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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> what is best for chronic?
        
(Message started by: eddie on Aug 10^th, 2004, 8:27pm)

Title: what is best for chronic?
Post by eddie on Aug 10^th, 2004, 8:27pm

please let me know i have tried alot
prednisone
paxil
beta blockers
o2 it does help to relax me its a bandaid
any ideas would help
nothing seems to break this cycle
i live in AL iwent to a neuro here he put me on
effexor i had bad results with it i had to beg
for o2 i feel my tremiganal on the left side
just pulsing WHAT TO DO
PLEASE

Title: Re: what is best for chronic?
Post by Becky on Aug 10^th, 2004, 8:31pm

((( Eddie )))

I am sorry I don't have an answer for you. I just wanted to let you know you are not alone. I am still looking for an answer also.

Hang tough, we are all here for you.

hugs

Bec

Title: Re: what is best for chronic?
Post by 9erfan on Aug 10^th, 2004, 8:48pm

Have you tried
Imitrex?
Topamax?
DHE?
Lithium?
Verapamil?
Relpax?
Zomig?
Shrooms?/

Title: Re: what is best for chronic?
Post by don on Aug 10^th, 2004, 8:49pm

Quote:

noyhing seems to break this cycle

First off. How are you defining chronic?

Treatments for episodics and chronics do differ somewhat.

Title: Re: what is best for chronic?
Post by eddie on Aug 10^th, 2004, 8:54pm

this time last yr is when it started
clearly know when you get hit every
day and night even use melintonin and 1mg xanax
i have had these for about 18 or 20 yrs
im 39 they are getting worse i have walked 10
or 12 miles a day and i dont drink

Title: Re: what is best for chronic?
Post by eddie on Aug 10^th, 2004, 9:24pm

this happens in fall and stays with me 10 to 12 months
this has gone on for the last 15 to 20 yrs but just
being diagnosed with this in the past yr is stupid
i have tried so much different stuff im just lost
it rained here today / tomorrow i may go find
a pasture of cattle living in Alabama should
be easy to find ? just dont know anymore

Title: Re: what is best for chronic?
Post by don on Aug 10^th, 2004, 9:55pm

Lets get focused.

Forget cow pastures in Alabama.

Are you seeing a neuro and what is the current med regimen?

Title: Re: what is best for chronic?
Post by Superpain on Aug 10^th, 2004, 9:57pm

Xanax is great for anxiety, but it's not gonna help the pain much.

I'd think a pasture of cattle should be relatively easy to find around there...
If not, go down south a little. I used to live in Pensaclola and had friends that would go hunting all the time. This is the best time of year for it. But it might take a little scouting....
And I'm not sure those kind are going to be the most effective. They always made me feel poisoned and have a headache... Plus you've gotta eat about 1/4-1/2 oz as compared to 1 or 2 grams or less for the ones they talk about here.

Goto clusterbuster's and order the shit and do it yourself. It's very cheap.
Good luck!

Title: Re: what is best for chronic?
Post by don on Aug 10^th, 2004, 10:08pm

Cow pastures.

don does his Homer Simpson imitation. DOH!

Title: Re: what is best for chronic?
Post by Biker on Aug 10^th, 2004, 10:18pm

I did the cow pasture thing in the 70's for a hoot. Long before I ever heard of CH. Dothan and Sampson Ala. Panama city Beach Fl. I was thinking seriously about a trip down that way before I found mail order. I never remembered getting sick, but saw some folks who did hurl. Time and CH ticks on. I hope someday, a cure will be found.

Title: Re: what is best for chronic?
Post by eddie on Aug 10^th, 2004, 11:08pm

when you have about 1 pain free day in the past
yr it can really suck and it was not total free
im an electrician for this job you can not be doped up
and the xanax are for anxitiy yes i take 1 a day
its not easy i have only been married 2.5 yrs
but she is very understanding here lately she
has slept in the spare bedroom we are fine
and we get along i just wake up with this crap
to much here lately also heart trouble runs
in my family one sis heart transplant past away at 38
in 1998 other sis also heart problems pacemaker
and difiberlator she is still with us
father past away in 2001 heart attack
lost my mother 2001 to cancer i just need
to be careful using some meds im really
thankful for everything in life except CH
so i tried
5-htp x 2
b-complex 50 x 2
magnesium x3
melintoninx3 at bedtime
also my o2
yes im trying different things
i guess thats why drinking alcohol or beer
never worked well for me since i was a teenager
im looking at all my options
thanks for your input

Title: Re: what is best for chronic?
Post by Pinkfloyd on Aug 11^th, 2004, 12:14am

on 08/10/04 at 23:08:14, eddie wrote:

b-complex 50 x 2
magnesium x3
melintoninx3 at bedtime
also my o2
yes im trying different things

While you're waiting....
100mg B-complex isn't enough B-2
You need between 200-400mg of B-2/day
magnesium....need 200-400mg/day
melatonin, try up to 9 or even 12mg at bedtime. As much as you can and still get up and function in the morning.

Try them all at once and it takes a while, as in weeks, to notice improvements sometimes.

If adding these helps lower the intensity and frequency of the attacks, and you use 02 for the rest, you should be ready to try the psilocybin about the time the crop comes in.

PF

Title: Re: what is best for chronic?
Post by Giovanni on Aug 11^th, 2004, 5:11am

Hi Eddie,

Sorry about your getting slammed right now. I know of one person who uses the wild variety of mushrooms successfully. If I lived in central Alabama or the Gulf coast states, I probably would be in the cow pastures also. Before using the mushrooms do so research on

www.clusterbusters.com .

The wild variety are probably as strong as the domestic ones, but are not usually picked at the “ideal” time—just prior to the veil breaking as the domestic ones. They have to be washed (the wild variety—for obvious reasons) and should be dried for accurate weighing prior to dosing. The domestic ones are never washed. When picked they’ll have some bluish colors around the base of the stem where they are torn from picking. This color will appear in just minutes after picking.

I have been really successful with the “alternative” treatment having prevented a certain cycle in February 2004. I have had some cluster activity for about one month now with about a dozen shadows not ranging over a kip 5. They seem to be under control now and on the decline with the help of the therapy.

Give me a PM if you have any questions………………best of luck to you,

John

Title: Re: what is best for chronic?
Post by Robert_C. on Aug 11^th, 2004, 8:52am

Eddie,

I feel for you my friend, I'm in the same situation. My only advise is, don't be to quick to disregard medication that won't work the first time. Some medication might be giving you some relief but your anxiety makes you want to throw everything away as soon as an attack comes back (trust me, I know! ;))

Keep a log of your attacks and you'll be in a better position to see what helps and what doesn't.

Robert

Title: Re: what is best for chronic?
Post by miapet on Aug 12^th, 2004, 12:13am

Eddie . . sorry you're getting slammed so hard. Read the clusterbusters site www.clusterbusters.com D and I firmly believe this is the best route to go. D WAS chronic . . . he's been p/f for 13 weeks now.
*positive light and energy*
miapet