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Title: Do you really care....?? Post by TxBasslady on Mar 30th, 2004, 5:42pm Just trying to figure out why there is such negative interest in supporting OUCH. Are you aware that it takes $$ to get the word out about CH? I have spent hours looking for items that I thought you guys would be interested in for OUCH auctions. I spent MY money on 16 items for auction. I am not asking to be paid for these items. I paid for them with the intention of DONATING them for OUCH. I attempted to find items that could be auctioned at a reasonable price, so as not to burden anyone. Your lack of interest has definitely changed my mind. Evidently, supporting OUCH is not important to you. What a shame!! The money I spent on these items would have paid airfare for one person to attend the convention in July. I cannot return the items, but I do have friends here on the board, and I will send the remaining items to them. Thanks Michelle, for the time you have spent trying to get the auctions going. IMHO, there is not enough interest to continue with the other items I have for the auctions. It takes too much of your time, and it somehow just doesn’t seem fair for the burden to fall on 3 or 4 of us. Thanks to the 4 of you who bid on the current auctions. I will donate the cost of the shipping to those who win. Maybe DJ needs to delete the Auction and Raffle section of the board. He could rename it…..call it a Bullshit section, or whatever else would work. Thanks to the few of you who really care! PF vibes, Jean |
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Title: Re: Do you really care....?? Post by echo on Mar 30th, 2004, 5:48pm I believe that Jean has officially slapped my ass. I need to change my ways. I don't necessarily want to purchase anything, but will donate what I can to the cause. Thanks for the slap Jean |
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Title: Re: Do you really care....?? Post by jonny on Mar 30th, 2004, 5:54pm I think I will be getting a pass on the slap, my record speaks for itself ;;D http://im1.shutterfly.com/procserv/47b3d727b3127cce8daf907eab550000001610 .............................jonny |
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Title: Re: Do you really care....?? Post by Elaine on Mar 30th, 2004, 5:54pm I understand just how you feel. :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( |
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Title: Re: Do you really care....?? Post by t_h_b on Mar 30th, 2004, 6:10pm Perhaps one reason for the apparent disinterest is that ALL of the objects currently for auction are for smokers. There are a lot of smokers here but probably less than half and a lot of people have quit recently. A lot of non-smokers wouldn't even buy something smoking-related to give to a friend because it would be seen as encouraging the habit. So you are probably only getting 1/3 of the participation that you would with things of more universal appeal. Thomas who didn't have a birthday |
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Title: Re: Do you really care....?? Post by brain_cramps on Mar 30th, 2004, 6:12pm If I had a few bucks to throw in, I'd probably go buy groceries instead. |
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Title: Re: Do you really care....?? Post by thomas on Mar 30th, 2004, 6:12pm on 03/30/04 at 18:10:22, t_h_b wrote:
Ditto. Sorry Jean, I have looked at the items, I just quit smoking in Jan, and God, was it ever tempting to light up when I saw that damn zippo. Hang in there, we love ya, hon. |
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Title: Re: Do you really care....?? Post by t_h_b on Mar 30th, 2004, 6:16pm on 03/30/04 at 18:12:51, thomas wrote:
Well, I DID light up when I saw it! |
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Title: Re: Do you really care....?? Post by jonny on Mar 30th, 2004, 6:18pm Back off big man!!!! Thats my damn Zippo, I even have a Zippo carry case on my belt.....PLUS!!!!, I just out bid the high by $15.....LMMFAO ;;D ..........................jonny EDIT...Back off both Thomas's....LOL ;;D |
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Title: Re: Do you really care....?? Post by t_h_b on Mar 30th, 2004, 6:21pm on 03/30/04 at 18:18:03, jonny wrote:
Jonny, sorry, you're too late, too busy waving that FRENCH flag around, I guess. http://medusa.sunflower.com/images/jolly%20roger.jpeg |
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Title: Re: Do you really care....?? Post by jonny on Mar 30th, 2004, 6:26pm Dont know about your flag but mine says "Made in America"...I could give a shit where the symbol came from. Back down to eat some more my friend ;;D ......................jonny |
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Title: Re: Do you really care....?? Post by Tiannia on Mar 30th, 2004, 6:58pm on 03/30/04 at 18:12:35, brain_cramps wrote:
I am sorry that I do not have money to contribute. I do not feel that I need to justify the fact that my budget is extremely slim, as I am sure anyone with small children (in or out of day care) can attest to. I have donated item of myself, either drawings I have done, or in volunteering to create a birth chart or two (whatever Jayne feels the desire for such an item can be) as a door prize for the convention. If it can down to dues for ouch, I would find a way to get the dues in, as I do support in every way that I can, but to assume that because I do nto bid on items, even though I have seen items in the past that I would have loves to get, mean that I do not care. Sorry I dont have the ability to give more to the support of OUCH and CH.com -Tia |
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Title: Re: Do you really care....?? Post by fubar on Mar 30th, 2004, 8:32pm I'm not going to try to defend myself... I've donated hundreds to OUCH. But, as a non-smoker, there hasn't been anything worth bidding on for a while. Heck, I'm not a doll collector either, but I bought one of those (and gave it to Edna). Jean, I think people want to bid on stuff, but not smoking gear. -Shawn |
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Title: Re: Do you really care....?? Post by Superpain on Mar 30th, 2004, 9:02pm At this point I'd be better able to donate than to buy... Been off work for 2 1/2 weeks and I'm borrowing money from my woman for meds... :( maybe soon though... :-* |
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Title: Re: Do you really care....?? Post by Mastifflvr28 on Mar 30th, 2004, 11:24pm Jean, shaddup!! I really want them snuffers cause my hubby is a really sloppy smoker...and I just quit, and there's a really messy ashtray sittin right in front of me...and I can't afford the snuffers if they got UP HIGHER!!! LMAO :) Love and thanks to all, Mast |
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Title: Re: Do you really care....?? Post by Callico_Kid on Mar 31st, 2004, 2:23am Jean, Please understand there is no lack of interest in supporting OUCH. Since going chronic a little over two years ago I have worked just under half time, and since being rear ended in Jan I have not worked at all. Not looking for sympathy or pity in any way. God has been supplying my needs, but there is nothing available right now for any thing else. Please understand I do appreciate what you and several other of you have done and continue to do for OUCH, and one day I hope to be able to carry my end of the load again. Please don't take our lack of participation as disinterest, as I know of several others in much the same boat as I. Unfortunately some of you are having to carry a disproportionate portion of the load. Jerry |
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Title: Re: Do you really care....?? Post by TxBasslady on Mar 31st, 2004, 3:33am Jerry, I sincerely understand your situation. I also know that there are many others here with financial problems. Tia.....I understand your situation too. I did not intend for everyone to take this as a personal attack. There are currently 6,294 members on this board. One would think that out of that many CH sufferers, a few more would be willing to help the cause. I want a cure for CH, and it's not gonna just fall in our lap. We have to work to get it. Jerry, if I offended you, I apologize. Meeting you and your wife in Davenport was great. I hope things get better for you real soon. t.h.b...........evidently you have never been to a meet & greet. CH sufferers smoke like a chimney. Out of all sufferers I have met, there were only about 6 or 7 of them who do NOT smoke. I thought the smoking paraphanalia would make some money for OUCH. Michelle, my dear..........do not fear.....I have plenty more snuffers. I know that you bid on a set, but I will send you some extras. .............jonny, thanks for your bid on the lighter.....it makes me feel better to know that it wasn't a lost cause. The rest of you folks need to let the Fund Raising Committee know what it is that you would be interested in bidding on. To my knowledge, there are no mind readers here. Then we have to find someone willing to donate the type of items you desire. Without any suggestions, and without someone to donate the items, we're pretty much dead in the water, as far as making any money from auctions. Jean |
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Title: Re: Do you really care....?? Post by t_h_b on Mar 31st, 2004, 5:35am on 03/31/04 at 03:33:51, TxBasslady wrote:
It probably wouldn't hurt to put something up for bid that would appeal to to somebody besides a smoker before writing off the whole auction business as a fundraiser and dismissing the entire race of ClusterHeads as uninterested and uncaring. |
