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Title: Do clusters move around? Post by ExplodingEyeBall on Apr 15th, 2004, 1:21pm I just recently started talking to a doctor after finding some information about cluster headaches. He is pretty convinced that this is waht I am suffering from. He pretty much diagnosed me after I told him that it feels like somebody is trying to pry my eyeball out of my head and that I sometimes literally beat my head against the wall during an attack. My question is if the focus of the pain moves around during an attack. The pain with me is always on the right side but, depending on which way I have thrown myself to try to get comfort, the focus of the pain will sometimes move from behind my eye to just above my right ear or to the back right side of my head. Sometimes, it even feels like my teeth are going to come shooting out of my head. The pain always stays just as intense but simply moves to a different location Is this common or is a sign of a different class of headaches? I am so happy to find a place like this where other people actually understand the pain of these headaches. |
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Title: Re: Do clusters move around? Post by Superpain on Apr 15th, 2004, 2:51pm Yes, that's common. At least with me it is. |
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Title: Re: Do clusters move around? Post by notseinfeld on Apr 15th, 2004, 3:25pm If you get a picture of the trigeminal nerve check out the third branch--the one that runs behind your eye. You can expect pain to be localized anywhere that branch extends. Also with clusters it'll either be on the right or left side of your head where the pain occurs but never both. As a suffering newbie you may in luck that you're episodic and will have long breaks from the misery you're currently enduring. Hope you reach some PF days soon... [ nots |
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Title: Re: Do clusters move around? Post by floridian on Apr 15th, 2004, 4:36pm My experience: 90% of the time, the intense pain is in one spot. Sometimes it moves down into the jaw and teeth. |
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Title: Re: Do clusters move around? Post by Pegase on Apr 15th, 2004, 4:53pm For me... it moves...it dances... a real party animal;-) Pegase |
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Title: Re: Do clusters move around? Post by Pegase on Apr 15th, 2004, 4:55pm Oh yeah Welcome aboard dude... if you need something just ask on the board and someone will help u for sure;-) Pegase |
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Title: Re: Do clusters move around? Post by FZfan on Apr 15th, 2004, 7:03pm mine move all around my eye socket, I press down hard on it with two fingers, or the palm of my hand, then it moves, I move the pressure, then it moves, just keep repeating this over and over. It's part of my dance. Welcome to Clusterville Mr. explodingeyeball. Read up on all the info here. If you are diagnosed with these horrible things, talk to your doc about oxygen. Read the link about it to your left. You definitely want to try this as soon as possible. I sincerely hope you don't have these, but if you do, you needn't go any further to seek help, support, and understanding. Welcome home. |
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Title: Re: Do clusters move around? Post by ExplodingEyeBall on Apr 16th, 2004, 11:20am Thanks to you all for making me feel welcome here. I'm sure I will find a lot of usefull info here. I have read a lot of the links on this message board already and I've found a lot of stuff that makes me think' That's exactly what happened to me!!!!'. I don't know if this little trick does anybody else any good but I've found that one thing that gives me a little bit of temporary relief during a monster HA is to put pressure on my head just above my right ear. I don't know for sure but there must be a nerve or something associated with these HAs that runs there. It hurts like hell when I let the pressure off but man does it feel good to get a coule of seconds of relief. During the day at work, I usually wear a cap (Nascar NAPA 15--YEEHAAA!!!) if I'm getting daytime HAs like I am right now. The cap keeps a little bit of pressure there and I am actually functional. My boss understands and doesn't have a problem with it. (Thank you very much.) I will also ask my doc about the Oxygen. Thanks for that advice. I have a couple more appointments set up with him now. I am currently in the early stages of finding treament. The diagnosis is already done. He determined that it is indeed CHs. Now we are in the proccess of trying to find the right treatment since I'm sure that everybody is unique with what helps them. One thing he wants me to try is blood pressure meds. Has anyone heard of this helping at all? Thanks again to everybody for the advice and for making me feel at home with your (our) little group. I wouldn't wish membership in this group on my worst enemy but it's good to know that I have some people who understand CHs to talk to if I need it. Pat |
