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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> Regression?
        
(Message started by: mynm156 on Nov 1^st, 2004, 5:27pm)

Title: Regression?
Post by mynm156 on Nov 1^st, 2004, 5:27pm

It's been a Brutal first full year as Chronic. I had restarting Verapamil and had been doing better. However, over the last few days its like my head is in spasm. I get these (mini clusters) These are like very short 30 seconds to couple mins of High Kips that come ALL DAY LONG. Ten to maybe twenty a day! Normally on a cluster day I get two to four attacks couple times a week. Pretty predictable stuff responds fairly well to meds. This however is a nightmare to endure they don’t stop coming no matter what I do. I have had this happen before and that is when I started the Verapamil it helped but I BLAZED through my Zomig which seemed to have no positive results. Has anyone else had these types of Attacks?

Thanks Gang let there be PF days ahead for us all

Your Brother in Pain

MYNM156

Title: Re: Regression?
Post by nani on Nov 1^st, 2004, 6:22pm

Sadly - yes I get 'em, too. I only get 'em about 4 - 6 times a day and k3-5 maybe 3 times a day for about 20 mins each. Ah - the life of chronic clusterness...

Title: Re: Regression?
Post by E-Double on Nov 1^st, 2004, 6:42pm

on 11/01/04 at 17:27:18, mynm156 wrote:

However, over the last few days its like my head is in spasm. I get these (mini clusters) These are like very short 30 seconds to couple mins of High Kips that come ALL DAY LONG. Ten to maybe twenty a day! Has anyone else had these types of Attacks?
Your Brother in Pain

MYNM156

I feel your pain or felt it....

I thought I was going nuts...ZAPS like mini excruciating CH's but for seconds...

Spoke to some of our brothers & sisters...anyway did quick research and called my neuro....

Could be SUNCT, Icepicks, didn't matter He told me.
" Forget the additional diagnosis...Let's try to get you releif!!"

Put me on an indomethacin trial and it wiped out the ZAPS or spasms as you called them.

Hasn't touched the CH but don't get those mini killers anymore.

Go for it!! (oh yeah I'm not a doctor ;))

Eric

Title: Re: Regression?
Post by Giovanni on Nov 1^st, 2004, 7:29pm

E-Double gave you good advice on indomethacin. Sounds like to me that you've got something else going on in addition to your clusters. Good luck.

John

Title: Re: Regression?
Post by thebbz on Nov 1^st, 2004, 9:14pm

Sorry your goin though it.. have the hang tough. Went though that several years ago when trying prevents..8and 9's constant. I hate it for ya. All the best
BB

Title: Re: Regression?
Post by unsolved1 on Nov 1^st, 2004, 9:50pm

on 11/01/04 at 18:42:27, E-Double wrote:

indomethacin

on 11/01/04 at 19:29:11, Giovanni wrote:

indomethacin

indomethacin

Unsolved

Title: Re: Regression?
Post by kissmyglass on Nov 2^nd, 2004, 8:46pm

All I can say is...Lithium

Kev

Title: Re: Regression?
Post by jmorgan52 on Nov 3^rd, 2004, 8:06am

I remember some threads on indomethacin
being effective for Paroxysmal Hemicrania (CPH) in the past.

I recall statements to the effect that if indomethacin was effective it showed that the person was almost certainly suffering from Paroxysmal Hemicrania rather than CH. The short sharp pains lasting 30sec to a minute does not sound quite like CH to me. You might have something else as well?

http://www.ninds.nih.gov/health_and_medical/disorders/paroxysmal_hemicrania.htm

Might be worth some more investigation for you?

John

Title: Re: Regression?
Post by jmorgan52 on Nov 3^rd, 2004, 8:13am

also check out

http://www.upstate.edu/neurology/haas/hpcldx.htm

Title: Re: Regression?
Post by mynm156 on Nov 3^rd, 2004, 11:29am

Doesnt the head just SUCK sometimes?! Thanks for all your input gang!

I sure hope I dont have something else to go with my Devil dances. These ones sure are painful and just like a cluster no warning just BAM instant ICE PICK in the eye! Very much like my night clusters. They are not AS intense as those have been lately but I would say 6-7 maybe even an 8. Thought the beast that has been acalling me at night as of the last few weeks has reduced me to tears and.............plenty of OH GODS!!!!

Thanks again my Brothers and Sisters in Pain

Nothing but LOVE and GOOD VIBES to you all!!

MYNM156

Title: Re: Regression?
Post by BillyJ. on Nov 3^rd, 2004, 3:07pm

Please don't panic.If this is one of the other forms of
headaches be relieved! They are 99.9% responsive to indomethacin. More info here- http://www.upstate.edu/neurology/haas/hpstab.htm

Title: Re: Regression?
Post by mynm156 on Nov 3^rd, 2004, 4:23pm

No No panic just the same frustration that I know you can all relate to.
Gotta call into my Neuro anyway. Maybe he can get me in before the 29th wich is my next schedualed appointment.

MYNM156

Title: sounds like you could have been here!
Post by snook on Nov 3^rd, 2004, 5:00pm

:( Well my heart goes out to you, my tomato had exactly the same deal. Im happy to say hes on his way back to the light, just a few shadows but it looks like the light is at the end of the tunnel. he still takes verapamil everyday, and the zomag goes everywhere with him. although with the cost of those bitches he will take the shadows , zomag is soooooo $$$$$$. Im sure your just extremely exhausted, hang in there I feel for you even if Im just the wife of a ch Ive learned so much about the beast, Ill pray your future days get better for you, be brave and always here if ya need to vent. ( hope you have someone to help you through this fff terrible time. god bless snook :P ::)

Title: Re: Regression?
Post by mynm156 on Nov 12^th, 2004, 5:21pm

Crazy stuff my Neuro did up the Verapimil and also gave me 6 bottles of Stadol. Stadol is ok when I just cant take it anymore. Oh Well maybe the busters are on the verge of a breakthrough.

Good Vibes all

MYNM156