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        New Message Board Archives >> 2004 Posts >>  It's 100% effective on cluster headaches
        
(Message started by: jonny on Mar 3rd, 2004, 2:58pm)
Title: It's 100% effective on cluster headaches
Post by jonny on Mar 3rd, 2004, 2:58pm
Yep, thats the claim!

The site also says....."My brother had cluster headaches for many years, and nothing his doctor did seemed to help. Then he heard about sinus buster. He tried it and hasn't had a cluster headache since".

I heard the inventor of this on Howard Stern today, when asked how he found out this would work he said..." I started to feel a meegraine coming on during a self defense demonstration, just then my partner sprayed me with pepper spray and my cluster headache was gone in two seconds"

What a LOSER!!!!!

I think this punk was here awhile back pushing this stuff cause CH.COM is on the links page.

http://sinusbuster.com/index.html

....................jonny
Title: Re:  It's 100% effective on cluster headaches
Post by JDH on Mar 3rd, 2004, 3:11pm
Wish that Civamide crap the doc had me try would've knocked my cluster out in 2 seconds instead of burning the top of my head off.
So his migraine turned into a ch and then they killed it?  [smiley=huh.gif]
as Howard might say "oye ve"

Jim
Title: Re:  It's 100% effective on cluster headaches
Post by jonny on Mar 3rd, 2004, 3:59pm

on 03/03/04 at 15:11:35, JDH wrote:
So his migraine turned into a ch and then they killed it?


Ya, in other words the guy is talking out his ass, from meegraine to CH to PF all in 30 seconds....I threw a hammer at the radio but missed.......Its pukes like that that take deperate peoples money and not give a fuck.

...........................jonny
Title: Re:  It's 100% effective on cluster headaches
Post by Tiannia on Mar 3rd, 2004, 4:05pm

on 03/03/04 at 15:59:09, Sinus Buster wrote:
The capsaicin instantly relieves this swelling and pain for up to 12 hours. Chronic sufferers such as myself may have to use the spray every (4-6) hours, but regardless of your condition -- it works on 99.9% of people. The Sinus Buster relieves many types of headaches including migraines, and it fights sinusitis and allergies like nothing else can.


Damn I hope it comes in a big bottle that it releaves pain for up to 12 hours but chronic suffers have to use if every 4 hours.

Tia
Title: Re:  It's 100% effective on cluster headaches
Post by Mr.Happy on Mar 3rd, 2004, 4:36pm
Snorting pepper spray to abort pain is like slamming your testicles in a car door to make sure it's shut properly. Even tho Doc Bigal was impressed with the Civamide results, it was a 2-3 week prevent kinda deal. Left me with a "BZZZZZZZTTTTTT - WRONG" kind of feeling in my guts. You do your thing, but fer crying out loud, DON'T touch mine.

4. Civamide clinical trials have closed out and the number crunching has begun. What they learned from the earlier trials with civamide is that it works most effectively in a prevention mode. It appears to work on a cumulative effect. The first week does not show much improvement, but by the time they get out to 20 days there is marked improvement. This may be something that can be used to abort a cycle, not just an attack.

None for me, thanks,
RJ
Title: Re:  It's 100% effective on cluster headaches
Post by TxBasslady on Mar 3rd, 2004, 5:10pm
[quote author=Mr.Happy link=board=general;num=1078328760;start=0#4 date=03/03/04 at 16:36:21]Snorting pepper spray to abort pain is like slamming your testicles in a car door to make sure it's shut properly.[/quote

LMAO.............Randy

Jean
Title: Re:  It's 100% effective on cluster headaches
Post by hoeboe on Mar 3rd, 2004, 7:28pm
has anyone actually tried it though?  i'm skeptical too but...?

anyone? :-/
Title: Re:  It's 100% effective on cluster headaches
Post by jonny on Mar 3rd, 2004, 7:33pm

on 03/03/04 at 19:28:44, hoeboe wrote:
has anyone actually tried it though?  i'm skeptical too but...?


Dude,

People here have gone so far as to shove peppers up their nose and even rub blue cheese and vinager on them selfs.......Nothing!

.................................jonny
Title: Re:  It's 100% effective on cluster headaches
Post by Lizzie2 on Mar 3rd, 2004, 7:34pm

on 03/03/04 at 15:11:35, JDH wrote:
So his migraine turned into a ch and then they killed it?  [smiley=huh.gif]
Jim


Hehehe...I like how you put that :)  I was thinkin that too when I read the original post about what the guy said.  Insane!!
Title: Re:  It's 100% effective on cluster headaches
Post by stevegeebe on Mar 3rd, 2004, 7:35pm
What is Rosemary extract  and how is it obtained?  Yikes!

Steve G
Title: Re:  It's 100% effective on cluster headaches
Post by jonny on Mar 3rd, 2004, 7:37pm

on 03/03/04 at 19:35:08, stevegeebe wrote:
What is Rosemary extract  and how is it obtained?  Yikes!


Ask Hoboe.....I already think that dudes a troll.

............................jonny

When someone shows up here and does not say "hi im a sufferer" but goes right into defense of snakeoil in their first post.....I say TROLL!!!!
Title: Re:  It's 100% effective on cluster headaches
Post by eyes_afire on Mar 3rd, 2004, 7:45pm

Quote:
People here have gone so far as to shove peppers up their nose


... and some of those people shall remain nameless....

