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Title: A cluster guinea pig @ Diamond HA clinic Post by unsolved1 on Sep 21st, 2004, 6:21pm It's official. I'm going to Chicago to stay at the Diamond Headache Clinic for a Histamine Drip Therapy on Oct. 6th. I just got out the hospital today. Spent the last week trying to keep my BP down enough to get some DHE IV. I've had tons of steriods again and I'm on another fresh taper. Still having trouble with the high BP too. I've already heard from one person who has tried this and it failed. Diamond claims a 60% success rate at stopping chronic clusters with this therapy. I hope it does me some good...as i'm tired, worn out, bruised up, swelling up, and scarred up (from Pic Lines). I need a break !! Unsolved :( |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by Bec on Sep 21st, 2004, 6:34pm |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by Kris_in_SJ on Sep 21st, 2004, 8:05pm My biggest hugs and good vibes are being sent your way right now! Experimental as it might be, It still sounds better than deep brain surgery. *smile* Good luck - give us all a full report when done. Here's to many, many PFDAN! Kris |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by IndianaJohn on Sep 21st, 2004, 8:06pm Hang in the Mike, hope things work out for you. John |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by E-Double on Sep 21st, 2004, 8:12pm Wishing you relief Mike!!! good luck with everything :) eric |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by Jonny on Sep 21st, 2004, 8:17pm Hang in there buddy....we are all pulling and rowing for you. Godspeed ...............................................jonny |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by Sean_C on Sep 21st, 2004, 8:25pm Big vibes comin your way.. Sean....................... |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by alleyoop on Sep 21st, 2004, 8:51pm Mike, here's hoping that this works! If not, think hard about the alternative treatment. .................................alley :-/ |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by Kevin_M on Sep 21st, 2004, 8:54pm Hang in Mike, Have Diamond throw youn an OUCH convention, you were PAIN FREE for several days after Nashville! Good Luck Michael, Kevin M |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by broomhilda on Sep 21st, 2004, 10:26pm Good luck Mike, loads of vibes coming your way, best wishes for pf times for you.... Andrea |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by Renee on Sep 21st, 2004, 10:52pm Michael, Good luck and PLEASE keep us posted as to the potential success! Keeping my fingers crossed for ya, Renee |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by synergy on Sep 22nd, 2004, 4:57am Good luck unsolved - let us know what the results are :-* |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by Tom K on Sep 22nd, 2004, 8:56am Please do let us know how it goes. My new neuro was a partner with Diamond and is now on his own. Would like to compare... T |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by mitChell on Sep 22nd, 2004, 11:49am Good luck - hope it works for you 8) |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by pubgirl on Sep 22nd, 2004, 5:23pm :-* Good luck Love W |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by PerryGR on Sep 23rd, 2004, 2:22am Good luck Unsolved. Hope it gives you the break you're seeking. PFDAN to all, Perry. |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by nani on Sep 23rd, 2004, 11:09am Best of Luck to you!!! [smiley=hug.gif]Keep us posted. PFDAN! |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by chuck on Sep 24th, 2004, 1:57am Hey man, I hope this works for you better than it did me. You should at least be relatively pf while in there. Good luck!! I'll be thinking about you from the suburbs of chicago, 1/2 hr away, sending vibes!! |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by Woobie on Sep 24th, 2004, 2:08am Good Luck Michael!!!!!!!!!!!! You derserve a break. I'm pullin for you!!!!!!!!! Vibes tina :-* |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by Lizzie2 on Sep 24th, 2004, 11:28am I hope it goes well!! Have you considered IV lidocaine? I did it for 10 days last summer before I had clusters. Still waiting for May so I can go back in and do it again. I do not have any ability to miss school until graduation on May 24, so that's what I'm hoping and waiting for. Anyhow, just another thought. It's still relatively new as I was only the 2nd person to try it last summer, but they are using it a lot more frequently here now. |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by unsolved1 on Sep 24th, 2004, 10:44pm on 09/24/04 at 11:28:27, Lizzie2 wrote:
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by sailpappy on Sep 25th, 2004, 12:03am ::)Well I just hope you have more luck with the Histamine drip treatment than I did, I repeated the theraphy at least 4 or 5 times and aside from having a Cluster for 3 hours each time and getting all red in the face, lets just say it failed horribly, and at the prices Diamond Clinic charges, well I would ask my Neuro to do it in his office, it would be a lot cheaper, unless they have changed their fee schedule your looking at around $10,000.00 to be in agony for 3 hours a day for 3 days in a row for each time they give you the treatment! Good Luck Pappy Maybe with Seymore Sr gone Junior will be a little less expensive and more compassionate? http://www.gifs.com/assets/cointoss2.gif |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by chuck on Sep 25th, 2004, 5:44am Hey sailpappy, I was wondering how long ago it was that you did the IV histimine treatment? I was there in '97 and again in '02, it is true that if you take the histimine too quickly it will trigger an attack but they kept monitoring me and getting on me when I tried to run it too fast. It was my feeling that I needed to run it fast in order to build a tolerance to the histimine, but they kept yelling at me so I slowed it down. I guess that makes two of us, one running it fast and getting HA's, and the other of us running it slower and not getting HA's, but the end result is the same, WE BOTH STILL HAVE HA's!!!!! I'm really hoping for a positive report from unsolved. Please let us know how it goes. I've got your dates marked down and I'll be thinking and sending energy!!! best of luck chuck |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by sailpappy on Sep 25th, 2004, 12:34pm ;;DHey Chuck, It was in 1976,77,and 2 times in 80. the method back then was and IV drip for 3 hours, 3 days in a row. I pray for Unsolved it works!!! Don't mean to be such a pestimistic Old Fool, just was a collosal waste of time for me! My Doctor did the Histamine treatment on the consultational advise of Dr. Seymore Sr. Having read the post today, well I think the Blood Pressure issue might have a part in this and probibly sould be addressed first as the Histamine treatment will jack the BP up quiet a bit on its own. IMHO Pappy By the way---Its sure nice to be back home again, even with all the new Brothers and Sisters we have now! ;;D http://homestead.com/~site/animations/People/animations/monk__prayingA.gif |
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Title: Re: A cluster guinea pig @ Diamond HA clinic Post by bluesunshine on Sep 26th, 2004, 12:35am Let's put an end to it. LET'S PUT AN END TO IT! I know you can motive yourself to get to it. You will do it, man! you will enjoy and embrasse life again, man! |
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