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Title: Re: Do you really care....?? Post by Elaine on Mar 31st, 2004, 8:28am I think Jean is looking at other things to. If you look at the post that have been posted concerning OUCH there has been very little response. Don't take my word for it take a look yourself. I have clusters and I need support. Support is a great thing. I also need Educated Doctors, The right drugs. I need to be able to go to the ER and know I am going to get the right help. From reading post I would think thats what you all want and need. To get that we need to fight. We can not fight alone we have to fight together. O.U.C.H. was formed to hopefully make these things happen. The BOD and officers and committiess can not make all this happen without you all backing OUCH. Drug companys can not do studys if they don't have anyone to study. We can not pay for trips for people to go talk to these Doctors, drug compines, insurance companys etc..... We will not be able to pay for speakers at the conventions. We can't pay for insurance and things that we need to get. We can not pay for Lawyers and do the things that need to be done to et grants. You have to use money to make money. Wouldn't it be nice to turn on the TV and see a comercial or a news report about some drug that helps clusters. I see comercials all the time about drugs that help migrainers but never clusters. Its not going to happen unless we all pull together. This thread right here should have 6000 replys saying "I Care what Can I do"! I am tired of being treated like I am crazy how about you? Now as fundraising chair I am asking all of you. What kind of stuff do you all want to see up for auction? Do any of you have any ideas that would help us raise funds? I am not raising this money for me. I am trying to raise this to help us ALL!!! Its for you what do you all want? How can I get your help. I really need you all. It don't cost a dine to throw out ideas. Jean I thank you from the bttom of my heart for all you have done for OUCH. You and all the others who have donated and given ideas and their time. All that give in any way small or large Thank you so much. You don't have to have money to think up ideas. |
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Title: Re: Do you really care....?? Post by thomas on Mar 31st, 2004, 8:45am on 03/31/04 at 08:28:06, Elaine wrote:
Tough question....... After combining two households, I may have lots of stuff to auction for ouch. lol. |
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Title: Re: Do you really care....?? Post by 357Mag on Mar 31st, 2004, 9:10am One suggestion.....why not try to sell items on something like eBay...to the general public? I see, hear and talk to so many clusterbuds that are financially taxed....out of work, can't work, paying for med's because our precious partners [insurance & doctors] don’t cooperate. The American Red Cross is a major fund raising organization. They do not ask their own employees or volunteers for cash, they go to the general public for their funding needs. Other non-prof orgs produce written and electronic material for sale to the members and public. This is what generates revenue for the organization. OUCH appears to be expecting the members to foot the bill for the entire operation and augment it with whatever grants may be obtainable. But as we all know, grants are usually directed to costs for specific projects….so where is the overhead expenditure revenue to come from? This post will carry over to the OUCH BoD topic on National Dues and Chapter Dues. There are plenty of issues stated in those posts that need addressing, sorting and prioritizing. They also have a direct correlation to how we go about funding this organization. More to come on the OUCH board as soon as thoughts are put in order…..you may not like it, but someone has to speak up. Peace and prosperity to all, -dan |
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Title: Re: Do you really care....?? Post by KarynG on Mar 31st, 2004, 9:31am I am also a non-smoker for two years now for what that is worth. I am very offended by the constant feeling I get that I should be donating money that I need for my kids. I sent an email volunteering my time and energy in any way needed. I didn't even get a response back. My time and desire to help were apparently not worth anything. We are a single income family and 20% of our gross salary goes for child support for my husbands daughter from a previous marriage. We are military for twenty years now and we struggle on a monthly basis and do not have money to donate. We were going to take our tax return this year to go to Nashville rather than buying other things for our home, but I doubt that we will even do that now. Sorry if this offends anyone, but I really feel this is wrong. |
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Title: Re: Do you really care....?? Post by cootie on Mar 31st, 2004, 10:10am Sorry guys......I have knick-nack-patty-wacked myself out of house and home and have actually been hauling stuff to Goodwill so we can walk thru the house not crawl over things and can find stuff now too. Never ment to shun the cause by not bidding......OUCH 'is' a very GOOD cause !!! I've just not been buy up stuff much to add to my stuff collection. Didn't mean to look like I didn't care. Plus I am puttin so much into this kennel I have goin.......and tryin to save for a couple vacations too. What about the ebay idea.......you can 'plug' OUCH at the same time and get zillions of lookers.....maybe add the same info under each item after the explaination of it....describeing the OUCH cause. OK.....I'll quit while I am behind Pam Hey KarynG......suma these guys in charge get 'so' many emails one can get accidentally missed or skipped or unanswer'd......don't take it personal.......it happens. HOPE to see you at the convention.......you'll be glad ya went !!!!!! |
