......got door prizes and fun stuff......and we all spend as much time as we can gabbin and laughin and havein a good time bein ONE ! It's in Nashville this time in July at a hotel.....lots of us go and stay a few days or so some drop inf or a visit. Be one of us Pam |
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Title: Re: What exactly goes on at Conventions? Post by Charlie on Apr 3rd, 2004, 12:50am I'm not the best but I'll whittle it down. Every year there is a convention of clusterheads organized by this crazy bunch. They meet and invariably there will be a few people who will get hit. This thread began with a legitimate question which we love to have fun with. I was probably the silliest of the lot. Now and then a slip of the tongue or a not too careful post provides an opening for us to "exercise" on our keyboards. Unintentionally, Luke sounded like he was looking forward to seeing someone have a cluster attack. What he meant....I'm sure...is that seeing another go through this has quite an effect when around others who are afflicted. To be sure, it's a horror. The only good thing about it is being with people who know exactly what to do or not to do for someone. It was quite an experience for me to see. Knowing that you don't have to explain it to people who never seem to get it means a lot. These conventions are social, fun, educational and we look forward to them every year. I hope this helps ane welcome aboard. Charlie |
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Title: Re: What exactly goes on at Conventions? Post by cootie on Apr 3rd, 2004, 1:04am Very good Charlie.........it was a big deal for Brad to see others hit.......he said it amost shocked him but he needed to be around other ch'rs cuz it made him feel better to know he's not alone with all this and so many similarities he felt were oddities all these years alone with it. Almost 20 yrs he never ever even talked to anouther ch'r....me either. The convention was likea religious expirience ! Pretty impressed by the ch gang Pam You all ROCK |
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Title: Re: What exactly goes on at Conventions? Post by ClusterChuck on Apr 3rd, 2004, 1:17am Mikey and Jonny, I luv ya both, but I have to disagree with you on this one. I talked on the phone to Luke tonight for a long time. I got to know him a little bit. He is not a weirdo (anymore than the rest of us, that is). He has beeen battling the beast for about 25 years, since his teens. He is not looking to watch a hit to get some thrill, or high, from it. He wants to learn from it. He just want to experience a hit from the "other side" for once. I respect his wish, and see where it could help him to deal with his own battle. Personally, it would kill me to watch another get hit. I have seen Mikey get the beginning of a hit, several times, and each time, he left the room. I would have had a hard time watching him. It is bad enough to know he is in the next room battling the beast, and I can't do anything for him, but to be in the room with him, would be worse. BUT, that being said, if Mikey WANTED me in with him, to hold his hand, hug him, hold the icepack, just be with him, or whatever, I would have done it in a minute. At least I would be doing something that helps him deal with the beast. Luke does not want to be present while one of us is getting hit, if we don't want him to be. He respects our desires, and would NEVER think of intruding on us if we want to be left alone. He, like most of us, wants to be alone in his battle, but he does like to know that someone is in the next room. Me, I would prefer that no one be in the next several rooms (or especially in the same room) when I am getting hit. That way, I know that no one can hear me screaming, cussing, and head banging. So in his defence, I must say that he does not APPEAR to be a whacked out thrill seeker with a tilt towards the macabre. But, he probably is a whacked out pervert ... heehee ... WELCOME TO THE NEST OF PERVERTS, Luke! Chuck |
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Title: Re: What exactly goes on at Conventions? Post by PittsburghJoe on Apr 3rd, 2004, 1:26am I'm with Chuck on this one. I've been talking to Luke for a while now, comparing cluster notes, etc. It's a bit easier since we only live about 5 miles away from each other, though we haven't met as of yet. He did NOT mean anything macabre or sadistic by what he said. He's just curious as to what it is like on the other side, having to witness someone going through an attack, rather than being the one experiencing it. Hell, I may call him one day when I'm having one, since I generally prefer having someone around in case I do something stupid. I may know intellectually I'm not gonna just keel over from the pain, but knowing it and really KNOWING it are two different things. Anyhow, I don't think anyone was overreacting to Luke's comments, I just think they were possibly misunderstood. My $.02, anyway. Joe |
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Title: Re: What exactly goes on at Conventions? Post by Superpain on Apr 3rd, 2004, 1:03pm on 04/02/04 at 21:30:18, jonny wrote:
Nice...Lol. [smiley=laugh.gif] |
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Title: Re: What exactly goes on at Conventions? Post by Luke63 on Apr 3rd, 2004, 1:14pm Thank you Charlie!!!!! Thank you Chuck!!!! Thank you Joe!!!! Only if someone wants me around. Im not gonna run the halls lookin for someone..ya know. But I wanna experience it that's all...learn...grow...change maybe. By the way...Chuck had me up til 1AM....and I only got hit once last nite instead of 4 or 5 times....Loved it. Charlie..you're the only one Ive never spoke to yet...some day maybe. But I can tell all of you...Joe and Chuck are two very neat guys. Cant wait 'til July....WHOOPASS!!!! Luke |
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Title: Re: What exactly goes on at Conventions? Post by Jayne on Apr 3rd, 2004, 5:36pm I usually just sit at the bar and get plastered and not talk to anyone....it's fun. |
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Title: Re: What exactly goes on at Conventions? Post by Mikey on Apr 4th, 2004, 12:36am Luke, after reading what Chuck, and others wrote, I understand what youu ment by what you said, and I apologize!! I know that you cannot keep from seeing another person get hit, but to see someone getting a thrill out of it, would be an ass whipping time. Now i know that's not what ya ment!! Peace dude! PFDAN to ya, Mikey, ;;D |
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Title: Re: What exactly goes on at Conventions? Post by thomas on Apr 5th, 2004, 2:10pm I saw a few get hit at Davenport, hope I never see it again..... ripped my damn heart right out of my chest. :'( |
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Title: Re: What exactly goes on at Conventions? Post by ckelly181 on Apr 5th, 2004, 2:32pm on 04/03/04 at 17:36:43, Jayne wrote:
OMG, that is a screaming hoot. I wish I could come just to sit next to you and drink and mutter epithets...too funny! Chris |
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Title: Re: What exactly goes on at Conventions? Post by Mr.Happy on Apr 5th, 2004, 2:40pm on 04/03/04 at 17:36:43, Jayne wrote:
Jayne......I'll make sure to visit you at the bar. On top of buying you drinks, I'll be a real gentleman and Push in your Stool. NashCon or Bust, RJ |
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Title: Re: What exactly goes on at Conventions? Post by cootie on Apr 5th, 2004, 3:01pm I know what ya ment Luke.......no biggie.......natives get restless on here........Pam a resident native I'll be at the bar also.........see ya there and hopein not to drink too much and slide under my chair and no one notice. I'll look like a marshmellow chick if I drink too much draft (like last weekend at the wedding.......blahh) |
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Title: Re: What exactly goes on at Conventions? Post by jonny on Apr 5th, 2004, 4:22pm on 04/03/04 at 13:14:30, Luke63 wrote:
LMAO ;;D .........................jonny |
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Title: Re: What exactly goes on at Conventions? Post by Jeepgun on Apr 7th, 2004, 10:48am Luke is a good man, and yes, it was a misunderstanding. Luke, if I have one at the convention, I will invite you to take photos, notes, watch... Whatever. I am unafraid, and if it will help you, be my guest. Peace, yo. Out. :) |
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