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(Message started by: tsayswhy on Mar 16^th, 2004, 3:42pm)

Title: cluster site
Post by tsayswhy on Mar 16^th, 2004, 3:42pm

Just thought i would share this with you!!

I was just playing eucher on line when my doctor call asked for the site address---must have someone in his office with clusterheadaches. We are a smaller town and nice to see the word is coming out about clusterheadaches, and sending people to the site.

It was just nice to know that all my blabbing to the doc didn't go unnotice ;) tari

Title: Re: cluster site
Post by jonny on Mar 16^th, 2004, 3:46pm

Keep blabbering, Tari ;;D

...............................jonny

Title: Re: cluster site
Post by t_h_b on Mar 16^th, 2004, 6:48pm

That is really great.

Could also be that your MD wants some self-education, too.

You might even consider asking your MD to let the other ClusterHead know that if they want to contact you they can.

Title: Re: cluster site
Post by stevegeebe on Mar 16^th, 2004, 8:20pm

Send an invoice DJ.

Steve G

Title: Re: cluster site
Post by sandie99 on Mar 17^th, 2004, 4:02am

That's great!
When I go to see my neuro next week, I think I'll write him a little note with this site's address on it... That'll teach him a thing or two and help other clusterheads.

Best wishes & PFdays,
sandie99

Title: Re: cluster site
Post by Grandma_Sweet_Boy on Mar 17^th, 2004, 4:38pm

Funny thing that - my dr. just called me yesterday and gave me this site to check out. Now that I know I'm onlyl one of thousands of us, I no longer believe I'm losing my mind or imagining this searing pain.

Title: Re: cluster site
Post by jonny on Mar 17^th, 2004, 4:46pm

All right, Grandma!!!!! ;;D

Nope!, your not alone anymore...there are thousands of us roaming the world and I am King (remember that, might come in handy some day.....LOL ;;D)

Welcome aboard, at just about any hour there is somebody here if you need to vent or just talk.

.....................................jonny

Title: Re: cluster site
Post by Mac on Mar 17^th, 2004, 6:22pm

Welcome aboard Grandma. I see we have another Canuck online. You may want to check out the Canadian clusterhead site at the bottom of this post. We just got it going a couple of months ago. You'll be able to talk "Canadian" and use extra letters like "u" as in flavour or colour or neighbour.It's cool;) PFDAN Glen

http://www.clusterheadaches.ca

Title: Re: cluster site
Post by tsayswhy on Mar 17^th, 2004, 7:46pm

Welcome aboard Grandma

We are from the same home town (maybe you are the one the doctor called about the other day asking for the sites address) If we share the same doctor please help me educate him on cluster 2 is better then 1.

You will find everything you need right here and all the support you need. please feel free to email me

tari

Title: Re: cluster site
Post by Grandma_Sweet_Boy on Mar 19^th, 2004, 9:10pm

Thanks to all of you for your support. Somehow this monster doesn't seem to overbearing knowing that it's shared with so many people. Special thanks to Tari for providing the information to the dr. so he could pass it along! I promise to educate him and in fact told the Dr. at Emerg about this the night before last and he promised to look it up. I've told my own Dr. to continue to get the message out there.

Title: Re: cluster site
Post by Charlie on Mar 19^th, 2004, 9:42pm

Just got the gist of this thread.

Damn that's cool and welcome aboard Granny.

Nice going kids.

Charlie

Title: Re: cluster site
Post by cootie on Mar 20^th, 2004, 12:51am

Hi Grandma boy.......you found a new home now Pam