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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> confused
        
(Message started by: Guido on Oct 6^th, 2004, 9:54am)

Title: confused
Post by Guido on Oct 6^th, 2004, 9:54am

Currently no meds for CH. getting Imitrex nasal today. Here’s my delima.
Last night I wake up around 11:45 with about a K4 take 4 non-aspirin (cause that’s what we have). It goes to about a k7 I sit outside on the deck and breath deep and fast. It lasts about 45 minutes and poof gone. I go back to bed and at about 3:15 I wake up full-blown K8 and growing. I do the usual dance and moan. I go outside again and breathe in and out like a mad man. If I didn't have the ha I am sure I would have passed out with hipper ventilation. Then poof 45 minutes later the bastard is gone, I go back to bed. It is now 6:45; I am up because of the morning’s activity from the family and the new day. I still have what feels like a K3. I am confused because I don’t recall seeing this kind of headache behavior discussed. Has this happened to anyone here before?
Guido

Title: Re: confused
Post by thomas on Oct 6^th, 2004, 10:03am

People get woken up all the time, not sure I understand the question....... [smiley=huh.gif] Try melatonin before bed, it might help.

Title: Re: confused
Post by Guido on Oct 6^th, 2004, 10:10am

I guess the question is whether or not this sounds like CH or not. Before I would have an attack that had a begining and and end, not a fuckin lunch break and back at it 2 hours later...sorry for the language..but between stone walled at my clinic and this episode last night.. I am runnin on empty.
Guido

Title: Re: confused
Post by thomas on Oct 6^th, 2004, 10:20am

Yeah, the on again, off again thing happens a lot, too.

Title: Re: confused
Post by karma on Oct 6^th, 2004, 10:20am

Getting woken up with it is classic CH. Some people get hit during the days only, some at nite only and some day and nite. It can also change patterns. Thomas is right about the melatonin for the nite hits. Its a nonscript suppliment that you can pick up at any pharmacy or in the vitamin section. usually 9 mg. an hour or so before you crash for the nite. Its not a guarantee but its pretty successful.

Title: Re: confused
Post by EmpressJMB on Oct 6^th, 2004, 10:45am

That's normal for me. When I'm in cycle, I get woken up every 1 1/2-2 hours. I've been told it's when I hit REM sleep. It's tough, I know. Hard to function during the day. Hope it gets better for you Guido. [smiley=hug.gif]
PFDAN and vibes coming your way. Janet

Title: Re: confused
Post by don on Oct 6^th, 2004, 11:39am

Quote:

, not a fuckin lunch break and back at it 2 hours later.

Thats why they are called "clusters".

Title: Re: confused
Post by ArCane on Oct 6^th, 2004, 1:32pm

It happens alot. There are some nights I get hit, recover, go back to bed, then an hour later have another. It continues on all night like that sometimes. After about the 3rd/4th time I get hit, I usually stay awake because of the fear of having another. Melatonin seems to help alot of people here. But when the Beast really wants your ass there is NO way of stoping the sob. Hope you get some sleep. PF vibes coming ur way.

Title: Re: confused
Post by netniet on Oct 6^th, 2004, 4:04pm

Most of the time a get hit 3 to 4 times. It begins at 23.00 , 01.30, 04.00 and the last one around 07.00 in the morning. I'm a imitrex junkie :-/

Ninet

Title: Re: confused
Post by yikes_another_one on Oct 7^th, 2004, 4:16pm

at 7am it's a k-4,
7:10 it's a k-6
by 7:20 it's time to dance

by 7: 40 it's back to a k-5
by 8 am it's disappeared or just a shadow

at 10:30 it's back to a 5
and at 11 time to go find a locker to bang head on
11:15 (restrain from digging eyeball out of head)
11:30 a manageable 6

by noon it's gone again

around 4pm it hurts again

by 6 I feel like I need to remove fire poker from
back of head.

by 9, pain recedes.... exhausted, climb into bed
pray for sleep to release from nightmare.

Midnight - what was that?
did my head just say ow,ow,ow? Try to ignore it.
SLide out of bed, push eye, veins, grab ice,
sit two inches from air-conditioner,
moan into a pillow so hubby can sleep
winthin 10 -2 0 minutes pain vanishes
crawl back, slink into bed, try to breath normally

7am
eyes shoot open to find another kip 7

Um, each head ache lasted less than an hour,
but each day for a week or more they come back
same time, skipping times, but pretty regular.

That's a cluster of headaches.
Hence the "label"

Welcome to hell on Earth.
Sorry you became a member.
but we have a free pass

No tumor, no brain damage -
that they have measured at least...lol....

so we are the lucky ones.

Dancing with the devil in the pale moonlight...
but not crossing over