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Title: Numerous Attacks Post by Connie on Oct 7th, 2004, 8:19pm Hi, Just wondering if other people get numerous attacks within a 24 hour period. My husband just started a cycle after a four year remission (with a few randoms in between). This time he is having mini ones as we call them. Today so far he has had 11 of them. He has been aborting them with the 02 but they just keep on coming, sometimes as soon as 20 minutes later. Just curious if anyone else has this happen. Connie |
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Title: Re: Numerous Attacks Post by don on Oct 7th, 2004, 9:23pm Thats why they are called "clusters". (deja Vu) |
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Title: Re: Numerous Attacks Post by Sean_C on Oct 7th, 2004, 9:32pm I wonder if he's just shadowing hard? Sean................. |
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Title: Re: Numerous Attacks Post by Connie on Oct 7th, 2004, 9:59pm well right now it is in full bloom. He is pacing and the O2 is not working. He took a imitrex pill about 1 hour ago and still nothing. I feel so bad. |
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Title: Re: Numerous Attacks Post by vig on Oct 7th, 2004, 10:19pm Bag of ice? Hot shower? vigorous exercise? coffee? some of the freebies to try if meds aren't working |
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Title: Re: Numerous Attacks Post by Superpain on Oct 8th, 2004, 2:28am Yes. I do... But I warn you now, some of the clusterville "doctors" ::) will soon jump in and proclaim that it is not cluster headaches, but cph... I don't know your husbands medical situation, so there is a chance that it could be cph with that many short hits... BUT, I KNOW I suffer from clusters only, and I get hit like that too. Sometimes up to 15- 20 times per day. Keep filled up on the o2 and try to get some imitrex shots instead of the pills. Also, try melatonin at night!!! You/he might be amazed at the relief that little $5 bottle of OTC gold brings!!! |
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Title: Re: Numerous Attacks Post by toolong on Oct 8th, 2004, 7:51am Superpain,I don't want to sound stupid but what are cph? [smiley=huh.gif]David |
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Title: Re: Numerous Attacks Post by Mr. Happy on Oct 8th, 2004, 8:01am Chronic paroxysmal hemicrania Description (IHS): Attacks with largely the same characteristics of pain and associated symptoms and signs as cluster headache, but they are shorter lasting, more frequent, occur mostly in females, and there is absolute effectiveness of indomethacin, as shown in the description of a patient with chronic paroxysmal hemicrania. Diagnostic criteria (IHS) (abbreviated and slightly altered) 1. At least 50 attacks 2. Attacks of severe unilateral orbital, supraorbital and/or temporal pain always on the same side lasting 2 to 45 minutes 3. Attack frequency above 5 per day for more than half of the time 4. Pain is associated with at least one of the following symptoms on the pain side: 1. conjunctival injection (reddened eyeball) 2. Lacrimation (excessive tears from the eye) 3. Nasal congestion (stuffy nose) 4. Rhinorrhea (runny nose) 5. Ptosis (lowered upper eyelid) 6. Eyelid edema (lids become puffy) 5. Absolute effectiveness of indomethacin (150 mg per day or less) 6. Secondary headache types neither suggested nor confirmed http://www.upstate.edu/neurology/haas/hpcldx.htm |
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Title: Re: Numerous Attacks Post by toolong on Oct 8th, 2004, 8:55am Thanks,Mr.Happy.I get confused to what is what.My diagnosis is "chronic cluster histamine migraines"I don't see histimine talked about much here,and wondered if cph was related? [smiley=huh.gif]David |
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Title: Re: Numerous Attacks Post by Connie on Oct 8th, 2004, 8:23pm Superpain, So glad someone else has had this happen. He is strictly a CH (or so we have been told). This does not happen all the time but there are days that he gets these "mini ones" on and off all day. O2 helps for the most part but last night he went three hours with severe pain. It was horrible. So far only slight eye ache today and he used the O2 twice. Keeping my fingers crossed. Never thought I would want time to go by so fast. |
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Title: Re: Numerous Attacks Post by becky8 on Oct 8th, 2004, 9:00pm I just went through thinking I bet I am CPH because I can be like that too, Thinking what a smartie-pants, because I 'll just get Indomethacin and be just fine. Well, didn't help at all and not only that but I got hit the hardest right after taking the Indo. So it still is like that and can be longer, but I read even CHer's can have ones short as 5 minutes. So I don't know to but just telling you my experience. I'm still learning to. Good Luck!! |
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Title: Re: Numerous Attacks Post by thebbz on Oct 8th, 2004, 9:04pm My diagnosis is Cluster/Migraine. Relentless Hell...Good thing its episodic..Once the cluster is established one after another.. with migraine in between. :( BB |
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Title: Re: Numerous Attacks Post by Valerie on Oct 8th, 2004, 9:47pm BB, I had a migraine all day today after my cluster this morning. It's finally gone and I'm feeling pretty good. A little scared to go to sleep tonight. I'm sorry you deal with this combo regularly - it's just too much :( Valerie |
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Title: Re: Numerous Attacks Post by Gator on Oct 8th, 2004, 9:57pm Quote:
Don't let the name throw you. Cluster Headaches have been known by many names. Migrainous neuralgia, erythroprosopalgia, Raeder's syndrome, spenopalatine neuralgia, ciliary neuralgia, vidian neuralgia, and histamine cephalalgia are some of the names. I'd like to wring the neck of the ba$tard that decided to call them Cluster "Headaches" The stigma that name brings to all of us is unreal. Bunch of whimpy-assed, drug seeking whiners. Take an aspirin and get back to work. I wish this disease was called something scary and exotic. Maybe insurance companies would be more willing to come up with the drugs. Instead they see headache or migraine and WHAM! there goes any chance of getting the meds you need in the quantities you need them. Gator |
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Title: Re: Numerous Attacks Post by thebbz on Oct 8th, 2004, 10:01pm Well said Gator. Hey Connie dont let the demon get on ya . It is tough but you are tougher!!! When in doubt whip it out. LOL ;;D BB |
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