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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> Good Cluster Links
        
(Message started by: Joshman420 on Jun 17^th, 2004, 1:28pm)

Title: Good Cluster Links
Post by Joshman420 on Jun 17^th, 2004, 1:28pm

Hi Everyone!

I hope all is well, and everyone is trying to have as close to a pain-free day as possible!

I found some interesting links I thought I would share, I'm not sure if these have been posted before.

http://www.quickcare.org/new/cluster/cluster1_ie.html
http://www.quickcare.org/new/cluster/cluster2_ie.html
http://www.quickcare.org/new/cluster/cluster3_ie.html
http://www.quickcare.org/new/cluster/cluster4_ie.html
http://www.quickcare.org/new/cluster/cluster5_ie.html

Hope this helps someone.

JoshMan

Title: Re: Good Cluster Links
Post by pubgirl on Jun 17^th, 2004, 2:46pm

Hi Joshman

I haven't seen this before, and it is certainly a novel approach to Ch education.

Regrettably, after watching only a few minutes of it, there are so many errors in it I couldn't recommend it to anyone, nor have I the time to list them all, there are so many.

Sorry. If they had done there homework properly before doing this and got it right, it could be fantastic.

Wendy

Title: Re: Good Cluster Links
Post by Bob P on Jun 17^th, 2004, 3:09pm

I think that OUCH should write a simple script about clusters, what they are, who gets them, normal treatments, etc. Then at the convention they should video a different person reading one line of the script. Then have one of the video expert members put together this collage of clusterheads explaining clusters.

Title: Re: Good Cluster Links
Post by thomas on Jun 17^th, 2004, 3:38pm

Can't wait to watch these, thanks. ;;D

Title: Re: Good Cluster Links
Post by E-Double on Jun 17^th, 2004, 5:13pm

Link # 5 nailed it!!!!!!
I'm gonna send this to my clients and family. Maybe they'll get it!
So true.

Good luck

Eric

Title: Re: Good Cluster Links
Post by Joshman420 on Jun 17^th, 2004, 6:01pm

Link# 5 also hit it home for me too ...

Everyone should watch at least Link#5

Title: Re: Good Cluster Links
Post by broomhilda on Jun 17^th, 2004, 6:04pm

on 06/17/04 at 15:09:45, Bob P wrote:

I think this is a fantastic idea!!!! Would put a face to CH etc.... ;;D

Andrea

Title: Re: Good Cluster Links
Post by Ueli on Jun 17^th, 2004, 8:45pm

How the fuck can I view these files ??? >:(

When I click on "click" a popup pops up saying:
"This page requires that you download and install a plugin, but does not specify which one."

Can anybody give me more sensible information than this idiotic message does?

Thanx,
Ueli [smiley=smokin.gif]

Title: Re: Good Cluster Links
Post by UN_SOLVED on Jun 17^th, 2004, 9:28pm

All you should need is a Flash player.

http://www.macromedia.com/shockwave/download/download.cgi?P1_Prod_Version=ShockwaveFlash

Unsolved

Title: Re: Good Cluster Links
Post by pubgirl on Jun 18^th, 2004, 4:44am

Seriously folks. Why would you want to send something to friends, family or workmates which says that your personality type affects your likelihood of having CH and that lifestyle changes will reduce your attacks?
and does anyone here get relief from Sports Rubs?

I get enough shit from people who think they know all about Ch and tell me my 'headaches' would go away if relaxed more, gave up smoking, became teetotal, ate loads of fruit and veg, but avoided chocolate and citrus and exercised more without giving them something to read that seems to confirm this!

I LOVE the approach, just hate quite a lot of what this link says.

Just off to put my 02 and Imigran in the trash and buy some Sports Rub to rub on my head after I've been to the gym ;;D

Wendy

Title: Re: Good Cluster Links
Post by E-Double on Jun 18^th, 2004, 6:51am

I honestly agree with you on that point but the 5th link "THE STORY" can atleast make it clear to those who just think you can suck it up! I've sucked up broken bones, dislocated shoulders, herniated discs, a lot of other shit and
I've sucked these bad-boys up for years until they started hitting me during the day! One thing to be exhausted from being up for a few weeks on and off due to these things... and another to have a meltdown in front of your clents/bosses/ students whatever!! People need to get that this isn't just a headache.

Best,
Eric

on 06/18/04 at 04:44:17, pubgirl wrote:

Title: Re: Good Cluster Links
Post by jonny on Jun 18^th, 2004, 5:00pm

Want to show them something?

Show them this!!

http://www.a-dzign.com/jonny/drip.avi

........................jonny

Title: Re: Good Cluster Links
Post by Marijke on Jun 18^th, 2004, 5:01pm

Mixed feelings here, too
The lifestyle-shit is crap. I started taking regular excercise, quitted smoking and after that started a real nasty cycle...
On the other hand, the 5th link says it all.

Marijke

Title: Re: Good Cluster Links
Post by Gator on Jun 18^th, 2004, 10:49pm

They need to put it up in some format besides streaming video for those of us still in the dark ages. I'll never be able to see these video presentations with my slow-as$ed internet connection, but if they say what Wendy said they do, then I won't waste my time anyways. The thought that there is some personality trait or lifestyle issue that causes these things is ridiculous. The experts all agree there is NO known cause. We all have different personalities and different lifestyles. What could possibly be the common thread amongst us, besides coming here for help and understanding?

Gator
Sounds like bull$hit to me.

Title: Re: Good Cluster Links
Post by Gator on Jun 18^th, 2004, 10:58pm

on 06/18/04 at 17:00:49, jonny wrote:

Want to show them something?

Show them this!!

http://www.a-dzign.com/jonny/drip.avi

........................jonny

Powerful schit jonny. Thanks for the link to it.

Gator

Title: Re: Good Cluster Links
Post by mynm156 on Jun 22^nd, 2004, 7:49pm

I Liked it. Yes there is some area for improvment however, there are some great points made. We ALL KNOW WHY they call these suicide HA. Death has been one of those after thoughts man I just wish I would die already. I think that it was at least trying to give as much info as it could. No I dont REALLY need my family telling me I need to run flat out for 20 mins to help stop my Cluster. Fuck Me I d die right there and who doesnt just love the smell of that man made Napalm ICYHOT

GOOD VIBES BABIES!!

MYNM156

Title: Re: Good Cluster Links
Post by pamstroud on Jul 2^nd, 2004, 12:03am

on 06/17/04 at 18:01:14, Joshman420 wrote:

Link# 5 also hit it home for me too ...

Everyone should watch at least Link#5

I got some kind of message about me having the wrong kind of MIME something or other -- I have OS X for Mac, maybe that's why. What is significant about #5? What does it say about Sports Rub, whatever that is?

Thanks,

pam

Title: Re: Good Cluster Links
Post by EvertBoer on Jul 2^nd, 2004, 5:07pm

What was special on #5 was an experiment they did with 3 doctors. First they had a CH patient use electrodes attached to his scalp and then turn up the power until it equaled his CH pain. He stopped at #9 setting and said that was pretty close. They then attached it to the doctors and told them to crank it up to #9. One couldn't get past #6 before quitting. The other two managed to get it up to #9, but could not last longer than 30 seconds. The narrator then told them to imagine this setting for 1/2 hour - 3 hours. This was to demonstrate to the doctors that the pain really is that intense and not to make light of it or suspect the patient is a wuss.

Title: Re: Good Cluster Links
Post by pubgirl on Jul 3^rd, 2004, 3:26am

and as far as I remember (can't be bothered to load it all again) a Sports Rub applied is supposed to ease that!
(the self help bit is bollocks)

Wendy