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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> Informal CH Survey
        
(Message started by: BlueMeanie on Oct 21st, 2004, 11:58am)
Title: Informal CH Survey
Post by BlueMeanie on Oct 21st, 2004, 11:58am
After spending so much time hear reading posts, I've come to the conclusion that CH's has to be the most mixed up confusing illness known to mankind. Just for the heck of it, I wanted to do an informal survey to try to make some since of it all.  [smiley=laugh.gif]

I named four types of us Clusterheads. If your interested just post which Clusterhead most resembles YOU.

A. SEASODIC: PF periods for 7-10 months a year followed by a 3-4 month cycle of torture. On only rare occasions does PF time last more than 9 months.

B. SPARSODIC: PF periods than normally average more than 12 months at a time followed by 2-3 month cycle of torture.

C. SPARCHRONIC: No PF time throughout a year with no pattern type peaks of KIP6 & above. Just random attacks whenever and no rhyme or reason to when they increase in intensity.

D. EPICHRONIC: No PF time throughout the year with somewhat specific patterns that cycle to KIP6 and above for weeks then return to having lower KIP attacks. Usually your cycles with the chronic period last for more than 5 weeks before returning to lower KIP attacks.

Now that you have chosen your specific type of Clusterhead you are, list which numbers you can say YES to from the questions below. Obviously some can be a sometimes answer, but only answer YES if it fits you more often than not. These questions refer to a CH as a KIP6 and above only.

1. Do triptans work to abort your CH's ?
2. Do prevents prevent you from getting CH's ?
3. Can you lay down during a CH ?
4. Do your CH's last more than 2 1/2 hours ?
5. Does eating healthy/dieting prevent your CH's ?
6. Does alcohol trigger a CH ?
7. Do you smoke cigarettes ?
8. Have you ever had a head trauma ?
9. Does 02 abort your CH's ?
10. Does alternatives, i.e., Red Bull, Capsicum spray, Migraine Excederine, Excersize (not just help, but) ABORT a CH ?


Example way to answer the questions: C-1,6,9
Title: Re: Informal CH Survey
Post by thomas on Oct 21st, 2004, 12:16pm
SEASODIC
1. Yes, about 90%.
2. Rarely sansert and melatonin work best for me.
3. No fucking way!
4. Some times.
5. Not that I have seen.
6. Yes
7. Not in the past couple of days.  ;)
8. Yes
9. About 50%
10. No.
A. 1. 6. 8. 9
Title: Re: Informal CH Survey
Post by mustang on Oct 21st, 2004, 12:37pm
Epichronic
1-yes zomig
2- yes verapamil
3-no
4-sometimes (yes)
5-no
6-yes
7-yes
8-no
9-yes
10-no
Title: Re: Informal CH Survey
Post by kcorrigan on Oct 21st, 2004, 12:53pm
A - definitely. And typically spring and fall although by some miracle not every year.

1. Occassionally
2. Don't get them year-round, they follow a pattern not that I'm on Verapamil.
3. Sometimes. But it is hard to remain motionless. Usually doing a little dance in bed or rocking back and forth. I try to relax as much as possible and go to a "pain free place" to get away from it.
4. No
5. No
6. No, but I don't drink during my cycles because alcohol will elevate my pain from a constant K2 to around a 4.
7. Yes, but much less so during a cycle.
8. No.
9. Have not tried. But I do relish the fresh air and cold temps during an attack.
10. Occassionally.
Title: Re: Informal CH Survey
Post by dafreeman on Oct 21st, 2004, 12:57pm
B. SPARSODIC
1. Yes.
2. Have not tried, yet.
3. Yes. Lay down and take it, but usually not for long.
4. No...around 90 mins
5. Trying to do better now...doesn't seem to matter.
6. Yes, but only if "shadows" are present or done around usual HA time of day.
7. No
8. No, but neck trauma at early age.
9. Get back to you on this one.
10. No.
Title: Re: Informal CH Survey
Post by Valerie on Oct 21st, 2004, 1:12pm
SPARSODIC

1. yes - Zomig
2. no - but they decrease intensity
3. NO
4. No
5. no
6. Don't know - too afraid to find out
7. no
8. no
9. don't know, hope to find out soon
10. no

Valerie
Title: Re: Informal CH Survey
Post by ExplodingEyeBall on Oct 21st, 2004, 1:15pm
Seasodic

1. Haven't tried.
2. Haven't tried.
3. No.
4. Night time Yes. Day time No.
5. I have no idea.
6. I am not sure.
7. Yes.
8. Yes.
9. Haven't tried.
10. No.