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Title: Re: Do you really care....?? Post by gore2424 on Mar 31st, 2004, 10:47am what ? Jean :>( that post hurt me made me feel small I have sent 4 items to Jayne for the convention door prizes does that count for anything sorry all I can do cant afford to buy anything for now have been selling my sports cards, diecast, and autographs to make ends meet here at home I have collected these items for almost 10 years and it saddens me to have to sell them and stop the hobby I enjoyed so much Terry |
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Title: Re: Do you really care....?? Post by Melissa on Mar 31st, 2004, 11:16am on 03/31/04 at 09:10:46, 357Mag wrote:
I agree wholeheartedly with this statement. Why not start a thread on the OUCH board for other venues of making the money OUCH needs, other than just the membership? I bet you'll get a good brainstorm going. I know I'll participate!! :)mel |
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Title: Re: Do you really care....?? Post by JDH on Mar 31st, 2004, 11:35am Yes Jean I do care and I do appreciate all you for OUCH. I also wish we could afford to do more BUT it's just not possible right now. Everything keeps going up except the paycheck BUT sorry I'm not going to bare my financial woes here for the world to see. I made a bid on your lighter yesterday and was going to go up to 50.00 (which would have meant taking money from my convention savings) but I was quickly blown out of the water on that. In the past I've made frames for a couple of the pictures that were sold in previous auctions and shipped them at my own expense which wasn't cheap. And I'd also like to think I've helped a few clusterheads along the way as well but as far matching some of the donations I've seen then sorry we're just not able to right now. Kudos to those who can and do contribute but I don't think those who can't afford it s/b called out like this in an open forum. Jim |
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Title: Re: Do you really care....?? Post by ckelly181 on Mar 31st, 2004, 11:38am on 03/31/04 at 11:16:59, Melissa wrote:
I'd agree, too. I'm not a smoker, don't have a lot of extra cash, not a "stuff" collector; have also offered to help and have not received a reply. (There seems to be static in the mind-reading channels all over the place.) I'd be willing to add what I can, and pay what I can to a venture like this. How do you go about doing that? Chris |
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Title: Re: Do you really care....?? Post by 9erfan on Mar 31st, 2004, 12:10pm on 03/31/04 at 11:38:51, ckelly181 wrote:
I'm in the same boat as Chris. I don't smoke so the items didn't interest me. I'm up to my eyeballs in medical bills & IRS bills so I don't have a lot of money to spare. I've volunteered to help and have been told I wasn't needed. I don't know what to suggest to auction because I'm just not into knick-knacky stuff. |
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Title: Re: Do you really care....?? Post by Melissa on Mar 31st, 2004, 12:29pm Ya know, I just thought of something. For people who actually read the minutes I posted on the OUCH board, of the last couple meetings (for which there have only been 56 views!!! :(), I think things will pick up after the mass email is sent out! This could help us... Anyhow, I think talking about this is a wonderful start to perhaps, changing the direction of fundraising a bit. :)mel P.S. Here is the link again to the minutes!! http://www.clusterheadaches.org/members/cgi-bin/yabb/YaBB.cgi?board=news;action=display;num=1080391017 |
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Title: Re: Do you really care....?? Post by Tiannia on Mar 31st, 2004, 1:02pm I think that there has to be something else that can be done. I know that local charaties here in Vegas have made donation baskets (Coffee cans that have the logos and such on them) that are placed on the checkout stands at like grocery stores. That is also another way that money might be raised. At least in the areas where there is a local chapter. I know that we have talked breifly here in Vegas about putting together a chapter, but that is a long ways off at this time. When my day care each month costs more then my mortgage, you can be sure that what little extra money I do get is quickly used. It is very disheartening to be told that because I dont bid means that I am not trying to help. I am sorry but the support that I have recieved from this board has gotten