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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> Relief at last!!!!!
        
(Message started by: synergy on Aug 26^th, 2004, 4:45pm)

Title: Relief at last!!!!!
Post by synergy on Aug 26^th, 2004, 4:45pm

[smiley=biggrin.gif]

Marc started using the oxygen therapy yesterday and so far it has aborted 3 out of 4 attacks!!!!

We dont want to get our hopes up too much but it is so hard not to - this is the first time something has worked.

On the one attack that the oxygen didnt abort the beast - it did seem to stop the attack getting any worse, but marc said just concentrating on his breathing with the O2 helps.

Im so happy i could cry - its so nice to see marc back again without that pain expression on his face - he managed to play with our baby daughter emma for over 2 hours today and feed her dinner without the beast stopping him!!!!

I know the O2 wont work every time but even if it works just on one attack a day - thats better than what we had to deal with!!

Thankyou to everyone and love and PF days to all!!!

love sarah, marc and baby emma!!

Title: Re: Relief at last!!!!!
Post by E-Double on Aug 26^th, 2004, 5:16pm

http://smileys.smileycentral.com/cat/23/23_5_109v.gif

truly is!! best and keep us updated,

Eric

Title: Re: Relief at last!!!!!
Post by Ronny on Aug 26^th, 2004, 5:32pm

Yabbe Dabbe Doo

Great !!!!! :D

Title: Re: Relief at last!!!!!
Post by IndianaJohn on Aug 26^th, 2004, 5:42pm

Great news Sarah! So glad that marc and all of your family is getting some much needed relief!

Best Wishes!

John

Title: Re: Relief at last!!!!!
Post by Kevin_M on Aug 26^th, 2004, 7:39pm

Oxygen has saved many here. It seems to work for him, keep him in good supply. Glad to hear. :)

Kevin M

Title: Re: Relief at last!!!!!
Post by Kris_in_SJ on Aug 26^th, 2004, 8:27pm

So glad for all of you!

Many Hugs,

Kris

Title: Re: Relief at last!!!!!
Post by Biker on Aug 26^th, 2004, 8:33pm

You may wish to consider getting a back up bottle of O2. Comes in real handy when one runs out. Glad something is working. Happy Day!!!!!!

Title: Re: Relief at last!!!!!
Post by Redrum on Aug 26^th, 2004, 10:34pm

WOOOHOOO! ;;D

on 08/26/04 at 16:45:00, synergy wrote:

On the one attack that the oxygen didnt abort the beast - it did seem to stop the attack getting any worse, but marc said just concentrating on his breathing with the O2 helps.

This is what I have happen too, In my experience when the O2 doesn't abort the HA it will maintain it at a more tolerable level BUT if I quit the O2 before the HA is completly gone it will come back at me with a vengence. dont know if Marc will have the same but I thought it was worth the warning.

Breathe on ;;D

Title: Re: Relief at last!!!!!
Post by synergy on Aug 27^th, 2004, 4:05am

Thanks for the advice redrum - its still early days and we know not to expect it to work wonders everytime - we were told by ouch to stay on the oxygen for a further 5-10mins after the attack has gone just to make sure.

Biker - we were prescribed 8 cannisters and we thought that would last a while! But marc has already used up one big cannister in 2 days!!! We are only allowed to get more cannisters once marc is on the last one.

Thanks again to everyone!

p.s marc had another night of success!!!!

Title: Re: Relief at last!!!!!
Post by Woobie on Aug 27^th, 2004, 7:55am

on 08/27/04 at 04:05:03, synergy wrote:

Biker - we were prescribed 8 cannisters and we thought that would last a while! But marc has already used up one big cannister in 2 days!!! We are only allowed to get more cannisters once marc is on the last one.

Don't EVER let him run out! If he's anything like Ramon - he'll keep O2 in the house all year long. YOu know, JUST IN CASE!

There's also tricks you can use with the O2 - like getting it COLD. I dont know how -but I've heard people talking about it. Apparently it works better.
I know someone knows how - i'm sure they'll speak up.

Congratulations on the success!
tina :-*

Title: Re: Relief at last!!!!!
Post by FZfan on Aug 27^th, 2004, 8:48am

fantastic news, sarah. so glad o2 is helping.

I highly recommend continued breathing for 5 to 10 minutes after the attack aborts. Good job.

I love o2 success stories.

Title: Re: Relief at last!!!!!
Post by lionsound on Aug 27^th, 2004, 9:59am

That's fantastic!

Title: Re: Relief at last!!!!!
Post by synergy on Aug 27^th, 2004, 11:51am

Ive heard about cooling the o2 down - your supposed to put the hose in icy water or something like that - anyone know?

Marc says it really hurts his lungs after about 5 mins on the o2 - is this normal?

Title: Re: Relief at last!!!!!
Post by IndianaJohn on Aug 27^th, 2004, 12:20pm

Got a bubbler on the O2? that may help.

Title: Re: Relief at last!!!!!
Post by ex_pat_asia on Aug 27^th, 2004, 12:31pm

on 08/27/04 at 12:20:45, IndianaJohn wrote:

Got a bubbler on the O2? that may help.

John is right. If you aren't humidifying the Oxy then it could be the trick to make it more comfortable. Having said that---> THREE CHEERS AND WHOOPEE!
I love to read posts like this. Its victory dance time. http://davisasia.homestead.com/applause_1.gif

PFDAN to all,

Title: Re: Relief at last!!!!!
Post by synergy on Aug 27^th, 2004, 1:23pm

what is a bubbler???