A lot of these I haven't tried since I just found out for sure about 6 months ago that it was CH that I was dealing with.
Title: Re: Informal CH Survey
Post by Mr. Happy on Oct 21st, 2004, 1:18pm
Sparsodic - 1,2,6,7,9

RTFM,
RJ
Title: Re: Informal CH Survey
Post by ozzy on Oct 21st, 2004, 1:20pm
C - 1,4,6,7,8,9


Ozzy
Title: Re: Informal CH Survey
Post by PerryGR on Oct 21st, 2004, 1:55pm
C- 1, 6, 7, 9.

Very interesting thread BlueMeanie. I hope you don't mind me adding some notes:

1) Being chronic doesn't mean that you don't get no PF time at all throughout the year, it means that you didn't get more than 30 consecutive PF days during the last 12 months (according to IHS).

2) Personally i'm chronic and i'm seasonal as far as the frequency of my headaches is concerned- not the intensity. Maybe it's just me having this kind of fluctuation- just thought i should pinpoint it.

PFDAN to all,
Perry.
Title: Re: Informal CH Survey
Post by Big Dan on Oct 21st, 2004, 2:03pm
Sparasodic

1: Yes
2: Yes
3: Rarely
4: Sometimes
5: No
6: Oftentimes
7: Yes
8: No
9: No, but takes some of the edge off
10: No
Title: Re: Informal CH Survey
Post by Bob P on Oct 21st, 2004, 2:10pm
A for 1st 20 years
B for last 14 years

1,6,8,9,10
Title: Re: Informal CH Survey
Post by nani on Oct 21st, 2004, 2:50pm
D. Epichronic
1. Can't use 'em - vascular issues in my brain
2. Not really
3. Not during a 7 or higher
4. No
5. I don't know - I don't eat healthy enough
6. Only during my "bad" cycles
7. Yes - long time smoker
8. Yes- ruptured brain aneurysm
9. Don't know haven't gotten it yet.
10.No
Title: Re: Informal CH Survey
Post by thudpucker on Oct 21st, 2004, 4:13pm
I R'dTFM, but ITSM that finer granularity is required.

A.   Seasodic--6 on, 6 off

1.  Never tried.
2.  If melatonin is a prevent, then apparently so, but it's too soon to make a definite statement.
3.  K7 or above, by definition, no.
4.  Spiking no; heavy shadow, sometimes.
5.  Avoiding MSG prevents the ha's that MSG trigger.
6.  Don't drink.
7.  Yes.
8.  No.
9.  Never tried.
10.  Walking seems to shorten; ibuprofen sometimes helps with shadows.

Now, if I'd followed the instructions precisely, my response would have been A-7, which seems to me to be virtually devoid of information.   ;)

thudpucker
Title: Re: Informal CH Survey
Post by toolong on Oct 21st, 2004, 6:34pm
Sparchronic.                                                                      1.Can't take them,but when I did they helped abort.                                                                                2.No                                                                        3.No                                                                                  4.Yes
5.No                                                                                  6.Yes                                                                                 7.Yes                                                                                 8.No                                                                                  9.80%                                                                              10.No              
Title: Re: Informal CH Survey
Post by EvertBoer on Oct 21st, 2004, 6:35pm
A - First 20 years
B - Last 15 years

1, 6, 7, 9

Evert
Title: Re: Informal CH Survey
Post by don on Oct 21st, 2004, 7:05pm
All four categories at any given time in my CH career.