[smiley=bag.gif]

LMMFAO

--- Steve
Title: Re:  It's 100% effective on cluster headaches
Post by jonny on Mar 3rd, 2004, 7:48pm
LMMFAO....Steve ;;D

Notice that the troll is gone now that he has been called on it.....bye troll

......................................jonny
Title: Re:  It's 100% effective on cluster headaches
Post by Tiannia on Mar 3rd, 2004, 7:55pm

on 03/03/04 at 19:48:13, jonny wrote:
LMMFAO....Steve ;;D

Notice that the troll is gone now that he has been called on it.....bye troll

......................................jonny


Jonny you are one of the most skeptical people I have ever seen, but you keep the riff raff out.  ;;D

Tia
Title: Re:  It's 100% effective on cluster headaches
Post by Kevin_M on Mar 3rd, 2004, 7:58pm

on 03/03/04 at 15:59:09, jonny wrote:
Its pukes like that that take deperate peoples money
...........................jonny


People who snake-oil others at their wits end with CH, hoping to snag a few who might think he has found an answer or it's worth a try, they care shitless if it works or not.  This guy knows the CH crowd is perhaps small so tries to snag the bigger crowd with the migraines too.  Next he'll have people attesting to it's effectiveness.  
 If he REALLY had clusters, he should be sent to a remote Pacific island with nothing but his miracle cure.

I WISH

Kevin M  
Title: Re:  It's 100% effective on cluster headaches
Post by jonny on Mar 3rd, 2004, 8:00pm

on 03/03/04 at 19:55:31, Tiannia wrote:
Jonny you are one of the most skeptical people I have ever seen, but you keep the riff raff out.  ;;D


Tia,

Most people would not see how obvious that was but ive been here for so long I can spot snakeoil really fast.....Nobody!!!....fucks with this family on my watch.

.................................jonny
Title: Re:  It's 100% effective on cluster headaches
Post by pubgirl on Mar 3rd, 2004, 8:04pm
Not suggesting Sinus Buster is any good but wasn't there credible research on Capsaicin as a possible abortive?


W
Title: Re:  It's 100% effective on cluster headaches
Post by KingOfPain on Mar 3rd, 2004, 8:05pm
Thank you jonny for being
the guardian at the gates.


http://www.heritagepreservation.org/images/0062.jpg


[smiley=sayyes.gif]
Title: Re:  It's 100% effective on cluster headaches
Post by pubgirl on Mar 3rd, 2004, 8:10pm
Just found the reference I was half remembering.

Rome Headache Conference last year that Don went to. Dr N.T. Matthew from the Houston Headache clinic gave a talk on abortives, part of which said:

New treatments are Vanilloid Receptor Antagonists -  Capsaicin (can give intense irritation of nasal cavity), Civamide Nasal Spray (a significantly less irritant than Capsaicin.  Gives significant reduction in h/a over 21 days.  Currently running a very small study on this – but more volunteers desperately needed!)


Wendy
Title: Re:  It's 100% effective on cluster headaches
Post by Lizzie2 on Mar 3rd, 2004, 8:14pm
It's true there is a significant amount of literature on using Capsaicin to abort CH.  However, I think the problem with this whole issue is that it is really claiming that it is 100% effective and stops all CH for 12 hours.

Nothing works for 100% of people!

The way the claim is made...even if it is a legit product...makes the claim unreliable and unbelievable!

Lizzie
Title: Re:  It's 100% effective on cluster headaches
Post by jonny on Mar 3rd, 2004, 8:17pm
Take poll of how many people that this has helped, Wendy

Sure, it helps some people but take your poll and ill bet you its under 2%

The problem is this dudes site say "100% effective for CH"

Ok?

....................................jonny
Title: Re:  It's 100% effective on cluster headaches
Post by hoeboe on Mar 3rd, 2004, 8:23pm
chill out people!  i am not a troll!  i was unaware of anyone shoving peppers up their nose to try to abort the devil.

i have suffered from this s**t for 10 years and and have given up hope from any modern medicine because NONE of it works for me for any extended period of time.

like many of you have said in the past (and yes i have been a casual viewer of this site for 3 years), you would give anything for something that worked!

i have just gotten to the point where i don't want to poison my body with more crap like Imitrex and have just sucumbed (sp?) to the fact that i will have these for the rest of my life and bare the pain nightly without meds.

i am sorry that i did not introduce myself first before making my first post but really is the response anyway to treat a newbie?  it's not like i was defending it!  i was asking a friggin question [smiley=huh.gif]

maybe this isn't the support or help group i was looking for :'(
Title: Re:  It's 100% effective on cluster headaches
Post by jonny on Mar 3rd, 2004, 8:28pm
CLASSIC TROLL!!!

You decide

He registers on this board two hours ago and hes defending snakeoil in his first post......Think!!

.........................jonny
Title: Re:  It's 100% effective on cluster headaches
Post by Kevin_M on Mar 3rd, 2004, 8:52pm

on 03/03/04 at 20:23:19, hoeboe wrote:
have given up hope from any modern medicine because NONE of it works for me

you would give anything for something that worked!

i have just gotten to the point where i don't want to poison my body with more crap like Imitrex


We all suffer because there is no actual medication made for clusters, but giving up hope is not an
advisable cup of tea.

Give anything for something that worked?  This is the premise with which sales are hoped to be made with a
100% effective tag slapped across the label.

Imitrex has done too much for people here to be termed
poison and crap.  

Feel free to try any remedy you wish, but check out the effectiveness and how many use it.  That info can be found to the left, medication survey.  But then, that survey reflects only the choices people prefer when unbearable pain MUST be stopped, from people who experience that pain.  

If you have given up hope and then try this remedy; what if it doesn't work too.  Then what?  I hope it works for you, if not, this site will be here.

Putting your above three sentences  together, I'd recommend:   Read jonny's post above.

