Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2004 Posts >> Depressed vent. Thanks for the support.
        
(Message started by: Tiannia on Jan 28^th, 2004, 10:17pm)

Title: Depressed vent. Thanks for the support.
Post by Tiannia on Jan 28^th, 2004, 10:17pm

I just had to say while i was thinking about this tonight. I wanted to tell everyone who I met this afternoon in Vegas, that it was truely amazing and wonderful to meet ya'll. And I truely can't say how great it felt to know that you understood what I was saying. The advise was more then I could ask for as this is still so over whelming and new to me as my life has been truely been turned upsidedown sense these damnable headaches started in July.

I know that I am very new to this fight and to be in the midst of people who have been fighting for so very long and to be accepted without question was wonderful. Thank you.

But to everyone else. I just had to make a comment... Blessed are your suppoerters. I sit, with a loving husband and two children in my life. But I cant honestly say that I have a supposerter in Cluster headaches. My husband will rub my back and will take me to the urgent care if I need him to. But like tonight I was driving home and got hit like normal at 5:30 and he called me to see if I was on the raod and said I sounded like crap. I told him I was getting hit. All he said was oh well take care of it. When I got him He watched the kids while I went upstairs and took my imitrex nasel spray and got a few minuents to try and let it take effect. Then I got to go down stairs and get the baby chnged and get dinner going and life has to go on. The kids get fed, daughter homeorks gets done baths and now I am on the cpu awating my 9pm HA. >:( That is why I have to find a way to get these HA under control.

I envy Greg talking about his fiance even if she does not want him to get engrossed in the web site and such. Talking to everyone and having them tell me that I need to get on welders O2 and that that my hubby saying that it is unsafe is bs and he is not a real supporter really hit hard.

So what I guess I am trying to say is Be grateful for your supporters. Because they are truely amazing people.

Tiannia/Traci

Title: Re: Thank you supporters, you all r mine...
Post by BobG on Jan 29^th, 2004, 10:07am

Hi Traci
It was great meeting you yesterday. And it was nice to meet and greet Ozzie, Rich, Gregg, Devon, Cindy and Roger.

Traci, I don't think the group meant your husband was not a real supporter. I'm sure he is. It's just that most non-ch'ers don't know the pain scale, symptoms, meds, etc that go with ch. Also most ch'ers tell their supporters to "Leave me alone. Don't talk to me. Don't touch me" during an attack. The supporter is then turned off by the rejection, doesn't know what to do and therefore it looks like the supporter doesn't care. I'm sure that is the case with your husband. Try talking to him when you are NOT hit the middle of an attack.

Hope to meet and greet with you and the others again soon.

Title: Re: Thank you supporters, you all r mine...
Post by LasVegas on Feb 4^th, 2004, 11:48pm

Tianna,
BobG is right about the support of your husband. 1st of all, be thankful he is at least around at all. Some people have lost relationships because they can't handle the daily stress it causes them from their loved one with a medical condition. Let's face it, we have a nightmare medical condition that does affect every aspect of our life. Life is so short and especially in this town, many people are after the now instead of tomorrow. Meaning that most people would not be patient unless they truly loved the person they were with as there are so many other fish in the sea. Your husband should be commended just for sticking through it with you, as my fiance is commended for sticking through it with me. Second of all, every supporter is different as all of us CH sufferers are different. Bob is right, typically when in an attack, you just want your supporter to leave you alone. I would hate for anybody to be near me. But that is me. She is supportive by respecting me needing to be alone and respecting when I say, "no, you can't do a damn thing, please leave me alone" On occasion she could help by taking me to ER if I need it as it is not advisable to drive while being attacked. If your husband were to maybe help with the kids or dinner or something of that sort to minimize your stress while in/recovering from an attack it certainly would show incredible compassion and support. If he doesn't, well then that is something you may suggest to him that he does, suggesting as BobG said above, while you are NOT being hit. He has a life too and needs to truly be educated about your condition as this will and has affected his life so that he can either be the support you need or not. From there, you will know whether or not this man is somebody you want. This may sound negative, but please think reality, your condition may go into remission for a year or two, you may possibly be chronic as you mention, whatever happens to you, he needs to be there understanding everything. If he denies and ignores then he is not a good supporter. Think about it, this is a life change for you that does impair your ability with everything when being hit. I have suffered since I was 11, now i'm 35, it is not easy to have relationships as a result of this and life is too short to be with somebody that is not supportive. The problem is who wants to be alone and furthermore who wants to be with somebosy who is not supportive, etc. On a final note here, I hope you had the opportunity to take advantage of the info we spoke of. Dr. Tran at Tenaya location of Southwest Medical. Call and set an appt. Tell him you know me and we are part of a local CH group. Demand the Pred, O2, Verap and Imitrex injections we spoke of. The o2 will take about 2 weeks and then Apria healthcare will deliver it to your home with a mask, regulator, instructions, etc. The Pred will help until the Verap kicks in. Until then, the Trex inj will be a lifesaver compared to nasal spray. You did say you never tried any of this so might as well try what is a consensus most of us agree works. We, yyou and I, have the same insurance, so I confidently give you this advice. More info if you want, just call or email me, as you are correct I don't check this board often enough. It was a pleasure meeting you face to face and hope that we all can meet again soon. You are not alone, not as a CH sufferer and certainly not alone here in Las Vegas. Take care of yourself, your kids, your husband, etc. Sincere Pain Free wishes to you Tianna.
Gregg

Title: Re: Thank you supporters, you all r mine...
Post by LasVegas on Feb 5^th, 2004, 12:19am

Tianna,
Did you post the pictures from our 2nd Las Vegas meeting? Looked around and can't find a post.
Gregg

Title: Re: Thank you supporters, you all r mine...
Post by Tiannia on Feb 5^th, 2004, 11:58am

No my camerea is still stillin on my kitchen counter. I should get off work at a decent hour and will try and at least get the group pick up.

Thanks guys. I was feeling very depressed. It goes in waves I think. I get really energetic and feel like I can beat this thing, then I feel like the crap is kicking the shit out oif me, the above post is very much me feeling this way.

My husband is a good supporter and does help as much as he can. In some way I wish that I could share this board and this part with him, but he does not want to be a part of that. And I think for that it is difficult. I feel like htere is a part of my life that is closed off from him becuase of these frigging HA's and that really hurts when everything in your life has been openly shared for so long ( I Know that 10 years is not long compared to other couples, but in Vegas 10 years is a very long time ;))

I think that he is starting to see that there is not a quick fix and that there is not a miricle drug that will just make these go away. That this is something that might or might not effect the rest of our lives and that the uncertainty of it at this time is very scary. That is something that we can face together.

I called and got my PCP changed, it wont go into effect until March 1st as I did not change it before the 20th of Jan. But I am going to call to get am appointment as soon as I can.

Tiannia