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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> are they supposed  to go away
        
(Message started by: renny on Feb 23^rd, 2004, 2:13am)

Title: are they supposed to go away
Post by renny on Feb 23^rd, 2004, 2:13am

Just wondering....are they supposed to go away as we get older???? Because some of the stuff I've read indicates that.....boy it sure would be NICE!!!!!

Title: Re: are they supposed to go away
Post by BobG on Feb 23^rd, 2004, 2:21am

Yes, most indicators say we will out grow them. But at what age? I don't think anyone knows. We have some clusterheads in their 60's. I'm 57 and still get them but they are no way near as bad or as often as 10 years ago.

Title: Re: are they supposed to go away
Post by renny on Feb 23^rd, 2004, 2:25am

:)wellthat's maybe some sort of relief.....this was the first i'd heard of us outGROWING them!!!

Title: Re: are they supposed to go away
Post by Mark C on Feb 23^rd, 2004, 2:47am

After 27 years frequency and duration seemed to have lessend....or have I just developed scar tissue...in any case it is easier because I am no longer alone in my battle. Thanks people!

PFDAN's
Mark

Title: Re: are they supposed to go away
Post by renny on Feb 23^rd, 2004, 3:00am

and just the FACT that the rest of us are there....thinking only good thoughts....

Title: Re: are they supposed to go away
Post by renny on Feb 23^rd, 2004, 3:06am

:-/look I am having problem as I try to type this...oncer again my right eye is glued shut..I know what's coming in next few minutes...DAMN why are they always so late at night

Title: Re: are they supposed to go away
Post by KingOfPain on Feb 23^rd, 2004, 3:52am

on 02/23/04 at 03:06:33, renny wrote:

:-/look I am having problem as I try to type this...oncer again my right eye is glued shut..I know what's coming in next few minutes...DAMN why are they always so late at night

Glued shut eye?

Lost me.

Title: Re: are they supposed to go away
Post by Mark C on Feb 23^rd, 2004, 4:38am

I too try to function as long as possible under the watchful eye of an impending attack. I used to drive a truck...till that one eye finally closed and I just couldn't function. Fucking shit hurts!

I wish you pain free times....
Mark

Title: Re: are they supposed to go away
Post by sandie99 on Feb 23^rd, 2004, 4:39am

Renny,

my teacher, who used to suffer from CH, said that hers stopped in her 40s.

But, my neuro said, that he has patients from 9-70, so who knows?

I certainly don't plan to live with CH for next 50 years!!!

best wishes & loads of PFdays,
sandie99

Title: Re: are they supposed to go away
Post by thomas on Feb 23^rd, 2004, 9:14am

on 02/23/04 at 03:52:24, KingOfPain wrote:

Glued shut eye?

Lost me.

I think she's referring to Horner's syndrome, kop. ;)
PF vibes going out to you Renny........ ;;D Hope the beast lets go of you real soon.

Title: Re: are they supposed to go away
Post by Carolyn on Feb 23^rd, 2004, 1:58pm

I am 55 and they are still definitely around. Can't say the intensity is any less, but they are a lot less frequent....went from 1 to 2 episodes a year to 1 every 2 years now. Only thing that doesn't change is that I can continue to add failed medicines to my list.

Title: Re: are they supposed to go away
Post by Bob_Johnson on Feb 23^rd, 2004, 2:59pm

I just turned 68 and haven't had an attack in 2-yrs. Looking over the log I've kept, it's clear that cycles have been shorter and farther apart during the last 10-years.

Of course, all that you get from losing your clusters is space to be filled with all the other middle-age maladies.

Title: Re: are they supposed to go away
Post by don on Feb 23^rd, 2004, 5:14pm

Hopefully I will be an ongoing case study.

I have had CH now for 27 or 28 years. The last three years are the only years I have not gone into a cycle.

I have still gotten occasional shadows and an occasional Kip 5 but thats a hell of a lot better than 4-6 month cycles of 4-6 Kip 9s a day every day of the cycle.

Title: Re: are they supposed to go away
Post by Sean_C on Feb 23^rd, 2004, 7:59pm

on 02/23/04 at 17:14:40, don wrote:

4-6 Kip 9s a day every day of the cycle

I can remember those days, TEN steady years worth with no meds, that pain you never forget. My wife once said Labor Pains were the worst ever.............I tod her I gave birth to 6- 18 pounders everyday for the last 10 years through my eye ;;D ;;D ;;D ;;D ;;D ;;D ;;D BREECH

Wishing all PFDAN

Sean

Title: Re: are they supposed to go away
Post by Giovanni on Feb 24^th, 2004, 10:20am

I still have them at 57 with longer cycles than at the beginning. The doc told me she had a patient in their 70's with CH.

John

Title: Re: are they supposed to go away
Post by Janice on Feb 24^th, 2004, 2:16pm

I aksed my Neuro the same question...."will I outgrow them?" He told me that as a person gets older the CH's become worse, and that one cannot outgrow them. He is said to be the best in our area for Neuro stuff. His comment made my day! Lord help us all!
Janice