Kevin M
Title: Re:  It's 100% effective on cluster headaches
Post by pubgirl on Mar 3rd, 2004, 8:53pm
Sorry Jonny

I wasn't clear, I wasn't trying to suggest that capsaicin was anything other than an experimental possible if people have failed with the treatments we know work (wouldn't do it myself, sounds far too painful) and the extract from the Rome Meeting of all the CH gurus makes it clear that the Doctor concerned thought that Civamide was a far better option (if an option at all!)

And anyone who claims ANYTHING is 100% effective as a treatment for CH is either mad, a fool, a troll, a charlatan or a snake-oil vendor.

Hoeboe
If you want support and help for CH, it is here in abundance, but perhaps you'd better start again. If you have been watching for 3 years, you know the score


Wendy
Title: Re:  It's 100% effective on cluster headaches
Post by hoeboe on Mar 3rd, 2004, 9:01pm

on 03/03/04 at 20:28:11, jonny wrote:
CLASSIC TROLL!!!

You decide

He registers on this board two hours ago and hes defending snakeoil in his first post......Think!!

.........................jonny



holy smokes!  flame suit is on an fully doused with water.

tooo funny!

where in my post did i say i defend it?  seriously dude?
all i did was ask the question if anyone had tried it.  
holy christmas get a friggin life and stop thinkin that i'm either out to promote it or am the bloddy manufacturer of it.  
it looks like by the number of posts you have that you've been here awhile but maybe you need to step away from the coffee for a second and stop being so dramatic and condecending. ::)
Title: Re:  It's 100% effective on cluster headaches
Post by pubgirl on Mar 3rd, 2004, 9:07pm
Hoeboe

I tried to give well meaning advice. This isn't the way to make friends here.

Now STFU, you are behaving like a pratt.

Wendy

P.S. Been to OUCH Canada yet?
Title: Re:  It's 100% effective on cluster headaches
Post by hoeboe on Mar 3rd, 2004, 9:20pm
sorry wendy i didn't see your post on the first page.  i just got a little fired up over ole jonny.:-[

as i said i am a casual viewer to this site and only visit maybe once or twice a year.  i do not delve into the reams of posts.

i was just asking the question if anyone had tried it because i had never seen it listed in the mediaction survey as a treatment.

as for why i have never posted in the 10 years i have suffered?... i have a good support facility in my home (wife).  i don't really need the day to day conversation about them.  actually the less thought of them the better.   :)

sorry if anyone thought i was here to promote anything.  i was just trying to become more educated.
Title: Re:  It's 100% effective on cluster headaches
Post by Kevin_M on Mar 3rd, 2004, 9:20pm

on 03/03/04 at 19:28:44, hoeboe wrote:
has anyone actually tried it though?  i'm skeptical too but...?
anyone? :-/


If'n you're not defending it, explain that "but...?" above.  And then explain the "undecided" face.  

Why would you defend this remedy if nothing has worked for you, but you feel this is "certainly" worth a try?

If you have lost all hope because nothing has worked for you, why would THIS remedy be one of your first posts as a clusterhead?

You don't sound so "skeptical" to me.

Again, you ask if anyone has tried it, and then again say "anyone?  The medication survey is to the left.

If it walks and talks and smells like one.

Kevin M
Title: Re:  It's 100% effective on cluster headaches
Post by hoeboe on Mar 3rd, 2004, 9:30pm

on 03/03/04 at 21:20:27, Kevin_M wrote:
If'n you're not defending it, explain that "but...?" above.  And then explain the "undecided" face.  

Why would you defend this remedy if nothing has worked for you, but you feel this is "certainly" worth a try?

If you have lost all hope because nothing has worked for you, why would THIS remedy be one of your first posts as a clusterhead?

Again, you ask if anyone has tried it, and then again say "anyone?  The medication survey is to the left.

If it walks and talks and smells like one.
Kevin M



holy jumpin!

okay people forget that i mentioned it!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

christe almighty.  everyone over analyizing the intent of the post.  

oh well.  back to the silence that is my haven.

.... and thanks woobie for trying to be a friend.  it's appreciated :)
Title: Re:  It's 100% effective on cluster headaches
Post by Kevin_M on Mar 3rd, 2004, 9:41pm

on 03/03/04 at 21:30:42, hoeboe wrote:
over analyizing the intent of the post.  



The "intent" of the post didn't take any over analyzing.
it just took the ability to read.

Kevin M
Title: Re:  It's 100% effective on cluster headaches
Post by JDH on Mar 3rd, 2004, 10:11pm

on 03/03/04 at 16:36:21, Mr.Happy wrote:
Snorting pepper spray to abort pain is like slamming your testicles in a car door to make sure it's shut properly. None for me, thanks,
RJ


LMAO!  fuckeneh Happy one  ;;D


on 03/03/04 at 20:10:25, pubgirl wrote:
Capsaicin (can give intense irritation of nasal cavity), Civamide Nasal Spray (a significantly less irritant than Capsaicin.  Gives significant reduction in h/a over 21 days.  Currently running a very small study on this – but more volunteers desperately needed!)


Wendy


Been there done that Wendy and ain't going back. That stuff didn't touch my h/a's and it just tore the shit out of my nose. To me it wasn't much different than snorting hot peppers.
BTW, I can't believe they are saying that Capsaicin is harsher than Civamide...YIKES! that stuff must be pure fire!
I think there are much more civil ways of dealing with the beast than burning your nose off  ;)

Jim
Title: Re:  It's 100% effective on cluster headaches
Post by Charlie on Mar 4th, 2004, 12:22am
Guess it would give you something to think about. Useless for headache. You can buy this junk on ebay somewhere. It's in an ebay store somewhere.

Can't improve on Jonny.

