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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> What to bring?  Want to start fresh w/ new ne
        
(Message started by: inyoureye on Nov 5^th, 2004, 10:20am)

Title: What to bring? Want to start fresh w/ new ne
Post by inyoureye on Nov 5^th, 2004, 10:20am

After finding this site last weekend, I realize that there is much more that can be attempted that none of my previous neuro/gp's have bothered to tell me about. I want to present to new neuro, my own build up of info on the topics about CH that have prevailed with my specific case. Is there any organized outline of what to bring and how to present it? I have an appointment for Monday.

Title: Re: What to bring? Want to start fresh w/ new ne
Post by E-Double on Nov 5^th, 2004, 10:29am

Here are some great links to proper medicinal treatment for CH:
http://www.headachedrugs.com/archives/preventivemeds.html

http://www.future-drugs.com/Iparticle.asp?publicationid=4&ar ticleid=286

Start keeping a scatter plot or some sort of data to log your HA's

Title: Re: What to bring? Want to start fresh w/ new ne
Post by inyoureye on Nov 5^th, 2004, 10:31am

I have a log of this cycle but that's it. I plan on registering with C.H.A.T.S. soon too

Title: Re: What to bring? Want to start fresh w/ new ne
Post by Tom K on Nov 5^th, 2004, 11:37am

Since you are in MA, you can PM Jonny or don and see who their neuro's are. They live in your neck of the woods. MA, anyway. Maybe they can hook you up with someone who is well versed in CH. Just my .02

T

Title: Re: What to bring? Want to start fresh w/ new ne
Post by inyoureye on Nov 5^th, 2004, 12:27pm

I'm actually in RI, anyone know a good neuro here?

Title: Re: What to bring? Want to start fresh w/ new ne
Post by Tom K on Nov 5^th, 2004, 12:41pm

http://www.clusterheadaches.org/doctors.htm

Try this link. None listed for RI, but maybe there is one somewhere near you.

T

Title: Re: What to bring? Want to start fresh w/ new ne
Post by Bob_Johnson on Nov 5^th, 2004, 2:32pm

http://www.clusterheadaches.org/library/general/management_of_ch.htm

Print this article and give the doc. Written by one of the leading headache docs in England.

Title: Re: What to bring? Want to start fresh w/ new ne
Post by thebbz on Nov 5^th, 2004, 10:04pm

Houdy Mr. Eye,
I always approach a neuro appt. as a business meeting
I prepare an agenda, topics of conversation, treatment possibilities, changes noted on diary, ect... Use him or her like any other tool against the demon, as they are only one tool and there are many. Depending on the individual be careful initially, some are put off when presented with internet information ...you might want to get a feel for the doc first..then adjust your technique to the individual. I took in some stuff from the internet to my neuro and he already knew all about the ones I did and showed me few more. Study.. the more you know the better you can relate the information to the neuro. All the best
BB

Title: Re: What to bring? Want to start fresh w/ new ne
Post by inyoureye on Nov 5^th, 2004, 10:14pm

you guys are great, thanks!

Title: Re: What to bring? Want to start fresh w/ new ne
Post by don on Nov 6^th, 2004, 12:07am

I would commute from Mass to Omaha if I had to just to keep my neuro.

Dr. Brien Lieberman
Norwood, MA

Straight up 95 North from R.I

Title: Re: What to bring? Want to start fresh w/ new ne
Post by inyoureye on Nov 6^th, 2004, 7:37am

I'm supposed to be working out of the Norwood office(UPS) (university ave just off rt 1 near all the car dealerships) for the months of Jan and Feb. I was selected for a special project dealing with our safety committees district-wide and the training is 2 months in Norwood. I will schedule an appointment w/ him just to have him look over my case (2nd opinion type thing). Do you mind if I use you as a recommendation?

Title: Re: What to bring? Want to start fresh w/ new ne
Post by don on Nov 6^th, 2004, 10:37am

Quote:

I will schedule an appointment w/ him just to have him look over my case (2nd opinion type thing). Do you mind if I use you as a recommendation?

Go right ahead.

Title: Re: What to bring? Want to start fresh w/ new ne
Post by kissmyglass on Nov 6^th, 2004, 12:08pm

This shit is so much easier to deal with when you have a good neuro.

Good Luck!

Kev

Title: Re: What to bring? Want to start fresh w/ new ne
Post by BobG on Nov 6^th, 2004, 1:31pm

on 11/06/04 at 12:08:25, kissmyglass wrote:

This shit is so much easier to deal with when you have a good neuro.

Kev

Yep! And a good Clusterheadaches.com site.