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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> What now??
        
(Message started by: toolong on Sep 20^th, 2004, 7:05pm)

Title: What now??
Post by toolong on Sep 20^th, 2004, 7:05pm

Seeing family Dr. Fri. am and need a plan to find something to use as a cycle buster.I can't take any of the triptans due to heart attack.Use O2 and it works about 70% of the time,but when I get too far into the CH it fails to help.Tried narcotic pain meds.,but they seem to make the pain worse.Any suggestions???HELP!David

Title: Re: What now??
Post by Jonny on Sep 20^th, 2004, 7:10pm

Start with verapamil......if that dont work add some Lithium.....Its a chronics cocktail but it also works for episodics

Good luck

................................jonny

Title: Re: What now??
Post by E-Double on Sep 20^th, 2004, 7:17pm

on 09/20/04 at 19:05:49, toolong wrote:

Seeing family Dr. Fri. am and need a plan to find something to use as a cycle buster.I can't take any of the triptans due to heart attack.Use O2 and it works about 70% of the time,but when I get too far into the CH it fails to help.Tried narcotic pain meds.,but they seem to make the pain worse.Any suggestions???HELP!David

Sorry your suffering dude!!

As far as your question of abortives (triptans) I don't know of any other than Oxygen (which you are successfully using @ a high %),

As far as your cycle buster... have you used steroids? or are you on any preventatives? "Preventatives" are used to knock down the cycle or atleast to knock down the frequency and intensity.

Do you get them @ night? Have you tried melatonin? It's been a blessing for many including myself @ getting rid of the nocturnal visitor.

Will get you a link to different meds...

Good luck and hope you catch a break.

E

Title: Re: What now??
Post by toolong on Sep 20^th, 2004, 7:38pm

Take melatonin at night and it does help with sleep.Tried the Lithium but stoned me out pretty bad.(got to work and can't do it stoned).Maybe I didn't give it a long enough try.I was on Inderal but Dr.switched it to Nadolol 120mg.and Voltaren 150mg.David

Title: Re: What now??
Post by Jonny on Sep 20^th, 2004, 8:08pm

on 09/20/04 at 19:38:01, toolong wrote:

Tried the Lithium but stoned me out pretty bad.(got to work and can't do it stoned)

Man, Ive been taking 600 mgs of Lithium everyday for 12 years and running my company.

You must have been taking the really good Lith.......LOL ;;D

..............................................jonny

Title: Re: What now??
Post by Tom K on Sep 20^th, 2004, 8:08pm

There is Verapamil and Topamax (check the spelling). Those are also front line prevents. O2 and ice packs if you can't do the triptains. Check the meds forum, some new stuff there that may help. Ask your doc about trigger point injections. They knocked out the frequency for a few days for me. I knew they wouldn't work long term for me because I burn novacain pretty quickly, but I get 4 days of good results.

T

Title: Re: What now??
Post by Kris_in_SJ on Sep 20^th, 2004, 8:23pm

Hi - sorry you're suffering!

Here's the link that helped me the most. I just printed it out and took it to my doc. It's now a part of my permanent record (my doc loves it!)

http://www.future-drugs.com/admin/articlefile/ERN020304.PDF

We're all different, but something in here just might do the trick!

Good Wishes and Hugs,

Kris