Charlie
Title: Re:  It's 100% effective on cluster headaches
Post by Belle on Mar 4th, 2004, 1:51am

on 03/03/04 at 21:07:23, pubgirl wrote:
Hoeboe

I tried to give well meaning advice. This isn't the way to make friends here.

Now STFU, you are behaving like a pratt.

Wendy

P.S. Been to OUCH Canada yet?


Come on Wendy, your not trying to shove this guy off are ya?  Us Canadians are not all that bad, eh, eh. ;;D.  Sorry I couldn't resist.

Belle
::)
Title: Re:  It's 100% effective on cluster headaches
Post by pubgirl on Mar 4th, 2004, 4:41am
Belle

I think Canadians are lovely.
I am sure you will welcome Hoeboe with open arms ;;D

Wendy
Title: Re:  It's 100% effective on cluster headaches
Post by randal on Mar 4th, 2004, 7:24am
I would rather drive a car up my ass,Where do these people come up with this shit!!!!
Thanks for the laugh Jonny it's needed about now.
Randal ;;D
Title: Re:  It's 100% effective on cluster headaches
Post by BarbaraD on Mar 4th, 2004, 9:15am
If you want a good laugh on capsasian, go to the archives and read Drummer's post (the famous Mr. Winkie post).

A few years ago we all tried it and from my personal point of view:  It didn't do anything for MY headache at the time, but burned the hell out of my nose when the headache subsided.

And yes - I tried the Jalapeno's up the old nostrils and the banana peels. When you hurt this bad, you'll TRY almost anything.

But remember people, what works for one don't work for the next one.

Now start playing nice......

Hugs  BD
Title: Re:  It's 100% effective on cluster headaches
Post by Sean_C on Mar 4th, 2004, 10:46am
Hmmmm,

Hap you are the BEST LMMFAO

Think I'll pass on the pepper spray, thanks anyway. I've had these for too long and have been sprayed before but only remember my eyes and nose burning and my mouth tasted like shit LOL.

One quick word of advice Hoeboe, you can't fuck with the King.........he'll take your head

Lotsa love

Sean
Title: Re:  It's 100% effective on cluster headaches
Post by Tiannia on Mar 4th, 2004, 11:45am

on 03/03/04 at 20:23:19, hoeboe wrote:
(and yes i have been a casual viewer of this site for 3 years),

maybe this isn't the support or help group i was looking for :'(



on 03/03/04 at 21:20:21, hoeboe wrote:
as for why i have never posted in the 10 years i have suffered?... i have a good support facility in my home (wife).  i don't really need the day to day conversation about them.  actually the less thought of them the better.   :)


From these two posts, you are not looking for a support group.  As you say you dont want to think about them. While there are many of us who are here because we can not help but think about them because they are a massive part of our life and this place gives us the help that we need.  If you have been a casual observer for 3 years then the response that you got would not be a shock to you.  As you would have seen many other people getting this same responce when the first thing they post is about a "cure".  We all know that there is not a cure. That some people find relief from some treatments and some dont.  But since you have the support and the ability to not have to think about them daily then you have found some sort of treatment that works for you.  Pepper treatment is listed in the research to the side as well as on the OUCH site if you have taken the time to look.  

Jonny is a great help to many of us here. And the fact that he is so pretective of us and this site is a testament of his devotion.  Too many people have taken advantage of Clusterheads because as you have quoted to nicely...


on 03/03/04 at 20:23:19, hoeboe wrote:
you would give anything for something that worked!


It is just amasing that in the 3 years that you have lurked on this site


on 03/03/04 at 21:20:21, hoeboe wrote:
as i said i am a casual viewer to this site and only visit maybe once or twice a year.  i do not delve into the reams of posts.



But you do know that many here are desperate enough to try anything and pay anything for what works.

So please dont act so surprized that people are looking at you as a troll or that we do not take you for face value or as someone who is only looking to become more educated, because if that where the case then you would have asked about how the treatment is supposed to work and not if anyone has tryed it.  You would have done like many others have done in this post and searched the arcives to see what comes up about the treatment. That is what one does when they are trying to educate themselves.  

If you truly have CH, then PF wishes to you.

Tiannia
Title: Re:  It's 100% effective on cluster headaches
Post by Slammy on Mar 4th, 2004, 1:10pm
Wow Tianna!  Pretty good post from a Vegas Gal!   ;;D

Happy, my legs are still crossed over your smashed balls analogy!  :P

Slammy   8)
Title: Re:  It's 100% effective on cluster headaches
Post by Tiannia on Mar 4th, 2004, 1:16pm

on 03/04/04 at 13:10:56, Slammy wrote:
Wow Tianna!  Pretty good post from a Vegas Gal!   ;;D

Happy, my legs are still crossed over your smashed balls analogy!  :P

Slammy   8)


Thanks Slammy.  Well hell we are not all bimbo strippers with more boobs then brains.  ;;D

Tia
Title: Re:  It's 100% effective on cluster headaches
Post by Slammy on Mar 4th, 2004, 1:24pm

on 03/04/04 at 13:16:56, Tiannia wrote:
Thanks Slammy.  Well hell we are not all bimbo strippers with more boobs then brains.  ;;D

Tia



Nope!  But the visual does work for me!   ;;D


Slammy  8)
Title: Re:  It's 100% effective on cluster headaches
Post by Belle on Mar 4th, 2004, 4:32pm
Well said tia!  Hey guys I think we've scared off another one.  Oops.

Belle
::)
Title: Re:  It's 100% effective on cluster headaches
Post by jonny on Mar 4th, 2004, 4:39pm

on 03/04/04 at 16:32:55, Belle wrote:
Well said tia!  Hey guys I think we've scared off another one.  Oops.