me through some times in the past 9 months, that I am not entirely sure I would have come out of unscared. I know that that doe snot bring us closer to a cure, but it keeps each of us alive and fighting every day. If I had money I would give it. If I had more time I would give it. But I give as much as I can, it might not be enough, but it is all I have. I try very hard to be there for everyone I can, because I know what it is like to flounder and feel lost and helpless. Not just because of CH, but other things in my life. And personally after having so many different people tell me that I should not be here right now, that I should have at least been crushed or possibly killed Friday, I will damn sure make sure that I tell people to hold on that every day they have is worth fighting and being here for. OK I better stop before my boss sees me crying. PF Wishes everyone. -Tia |
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Title: Re: Do you really care....?? Post by kissmyglass on Mar 31st, 2004, 2:31pm I see the lighter @ $120 with time to go...Looks like a great success to me. [smiley=huh.gif] Kev |
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Title: Re: Do you really care....?? Post by KingOfPain on Mar 31st, 2004, 4:09pm KarynG Re: Do you really care....?? « Reply #21 on: Today at 9:31am » "I sent an email volunteering my time and energy in any way needed. I didn't even get a response back." _____________________________________________ ckelly181 Re: Do you really care....?? « Reply #26 on: Today at 11:38am » "have also offered to help and have not received a reply." _____________________________________________ 9erfan Re: Do you really care....?? « Reply #27 on: Today at 12:10pm » "I've volunteered to help and have been told I wasn't needed." _____________________________________________ [smiley=huh.gif] Uh..... OUCH, Officers, & the BoD...... what's the deal? [smiley=huh.gif] |
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Title: Re: Do you really care....?? Post by Elaine on Mar 31st, 2004, 7:46pm I can only talk for me here. I respond to every email I get from any CH unless its a joke or something like that. Now I do not open any email that has attachemets of any kind if I don't know who they are from. If you wrote me and did not get a reply its because I did not get the letter. I need all the help I can get on the fundraiser. Ebay is a good thought. I use to sale stuff on E-Bay personally. I just never had great luck there myself. It was really time consuming. I don't personally have that kind of time to do that. If anyone else does I am all for trying. My problem with fundraising is Like the raffle. I have to deal with laws in 50 states and I am just not up on all those laws. I can't do like local chaters will be able to do because I don't have enough people around me to do those things. O.U.C.H. is not known like the red cross and Cancer Society to solitite just anyone. Thats why I come to you people. Cause you guys were the only people I knew that cared if the word gets out. Thats what everyone is working for getting the word out . Maybe someday the rest of the world will know what clusters are. They are not just a headache. Please don't get upset with Jean, Jean has donated hundreds of dollars to OUCH in the past few months. Jean and many others have helped. Jean is your frind she cares about many here. I am talking about support, she has traveled to take care of people who have clusters. People on this board are getting help from people like Jean not just OUCH! There are many here like her. Someday you might be the person she is there to help. People don't know about the things Jean has done for people cause Jean just does it. There are good things that go on on ch.com that none know about cause they don't post about it. Don't fight don't think bad of one another. I been around five years now and I don't know any bad people here. We all hurt. One way or the oether we hurt. The Officers and the BOD are good people. We work for you all. We do the best we can. The best we know how. We make phone calls we meet twice a month. We stay up late work on OUCH. We care about all of you. The internet is slow working. Its not like we can get together and sit around a table and do things. Cat she leaves her family and travels for us all. You all might think that would be a fun thing. Think about ever sat around and talked to Doctors and people who sale drugs. Trying to say the right thing, hoping you make a good impression, and build a good enough case for us clusterheads. NOT EASY I AM SURE. Steve our Prisident, catching every problem that comes up from OUCH stuff to personal stuff. Barbara having to deal with all the money. Mel having to deal with keeping up with what we all do. Michelle keeping up with letting us all know when to met and sending out notices plus doing the auctions. The BOD all hoping we vote and do the things we should and worried all the time checking double checking everything. Its not easy and its not a lot of fun. Its a lot of work. Every negitive thing that comes to us bothers us all. It bothers us a lot. Because we care. The people who work on committees they work hard also. Maybe you don't always see whats being done belive me works being done. You will see all the work put in before its all over and done. We are all trying to do a job that you all elected us to do. You guys are the only people I know to come to, I will take your ideas and I will try to make them work for the fundraiser. I will never give up on OUCH. Its the only hope I have for a better life with cluster. Its the only hope any of us have. Thomas I am still working on those laws :-)! |
