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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> Histamine Drip only offers temp. relief
        
(Message started by: unsolved1 on Oct 31^st, 2004, 6:06pm)

Title: Histamine Drip only offers temp. relief
Post by unsolved1 on Oct 31^st, 2004, 6:06pm

It's official and not a fluke. It costed $37,000 and lasted for uhhhhh ... . a week.
The HA's are pilin' up again.

Date Pain Level Abortive Duration
10/21 1 Kip8 Imitrex inj. 4mg 15 min.
10/28 1 Kip8 Imitrex inj. 4mg 15 min.
10/30 1 Kip8 Imitrex inj. 4mg 15 min.
10/30 1 Kip8 Imitrex inj. 4mg 20 min.
10/31 1 Kip8 Imitrex inj. 4mg 15 min.

PS. Dr. Diamond spoke of an article written by Dr. Todd Rozen about me (Doesn't name me specifically). She is going to send me a link. It was about trying a drug called Cell Cept, a drug used for the prevention of organ rejection after heart or liver transplants. It's supposed to be like a steriod, but without all the main side effects.
Anyone seen it ??

:-/ Getting hammered again :-/

UNsolved

Title: Re: Histamine Drip only offers temp. relief
Post by LeLimey on Oct 31^st, 2004, 6:10pm

I'm so sorry to hear that, its not fair :'( I've not heard of the drug but I hope they find something that will work for you and soon

Title: Re: Histamine Drip only offers temp. relief
Post by Redd715 on Oct 31^st, 2004, 6:39pm

Daymn it all to hell Dude. You sure have been threw the fucking ringer with all the different things you've tried.

[smiley=hug.gif]

Title: Re: Histamine Drip only offers temp. relief
Post by nani on Oct 31^st, 2004, 6:45pm

Oh Michael - that really sucks! :'( Hang in there, though. We're here for you dude. [smiley=hug.gif]

Title: Re: Histamine Drip only offers temp. relief
Post by don on Oct 31^st, 2004, 7:36pm

That sucks!

Reinforces my opinion of the Diamond Headache Clinic.

If it's any consolation I have heard referances to a drug called Cell Cept being used for clusters.

Title: Re: Histamine Drip only offers temp. relief
Post by BobG on Oct 31^st, 2004, 7:49pm

37.000 bucks and

Quote:

Getting hammered again

That just plain sucks.

Are you going to try the Cell Cept?

Title: Re: Histamine Drip only offers temp. relief
Post by Kris_in_SJ on Oct 31^st, 2004, 8:23pm

Big Hugs to you Michael - We all had such high hopes for your relief with this treatment.

Keep trying. Does this new drug sound promising?

Kris

Title: Re: Histamine Drip only offers temp. relief
Post by E-Double on Oct 31^st, 2004, 10:03pm

I have a fromer colleague who has MS and is taking this......
Have read here as well as other medical sites about certain hypothesis regarding a connection with MS and Migraine so.... those who think there is that connection and believe there is a connection with migraine and CH may try Cellcept for it as well.

I just hope you get relief!!!!!! whatever you do.

Well wishes,

E.

Title: Re: Histamine Drip only offers temp. relief
Post by miapet on Oct 31^st, 2004, 11:46pm

Sorry you're getting whacked again . . .I wish you would have reached for the alternative instead of the trex . . .
*positive light and energy*
miapet

Title: Re: Histamine Drip only offers temp. relief
Post by unsolved1 on Nov 1^st, 2004, 7:51am

No, I was misunderstood. I already tried the Cell Cept. I have mixed feelings about it. It may have helped to keep the number of HA's down, but it was no cure. I did it for 13 weeks. Dr. Todd Rozen put me on it.

Going to my local neuro today and I'm going to bring up the alternative methods again today.

There was another lady at the Diamond clinic with clusters that said Histamine always worked for her and she's been coming back for years. (At the onset of her cycle)

Unsolved

Title: Re: Histamine Drip only offers temp. relief
Post by Kevin_M on Nov 1^st, 2004, 8:30am

I don't know Mike. I'd hope for the amount of money spent they would provide some follow-up to maintain your treatment's effectiveness, rather than just wash their hands of you as you hit the door. I mean for all that money, it seems they would want to warrantee their work somewhat, if they really thought it was worth what they ask for it. Hell Mike, going to the Nashville convention almost worked as well for you as Diamond did, you were pf for days afterward.
I hate to see you get into the same circle of rebound with the trex, maybe if oxygen can be given another try now that you are sort of starting over again. :(

best to you Mike.

Kevin M

Title: Re: Histamine Drip only offers temp. relief
Post by lionsound on Nov 1^st, 2004, 9:13am

Michael,
I am so sorry that treatment didn't last long.

Pain or no pain we are here for you.

I'm inspried by your incredible ability keep going every day.

Be well,
lionsound

Title: Re: Histamine Drip only offers temp. relief
Post by DerbyDemon on Nov 1^st, 2004, 9:33am

Life sucks....then you get a cluster. Your trials and tribulations make me ashamed of ever complaining.