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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> BLACK SPOTS
        
(Message started by: mynm156 on May 11^th, 2004, 5:28pm)

Title: BLACK SPOTS
Post by mynm156 on May 11^th, 2004, 5:28pm

Does anyone else have "BLACK SPOTS" in their vision? I get these sometimes during an attack some times they are little spots sometimes they are bigger but they freak me out either way. Just wonder about the rest of you.

Thanks guys

MYNM156

Title: Re: BLACK SPOTS
Post by thomas on May 11^th, 2004, 5:32pm

I go completely blind in the "affected" eye. And all during my cyle, I have "blank spots" in my vision, that comes and goes, a real pain in the ass, for golf, pool and bowling. ;;D

Title: Re: BLACK SPOTS
Post by Prense on May 11^th, 2004, 5:50pm

Never...

Are these the "auras" some people say they get?

Title: Re: BLACK SPOTS
Post by thomas on May 11^th, 2004, 5:55pm

on 05/11/04 at 17:50:55, Prense wrote:

Never...

Are these the "auras" some people say they get?

I always thought auras where lights.

Title: Re: BLACK SPOTS
Post by Prense on May 11^th, 2004, 5:56pm

They could be, I have no idea. Someone had described them to me as "spots" once...so I was wondering.

Title: Re: BLACK SPOTS
Post by thomas on May 11^th, 2004, 6:15pm

Well, I hope they're auras, then that means I have migrains and I wont hurt as bad anymore. ;)

Title: Re: BLACK SPOTS
Post by Racer1_NC on May 11^th, 2004, 6:42pm

You could be "seeing" what is called "floaters". What I see looks like a piece of lint. Damn thing comes and goes.

Bill

Title: Re: BLACK SPOTS
Post by mynm156 on May 11^th, 2004, 6:57pm

Just got back from my neuro. (his office is right next to the hospital where I work) he says yeah those are the Auras some ppl get, or floaters, he took me off the imitrex and put me on Zomig NS.
WOO HOO another new drug

Title: Re: BLACK SPOTS
Post by 9erfan on May 11^th, 2004, 7:40pm

I guess you have migraines Thomas. ;;D

Title: Re: BLACK SPOTS
Post by miapet on May 11^th, 2004, 11:05pm

D gets them in his affected eye .. . sometimes they don't last long. . .sometimes it's as if that eye is 'blown' and he can't see out of it for awhile . . .
*positive light and energy*
miapet

Title: Re: BLACK SPOTS
Post by thomas on May 12^th, 2004, 9:41am

on 05/11/04 at 19:40:32, 9erfan wrote:

I guess you have migraines Thomas. ;;D

Cool, just send me my 75.00, and I check you guys later, I'm outta here. ;;D This is sooooooo awesome, no more praying for death, banging my head on the shower wall, not sleeping for days, I can save money on all those triptans now, I can just take an excedrin and sleep it off. ;) btw, did you ever hear from t_h_b, Virginia?

Title: Re: BLACK SPOTS
Post by floridian on May 12^th, 2004, 10:22am

I get heavy duty aura, but it has never been associated with migraine or cluster headaches. Mine involves a blind spot in the center of my vision, and flashes, lightning bolts, and jaggedy lines in the peripheral vision. The blind spot usually starts out as a blink, but can park itself for 10-15 minutes. Somebody posted a link to a graphic a while back that gave a good picture of what aura is like.

Aura is not in the eyes - its caused by a 'spreading depolaraztion' of the visual cortex in the brain. Kinda like that part of the brain falls asleep (though its not normal like sleep).

Title: Re: BLACK SPOTS
Post by floridian on May 12^th, 2004, 10:31am

Here's one graphic - its not bad, but I've seen a better artistic interpretation somewhere. This one does show the blind spot.
http://www.wetcanvas.com/Community/images/18-Mar-2004/7242-migraine_aura_demo_sm-1.jpg

Title: Re: BLACK SPOTS
Post by thomas on May 12^th, 2004, 10:32am

It is forbidden to me. :(

Title: Re: BLACK SPOTS
Post by floridian on May 12^th, 2004, 10:41am

Admit it, Thomas ... you are a Migraneur!! ;;D

Title: Re: BLACK SPOTS
Post by thomas on May 12^th, 2004, 10:45am

on 05/12/04 at 10:41:33, floridian wrote:

Admit it, Thomas ... you are a Migraneur!! ;;D

Don't I fucking wish.