Scared off?

Dont you think if this dude had been reading this board (Like he said) for three years he would know some of the people here and the reaction he would get?

...........................jonny ::)
Title: Re:  It's 100% effective on cluster headaches
Post by Belle on Mar 4th, 2004, 5:05pm

on 03/04/04 at 16:39:46, jonny wrote:
Scared off?

Dont you think if this dude had been reading this board (Like he said) for three years he would know some of the people here and the reaction he would get?

...........................jonny ::)

You're right (as always) jonny I totally agree with ya.

Belle
::)
Title: Re:  It's 100% effective on cluster headaches
Post by amen on Mar 4th, 2004, 5:15pm

Quote:
Scared off?

Dont you think if this dude had been reading this board (Like he said) for three years he would know some of the people here and the reaction he would get?

...........................jonny  


Yeah, I sure know the drill now.  :o It didn't take me three years.  
You no scare me Jonny :o :-*
Andrea
Title: Re:  It's 100% effective on cluster headaches
Post by jonny on Mar 4th, 2004, 5:28pm

on 03/04/04 at 17:15:25, amen wrote:
You no scare me Jonny :o :-*
Andrea


I aint out to scare anyone .....Just how is that done on the internet?

...............................jonny
Title: Re:  It's 100% effective on cluster headaches
Post by amen on Mar 4th, 2004, 5:34pm
Like I said before.  I like bantering with you. ::)  
You tell it like you see it (not neccessarily like it is) ::) and I respect you for that. ;)  If you didn't keep the riff raff out who would?
Andrea
Title: Re:  It's 100% effective on cluster headaches
Post by Tiannia on Mar 4th, 2004, 5:50pm
Like I said the time that Jonny takes to respond to each of these type of posts and to let us all know what is happening is a testiment to how much he cares about Clusterville.  [smiley=hug.gif]

And here I though Jonny would have some sort of response to my stripper comment.  [smiley=girlflash.gif]

Tiannia
Title: Re:  It's 100% effective on cluster headaches
Post by bobkip on Mar 4th, 2004, 10:18pm
Jesus, all these replies and no one mentioned the miracle cure of magnets or BETA BLOCKERS? You olddtimers are slipping.
Kip
Title: Re:  It's 100% effective on cluster headaches
Post by Charlie on Mar 5th, 2004, 3:46am
Magnets.

Penn & Teller have a SHOWTIME series called Bullshit where such things are debunked. This reminds me of the time they passed out all kinds of magnet belts, bracelets and magnets to hang on your clothing. People were happy to return with stories of fabulous results. Everyone's pain and general disposition had improved.

The thing is that the "magnets" were aluminun.[smiley=laugh.gif]

Love this stuff.

Charlie
Title: Re:  It's 100% effective on cluster headaches
Post by cathy on Mar 5th, 2004, 5:34am
The flame train will be leaving the station is approximately 10 minutes will all boarders please have thier tickets ready for inspection...Thankyou

Hey Hoeboe im sure your not a troll, unfortunatley the sheep are out it's the spring it does funny things to people...luckily it doesn't affect me one bit... ;;D

You are absolutely forbidden to post unless it's what everyone else agrees with, unless your not worried about losing your eyebrows, and take it from me it's okay, no eyebrows can be quite flattering....hey Jonny love ya loads just think your wrong on this occasion unless of course it was hoeboe who said this was a cure....and it wasn't was it... :-/

Okay toot toot...hormonally challenged woman going back to her corner now...PF vibes to all including the sheep...

btw....I have heard that prunes are a cure all..

Cathy  :)
Title: Re:  It's 100% effective on cluster headaches
Post by pubgirl on Mar 5th, 2004, 5:51am
Just in case you all missed it,  Hoeboe has 'started again' on the new people board.

Give the guy a break, it takes guts to do that and not run away, and it does suggest he is not a troll.


Wendy
Title: Re:  It's 100% effective on cluster headaches
Post by Lizzie2 on Mar 5th, 2004, 7:17am
Charlie....my dad bought and made me try magnets once!!!  They were really expensive too!  They were little squares and you had to stick them too your head!  They were sooooooooooooooooo stupid!  Definately did nothing and always wound up getting stuck in my hair and stupid stuff like that!  After a few days, he mailed them back to where he got them from! haha

Lizzie
Title: Re:  It's 100% effective on cluster headaches
Post by bubu on Mar 5th, 2004, 8:35am
from the man who came to ch.com after 25+ years of ch and being alone all that time and brought with him ideas of tuning forks and a bowl a cornflakes and alot of fear of living and confusion and hope and etc i was treated so kindly by you  all and it SAVED MY LIFE cause i had been 7 years pf and ch came back and i wasnt going to go thru this again but now i got you all and i am strong now!!! i have a family who understands, and only a CH-er can understand a CH-er!!!!  so whats up with bashing this troll newbie guy cause he wants and hopes for a non-med remedy?, stick together and we can cure ourselves, (eff the doctors and pharmaceutical companies)
CLIQUE together and no new blood,
no new blood and you whither away
Title: Re:  It's 100% effective on cluster headaches
Post by Mikey on Mar 5th, 2004, 9:42am
About this "Sinus Buster" thing, i could go on and on about the shit i went through with hot peppers up my nose once, and how i feel about this guy with his so called abortive.

So i'm just going to say BULL SHIT!!!