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Title: Re: Do you really care....?? Post by Prense on Mar 31st, 2004, 8:09pm on 03/31/04 at 09:10:46, 357Mag wrote:
My thoughts precisely! |
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Title: Re: Do you really care....?? Post by jonny on Mar 31st, 2004, 8:11pm on 03/31/04 at 19:46:09, Elaine wrote:
If anyone has anything to say to Jean on this matter I will be here to listen, you may not like what I have to say but I am here to listen to you......Then I'll tell you to go fuck yourself for thinking that this woman posted to hurt your feelings......WAHHH....get over it!!!!! ....................................jonny |
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Title: Re: Do you really care....?? Post by Melissa on Mar 31st, 2004, 8:29pm Elaine, that long post of yours was wonderfully worded and I thank you for writing it! :)mel |
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Title: Re: Do you really care....?? Post by t_h_b on Mar 31st, 2004, 9:12pm Well, I've been thinking about this a lot. So some people give a sh*t and some people don't give a sh*t. It's always going to be that way. The question is, "Where do we go from here?" Now I'm going to think about that for a while. |
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Title: Re: Do you really care....?? Post by t_h_b on Mar 31st, 2004, 9:14pm on 03/31/04 at 14:31:11, kissmyglass wrote:
Lighter took in $220 so far. |
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Title: Re: Do you really care....?? Post by Turts on Apr 1st, 2004, 7:28am Quote:
I Care what Can I do"! As a previuos auction winner of Cerebus' "Just Another Headache" acrylic on canvas I have to say that auctions are definately worthwhile. The quality of artwork is amazing. What really speaks to me about this painting is the defiance that Clusterheads show to the beast and still accomplish such wonderful works of art. Spending money to make money has always been a key to success for any business, (as OUCH ultimately is), however maybe we could campaign for other artist creative people to donate their time and efforts to create something for auction which demonstrates 1. The passion and commitment we have to ensure that OUCH is a success and achieves its mission. 2. Promotes the defiance we show against the life altering beast Not only does this demostrate the above, it also maximises the profit margin made from auctions. Who knows, by enlisting a friend or family member to partake and demonstrate their crafts, careers or business paths made be made aswell. Primarily, we need to discover WHY all the 6000+ CH members are not enllisted with OUCH also. I propose a step by step OUCH enlistment to be pinned to the head of the general posts board to ensure that uses know that they are enrolled. I know I was uncertain when I joined OUCH what exactly I had accomplished.(i.e. if I was a registered member (still dont really know to be honest)) Simply by wearing ouch merchandise I have spread the word. I am constantly being asked about it, and I ensure I spend the time to explain. Sorry for the long post, just trying to explore the positives and some avenues for improvement. Turts :) |
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Title: Re: Do you really care....?? Post by Elaine on Apr 1st, 2004, 7:51am I like your idea Truts. Thanks |
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Title: Re: Do you really care....?? Post by Jackie on Apr 1st, 2004, 9:13am The ideas of raising funds from outside sources is a great idea BUT how do we do that? The Cancer Society and Red Cross have local chapters in cities all across the country. We, at this time, don't have that luxury. Again.....great idea but how do we go about it? Our fund raising committee tried to come up with a way of raising funds without asking members for only their donations. Example...the raffle. A few dollars were raised and every little bit helps. However, I think very few of us pounded the pavement selling tickets. I bought tickets myself but didn't put forth much effort to sell any. My bad!!!! Selling on e-Bay is another great idea. Again....who has the time to take on this project? Perhaps we could find out who in our membership sells on e-Bay and ask if they would be willing to sell a few donated items for "the cause". Now.....I DID NOT bid on any items up for auction. After reading Jean's post I DID NOT