1. yes
2. No, reduces frequency
3. Come on now.
4. no
5. no
6. yes
7. many
8. Not to my knowledge
9. no
10. no
Title: Re: Informal CH Survey
Post by Connie on Oct 21st, 2004, 7:47pm
Speaking for my hubby (James) He answered, I typed.

B-1, 6, 7, 9
Title: Re: Informal CH Survey
Post by Kris_in_SJ on Oct 21st, 2004, 9:05pm
OK - all this going back and forth to read the questions is giving me a headache!

However ...

Sparsodic - 3-4 years between cycles.

1. Yes - Imitrex injects
2. Yes, after about 10 days of pretty high doses
3. No - but a dark room for pacing or meditating is good
4. No
5. No
6. No
7. Yes
8. No
9. Don't know - never tried - love the Trex
10. Major caffeine like in cappacino or espresso will fend off a lower kip or heavy shadows - never a full blown sparsodic CH!

Great thread - are you going to present us with a bell curve of responses when done?

Kris
Title: Re: Informal CH Survey
Post by Renee on Oct 21st, 2004, 9:58pm
D, 6,7,8,9,

Great Survey!

Renee
Title: Re: Informal CH Survey
Post by ClusterChuck on Oct 21st, 2004, 11:52pm
I can't beleive I am answering a poll here!!!  THIS poll is actually worth doing!!!


D, 7, 9

Chuck
Title: Re: Informal CH Survey
Post by JDH on Oct 21st, 2004, 11:56pm
SPARSODIC:
1. Yes
2. No
3. No way
4. Not usually
5. Don't think so
6. Everytime
7. Yes
8. Yes
9. 80%
10. Nothing listed helps

Jim
Title: Re: Informal CH Survey
Post by unsolved1 on Oct 22nd, 2004, 12:43am
C  :o

(1)Yes, Imitrex injections
(2)No...except high doses of steriods
(3)NO
(4)No
(5)No
(6)Yes/No
(7)Yes
(8)No...except for CH
(9)No
(10)No

Unsolved
Title: Re: Informal CH Survey
Post by Gator on Oct 22nd, 2004, 4:02am
Still too new to this to have any long term data, but after about a year it currently apears to be:

C - 1, 4 (sometimes), 6, 9


Gator
Title: Re: Informal CH Survey
Post by Filbert on Oct 22nd, 2004, 6:27am
Hi.

   B
   1 Yes
   2 Never used
   3 No
   4 No
   5 No
   6 Yes
   7 Yes
   8 No
   9 Never used
   10 No

                Filbert
Title: Re: Informal CH Survey
Post by Kevin_M on Oct 22nd, 2004, 6:47am
Definite Seasodic - episodes last longer though.



1.  Yes
2.  No
3.  No
4.  No
5.  No
6.  Don't drink
7.  Off and on through the years
8.  No
9.  Yes
10.NO
Title: Re: Informal CH Survey
Post by karma on Oct 22nd, 2004, 7:25am
B-
6(but quit),
7,
8(none serious but a few concussions)
9
10- these will not abort a full blown hit but some of them as well as other techniques will lessen the severity and length of attack. Usually kept under 30 minutes.
Title: Re: Informal CH Survey
Post by jmorgan52 on Oct 22nd, 2004, 10:06am
B
1 yes, but only Imigran Injections
2 no
3 yes - I prefer my agony in a cool dark bedroom
4 yes - always do if untreated with trex
5 maybe? a strict detox diet has broken cycle 3 times now
6 YES always
7 no - gave up 25 years ago - didn't affect my CH though
8 yes - at school hit on head with cricket bat needed 14 stitches
9 not tried it yet
10 no
Title: Re: Informal CH Survey
Post by hoosierdaddy on Oct 22nd, 2004, 10:20am
A-1,6,7 not tried 9 yet.

