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        New Message Board Archives >> 2003 Posts >> Re: Can someone help tha newbie?
        
(Message started by: TxBasslady on Dec 27^th, 2003, 11:50pm)

Title: Re: Can someone help tha newbie?
Post by TxBasslady on Dec 27^th, 2003, 11:50pm

Hi Russell,

Welcome to the board.

You need to read the info on the links to the left. Take the cluster quiz.

My CH started off pretty easy. Just a few attacks. Then I would go for months without any. However, in August, I went into a full blown cycle.

Realize that ANYTHING is possible with CH. The beast attacks at will. There are some abortive meds, but again, you need to read all the info here.

There is lots of good info here....and the support is awesome.

Keep posting and let us know how you are doing. Give us a bit more info about your ha's. How often you get them.....and if you take any meds.

PF vibes,

Jean

Title: Re: Can someone help tha newbie?
Post by forgetfulnot on Dec 28^th, 2003, 12:00am

Hi Russell, sadly there is no definitive answer to your questions. In my case I had several c/hs from twenty to thirty, one every 12-18 months, at age 30 out of nowhere they became chronic, every day, some times as many as eight per day lasting 1-3 hours on average. I am 49 and see no let up from the beast. There are some things you can do.
Read this site and visit the OUCH site, this is the best information on this subject you will find.

Lee

Title: Re: Can someone help tha newbie?
Post by BlueMeanie on Dec 28^th, 2003, 12:06am

Lysander,

Most people with true CH have attacks daily. Sometimes up to 5 times a day. Episodics will get PF periods up to around 2 years then a cycle will start again. Chronics get to remission periods.

Even though I'm sure your pain is real, good news for you it may NOT be clusters. I've never heard of a clusterhead to only get 5 attacks in 2 years. I've been in cycle for 4 months with over 300 CH attacks. 2 today already. Read as much as you can. Get your doc to refer you to a Neuro if your pain does not go away. Gotta check all options before assuming it's clusters.

Title: Re: Can someone help tha newbie?
Post by jonny on Dec 28^th, 2003, 12:06am

on 12/28/03 at 00:00:24, forgetfulnot wrote:

I am 49

Dude, your old....LMMFAO ;;D

Russell, stick around.....weekends are slow around here, if not for moi this place would be dead!!!

Ya, ya, ya...."Get a life"...Ive heard it before ;;D

..............................Homey

Title: Re: Can someone help tha newbie?
Post by Charlie on Dec 28^th, 2003, 12:29am

Hi Russell and welcome aboard.

Cluster headaches can start oddly but I don't know of anyone having individual attacks so few and far apart over such a long time. I'm wondering if you came here because you might be having more than one or two close together? Clusters usually occur in bunches which is why they call them clusters.

Stick around. As Jonny says: Weekends are uneven. Keep track and you find lots of ideas.

Charlie

Title: Re: Can someone help tha newbie?
Post by ClusterChuck on Dec 28^th, 2003, 12:47am

on 12/28/03 at 00:00:24, forgetfulnot wrote:

I am 49

on 12/28/03 at 00:06:59, jonny wrote:

Dude, your old....LMMFAO ;;D

Jonny, let me make myself perfectly clear, as I don't want a young whippersnapper like yourself to misunderstand this old fart, Shut the fuck up! ;) ;;D Damn kids today, Sheesh!!!

Russel, one of the things I have discovered about this afliction, no two of us are exactly the same. Almost every one of us started in a slightly, or drastically different way. I myself started with a bang. Got my first one at about 11:30 at night, got rushed to the hospital, then lifeflighted to another hospital, and proceded to have up to 5 hits a day for about 4 months. They then disappeared for 3 years. Everyone is different.

I hope you do not have this. You need to see a qualified doctor, and get a CAT scan and MRI to rule out any other possibilities.

Good luck, and keep us informed, as we really do care.

Chuck

Title: Re: Can someone help tha newbie?
Post by don on Dec 28^th, 2003, 1:28am

Quote:

Russell, stick around.....weekends are slow around here, if not for moi this place would be dead!!!

If not for you there might be someone here!

Title: Re: Can someone help tha newbie?
Post by jonny on Dec 28^th, 2003, 1:37am

on 12/28/03 at 01:28:13, don wrote:

If not for you there might be someone here!

Seperates the meegrainers from the clusterheads

Title: Re: Can someone help tha newbie?
Post by Turts on Dec 28^th, 2003, 1:50am

Gday Russell,

As others have posted, read the tabs to the left and get educated. Learn what is going on.
Dont be pretty sure its not a tumor, get out there and KNOW

Welcome aboard

Turts

Title: Re: Can someone help tha newbie?
Post by Callico_Kid on Dec 28^th, 2003, 2:54am

Ditto to all the above. Welcome aboard. Check out the cluster quiz and see your Dr. and a QUALIFIED neurologist. Get an MRI and a CAT just to prove you don't belong here. (I hope)

Post again with as much info as you can and someone will be able to guide you more effectively.

Jerry

Title: Re: Can someone help tha newbie?
Post by forgetfulnot on Dec 28^th, 2003, 2:58am

Quote:

Dude, your old....LMMFAO

Jonny, I have been rode hard and put up wet, 49 feels more like 65 or 70. If i move the wrong way I break a bone. The courses of prednisone trashed my body, no way to recover so I am told. SOOOOOOO here we are in clusterville, and guess what, next year I will be fifty.

I can't hardly wait for that [smiley=laugh.gif]

Title: Re: Can someone help tha newbie?
Post by jonny on Dec 28^th, 2003, 11:36am

on 12/28/03 at 02:58:38, forgetfulnot wrote:

next year I will be fifty.

I am not that far behind you, Bro.....LOL ;;D

......................jonny

Title: Re: Can someone help tha newbie?
Post by Lysander on Dec 28^th, 2003, 3:14pm

Well CAT scan andMRI are negative. So I have an apointment with a neuro on Monday. Will keep in touch. The doctor I talked to today is pretty stupid. Isn't it bad when you know more than the doc. Not more about medicine, but they should teach some common sense in med school.

Title: Re: Can someone help tha newbie?
Post by Prense on Dec 28^th, 2003, 3:15pm

on 12/28/03 at 15:14:02, Lysander wrote:

Isn't it bad when you know more than the doc.

If you find out that it is truly CH, get used to that!

Chris ;;D

Title: Re: Can someone help tha newbie?
Post by captdshea on Dec 28^th, 2003, 6:30pm

You had A cat & MRI before you saw a Neuro?

I went six yrs without A HA.
I'm getting my ass kick by CH daily now.

Good Luck, Lots of answers here.

David

Title: Re: Can someone help tha newbie?
Post by Lysander on Dec 28^th, 2003, 8:29pm

when I went, I was having one, and they wanted to see if it was a seizure. luckily it wasn't. I hope maybe I dont,(have CH) not that I am any better, but I have heard you guys talk, and I dont know if i'm strong enough for that. As it is I wan't to die, it feels as if someone is stabbing me in the head. I ripped a clump of hair out today and didn't notice till a couple of minutes later. Maybe I can add bald to the list of "ism's" <grin>

Title: Re: Can someone help tha newbie?
Post by Little Deb on Dec 28^th, 2003, 9:02pm

Hi.

And welcome. Just wanted you to know we are having a get together in Raleigh, NC Jan. 31st if you would like to come. Hopefully some others will be here from Georgia, and SC, VA, and of course NC.

You are welcome to come meet some other clusterheads.

Little Deb