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Title: Question from ClusterChuck... Post by Cathi04 on Feb 21st, 2004, 7:49pm Chuck just called me..asked me to post this or remind him to post it....he has been talking to Mikey in the hosp..and they are quite interested in a procedure they heard about a month or so ago..perhaps Tara Ann's Occipital Nerve Stimulation?? At any rate, It might be helpful to revisit all these different procedures, perhaps shed some light for these boys. Chuck was ramping up when he called..so I hope I am posting precisely what he wants..he mentioned probes up to the Hypothalamus.......what were the results? Unsolved?? Tara Ann?? can you please begin a discussion on this subject?? PF... Cathi |
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Title: Re: Question from ClusterChuck... Post by BillyJ. on Feb 21st, 2004, 10:53pm from the convention report "10. The Italians doing the stimulation surgery is proving to be extremely effective for chronic refractory CH. The numbers so far are very promising, almost 100%" On the OUCH site- http://www.clusterheadaches.org/library/surgery/hypo_stim.htm I think this is what you're looking for,I don't know much about it though some more links- http://www.docguide.com/news/content.nsf/news/8525697700573E1885256DAB00477193 http://www.healthscout.com/news/419/8006029/main.html http://content.health.msn.com/content/article/32/1728_79752 |
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Title: Re: Question from ClusterChuck... Post by J.ten_Dam on Feb 22nd, 2004, 7:00am You can find all you nead at Medications, Treatments, Therapies <<Interesting study for chronics>> « on: Feb 17th, 2004, 3:10pm » |
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Title: Re: Question from ClusterChuck... Post by henzey on Mar 5th, 2004, 4:42pm Hey, I posted something fairly recently on this too. Maybe around mid February....it was a group of Italian doctors so likely was the study referenced by Billy J. However some other folks thought that 3 of the 10 patients died....or something like that. But not sure that was the same study. Look for my post under Medication/Treatments for around Feb. 18-22. |
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Title: Re: Question from ClusterChuck... Post by UN_SOLVED on Mar 5th, 2004, 6:13pm They will do the "Occipital Nerve Stimulation Implant" in the US, but as far as the 'deep brain hypothalmus stimulation" device...it's only being done in Italy (according to Dr. Rozen from MHNI). He also says it's being done with great success and should be available in the states in a year or two. (He even said I was a candidate). He said NO ONE has died. (He laughed when I mentioned that). Doctors from Cleveland are the docs that taught the Italians (again, according to Dr. Rozen) I'll be having the ONSI THIS MONDAY MORNING at MHNI. I'll post about it later on next week. Wish me luck. Unsolved |
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Title: Re: Question from ClusterChuck... Post by miapet on Mar 5th, 2004, 8:29pm unsolved, i have you surrounded with all the positive energy i can muster!! |
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Title: Re: Question from ClusterChuck... Post by UN_SOLVED on Mar 5th, 2004, 8:53pm Awwe....thanx ;) Unsolved |
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Title: Re: Question from ClusterChuck... Post by Cathi04 on Mar 5th, 2004, 10:32pm Un-THANK YOU for your response!!!! I am wishing you success, and PF times. Vibes going up..... Cathi |
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Title: Re: Question from ClusterChuck... Post by Mikey on Mar 14th, 2004, 10:49pm Thank you so very much Unsolved, I'll be waiting on what you have to say about the out come of the ONSI. I hope it is a good one, because Chuck and I are definitely interested in it. Good luck, and many prayers for you Bro!! Mikey, ;;D |
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