Mikey,  ;;D
Title: Re:  It's 100% effective on cluster headaches
Post by Ouch on Mar 5th, 2004, 10:15am
This is great stuff. Ive been sprayed directly several times with oc spray. The only thing its good for is exactly what it is made to do. And that is burn your face up. Im sure FDA will not be approving oc as a cure anytime soon.
Title: Re:  It's 100% effective on cluster headaches
Post by BobG on Mar 5th, 2004, 2:51pm

on 03/04/04 at 22:18:32, bobkip wrote:
Jesus, all these replies and no one mentioned the miracle cure of magnets or BETA BLOCKERS? You olddtimers are slipping.
Kip


When this website first started there was a lot of talk about the magic of feverfew. What has happened to all the folks the supported that miracle. Are they all cured or are they all dead? And we're still waiting for jonny's bojii stones to arrive. I think it has great promise.

[smiley=laugh.gif]
Title: Re:  It's 100% effective on cluster headaches
Post by Charlie on Mar 5th, 2004, 3:02pm
God I miss Ueli.   :-/

I miss the Boji Stones too but never fear; Jonny can still get them cheap at ebay.  

Sadly; just about all these miracle cure wonders have the same level of integrity as John Edward's "Crossing Over."  Comic relief yes, usefulness, no.

Charlie
Title: Re:  It's 100% effective on cluster headaches
Post by BobG on Mar 5th, 2004, 3:21pm
Are you saying John Edwards can't really see into the future? Shit! There goes my fortune in the copper bracelet idea.
From now on I'm sticking with Martha Stewart for invesment advice.
Title: Re:  It's 100% effective on cluster headaches
Post by Melissa on Mar 5th, 2004, 3:55pm
BOJI STONES CURED ME!!!!!    ;;D ;;D ;;D ;;D ;;D
Title: Re:  It's 100% effective on cluster headaches
Post by Tiannia on Mar 5th, 2004, 4:02pm

on 03/05/04 at 14:51:37, BobG wrote:
jonny's bojii stones [smiley=laugh.gif]


Somehow I cant picture jonny letting anyone hold his stones.  ::)

Tia  ;;D
Title: Re:  It's 100% effective on cluster headaches
Post by echo on Mar 5th, 2004, 4:02pm

on 03/05/04 at 15:55:23, Melissa wrote:
BOJI STONES CURED ME!!!!!    ;;D ;;D ;;D ;;D ;;D


Had a bad morning and no meds.  Backed against the wall I went outside, sucked on some burmuda grass, skipped rope with my shoes on the wrong feet and stuck and Oak leaf up my ass.  Pain went away.  New cure -- try it.
Title: Re:  It's 100% effective on cluster headaches
Post by Tiannia on Mar 5th, 2004, 4:06pm

on 03/05/04 at 16:02:36, echo wrote:
Had a bad morning and no meds.  Backed against the wall I went outside, sucked on some burmuda grass, skipped rope with my shoes on the wrong feet and stuck and Oak leaf up my ass.  Pain went away.  New cure -- try it.

[smiley=crackup.gif] [smiley=crackup.gif] [smiley=crackup.gif] [smiley=crackup.gif] [smiley=crackup.gif] [smiley=crackup.gif] [smiley=crackup.gif] [smiley=crackup.gif] [smiley=crackup.gif] [smiley=crackup.gif] [smiley=crackup.gif]

Have to admit it would be fun to watch, but does it HAVE to be an Oak leaf, we dont get many of those in Vegas.

Wish you where doing better. All the vibes I got coming to you echo....

Tiannia [smiley=hug.gif]
Title: Re:  It's 100% effective on cluster headaches
Post by Melissa on Mar 5th, 2004, 4:10pm
I would think a maple leaf would work... They're bigger in size tho... :-X
Title: Re:  It's 100% effective on cluster headaches
Post by echo on Mar 5th, 2004, 4:11pm

on 03/05/04 at 16:10:27, Melissa wrote:
I would think a maple leaf would work... They're bigger in size tho... :-X


We could name it the Canadian Bungholeeo Cluster Cure.
Title: Re:  It's 100% effective on cluster headaches
Post by t_h_b on Mar 5th, 2004, 6:01pm
Aluminum Foil Deflector Beanies are still the best protection that we have against cluster attacks.
Title: Re:  It's 100% effective on cluster headaches
Post by jonny on Mar 5th, 2004, 6:09pm
http://zapatopi.net/afdb/afdbhead.jpg
Title: Re:  It's 100% effective on cluster headaches
Post by Tiannia on Mar 5th, 2004, 6:16pm
Or for those who just cant figure out how to make one on your own...

