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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> Strange happenings
        
(Message started by: don on Jun 25^th, 2004, 6:11am)

Title: Strange happenings
Post by don on Jun 25^th, 2004, 6:11am

I am now on the high dosage of the prednisone and not being hit..............but................I am still waking up during the usual vampire hours but minus the pain.

Kinda nice to just roll over and go back to sleep though. Maybe I'll try the Melatonin to stay asleep.

2 days left at high dose prednisone then I am kicking up the veramamil to 600mg per day for the duration (at least) of the taper. We'll see what happens.

News at 11.

Title: Re: Strange happenings
Post by ave on Jun 25^th, 2004, 8:33am

Cells remember what happened to 'em. Not surprising that they can sit up and wake you when the stimulus comes around, but fails to hurt them.

Bodies are strange creatures...

Title: Re: Strange happenings
Post by mustang on Jun 25^th, 2004, 8:42am

Been mostly pf for about 6 mo. still wake up at the times of night when I would have my worst, I am chronic, like you said still nice to roll over and get some z's.

Title: Re: Strange happenings
Post by thomas on Jun 25^th, 2004, 9:13am

have you tried melatonin for sleeping?

Title: Re: Strange happenings
Post by floridian on Jun 25^th, 2004, 9:29am

Sounds like a phantom cluster. Do you get any other symptoms like you were in cycle?

Title: Re: Strange happenings
Post by don on Jun 25^th, 2004, 10:04am

Quote:

Sounds like a phantom cluster

Good call but thats not it. No symptoms.

I am in cycle but the attacks are not breaking through due to the prednisone dosage.

I' going to give the Melatonin a shot.

How long to become theraputic and at what dosage?

Title: Re: Strange happenings
Post by thomas on Jun 25^th, 2004, 1:20pm

Start with 3 mg and adjust according to how it affects your sleep pattern. If you are only sleeping for a couple of hours, throw some time-release melatonin into the mix. Sometimes when I am not sleeping well, I will take 3mg and 2X2mg of time release, that will get me about 6-8 hours.

Title: Re: Strange happenings
Post by Superpain on Jun 25^th, 2004, 4:28pm

Lower doses of melatonin make me restless.
18mg was my sweetspot in cycle. But I was getting hit like a machine gun at that time.... Once I started the pred I didn't need it anymore.

Title: Re: Strange happenings
Post by Kris_in_SJ on Jun 25^th, 2004, 7:53pm

I've had 7+ pf days now, but still waking up at the usual "witching hour." Prednisone can also disrupt your sleep patterns, but as you said ....

My question ... have you found yourself cruising town to find a candy bar at 3 AM yet? Prednisone makes me ravenous!!

Kris

Title: Re: Strange happenings
Post by don on Jun 26^th, 2004, 12:29am

You kidding?

I think I may have devoured a live sea gull over at the KFC who tried to swipe a fry from my bag..