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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> Breathing Room
        
(Message started by: PittsburghJoe on Mar 25^th, 2004, 7:13am)

Title: Breathing Room
Post by PittsburghJoe on Mar 25^th, 2004, 7:13am

Does anyone else do this?

If I'm in a cluster bout, whether The Beast is there or just lurking around, I HAVE to have a clear breathing space. Sharing air by being turned towrd sleeping partner, or having a kitty too near my face, or head down on a pillow or something just makes me feel like I'm suffocating at times.

Also, when I do have a HA, it sometimes feels like I'm inhaling dust and fibers or something, it can be really irritating just to breathe.

Any others out there like this?

Joe

Title: Re: Breathing Room
Post by t_h_b on Mar 25^th, 2004, 7:48am

I'm a claustrophobic mouth breather ALL of the time. No fiber inhalation sensations. Can't stand being in an elevator or on the train with the back of somebody's head in my face. Women who toss their hair around in my face on the elevator get asked, politely, to stop.

What's really upsetting during an attack is having to breathe warm or "stale" air. At work, where the windows don't open, I have to get outside.

Title: Re: Breathing Room
Post by wsnyder on Mar 25^th, 2004, 7:49am

I guess my interpretation of breathing room is different. When I am in a HA I need to feel that I am in complete control of the immediate space around me. I may have to go to another place (even if just another room) to guarantee this. I need to control things light amounts of light, volumn of sound, where things are placed, etc. Nothing can be changed while I am in pain or shadows.

As far as being affected by being too close, etc., that all depends on how bad the pain is. The greater the pain the more irritating people are to me.

Additionally, once my pain reaches a certain level I cannot process questions. If asked a question, I hear it, I know it is a question, I seem to realize what needs to be done with it, but I can't respond. It is very frustrating.

Bill

Title: Re: Breathing Room
Post by t_h_b on Mar 25^th, 2004, 7:54am

on 03/25/04 at 07:49:43, wsnyder wrote:

Additionally, once my pain reaches a certain level I cannot process questions. If asked a question, I hear it, I know it is a question, I seem to realize what needs to be done with it, but I can't respond. It is very frustrating.

Bill

Definitely relate to that. I stutter, can't think of even simple words, have trouble putting a sentence or a complete thought together. It's like somebody took a whisk and frothed up my brain. That's part of the reason I want to be left alone--it's too hard to talk to someone. Usually I just say, "I'll be okay" or try to smile.

Title: Re: Breathing Room
Post by Jill_R on Mar 25^th, 2004, 3:38pm

I know what you mean, Joe. I need cool, crisp, clean air when hit. Even though I wrap my head as tightly as I can in a towel or fleece throw for warmth, I need my nose, mouth and face air clear.

Not a problem to get cool air this season in Michigan. Can't wait for warmth---maybe then the CH's will go AWAY.

-Jill

Title: Re: Breathing Room
Post by Tiannia on Mar 25^th, 2004, 3:52pm

on 03/25/04 at 07:49:43, wsnyder wrote:

This makes total sense to me as well. One time I went to a new doc and started getting hit while I was waiting for him to come into the room. When he got there he asked me to "explain what I was feeling". Besides wanting to punch him, all I could do was shake my head because each time I would try and get a word out I would seem to forget it before it could leave my lips.

-Tia

Title: Re: Breathing Room
Post by Luke63 on Mar 25^th, 2004, 4:53pm

I think anytime any of us get hit...we need our "SPACE"..that includes...air...alone in a room..noone around most of the time...yup I feel the same way...thats why Ive gotten to like that O2 tank...... ;;D...Luke

Title: Re: Breathing Room
Post by Superpain on Mar 25^th, 2004, 6:09pm

on 03/25/04 at 15:38:49, Jill_R wrote:

Can't wait for warmth---maybe then the CH's will go AWAY.

-Jill

From someone that lives in 80 and 90 degree weather right now and gets hit everyday, I can only say "don't count on it..." [smiley=nono.gif]

Title: Re: Breathing Room
Post by Tiannia on Mar 25^th, 2004, 11:17pm

on 03/25/04 at 18:09:27, Superpain wrote:

From someone that lives in 80 and 90 degree weather right now and gets hit everyday, I can only say "don't count on it..." [smiley=nono.gif]

Have to agree. It was hitting 90 in parts of Vegas and I still had my wonderful visits from the beast.

-Tia