Thanks
Title: Re: Informal CH Survey
Post by BlueMeanie on Oct 22nd, 2004, 6:47pm

on 10/21/04 at 11:58:08, BlueMeanie wrote:
After spending so much time hear reading posts, I've come to the conclusion that CH's has to be the most mixed up confusing illness known to mankind. Just for the heck of it, I wanted to do an informal survey to try to make some since of it all.  [smiley=laugh.gif]

I named four types of us Clusterheads. If your interested just post which Clusterhead most resembles YOU.

A. SEASODIC: PF periods for 7-10 months a year followed by a 3-4 month cycle of torture. On only rare occasions does PF time last more than 9 months.

B. SPARSODIC: PF periods than normally average more than 12 months at a time followed by 2-3 month cycle of torture.

C. SPARCHRONIC: No PF time throughout a year with no pattern type peaks of KIP6 & above. Just random attacks whenever and no rhyme or reason to when they increase in intensity.

D. EPICHRONIC: No PF time throughout the year with somewhat specific patterns that cycle to KIP6 and above for weeks then return to having lower KIP attacks. Usually your cycles with the chronic period last for more than 5 weeks before returning to lower KIP attacks.

Now that you have chosen your specific type of Clusterhead you are, list which numbers you can say YES to from the questions below. Obviously some can be a sometimes answer, but only answer YES if it fits you more often than not. These questions refer to a CH as a KIP6 and above only.

1. Do triptans work to abort your CH's ?
2. Do prevents prevent you from getting CH's ?
3. Can you lay down during a CH ?
4. Do your CH's last more than 2 1/2 hours ?
5. Does eating healthy/dieting prevent your CH's ?
6. Does alcohol trigger a CH ?
7. Do you smoke cigarettes ?
8. Have you ever had a head trauma ?
9. Does 02 abort your CH's ?
10. Does alternatives, i.e., Red Bull, Capsicum spray, Migraine Excederine, Excersize (not just help, but) ABORT a CH ?


My answers: A-1,6,7


If you haven't done so, please post your answers if you'd like. This is just for fun to see if breaking down classifications into four separate groups will provide interesting results. I will provide graphs and a brief synopsis once enough data is provided. Thanx.
Title: Re: Informal CH Survey
Post by vig on Oct 22nd, 2004, 7:21pm
EpiCHronic.

1. Do triptans work to abort your CH's ?
Yes, Imitrex and Zomig

2. Do prevents prevent you from getting CH's ?
Yes, most prevent me from functioning too.

3. Can you lay down during a CH ?
He!! no

4. Do your CH's last more than 2 1/2 hours ?
Only rarely

5. Does eating healthy/dieting prevent your CH's ?
No, but it helps overall health

6. Does alcohol trigger a CH ?
Yes, absolutely

7. Do you smoke cigarettes ?
No

8. Have you ever had a head trauma ?
Yes

9. Does 02 abort your CH's ?
No, but it brings them to tolerable levels

10. Does alternatives, i.e., Red Bull, Capsicum spray, Migraine Excederine, Excersize (not just help, but) ABORT a CH ?
Occasionally
Title: Re: Informal CH Survey
Post by E-Double on Oct 22nd, 2004, 7:21pm
I think A only I'm into the 5th month of current cycle,
1. Do triptans work to abort your CH's ? YES
2. Do prevents prevent you from getting CH's ? ?first time using so i honestly don't know
4. Do your CH's last more than 2 1/2 hours ? they have
6. Does alcohol trigger a CH ? I avoided throughout cycle but tried recently and it has not
7. Do you smoke cigarettes ?YES
8. Have you ever had a head trauma ?  YES
9. Does 02 abort your CH's ? YES should say sometimes completely others will bring to tolerable state
Title: Re: Informal CH Survey
Post by Guido on Oct 22nd, 2004, 7:22pm
Not sure what kind of nic or dic i am. I have had to episodes 2 years apart both in the fall.
yes to 9 is all that seems to apply to me.
Guido
Title: Re: Informal CH Survey
Post by boonie on Oct 22nd, 2004, 7:26pm
6,7,8,9 yes

