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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> Sittin' on the pity pot
        
(Message started by: Carolyn on Feb 25^th, 2004, 9:11am)

Title: Sittin' on the pity pot
Post by Carolyn on Feb 25^th, 2004, 9:11am

Pardon my ranting today folks, but I am not handling things too well this morning. Going through that hopeless, depressing fear that nothing is going to help me with this pain this cycle. My dear friend, imitrex, is failing me. Got hit at 4:00 AM, took my imitrex, started to feel that wonderful tingling that means shortly the headache will be gone and bam it turned around and I was dancin' in a few minutes time.

Goin to the doc this afternoon and see about oxygen. Hope I can make some sense by the time I see him...still have a shadow bothering me. Just so terribly down today.

Sorry to be so whiny (sp) :'( :'(

Title: Re: Sittin' on the pity pot
Post by AlienSpaceBabe on Feb 25^th, 2004, 10:16am

Glad you're going to the doc today, Carolyn.

Tell him/her how you feel, both mentally and physically. I think they need to hear how it's affecting our lives. Ask for (ie, demand) oxygen - if the doc says it won't work and arguing doesn't help, try saying "It can't hurt me, so let me try it because it MIGHT help" While you're there, also try to get on a preventative that works, like verapamil.

And if you think you'll forget (happens all the time when you're in pain), write down what you want so you have a reminder.

Best of luck
Lizzie

Title: Re: Sittin' on the pity pot
Post by Carolyn on Feb 25^th, 2004, 6:12pm

Success...get my o2 tomorrow. He also gave me some samples of relpax.

I have been on verapamil before, but it was over 20 years ago. He said because of my low blood pressure and heart rhythm problems he wouldn't advise trying it again.

Hopefully, the o2 will work and I'll be able to replace my traitorous imitrex with relpax.

Title: Re: Sittin' on the pity pot
Post by jonny on Feb 25^th, 2004, 6:19pm

Good luck with the 02, Carolyn...If it works youll be in heaven (Just need to get on it as soon as you feel the beast)

Again....luck to you!!!

......................................jonny

Title: Re: Sittin' on the pity pot
Post by Carolyn on Feb 25^th, 2004, 6:29pm

Thanks all. ;;D ;;D ;;D

No more whining today, I have hope again.

Title: Re: Sittin' on the pity pot
Post by Woobie on Feb 25^th, 2004, 6:35pm

hey there carolyn

dont worry - you're allowed .....

LOL - check your PMs again...

tina

Title: Re: Sittin' on the pity pot
Post by porkchop1 on Mar 6^th, 2004, 6:55am

:) sleep deprivation is such torture, isn't the CH bad enough? I am just a supporter, (hubby has ch) so I really cannot relate to the actual pain but I know otherwise what you are going thru. Also my hubby has used lots of drugs (imitrex quit working for him too) and after awhile they all stop working it seems. That being said, read my posts about red pepper/sinus buster nasal spray. I feel like an evangelist about it, but what can I say except IT WORKS, it's natural, it's 10 dollars and refundable should it not (hope it does, but these are CH's and therefore devious) work for you. the problem with o2 is that it can scar your lungs if you use it too much. Good luck, I hope that you get some relief soon. Keep the faith!

Title: Re: Sittin' on the pity pot
Post by pokemom on Mar 15^th, 2004, 1:45pm

Hi,
Have you asked about varapamil? I was taking it and it helped a lot with CH's but, It gave me a frontal headache and would have to still take med for pain. My nuro gave me the 100 mg time release to take at bedtime and it works much better. No sign of HA's yet. I want boast to much cus it will bring me bad luck. LOL...You can also get the time release in 250 mg if 100 is not strong enough. Best wishes to you and good luck. I feel for everyone here every day. Heck just one day headache free is wonderful. Miles of smiles to you.
Poke~ :D