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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> Brain demage?
        
(Message started by: Yale on Apr 2^nd, 2004, 7:07pm)

Title: Brain demage?
Post by Yale on Apr 2^nd, 2004, 7:07pm

I am 44, and 20 years CH survivor, yet, my last episode was totally new experience, beside the fact that it was the first time I got a “10”, it took 4 hours (usullay its 0.5-2) with all the symptoms, each on top scale.
My big concern now, 2 days after, is that I have difficulties in talking, probably a damage to the brain because of this trauma. My questions are:
1. Does any one experienced this results from CH
2. If yes, how long it take (If at all….) till things will come back to normal

Thanks!

Title: Re: Brain demage?
Post by joesf on Apr 2^nd, 2004, 7:14pm

5 years ago I had a an 8 hour headache which was a 10 most of the time. I never had trouble talking. I suggest you see a Doc right away as something else can be going on.

Title: Re: Brain demage?
Post by Charlie on Apr 2^nd, 2004, 7:21pm

I've never heard of clusters themselves affecting gray matter. They just hurt like hell. A 4 hour bout is horrible but if you are having speech difficulty, it's probably a good time to see if there is something else going on.

Good luck and let us know how you're doing.

Charlie

Title: Re: Brain demage?
Post by wsnyder on Apr 2^nd, 2004, 7:37pm

Usuallly after my attacks I feel nearly wonderful, kind of elated and I have had them for nearly 45 years. After the 9s and 10s though, I am usually exausted. Never anything more than that. Check ... sometimes I have been rubbing my head so much, and so hard, that it will be a tad sore for a coupla of days. I am lucky I didn't get frostbite outside this winter chilling my body to redirect blood flow. But that's it.

I agree, I think a trip to the doctor is a good thing to consider if only to set your mind at ease.

Keep us posted how you are doing.

Bill

Title: Re: Brain demage?
Post by Yale on Apr 2^nd, 2004, 7:53pm

Thanks guys !

Well, I went to the doctor, she said, like you, that this is not "part" of the package. still, she thinks that due to the ongoing pain I had, some side effects might happen.
If things will not get better, I will go to farther tests.
SInce I am not aware of such side effect in CH, I wonder if any one else had it.

Title: Re: Brain demage?
Post by pubgirl on Apr 2^nd, 2004, 7:57pm

Not sure quite what you mean about difficulties talking.

Quite a few people have written here about experiencing difficulty saying anything other than fuck, shit, arse and bollocks during an attack.
Quite a few others find that multiple attacks create such chronic tiredness that forming whole sentences is hard.

If it is more than this, it would be good to find out what is going on.

Wendy

Title: Re: Brain demage?
Post by Superpain on Apr 3^rd, 2004, 2:28am

If you have ch on the left side, I would definitely get it checked out as that is the side that is responsible for speech and cognitive thought.

Title: Re: Brain demage?
Post by Luke63 on Apr 3^rd, 2004, 8:45am

I think a trip to the Neuro should be in store.

Title: Re: Brain demage?
Post by Yale on Apr 4^th, 2004, 11:01am

Just to let you all know:

I am perfectly fine now and can speak as before.

Thanks !

Title: Re: Brain demage?
Post by joesf on Apr 4^th, 2004, 11:43am

Hey Yale,

Happy to hear you are better!

Title: Re: Brain demage?
Post by Turts on Apr 4^th, 2004, 8:48pm

Good to hear Yale.

Now only if I could get the same thing but a loss of hearing, that would be handy when my two yr old niece is running around the house. ( just kiddin)

Turts