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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> A small measure of hope
        
(Message started by: don on Jun 6^th, 2004, 9:40am)

Title: A small measure of hope
Post by don on Jun 6^th, 2004, 9:40am

After a 3 year remission my CH returned in full glory 4 days ago. Saturday I went to the emergency room to get some meds until I get to the neuro. Iwas prepared to be removed by security if they failed to treat me properly for CH and NOT MIGRAINE.

Enter the ER Doc. Whats the problem?
CH
What are your symptoms?
I give them.

The ER doc orders a shot of imitrex and 40 MG of prednisone. He suggest I get some sleep while I am there.

The nurse comes in looking baffled. Why?

The doc also ordered administration of oxygen with a non rebreather mask at a flow rate of 15. Nurse never heard of that for MIGRAINE. She got a quick education.

I left there with an Rx for 20 doses of imitrex. Insurance covered all of them. No questions asked.

There is hope. In 26 years this is the first CH educated ER Doc I have encountered. He also made an interesting and candid remark when I suggested that all the others wanted to administer narcs for the pain.

Simple he says. Th ERs are busy and they just want to get you out of there.

Title: Re: A small measure of hope
Post by Elaine on Jun 6^th, 2004, 10:42am

Don so sorry they are back. I am glad you lucked up on a Educated Doctor. Aso glad insurance covered the imitrex!

Hope this cycle is short ! Glad you have some meds to get ya through! We are here if you need us.

Title: Re: A small measure of hope
Post by mynm156 on Jun 6^th, 2004, 10:48am

THERE IS A GOD!!!!

I hope that they leave you again and lets just hope that there are soon tobe more Docs out there who learn about these!!

MYNM156

Title: Re: A small measure of hope
Post by don on Jun 6^th, 2004, 11:09am

The message here is simple.

Go in educated. Let them know you are educated. Stand your ground and dont let them mistreat you. Educate them.

This time I was fortunate. I was prepared for battle but there wasn't one.

Slow by slow, inch by inch, doc by doc, nurse by nurse.

Title: Re: A small measure of hope
Post by Lizzie2 on Jun 6^th, 2004, 11:17am

on 06/06/04 at 11:09:17, don wrote:

Glad you had a good ER experience, Don. Whenever I have to go in for whatever reason, I make it pretty clear to them the knowledge I have about my condition. They usually give me more credit, then. A shame it has to be that way, but it does.

I'm working on educating my fellow nursing students bit by bit. ;)

Lizzie

Title: Re: A small measure of hope
Post by BlueMeanie on Jun 6^th, 2004, 11:38am

Good news Don. You have some really good insurance it looks like. Hope your cycle ends soon for you.

Title: Re: A small measure of hope
Post by jonny on Jun 6^th, 2004, 2:38pm

Your lucky they didnt handcuff you and drag you to the monkey cage at the Franklin park zoo you fucking animal.

Be-gone you troll!!!

......................................jonny ;;D

Title: Re: A small measure of hope
Post by UN_SOLVED on Jun 6^th, 2004, 3:26pm

on 06/06/04 at 09:40:04, don wrote:

I left there with an Rx for 20 doses of imitrex. Insurance covered all of them. No questions asked.

What a lucky SOB !

good luck

Unsolved

Title: Re: A small measure of hope
Post by pubgirl on Jun 6^th, 2004, 3:29pm

Hi Don
Sorry you are in cycle again

:-*

That's it

Love

Wendy

Title: Re: A small measure of hope
Post by don on Jun 6^th, 2004, 7:01pm

Quote:

Your lucky they didnt handcuff you and drag you to the monkey cage at the Franklin park zoo you fucking animal.

The gorillas are scared. Very scared.

Title: Re: A small measure of hope
Post by JDH on Jun 6^th, 2004, 8:14pm

Sorry to hear it's back Don. Hoping it's a short easy cycle for you.

Jim

Title: Re: A small measure of hope
Post by don on Jun 7^th, 2004, 2:42pm

Thanks Jim, me to.

My supervisor has mentioned something about a public castration if I fail to request a
"reasonable accomodation" should I require one.

Gotta love this gal!

Title: Re: A small measure of hope
Post by Roxy on Jun 7^th, 2004, 3:42pm

Damn sorry they're back Don...... >:(, and I hope this is a really short cycle. That's great about the trex too.

Hate the reason, but I'm glad to see you back.

PFDAN,
Tracey

Title: Re: A small measure of hope
Post by ozzman on Jun 8^th, 2004, 2:23pm

Glad you're back Don, sorry about the head, but that's the life we lead...

Good thing on the ER treatmen, we will someday be treated, like people at ALL ERs

I wonder however, when I read statements such as the ones found on the National Headache Foundation website on:

"The Emergency Room Guide
to Distinguishing the Legitimate Headache Sufferer from the Drug Seeking Patient"

Quote:

Patient keys to drug abuse:

• Patient makes frequent visits to the Emergency Room.
• Patient states multiple allergies to non-narcotic interventions.
• Patient has extensive knowledge of drug action.
• Patient requests specific medications and dosage.
• Patient has multiple prescriptions for analgesic medications.
• Patient requests large number of pills and prescription refills.
• Patient has unusual, irrational stories.
• Patient's pain level is inconsistent with drug requirement.
• Patient has multiple doctors and/or multiple treatment sites.
• Patient is using increased amount of alcohol.
• Patient does not make provision for follow-up care.
• Patient's symptoms do not fit a diagnostic pattern of headache

Now, what do they consider a legitimate patient?

See below:

Quote:

• Patient has doctor who can confirm diagnosis and give reliable patient information.
• Patient's medical history is consistent with diagnosis of headache.
• Patient has had prior diagnostic work-up.
• Patient is non-demanding regarding medication necessities.
• Patient is deemed reliable by Emergency Staff

Not a bad reminder, get your doctor to fill these two forms

http://www.headaches.org/professional/educationresources/PDF/physicianclustererform.pdf

and

http://www.headaches.org/professional/educationresources/PDF/patientclustererform.pdf

Ozzy

PS, Full text of the ER protocol, can be found here:

http://www.headaches.org/professional/educationresources/erprotocol.html

Title: Re: A small measure of hope
Post by kimmiedawn81 on Jun 14^th, 2004, 3:15pm

I have a question....if you go to the emergency room with a CH, what do they give you? They normally give me Demerol and Visteril. I haven't been formally educated about what I should be receiving at the ER since I suffer from CH.
Thanks, Kim

Title: Re: A small measure of hope
Post by Superpain on Jun 14^th, 2004, 3:27pm

Everytime I've gone to the er they give me a big fucking bill! And that's about it... >:(

Title: Re: A small measure of hope
Post by don on Jun 14^th, 2004, 3:29pm

Quote:

I haven't been formally educated about what I should be receiving at the ER since I suffer from CH.

Well, whats affective for you to abort? Thats what you should be treated with. They come near me with the demerol and they have a fight on their hands.

Tell THEM whats effective for YOU.

Title: Re: A small measure of hope
Post by Gator on Jun 14^th, 2004, 3:41pm

Well, so much for this particular trait of a legitimate patient.

Quote:

• Patient is non-demanding regarding medication necessities.

I have never gone to the ER for an attack. I keep saying I never will. If I do, it's not going to be pretty. I have this bad habit of speaking my mind.

Gator

Title: Re: A small measure of hope
Post by don on Jun 14^th, 2004, 4:08pm

I believe they mean non-demanding regarding narcotics