Boonie
Title: Re: Informal CH Survey
Post by yikes_another_one on Oct 22nd, 2004, 8:33pm
A
  1,6,8   (haven't tried 2 or 9 so don't know....)
Title: Re: Informal CH Survey
Post by firebrix on Oct 22nd, 2004, 8:33pm
Mopar would be Sparchronic but has experienced times when he might be classed as epichronic.
1) Yes. Imitrex injection.
2) No. Tried 'em all too.
3)No, but he never bangs his head, just very stoic about pain.
4)No but the  shadows can hang about a while.
5)No - tried that first but it does make for better living.
6)Yes, every time. He stopped using alcohol long ago.
7)Yes.
8 Not anything requiring hospital attention, but brikkis are always hitting their heads and CH turned up soon after a good bump on the head.
9) Most of the time if used immediately, but not always. Often returns in 1/2 hour.
10)No
Title: Re: Informal CH Survey
Post by Pegase on Oct 22nd, 2004, 10:18pm
Seasonic

1. never tried
2. Yes, verapamil
3. sometimes - lower kip
4. No
5. I think it might help
6. Yes
7. Yes
8. Yes
9. never tried
10. Yes, excersize
Title: Re: Informal CH Survey
Post by eddie on Oct 22nd, 2004, 11:19pm
D-CHRONIC ABOUT 400 days or more 10 days PF if lucky
. Do triptans work to abort your CH's ? -______yes 80%
2. Do prevents prevent you from getting CH's ?_yes 70%
3. Can you lay down during a CH ?________yes 60%
4. Do your CH's last more than 2 1/2 hours ? yes 70%
5. Does eating healthy/dieting prevent your CH's ? no  
6. Does alcohol trigger a CH ?____no  dont really drink
7. Do you smoke cigarettes ?_________________yes
8. Have you ever had a head trauma ?_yes /  bad one
9. Does 02 abort your CH's ?  _______yes 75%
10. Does alternatives, i.e., Red Bull, Capsicum spray, Migraine Excederine, Excersize (not just help, but) ABORT a CH ?{ no all execpt excersize it does 90%}
11.my tregiminal twitches i know one is coming

that was a hard test  LOL
what is my grade?     C+
 
Title: Re: Informal CH Survey
Post by Mr. Happy on Oct 23rd, 2004, 1:09am
I just love a good CH quiz, don't you?
Somebody start collating this data..........

You go first,
RRJ
Title: Re: Informal CH Survey
Post by Lizzie2 on Oct 23rd, 2004, 2:30am
D - 1,8,9
Title: Re: Informal CH Survey
Post by Redd715 on Oct 23rd, 2004, 7:30am
D--Epichronic FITS BEST OF THE 4

CH as a KIP6 and above only.

1. Do triptans work to abort your CH's ? Y
2. Do prevents prevent you from getting CH's ? Somewhat
3. Can you lay down during a CH ? N
4. Do your CH's last more than 2 1/2 hours ? YIF NOT ABORTED
5. Does eating healthy/dieting prevent your CH's ? N
6. Does alcohol trigger a CH ? N
7. Do you smoke cigarettes ? Y
8. Have you ever had a head trauma ? Y
9. Does 02 abort your CH's ? ?
10. Does alternatives, i.e., Red Bull, Capsicum spray, Migraine Excederine, Excersize (not just help, but) ABORT a CH ? N
Title: Re: Informal CH Survey
Post by Qazpur on Oct 24th, 2004, 9:59am
Sparsodic

1. Y - Imigran injections only
2. Y - Verapimil
3. N
4. Rarely
5. N
6. Y
7. Y
8. N
9. Don't know
10. N


Qazpur
Title: Re: Informal CH Survey
Post by BlueMeanie on Oct 24th, 2004, 1:12pm

on 10/23/04 at 01:09:10, Mr. Happy wrote:
I just love a good CH quiz, don't you?
Somebody start collating this data..........

You go first,
RRJ


You went and put pashed potatoes on my pizza. Get back here & take the quiz Happy.