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Title: Re: Do clusters move around? Post by miapet on Apr 16th, 2004, 1:09pm Jonny posted a pic of the trigeminal nerve (in the head) on one of these threads . . .it would have been in March? . . .I'll try to find it . .if anyone knows where/which thread, maybe it would help explodingeyeball? *positive light and energy* and welcome to the most supportive place i have every found! miapet modified: i think i still have it in my box . .. i asked how to copy it!! if i do . .i'll try to forward it?? (i'm a techno-tard if there ever was one *G*) modification #2: okay, i do have it in my box . .but the techno-tard in me doesn't know how to re-post it or forward it . . .since it doesn't have a forwad thingie . . .when i get home from work, i'll try to save it and then send it . . .since it's tweaking my work puter to try. miapet |
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Title: Re: Do clusters move around? Post by floridian on Apr 16th, 2004, 2:59pm Quote:
Yes, check the threads about verapamil, which is a blood pressure med. Many people find it helpful. |
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Title: Re: Do clusters move around? Post by joesf on Apr 16th, 2004, 8:21pm Yours sound exactly like mine. I can even get the pain to move by rubbing where it is ..it moves to another spot! It's like chasing a mouse! |
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Title: Re: Do clusters move around? Post by miapet on Apr 16th, 2004, 10:02pm okay, so I truly am a techno-tard . . .I copied the image, and it won't paste in here . . .does anyone remember the thread Jonny put the trigeminal nerve in? explodingeyeball . . .the nerve reaches all over . . which (in my mind) explains why the pain can move all over . . . miapet |
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Title: Re: Do clusters move around? Post by Renee on Apr 17th, 2004, 12:04am http://www.bartleby.com/107/200.html this is not jonny's but will provide you with the same info, i believe. scroll down several paragraphs for the photo but the above reading is also very helpful in understanding how the pain can move around. good luck and pf 24/7 to all renee |
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Title: Re: Do clusters move around? Post by UN_SOLVED on Apr 17th, 2004, 1:19am As long as the pain stays on one side of the head. The more intense mine are, the more affected areas (temple, ear, jaw, and teeth) , all on same side. Unsolved |
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Title: Re: Do clusters move around? Post by Luke63 on Apr 17th, 2004, 10:57am Hey Eyeball...isn't the jaw and tooth pain absolutely....wonderful...just like a night in heaven huh? You're not alone buddy...thats why we're here...welcome.....Luke |
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Title: Re: Do clusters move around? Post by Prense on Apr 17th, 2004, 12:38pm Mine has always been focused at my eye... |
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Title: Re: Do clusters move around? Post by Redd715 on Apr 17th, 2004, 2:20pm on 04/17/04 at 10:57:31, Luke63 wrote:
Before I knew this CH I would be in the bathroom mirror with dental floss trying dislodge whatever it was I believed was in their causing that pressure or to just dig those molars out...but didn't have the strength to do it. Oh yeah they are Quote:
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Title: Re: Do clusters move around? Post by jonny on Apr 18th, 2004, 3:42am Sorry Im late, Folks http://im1.shutterfly.com/procserv/47b3db29b3127cce9799793c4e800000001610 .................................jonny |
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Title: Re: Do clusters move around? Post by miapet on Apr 18th, 2004, 9:45am you rock jonny!!! thanks!! that picture explained so much for me ! |
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Title: Re: Do clusters move around? Post by joesf on Apr 18th, 2004, 10:21am So that's the little bas...d. Thanks Johnny. |
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Title: Re: Do clusters move around? Post by ExplodingEyeBall on Apr 19th, 2004, 10:41am That picture tells me a lot. I couldn't believe it when I saw it. Every place that this nerve runs is exactly where the pain is. Isn't there something yet that a good Neuro can do about this particular nerve? Take the dam thing out for all I care. I would be willing to have the whole right side of my head numb and drooping to my shoulder for the rest of my life if I was sure I'd never get another CH. BTW... I constantly chase my HAs around by pressing on different pasrts of my head. It helps a little to have it focused in a different place for a while. Luke and Redd hit it on the head about the tooth ache pain. Sometimes, I'd like to get in there with a pair of pliers and remove all of them when this is happening. I thinks it's a good thing we don't actually follo wthrough on the things that we come up with. Man I'd look kind of silly with no teeth on the right side, a glass eye, a hole above my right ear, and with my whole face numb and drooping down to my shoulder. |
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Title: Re: Do clusters move around? Post by 5-string on Apr 19th, 2004, 11:07pm on 04/18/04 at 03:42:20, jonny wrote:
Hey look, that's one of my "mug"shots. jonny, how did you get acces to my police records man? those are supposed to be confidential.. ...Mark.. |
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