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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> Occipital Nerve Stimulator
        
(Message started by: CarrieBethRN on Jul 15^th, 2004, 7:20pm)

Title: Occipital Nerve Stimulator
Post by CarrieBethRN on Jul 15^th, 2004, 7:20pm

Well, it's come to the point where my neuro wants me to look into this. I've failed just about every preventive and abortive known to man. I don't have any idea if my insurance would cover this, but I guess it is worth looking into. Do any of you know where I can find more information about the ONSI? Thanks!!

Carrie

Title: Re: Occipital Nerve Stimulator
Post by Tiannia on Jul 15^th, 2004, 7:28pm

Unsolved....

I had the RFG (on my occipictal nerve and it did dick. The nearve block helped for a little bit but 2 days later bck to full strength HA)

Sorry shadows hitting hard.
Hope it works for you.

Title: Re: Occipital Nerve Stimulator
Post by CarrieBethRN on Jul 15^th, 2004, 7:33pm

Sorry to hear you aren't doing well either, Tia. I had the nerve block done again today. Last time, I got 2 days relief out of it. Today, no CH yet but my constant headache is still at a 9. I couldn't go to any classes today. This shit is getting bad......

Hugz,
Carrie

Title: Re: Occipital Nerve Stimulator
Post by pubgirl on Jul 15^th, 2004, 7:41pm

Lizzie/Carrie Beth

You could post on the Visitors section of the Support Board at OUCH UK. One of the moderators there has had the ONSI and also knows about the progress of most of the others who have had it done in the UK by Goadsby's team.

Alternatively, message me your email and I will ask him to email you for a chat.

Wendy

Title: Re: Occipital Nerve Stimulator
Post by CarrieBethRN on Jul 15^th, 2004, 8:03pm

Thanks, Wendy!

I just PM'd you some stuff!

Hugz,
Carrie :)

Title: Re: Occipital Nerve Stimulator
Post by UN_SOLVED on Jul 16^th, 2004, 12:49am

YES ... been there, done that. What questions do you have ?

ASK AWAY...

http://www.chhelp.org/michaelsprocedures.html

I'd be happy to answer any questions you have about the ONSI procedure.

PM me ... (but I won't be back until Sunday ... going to Nashville )

Unsolved

Title: Re: Occipital Nerve Stimulator
Post by CarrieBethRN on Jul 16^th, 2004, 12:51am

Unsolved,

I talk to you about it in Nashville...I'll be there tomorrow night!

See you soon,

Carrie :)

Title: Re: Occipital Nerve Stimulator
Post by UN_SOLVED on Jul 16^th, 2004, 12:53am

Cool ... see you then ;;D

Unsolved

Title: Re: Occipital Nerve Stimulator
Post by pubgirl on Jul 16^th, 2004, 3:45am

Carrie

That would be a good balanced view. Talk to one person who has now had success with the ONSI (Mike's ONSI is working well now), and one who hasn't. At least you can get the whole picture then

Wendy