D for effort.
Title: Re: Informal CH Survey
Post by alleyoop on Oct 24th, 2004, 4:32pm
C:1,4,6,7,8,9  (9 only since alt. therapy)

.............alley
Title: Re: Informal CH Survey
Post by Tom K on Oct 26th, 2004, 2:53pm
Ok, here are my answers:
Seasodic, mostly
1.  Yes
2.  So far, yes
3.  Depends, sometimes yes, sometimes no
4.  No
5.  No
6.  Yes
7.  Yes
8.  Yes
9.  Mostly
10.  Under K3-4 a couple of AMPs will do the trick, mostly


T
Title: Re: Informal CH Survey
Post by becky8 on Oct 26th, 2004, 5:01pm
I am C. SPARCHRONIC

1. Imitrex shots if taken soon enough
2. Yes, don't get as many
3. sometimes and alot times not
4. Sometimes
5. No, but I really try to anyway
6. Oh, yes yes yes
7. No
8. No, not that I am aware of anyway
9. Haven't got yet
10. Not in the least
Title: Re: Informal CH Survey
Post by Mr. Happy on Oct 27th, 2004, 12:14am

on 10/24/04 at 13:12:08, BlueMeanie wrote:
Get back here & take the quiz Happy.
D for effort.

I took the damned quiz on page one. What....we need to vote daily? Your hair is still falling out faster than mine. I'm standing by my B-1,2,6,7,9.

10-(C)4,
RJ
Title: Re: Informal CH Survey
Post by BlueMeanie on Oct 27th, 2004, 1:36am

on 10/27/04 at 00:14:28, Mr. Happy wrote:
I took the damned quiz on page one. What....we need to vote daily? Your hair is still falling out faster than mine. I'm standing by my B-1,2,6,7,9.

10-(C)4,
RJ


Oops ! Sorry Happy, I changed your grade to an A.

ps: I bought some Miracle Grow at the local Wal-mart. If all works like it says on the package I'll have ya beat by Davenport. lol
Title: Re: Informal CH Survey
Post by Karla on Oct 27th, 2004, 8:38am
C1,2,8 are yes.
Title: Re: Informal CH Survey
Post by Bethany1 on Oct 27th, 2004, 7:25pm
Hello--

SEASODIC

1. Yes, Imitrex
2. No, they suck
3. NO
4. Sometimes
5. No
6. YES
7. Yes
8. No
9. No
10. No

--Beth  :)
Title: Re: Informal CH Survey
Post by Tim_Z on Oct 30th, 2004, 10:42pm
SPARSODIC- usually 4 years pf and 6+ months ch.
1.Yes, nearly every time
2. No, never have
3. No way
4. Not usually
5. No
6. Every time
7. Yes
8. Yes
9. No
10. No

B-1,7,8

Tim
Title: Re: Informal CH Survey
Post by Sophie on Oct 31st, 2004, 1:24am
Seasodic
1-yes
2-yes---Topamax--had to quit (side effects)
3-no---never
4-no
5-no
6-yes---within mins.
7-yes
8-yes--maybe--possible concusion---
9-haven't tried
10-no

A-1-2-6-7
Title: Re: Informal CH Survey
Post by mynm156 on Oct 31st, 2004, 2:50pm
EPICHRONIC
1. Most of the time
2.  A little.
3. almost never
4. Rarely
5. No
6. Yes
7. No
8. Several minor, 1 Major concussion LOC
9. Only while I have it on. Comes right back if I take it off.
10. No.
(11) Sleep Apnea YES requires use of CPAP therapy.
Title: Re: Informal CH Survey
Post by Biker on Oct 31st, 2004, 5:40pm
C-  sparchronic
1-often
2-I think Verapamil helps, but even at high doses I get CH sometimes.
3-for a bit, but not very long
4-once in a while
5-no difference
6-U betcha!!!!!!!
7-yes
8-yes
9-often
10-no
Title: Re: Informal CH Survey
Post by kissmyglass on Nov 1st, 2004, 7:35am
C, 1, 7, 9

