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Title: IS THERE A POSITIVE IN CLUSTERS? Post by survivor13 on Nov 17th, 2004, 8:42am the only thing i can think of is that i now have a high tolerence to all other pain. i have three bone spurs on one foot and two on the other, work twelve hour shifts on concrete floors. most people i work with that have had them get an operation and are out of work 3 months. just a nucianse to me. other h/a's., bumps, cuts scrapes,and arthritis. nothing seems to really bother me.JUST THE CLUSTERS. |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by Ruth on Nov 17th, 2004, 8:50am Positive side of CH's, only the joy of being pain free when they are gone. High tolerance to pain, a requirement not an option. Ruth |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by E-Double on Nov 17th, 2004, 9:01am You truly learn strength and perseverance!!! |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by ExplodingEyeBall on Nov 17th, 2004, 9:02am I think that CH makes all of us much better people. This doesn't mean that I would keep them if I had a choice. I know that for me, I can understand and be much more compassionate to others when they are in pain. I also see that most of the rest of the family here are VERY caring people when it comes to our problems. If I would post with a rant about something CH or non-CH, I'm sure that someone would reply with some kind of very understanding words for me. Another plus I see with the group here is that we all have a very developed (bizzare?) sense of humor. I guess that when you get something like CH, you have no choice but to try and see life a little bit differently than others. We all have our faults but overall, I think that suffering CH has made all of us very special people. Pat |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by LeLimey on Nov 17th, 2004, 9:15am Yes there is.. load's of 'em actually! 1) Here... would you have gone looking for daft-as-abrush.com? I don't think so! (I would but that's a whole 'nuvver story!) 2) You learn to REALLY appreciate good things, times, places, people. 3) When you CAN have a drink you BLOODY enjoy it! 4) Becoming more and more computer literate every day. Search Engines.. ;;D :( >:( 8) ::) :P :-[ ... smilies.... correcting DIS SITE 'AS EJAKATED ME!!! 5) The metric system... (see the imitrex tip) you can learn it WITHOUT being a junkie! 6) You learn to look on the bright side of everything. And you learn everything has a bright side if you look really, really hard!! Shall I stop now?!! |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by nani on Nov 17th, 2004, 9:19am WE are an amazing bunch of wonderfully compassionate, understanding, and very funny folks. We are tough as nails and can handle just about anything. In many ways, CH has made me a much better person. |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by rubberplant on Nov 17th, 2004, 9:28am on 11/17/04 at 09:01:57, E-Double wrote:
Hear, hear! You also learn tolerance and empathy with other people, especially when they say, "Oh, I have migraines as well," james |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by ArCane on Nov 17th, 2004, 10:30am on 11/17/04 at 09:19:03, nani wrote:
Amen!! |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by Mac_Muz on Nov 17th, 2004, 10:43am Thats the Spirit I am talking about! Something I wonder about, and I get which I see posted rarely but none the less I think I see it.. On occasion, like when the demon is really bad I seem to dream, but I am not sleeping. Memories come back in vivid color, and I see things I have not even been to... Some is real from my childhood, and others I can't even begin to explain. I know I am not sleeping as I simply can't when these CH's are bad... Are there others who re-call a vivid past in color, and suddenly realize something that occured and if so what does it mean... This is a real question... I will deal with any answers... I don't get much choice there do I? Mac |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by sandie99 on Nov 17th, 2004, 11:36am .....yes there is! I have learned what truly matters in life: health. And I have learned to appreciate PF moments a lot. Small things mean more to me now. Sometimes I think that getting CH was a blessing in a disguise. Oh, I am not masocistic; the pain is horrible, but it has forced me to change my life into better. Pain aside, I live happier life now than I did before CH. And that is a lot. :) Best wishes & PFdays, sandie99 |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by don on Nov 17th, 2004, 11:46am Quote:
Yes it will not kill or maime you. The positive is in what it isn't rather than what it is. It is not HIV It is not MS It is not CP It is not a spinal injury. etc etc. etc. It is a treatable headache. |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by marlin on Nov 17th, 2004, 1:03pm <<Yes it will not kill or maime you. The positive is in what it isn't rather than what it is. It is not HIV It is not MS It is not CP It is not a spinal injury. etc etc. etc. It is a treatable headache>> You're not kidding. Sometimes, when I'm getting hammered, I think about this guy I know that sits almost motionless in a wheelchair after a freak dumb-ass dive into a shallow swimming pool. Helps me get though it. I try to do things for the guy when I can, especially after one of my cycles. Hell, I'm probably not far behind him -- I have 5 crushed disks in my neck. So you're right - could be much worse. The "why me" episodes go away for us. And yes, I am far more compassionate individual than I would otherwise be. |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by fullhead on Nov 17th, 2004, 1:16pm on 11/17/04 at 13:03:45, marlin wrote:
key word: COMPASSIONATE |
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Title: Mac_Muz Post by Testy1 on Nov 17th, 2004, 1:58pm on 11/17/04 at 10:43:40, Mac_Muz wrote:
Yes, I've had that quite a few times when, as you say, the demon is really hanging in there. It seems to take a few weeks of constant pain and no sleep to make it happen. I usually dream in black & white and most nights can't remember anything at all when I wake up. When I'm really in the belly of the beast I get vivid dreams of places I've been and people I've met in living color and bizarre situations. I also have these occasionally when I'm actually marching around the house. These are very vivid and clear, almost psychotically so. :( I had always assumed it was either a side-effect of high doses of meds or that I was simply cracking up from a lack of REM sleep. I really have no idea what these are but you are the first person I've heard mention it. I never said anything because I already act weird enough with the CHs. All the best Jack |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by eyes_afire on Nov 17th, 2004, 6:59pm No, absolutely not, there is no 'positive in clusters'. CH sucks, no other way to look at it. If, when given a choice, you'd rather not keep it, then there's nothing inherently positive about it. --- Steve |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by Chillrmn1 on Nov 17th, 2004, 7:20pm CH has given me a better insight to compassion and pain tolerance, but I have to agree with Steve " Eyes_Afire", CH SUX!!! May we all be able to be PF soon! |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by thebbz on Nov 17th, 2004, 8:50pm One can find good in all things. Yes CH sucks...but we deal with it. No one wants it , but it makes us what we are. The best...because we have to. BB |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by marcelonyc on Nov 18th, 2004, 12:21am The compassion thing is key for me. there's this buddhist exercise in which one is asked to practice compassion by envisioning something unbearably painful like a mother losing a child or something and to use that imagery in practicing compassion for others. personally, the pain experienced w/ CH helps me in identifieing a part of someone who may rub me the wrong way and not taking it personally. i don't know if i would have this frame of mind if it weren't for the CH. the whole victimhood thing is very easy to slip on. there is someone who posted later concerning "CH and depression"...there's a huge positive. MArcelo |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by Lapsi_Harmaahapsi on Nov 18th, 2004, 1:11am The obvious: This place. Entertainment! (and a little help, sometimes) ;) |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by RandyB on Nov 18th, 2004, 10:28am on 11/17/04 at 18:59:29, eyes_afire wrote:
thankyou [smiley=laugh.gif] |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by Mac_Muz on Nov 18th, 2004, 2:55pm Oh yes, You can safely bet yer last green back dollar, that I wish I never even knew you all and this board was here. But it is and so are we. i disagree with not so much as 1 positive thing i this... I met a mess of really smart folks, some delicate some bold, but all are smart. We suffer days like no others on Earth, and we stand up to the pain and face it squarely between the eyes.. None of us like it, but we don't get much choice. You face the beast, you dance with the beast, you swear at the beast, and you tease it back, and I beg it for more. It does what it does, and right now I can't beg hard enough to get the beast to retunr odd as that might seem. I want that beast back so I can know it better. It wants my life and I want it's life so we are in a face off for life. That beast raped me, just like it rapes you, and I want to get it by the neck and kill it. So what happens? My beast ran off to hide, and wait for a day when I forget and don't look over my shoulder.. Nope: I'ld say we are blessed for the beast and gring us here. I think what bothers me the most is seeing a post with a count of 1. At a time I answer such a post I say you are most un-welcomed here, not to be taken as I don't want to see that poster, but I don't wish any ill on him/her.. Of course it matters not what I wish then, as there is only one real reason to be here, and we know that answer. Of course I was around long enough to see a sick spammer who I fought down in PM's and he is gone as far as I know... I found it odd first of all that a spammer would bother with this place and finally he appologized to me for ever coming here in the first place to cause harm to folks that more than their fair share.. The appology in it self was rather a shock to me... But no there is good in anything, even when it is a CH... Testy1, Yup you have been there... Strange place for sure. I can't say I understand that place... Just by reading what you said I KNOW you were there. There is no way to make up such things.. Mac |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by Wendy1 on Nov 18th, 2004, 10:21pm Hmmmm good questions... Only thing I see good is the feeling you get when you're done with a cycle... and of COURSE having all you for friends ;;D |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by kimh on Nov 18th, 2004, 11:10pm yes. :) but it mite only SEEEEM that way cuz we have clusters ;;D lets face it - the 'others' could be bizzy painting a TOWTALLY different pick........... :D Screw em i say ;;D .............although that may be partly whI [smiley=huh.gif] + ;;D |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by K-9 on Nov 19th, 2004, 3:57am It teaches me hope, to never give up. If I had to go into battle tomorrow, I'd want all of you right there with me by my side, as I would be by yours. I know we could do some major ass kickin'!! |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by Thomas_Martin on Nov 20th, 2004, 3:26pm it has taught me that even tough I'm in hell while the CH is raging there will always be someone, somewhere that is having it worse. That the people who love me will go to hell and back for me. Finally it has made me a better person who can listen to people who suffers and understand the pain they fell and relate. |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by kissmyglass on Nov 20th, 2004, 8:25pm The only positive? It aint Scleraderma. Thats the Nasty fuckin disease my wife has. Believe me folks if Clusters is the worst we get we'll be alright. Kev |
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Title: Re: IS THERE A POSITIVE IN CLUSTERS? Post by fullhead on Nov 20th, 2004, 8:38pm One other thing I think that is a positive is that having a CH will often cause me to compare this pain to Hell (we've all not so affectionately referred to them with that term). Then I think - "If Hell is as bad as I've heard and read that it is, then as hard as it may be to comprehend, these are nowhere near the degree of pain and torment in comparison. I sure don't want to go there." I am then forced to ponder my eternal state and thereby inspired to take preventive measures for the real Hell. (to keep from going there, that is) somebody take up an offerin, quick - i'm fixin to start preachin![smiley=twocents.gif] [smiley=sayyes.gif] |
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