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        New Message Board Archives >> 2004 Posts >> Another dreadful thought
        
(Message started by: Carl_D on Jan 17^th, 2004, 1:28am)

Title: Another dreadful thought
Post by Carl_D on Jan 17^th, 2004, 1:28am

Reading up some about MS. Man, and I thought having CH, CPH and TMJ sucked!!!
One thing I definitley don't want is this wheelchair shit!
If the pain in my legs that crept in my right arm a bit ago gets worse, i may be ER bound by morning.

Shit!
Carl D

Title: Re: Another dreadful thought
Post by taraann on Jan 17^th, 2004, 2:36am

Vibes to you Carl! I'm hoping and praying for you!

Title: Re: Another dreadful thought
Post by Prense on Jan 17^th, 2004, 11:38am

Carl,

Hang in there dude! If it turns out to be MS, let me know. The ST is not so bad, just make damn sure you get it from someone who has done PLENTY of them! They have made great strides in preventing attacks. I have a good friend that has MS, and I can put you in touch with him. Other than a weekly shot, he lives a "normal" life. They even allowed him to stay in the military with this... The key is, early treatment.

Regards!

Chris

Title: Re: Another dreadful thought
Post by Jayne on Jan 17^th, 2004, 11:44am

Hey Carl
John and Mo who run the Ouch Uk board...well John was stricken with MS. Just to let you know that there is someone who would talk to you about it. They are great people.
Wishing all the love I can muster.
Love Jayne

Title: Re: Another dreadful thought
Post by thomas on Jan 22^nd, 2004, 5:16pm

I'm pullin' for ya, man........

Title: Re: Another dreadful thought
Post by Charlie on Jan 22^nd, 2004, 6:16pm

I have it on good authority that you'll do well.

Yuz gots me on yer side too.

Charlie

Title: Re: Another dreadful thought
Post by Turts on Jan 23^rd, 2004, 6:23am

Wishing you all the best Carl. Sounds like you are in good hands here for MS as well.

Take Care man.

thinking of ya.

Turts

Title: Re: Another dreadful thought
Post by Brian_Y on Jan 23^rd, 2004, 8:43am

My wife has had MS since the mid 1990's. She is a 4.0 tennis player, plays in city leagues, routinely decimates her opponents with extreme prejudice, runs, works out at the gym, drinks herculean amounts of alcohol when the mood strikes her, raises our daughter, etc. etc. and so forth.

In short, aside from the betaseron she takes every other day, her life is relatively normal. And this is with experiencing optic neuritis, muscle spasms ALL the time, et al.

It can be done. Do not fall prey to the "cliches" about MS.

Look into the betaseron/avonex/copaxone treatments. They have pretty good success limiting flair ups.

Martinis help too.

Title: Re: Another dreadful thought
Post by Carl_D on Jan 23^rd, 2004, 9:51am

Thanks for the heads up Brian. I will mention it to my Doc when I go back next week. Right now doing hrt (testosterone) to boost leg strength.

Peace,
Carl D

Title: Re: Another dreadful thought
Post by Brian_Y on Jan 23^rd, 2004, 12:09pm

You DEFINITELY can benefit from one of those drugs. Word on the street is that betaseron is DOSED correctly. Mention that to him. I'd explore these drugs in a skinny minute if I had MS.

And not to patronize you as I do not know your situation obviously, but if you do not have good insurance it is difficult. One month's supply of this drug for the wife is $1600. We pay a co-pay of $20. Thank you Jesus!!!