http://www.paladin-press.com/detail.aspx?ID=28

By following the step-by-step directions in this book you can make your own deflector beanie – and beanies for your loved ones, your pets, your plants, even your car – before it’s TOO LATE! 8 1/2 x 5 1/2, softcover, illus., 192 pp. ISBN 1-58160-376-2
Price: $12.95   AFDB  
Title: try it before you condemn it-sinus buster
Post by porkchop1 on Mar 6th, 2004, 8:10am
Capascin/sinus buster works for us. Why the nastiness here? sinus buster is returneable and refundable if it doesn't work for YOU, and it's a bargain at 10 bucks per bottle (hundreds of doses). You do not necessarily have to use this particular product either. Zostrix on a qtip hurts like hell when placed in the nostril on the side of the head where the CH is, but it likewise works. S.B. is a lot more user friendly, 2 seconds of burn and then it's over. It is possible that it won't work for you. Nothing works for everyone. That's physiology 101. Compare that to Migranal or Imitrex, (insert any other mediation name here.) Can you return your unused other drugs to the pharmacy if and when they quit working? Try that at your local Walgreens while they laugh you out the door. And you should educate yourself before just assuming that it's the same product as the police use. It is NOT the same. You suggest that anyone who tries it is a loser, stupid or enjoys pain. I had thought that the purpose of this board to HELP each other. A newbie, reading these discouraging posts, may pass by the one thing that will end the pain that has devasted their lives/loved one. They, unlike us, may be spared the horrific decades of suffering. Shame on you. At least if you are going on a crusade to dismiss something out of hand you should RESEARCH it first. From reading the posts here it is clear that you have not bothered to find out the first thing about it, aside from hearing about it on the highly intellectually stimulating Howard Stern show. Since my CH sufferer began using this product 7 days ago it's the ONLY thing that has completely (YES, READ, 100% JUST LIKE IT SAYS ON THE AD) cured HIS headaches. By cured, I mean: he sprays the stuff and the CH disappears in seconds - not minutes, not hours and not months. We realize that the syndrome itself may never end, and will no doubt return in some form. Maybe it won't absolutely CURE the entire thing. However, for prevention and abortion, this differs to ANYTHING and EVERYTHING we have tried prior. NO SIDE EFFECTS. We are not new or uneducated about clusters, having suffered with them the past 20 years, being misdiagnosed too many times to count, ripped off by our insurance companies, etc. We have personally out of pocket spent 2,000.00 since Jan 1 this year on drugs and doctors attempting to get relief before finding this product. Nothing helped, nothing. My sufferer has ingested, snorted and injected just about every pharmaceutical product mentioned on these boards along, with 02, and in various combinations and milligrams. We don't want to abort them, we want to prevent them. There is nothing that has worked like sinus buster. So sorry to inform you that it works on Migraines as well, JUST LIKE IT SAYS ON THE LABEL. God forbid that anyone else find this wonderful product and it works for them. You know, some folks are just looking for an end to their pain. Whatever prejudice you may have against natural, inexpensive, non-invasive and fast relief you should leave behind. It is a disservice to the folks that WANT to get better. Why don't you try it before condeming it? Are you scared that you might get better?
Title: Re:  It's 100% effective on cluster headaches
Post by porkchop1 on Mar 6th, 2004, 8:25am
have you tried the actual product? what do you mean by red peppers up the nose?
Title: Re:  It's 100% effective on cluster headaches
Post by Melissa on Mar 6th, 2004, 9:24am

Quote:
You suggest that anyone who tries it is a loser, stupid or enjoys pain.


First off, who are you directing this at?  Also, I did not read anywhere on this thread that trying a different treatment makes someone a loser, stupid or enjoys pain.


Quote:
Why don't you try it before condeming it?


People HAVE tried Capsaicin porkchop!  Do a search on it here by using search button in the top right corner of your screen.  Type your search word in exactly like this: *capsaicin*


Quote:
Since my CH sufferer began using this product 7 days ago it's the ONLY thing that has completely (YES, READ, 100% JUST LIKE IT SAYS ON THE AD) cured HIS headaches.


7 days is a very short time period to be stating that it has cured his headaches.  Sure, some things like capsaicin do work...temporarily.  I really do hope his HA's never return, but being a clusterhead can also make you very skeptical of short term relief being LONG term answers.

I wish you and your clusterhead all the best!

:)mel
Title: Re:  It's 100% effective on cluster headaches
Post by porkchop1 on Mar 6th, 2004, 10:33am
there are numerous posts on this board about this being snakeoil, etc., and being a loser if you try this treatment. Yes, we realize that clusters have a way of circumventing any therapy you try.  The point: It works for us It may work for someone else. It may stop working tomorrow for us. It may keep working for someone else. If snorting kitty litter works for us next week when nothing else does, guess what? You are all going to hear about that too. Anything that takes this CH away for even a moment is a blessing, and I though that is what this board was about - having resources to deal with the pain.
Title: Re:  It's 100% effective on cluster headaches
Post by t_h_b on Mar 6th, 2004, 10:44am
Porkchop1, the nastiness here was directed at a newbie who was mistaken for another huckster like the one who came here a couple of months ago advertising this product on this message board.  The newbie did get apologies, but on another thread.

As far as this particular product goes, first of all, I am very glad that your husband is having success with it. Anything that works for someone to relieve this awful pain is A-OK by me.

That being said, anything that doesn't result in decapitation that claims 100% success in treating CH is highly questionable and the FDA would investigate if the product fell under their purview.  I have already reported this "Wayne" huckster  to the FDA (not that they're going to do anything) and am considering reporting him to the Department of Consumer Protection or to Eliot Spitzer's office.   Snake Oil Salesmen are not welcome here EVEN IF THE SNAKE OIL WORKS.

There is plenty of scientific evidence that REPEATED applications of capsaicin deplete Substance P, the neuropeptide involved in pain, in peripheral nerves.  It can even DESTROY the receptors.  There have been plenty of drug trials and experiments and there are other similar products in spray and creme form (like Zostrix) on the market.  There is at least one trial reported on the OUCH website.  Comments on the pain-relieving effect of capsaicin was first published in the US in 1850.  This is nothing new, just a "new" product being hawked by "Wayne" as if he discovered it.

However, it is quite interesting that your husband has found it to be an almost-instant 100% effective ABORTIVE (just like "Wayne" claims) when all of the scientific evidence points to it taking a week or so before the effects are significant as a PREVENTATIVE.  I myself have snorted high-Scoville hot sauce.  It did not abort my headache.  I would suggest that your sufferer is benefitting from the placebo effect and that you don't share any of this information with him since this stuff is working for him.

Here is some more information on it:

http://www.iasp-pain.org/TC98MayJune.html

In other words, I would also suggest that if this stuff is an effective ABORTIVE for your husband, then he should use it in conjunction with the AFDB as a preventative.