feel slapped, called out, berated, slammed, etc. I did not take it as a personal attack. I did not feel that I needed to offer any reason for not bidding. We do what we can when we can. The things that have been done ARE appreciated by the organization and the contributors do not go unnoticed or unappreciated. For those of you who have offered services and were not well received......try again!! It's a new day. Some of the fund raising teams frustration is the lack of interest. Example.....the auctions weren't even being looked at. As to my dear friend Jean......she is one of the most compassionate, caring, passionate and giving people I have ever met. She grieves over the pain CH causes....both the physical and mental...not for only herself but for ALL of us. She would never hurt someone's feelings intentionally...BUT, she will kick us in the butt when we need it. Example....she got the auctions going... ;;D Jean...your heart is in the right place....I love ya!!! Jacks 8) M.R. FYI....I am not pissin' on anyones shoes.... ;;D |
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Title: Re: Do you really care....?? Post by KarynG on Apr 1st, 2004, 9:31am The original post said: "Thanks to the few of you who really do care" That obvously DOES make me feel called out as one who doesn't care and I felt the need to explain myself. When I responded I wasn't trying to attack anyone, simply trying to express my feelings. But doing that leads to more attacks because God forbid you say something that certain people don't care to hear. It is ridiculous and has nothing to do with not appreciating all the amazing things that truly dedicated people do here. But if you don't agree with something... watch out, here come the board bullies! Blast away. |
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Title: Re: Do you really care....?? Post by brain_cramps on Apr 1st, 2004, 11:56am on 04/01/04 at 09:31:23, KarynG wrote:
I agree 100%. I know it wasn't meant in the way that a number of people took it, but it could have been worded in a number of other ways. Also, I didn't see anybody get upset with Jean. Instead, a few people simply offered valid reasons why they were unable to bid. No more... No less... on 04/01/04 at 09:31:23, KarynG wrote:
Where? >:( >:( >:( grant ;) |
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Title: Re: Do you really care....?? Post by Pinkfloyd on Apr 1st, 2004, 12:22pm Jean and Elaine, The only reason I'm responding is because I think you two are good people (I'm not addressing this to anyone else so I'm not commenting on who else I think is a good person or not a good person;-) and this subject is upsetting you when it really shouldn't. IMHO. The sooner you both realize that this board does not have 6000 "members" and OUCH doesn't have 1000 "members", the sooner you'll both feel better about things. (as to why that is, I've discussed it here before to no avail and really doesn't need my input again) Right now you have about 150 people (max) to draw from and I'd say you can feel good about the amount of work being done by those you have to draw upon. PF (Jean, may your next smallie end up on your wall) |
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Title: Re: Do you really care....?? Post by TxBasslady on Apr 1st, 2004, 12:28pm on 04/01/04 at 09:31:23, KarynG wrote:
Why??? I didn't mention any names. YOU were NEVER singled out. This is the 2nd reference made to me "calling people out in an open forum". I called NOONE out. You people responded voluntarily. Next time, pass up the threads you don't like. I do this quite frequently. on 04/01/04 at 09:31:23, KarynG wrote:
I'm not into name calling either. I was raised better than that. This is my family.....I resent your remark. Jean p.s. This IS and WILL BE my last post on this thread. Get over yourselves........there's work to be done! |
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Title: Re: Do you really care....?? Post by Elaine on Apr 1st, 2004, 12:41pm Thanks Pink and you have a point there :-) |
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Title: Re: Do you really care....?? Post by KarynG on Apr 1st, 2004, 4:07pm I never stated that I personally was singled out. However, I stand by my opinion that the remark "The few of you that care" was obviously meant to imply that the others do not care. Board Bullies wasn't even referring to you, but feel free to be offended for the ones it was referring to if you like. I'm so glad this is YOUR family. I give up. God forbid you disagree... |
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Title: Re: Do you really care....?? Post by Carl_D on Apr 1st, 2004, 7:21pm Jean, trust me - I share in your pain. My last post about OUCHFest got a harsh rebuke, but you put what I was trying to say in simpler terms. In the case of OUCHfest, only a few attended, the raffle idea died...everything was left for me to do and if I didn't do it, it didn't get done. That made me question why there are so many clusterheads, but so few that support OUCH. Now I'll probably be rebuked for my reply. Sorry, I just say what I feel sometimes. Peace, Carl D |
