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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> The Beast isn't playing fair...
        
(Message started by: Valerie on Oct 5^th, 2004, 11:20am)

Title: The Beast isn't playing fair...
Post by Valerie on Oct 5^th, 2004, 11:20am

I know - it's the understatement of the year!!

I think it's mad at me for trying to squash it with Zomig. I got hit this moring at 5:30 and it started out pretty mild so I thought it wouldn't get too bad. I was wrong, it got really bad - I decided to try and deal with it because I didn't want to waste the Zomig - I wasn't sure if it would work late into the attack. Anyway, it lasted for about an hour, I was so drained that I crawled back into bed. I woke up an hour later with another attack - this time I took the Zomig and it worked. I'm not sure if I had 2 back to back attacks - that's never happened to me or if I had one long, long attack.

Frustrated, Mad, and Annoyed in Ohio

Valerie

Title: Re: The Beast isn't playing fair...
Post by nani on Oct 5^th, 2004, 11:23am

:( Sorry about what you're going through. It seems this bastard never plays fair...

Title: Re: The Beast isn't playing fair...
Post by don on Oct 5^th, 2004, 11:53am

Your second attack occured because you went back to sleep.

Title: Re: The Beast isn't playing fair...
Post by Valerie on Oct 5^th, 2004, 11:59am

I go back to sleep a lot of times after my attack - especially if it's at night. I usually feel really drained and beat down after an attack and the only thing I can do is go lay down and go to sleep.

Title: Re: The Beast isn't playing fair...
Post by plateglass on Oct 5^th, 2004, 12:00pm

Hey Val ....Have you gotten a script for O2 yet? You'd be amazed at how quick it aborts an attack!! :) Steve

Title: Re: The Beast isn't playing fair...
Post by Valerie on Oct 5^th, 2004, 12:02pm

I tried it during my last cycle 2 year ago - it didn't work for me, but I don't know if I had a non-rebreather mask. I have an appt with a neuro on Nov 5 (an eternity away) and I'll be sure to see if I can try it again.

Title: Re: The Beast isn't playing fair...
Post by plateglass on Oct 5^th, 2004, 12:03pm

The mask makes all the differance! Plus no side effects Keep me posted and Good luck :)..Steve

Title: Re: The Beast isn't playing fair...
Post by BobG on Oct 5^th, 2004, 12:59pm

on 10/05/04 at 12:02:00, Valerie wrote:

but I don't know if I had a non-rebreather mask.

Did it look like this?

http://www.headachesupportgroups.com/oxygen/nonrebreather.JPG

Title: Re: The Beast isn't playing fair...
Post by Valerie on Oct 5^th, 2004, 1:15pm

No, it was just a plastic little mask that went over my mouth and nose - now I know - I wondered why the oxygen never worked for me. Plus it's not real fun to have huge oxygen tanks next to your bed when you normally feel like a healthy person. I guess rocking in the corner with a droopy watery eye and nose isn't very "normal" either!

Title: Re: The Beast isn't playing fair...
Post by don on Oct 5^th, 2004, 2:12pm

Quote:

You'd be amazed at how quick it aborts an attack!! Steve

But not for everyone. O2 has no effect on my CH.

Title: Re: The Beast isn't playing fair...
Post by BobG on Oct 5^th, 2004, 3:22pm

on 10/05/04 at 11:59:14, Valerie wrote:

Ithe only thing I can do is go lay down and go to sleep.

If you must go back to sleep try it with your head elevated or sitting in the La-Z-Boy.

Title: Re: The Beast isn't playing fair...
Post by vig on Oct 5^th, 2004, 4:45pm

I'm with Don, falling back to sleep is asking for trouble.
Even if I'm exhausted... I have to get up and do something.... where the heck do think all these pictures come from?

Title: Re: The Beast isn't playing fair...
Post by Gator on Oct 8^th, 2004, 11:55pm

on 10/05/04 at 15:22:36, BobG wrote:

If you must go back to sleep try it with your head elevated or sitting in the La-Z-Boy.

I pretty much sleep like this all the time. When I can sleep at all that is. Ba$tard doesn't usualy let me get much more than a few hours a night.

I'd definitely retry the O2, even if you did use the right mask last time. Things that didn't work have a way of working later on. Unfortunately, the converse is also true. Things that worked last time may not work next time. You're right - beast does not play fair at all.

Gator

Title: faire tails
Post by rumplestiltskin on Oct 9^th, 2004, 4:17am

Don...if O2 doesn't work for you then you probably don't have clusters. Please check the links to the left.

The beast plays fair....perfectly fair...we just don't like his rules. He's misunderstood....needs love and attention. He was on Dr. Phil and is coming to grips with the issues he has. A trigeminal nerve assaulted him when he was young.

Love
den

Title: Re: The Beast isn't playing fair...
Post by clarence on Oct 9^th, 2004, 8:53am

on 10/05/04 at 13:15:54, Valerie wrote:

Plus it's not real fun to have huge oxygen tanks next to your bed when you normally feel like a healthy person. I guess rocking in the corner with a droopy watery eye and nose isn't very "normal" either!

I know what you mean. The first time the guy delivered the tank to my place he said, "Is this for you? Oh, I usually deliver to old folks' homes." What a jerk.

Quote:

LMAO [smiley=laugh.gif]

Casey