Thomas
Title: Re:  It's 100% effective on cluster headaches
Post by Kevin_M on Mar 6th, 2004, 11:09am

on 03/06/04 at 10:44:56, t_h_b wrote:
a "new" product being hawked    Thomas


Your whole post is way good Thomas.

I've many years experience with people who thought that if you can talk the talk, you don't have to walk the walk.

Well said Thomas

Kevin M
Title: Re:  It's 100% effective on cluster headaches
Post by jonny on Mar 6th, 2004, 1:24pm

on 03/06/04 at 10:33:28, porkchop1 wrote:
there are numerous posts on this board about this being snakeoil, etc.,  


Hey Pigcrap!!,

Can you tell the family why it is that you have eleven posts and every single one of them is pushing this product?.....Can you tell the family why you showed up here to defend this product just days after my post?

Believe me when I say "you can save your breath", this family is to smart to buy your sales pitch.

Eleven posts....Eleven posts about sinus buster......Hmmmmm!!!

..............................jonny
Title: Re:  It's 100% effective on cluster headaches
Post by t_h_b on Mar 6th, 2004, 1:39pm
Ditto what Jonny said.  

I am reserving judgement and am TRYING to give PorkChop the benefit of the doubt because she sounds very convinced of what she is saying.  There is a full-blown internet and traditional media campaign hawking this "new" product and it no doubt works for a few and the hype convinces more.  Maybe she is just one of the convinced.

However, absolute statements like "It's 100% effective on cluster headaches" don't fool anyone who's not a fool (and certainly not an experienced ClusterHead) and makes this PorkChop look like a simple huckster for "Wayne's" miracle cluster cure pepper spray.

Now, if PorkChop claimed that if you squirt it on the head of your penis, it will prolong the period before ejaculation 100% of the time, I'd believe that....
Title: Re:  It's 100% effective on cluster headaches
Post by t_h_b on Mar 6th, 2004, 1:48pm
NO MORE BENEFIT OF THE DOUBT FOR PIGCRAP:


on 02/29/04 at 07:41:07, porkchop1 wrote:
where to begin? ......the well meaning, but uneducated friends and co workers who tell me that they are sorry about my husband's "migraines"?--------Anyone, anyone anyone that has any ideas for drug cocktails, natural remedies, anything. please reply. also anyone knowing of any decent neuros in sarasota...it's been a long 8 weeks


Let's see, "Wayne" confuses clusters with migraines, too.

Why does PigCrap's sufferer need a doctor or any medication or treatment other than the pepper spray that's been 100% effective for SEVEN days?

Which is it?  Cured or Suffering?

Jonny, you nailed this one......
Title: Re:  It's 100% effective on cluster headaches
Post by Charlie on Mar 6th, 2004, 11:49pm
Someone once posted that they would snort Windex if it worked. Believe us, we're as happy as can be that the headaches seem to respond to something, whatever that may be.  What we are all wary of it is that people may substitute iffy stuff for competent medical care. Clusterheads around the world fall all over one another getting out the word on successes. This thing has been around for some time. So far we have had no real evidence for it's effectiveness.  

It's different that you use it in a spray I think. Peppers and other similar things have been discussed here and it isn't all bad. We call no one a loser. We just want them to use their heads. Be open to medically proven treatments. There have been scores of useless and even dangerous methods discussed here. You'll find well-informed, tolerant and supportive people here who are on your side.

Good luck and let us know how you are getting along.

Charlie
Title: Re:  It's 100% effective on cluster headaches
Post by jonny on Mar 7th, 2004, 10:58am
Well, well, well!!!

It seems "Pigcrap" the all mighty supporter got tired of pitching the sales and deleted its self.....NEXT!!!

...................................jonny
Title: Re:  It's 100% effective on cluster headaches
Post by stuey on Mar 10th, 2004, 4:49pm
Just to get mine in, I tried the capsiacin cream and all it did was burn, did nothing for CH.  It's on my dresser and I guess I'll try it for muscle aches or whatever.
Title: Re:  It's 100% effective on cluster headaches
Post by Charlie on Mar 10th, 2004, 6:03pm

Quote:
I tried the capsiacin cream and all it did was burn


Give it a chance kids. No need to be hasty. Probably works great for loosening hex nuts.

Charlie
Title: Re:  It's 100% effective on cluster headaches
Post by Jayne on Mar 10th, 2004, 6:18pm
yeah.......I've got a story about capsapian cream....... [smiley=laugh.gif]
Title: Re:  It's 100% effective on cluster headaches
Post by micksheadhurts on Mar 13th, 2004, 9:08am
hi mates ive found the small chillis  to help with shadows and some clusters but have to get them when u feel them cumming of its unbearable when you have your eye and nose runningthe chilli blocks the pain if you get it in time so drink some milk and eat bread if the mouth burns to much have a try and let me no
Title: Re:  It's 100% effective on cluster headaches
Post by Kirk on Mar 13th, 2004, 10:15pm
Well if you used the Capsacian on yer nuts, it might distract from a CH part of the time. Not going to be the one to try it first though.

TTFN
Title: Re:  It's 100% effective on cluster headaches
Post by jonny on Mar 13th, 2004, 10:26pm
Kirk,

Give me back my penquin you bastard.....LMMFAO ;;D

.........jonny
Title: Re:  It's 100% effective on cluster headaches
Post by Kirk on Mar 13th, 2004, 10:53pm
Do you want this one too?
http://gererstorfer.net/content/tux/TN_compaq.JPG
Title: Re:  It's 100% effective on cluster headaches
Post by Lizzie2 on Mar 14th, 2004, 9:01am
Oh so basically it's one of those things like if you shoot your foot, you'll forget about your head pain?  LOL!!

Lizzie :)


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