Title: Re: BLACK SPOTS
Post by 9erfan on May 12^th, 2004, 11:46am

on 05/12/04 at 09:41:07, thomas wrote:

btw, did you ever hear from t_h_b, Virginia?

uh, no...was I suppose to? [smiley=huh.gif] hmmmm

Title: Re: BLACK SPOTS
Post by thomas on May 12^th, 2004, 11:53am

on 05/12/04 at 11:46:26, 9erfan wrote:

uh, no...was I suppose to? [smiley=huh.gif] hmmmm

I thought you were supposed to meet him and never did. I may be mistaken, sorry.

Title: Re: BLACK SPOTS
Post by eyes_afire on May 12^th, 2004, 10:30pm

http://www.eyeguys.net/ocularmigraine.html

Title: Re: BLACK SPOTS
Post by Prense on May 13^th, 2004, 7:23pm

Thanks for the links for the visuals. Nope, I've never seen anything like that. Now I know what an aura is. Still...wtf is a cycle? >:(

Chris ;;D

Title: Re: BLACK SPOTS
Post by thomas on May 14^th, 2004, 9:30am

Never seen that before
http://www.eyeguys.net/ocular.jpg

Title: Re: BLACK SPOTS
Post by mynm156 on May 14^th, 2004, 9:56am

No just a bunch of . . . . . . .. . . ... in my vision. Some of different sizes but its like having those little Nats flying around your head.

MYNM156

Title: Re: BLACK SPOTS
Post by floridian on May 14^th, 2004, 10:28am

Quote:

..wtf is a cycle?

Usually cycle refers to an episode of cluster headaches - like "my July and August cycle" that I get most every year. Or are you chronic and making a joke?

Title: Re: BLACK SPOTS
Post by Margi on May 14^th, 2004, 12:09pm

what you're referring to here is phosphenes and they are a common prelude to migraine but some cluster sufferers experience this as well.

for a migrainer, it's usually a signal that they've got about 20 minutes to get into a dark room and ...uh...get the bucket ready. :( For classic migraine, this is indeed the start of the aura phase, next comes numbness of face/hands, general confusion, and fear for what lies ahead in the next 12 - 72 hours. Seeing those spots is similar to looking at something too bright, a flash camera, shiny chrome on a vehicle or the sun. But you don't recover in the same way. Floridian's exactly right though - it's not in the eye, it's in the brain so closing your eye doesn't make it go away - you can just see the "shimmeries" brighter with your eyes closed. It's a horrible feeling. I had it last for about 45 minutes yesterday and was trying to figure out how I could make the 30 minute drive home (not being able to see completely is sometimes not a good idea when you're driving in heavy traffic!). Lucky for me, yesterday I was blessed with only an occular migraine as that link describes instead of a full blown one. It still scares the crap out of you and the ONLY thing that makes it go away is time.

Good thing to tell your boss though - "you'll have to excuse me for half an hour. I'm having a vascular event at the moment". It's a feeling you can't put into words, really, without experiencing it and even just seeing those pictures is enough to make a migrainer cringe. It's not fun.

Title: Re: BLACK SPOTS
Post by Prense on May 15^th, 2004, 10:59am

on 05/14/04 at 10:28:04, floridian wrote:

Or are you chronic and making a joke?

Yeah...

Title: Re: BLACK SPOTS
Post by TxBasslady on May 16^th, 2004, 11:32pm

Definitely have to agree with Bill....the racer dude.

Sounds like "floaters" to me. Has nothing to do with your medication or the lack of. These "floaters" come and go....they move around in the eye. When they are stationed in your line of vision, you will see them. Other times....they "float" about the eye. Some "floaters" appear to be like spider webs.....sometimes, you will see just a black spot. Other times, you may see several black spots. This has to do with the retina.

My Opthamalogist said there was little to be concerned with...they are just irritating. However, he did tell me that if the small black spots become enlarged...like if they take up the area of vision....it was a sign of a detached retina.

Check out "floaters" on any search engine. It's really interesting to read about.

PF vibes,

Jean

Title: Re: BLACK SPOTS
Post by mynm156 on Jun 6^th, 2004, 3:25pm

My black spots DO get larger yet it only seems like that when I have one comming. Then they god away. Then I get the little ones. Yet they are still there if I close my eyes. Know what I mean so it seems to me that these are more in the Brain than in the eye itself. Does that make sence?

MYNM156