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Title: Re: Do you really care....?? Post by t_h_b on Apr 1st, 2004, 7:27pm DJ might be able to tell you how many actual recent users there are on this site. It's still not a full moon! |
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Title: Re: Do you really care....?? Post by jonny on Apr 1st, 2004, 7:31pm on 04/01/04 at 19:21:58, Carl_D wrote:
Carl, You say WTF you want to say, if someone dont like it.....Fuck'em!! I would rather hear what someone actually thinks than bull shit. Rock on, Carl!!! .........................jonny |
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Title: Re: Do you really care....?? Post by t_h_b on Apr 1st, 2004, 7:32pm on 04/01/04 at 19:22:20, BlueMeanie wrote:
If it was made known that X dollars were needed to accomplish Y, then people might be more willing to give money. If there was an auction (of non-smoking paraphernalia!!!) to support a particular project, more people might participate. People like to know what they're buying. Before I give money to charity (including OUCH) I look at a financial statment to see what's being done with it. Okay, I'm going to go away and think about this some more. |
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Title: Re: Do you really care....?? Post by Mastifflvr28 on Apr 2nd, 2004, 1:31am hiya t_h_b_, Here are all the reports where all the money for ouch goes: http://www.clusterheadaches.org/members/committee_reports/budget/index.htm Now we have some new stuff. The advocacy team is doing a LOT of traveling, and they will definately need some insurance while traveling for ouch. Oh, also, I'm listing a new auction this weekend. It's an item that was donated by LindaH and it is a NON SMOKING Item :) I have other items on the list that are going up for auction that are non smoking too. But then I have a few more OUCH zippos that are going up too :) Thanks, Mast |
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Title: Re: Do you really care....?? Post by KingOfPain on Apr 2nd, 2004, 5:31am Thank you Elaine for your reply to my question. :) |
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Title: Re: Do you really care....?? Post by t_h_b on Apr 2nd, 2004, 6:41am I meant that it might help to post/announce: "OUCH needs X dollars for Y project" For example: "OUCH needs $1460 to mail brochures to all board-certified neurologists in the US." Or even better: "We want to get information about CH into the hands of at least 90% of board-certified neurologists in the US. This will cost $1460. If the one out of every five neurologists who was not knowledgeable about CH then diagnoses and properly treats one case of CH, we will have helped 430 fellow ClusterHeads and the average time from onset to diagnosis will drop by 25%." Of course these numbers are completely fictional. |
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Title: Re: Do you really care....?? Post by t_h_b on Apr 2nd, 2004, 6:58am on 04/02/04 at 01:31:28, Mastifflvr28 wrote:
Yes, I have reviewed the reports several times as well as IRS filings. OUCH US accomplishes a great deal with very little money, more than almost any other organization I know, because of the devoted efforts of the involved members. Just having an annual convention is an amazing feat considering the number of members and budget involved. Plus, the officers and active members are sparsely dispersed all over the US (and the globe). OUCH UK seems to accomplish a great deal as well, and ClusterBusters should be applauded as well. And look what DJ has done by creating this website. All of this has made a big difference in my life. It obviously means a lot to many others as well. |
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Title: Re: Do you really care....?? Post by Elaine on Apr 2nd, 2004, 7:05am Here is one thing we need money for . $500 for the chapters to get started. We have to pay that to the IRS. |
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Title: Re: Do you really care....?? Post by Elaine on Apr 2nd, 2004, 7:08am Got the word on money coming from Candia and UK. You can put it on their credit card in Paypal and PP will do the exchange thingy. Or if you send money we have to go to a bank or travel agency that exchanges the money, Make sure you put your money in US Dollars or we'll end up with some strange amounts. Barbar just exchanged some New Zealand money. They sent $140 in NZ dollars. We ended up with about 57 and some change. PP would be the easiest. |
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Title: Re: Do you really care....?? Post by t_h_b on Apr 2nd, 2004, 7:23am on 04/02/04 at 07:05:16, Elaine wrote:
Great! I sent some money to the address in TX where the auction payments go. You can put it towards that. Now I know what the money's for. Maybe the individual chapters now in existence can come up with $100 each to pay for the rest. |
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