Kev
Title: Re: Informal CH Survey
Post by DerbyDemon on Nov 1st, 2004, 9:45am
B (but cycle hasn't broken as it typically does; 5 months now)
1. Yes
2. Yes - Each time I've entered episode is when I've failed to renew preventative medication
3. Only lie down to wreath in angony
4. Never let them go longer than 1 hour
5. No correlation to diet whatsoever
6. When in cycle alcohol triggers
7. Yes
8. Played fullback in HS...no concussions
9. No
10. For K1/2s, maybe coffee
Title: Re: Informal CH Survey
Post by hoosierdaddy on Nov 1st, 2004, 1:36pm
Guys,
        I crunched the numbers up to now. and came up with the following:

I. 49 people participated
   a. 10 Seasodic 20%
   b. 18 Sparsodic 38%
   c. 10 Sparchronic 20%
   d. 10 Epichronic 20%
   e. 1 unlisted 2%

II. Effectivness of treatments
   a.Triptans
        1)Seasodic 85%
        2)Sparsodic 83%
        3)Sparchronic 90%
        4)Epichronic 70%
   b. Preventitives
        1)Seasodic 30%
        2)Sparsodic 28%
        3)Sparchronic 30%
        4)Epichronic 30%
   c. Laying down
        1)Seasodic 5%
        2)Sparsodic 19%
        3)Sparchronic 0%
        4)Epichronic 10%
   d. Diet
        1)Seasodic 0%
        2)Sparsodic 0%
        3)Sparchronic 0%
        4)Epichronic 0%
   c. O2
        1)Seasodic 40%
        2)Sparsodic 39%
        3)Sparchronic 70%
        4)Epichronic 60%
   d. Alternatives
        1)Seasodic 15%
        2)Sparsodic 11%
        3)Sparchronic 0%
        4)Epichronic 10%

III. Other Questions
  a. Duration over 2.5 hrs
        1)Seasodic 5%
        2)Sparsodic 14%
        3)Sparchronic 40%
        4)Epichronic 30%
  b. Alcohol Trigger
        1)Seasodic 70%
        2)Sparsodic 78%
        3)Sparchronic 80%
        4)Epichronic 55%
  c. Smokers
        1)Seasodic 80%
        2)Sparsodic 72%
        3)Sparchronic 70%
        4)Epichronic 70%
  d. Head Trauma
        1)Seasodic 60%
        2)Sparsodic 33%
        3)Sparchronic 40%
        4)Epichronic 70%
I omited the unlisted person from the study. Sorry Boonie.

PF wishes
Greg
Title: Re: Informal CH Survey
Post by hoosierdaddy on Nov 1st, 2004, 1:50pm
Guys and Gals,
   I forgot to mention some assumptions that I had to make.

I made a spreedsheet and listed all yes answers as 1 and no as 0.
   Some answers were sometimes and almost always... I considered Almost always as yes and sometimes as .5

I could not figure out how to attach my spreedsheet or the charts. Sorry I haven't practiced up at message board functions.

Keep this thread going as Bluemeanie said he will finish the stats. I just was working at home and had an hour to kill and thought I would share what I found up to now.



Title: Re: Informal CH Survey
Post by Axel on Nov 8th, 2004, 7:09pm
...


   D-1.6.9.
Title: Re: Informal CH Survey
Post by Chillrmn1 on Nov 9th, 2004, 5:50am
B-1, 6, 7.    Have not tried O2 yet but will during next episode.  Regarding #2 - Been taking Verapamil but my body/dysfunctional hypothalmus does not benefit.

Am presently at what should be the end of my current cycle. Hope they do not become chronic.

Have seen a new Neuro this time who is willing to try different therapies, 1 being O2 and the other being a prophylactic other than Verapamil. Was prescribed Prendisone to break the cycle this time around and it seemed to work for me.    

Note on #6 - Quit alcohol completely after proper diagnosis of CH after learning alcohol was a trigger. Misdiagnosed for 20 years, properly diagnosed 7 years ago.


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