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        New Message Board Archives >> 2003 Posts >> BrianY needs our support
        
(Message started by: Jayne on Dec 20^th, 2003, 9:45am)

Title: BrianY needs our support
Post by Jayne on Dec 20^th, 2003, 9:45am

He's having a BAD time

can some one post the tip about dramamine for him please. He's really getting slammed BAD.
I have never done the drammamine trick so please post a refresher so he can get ready for tonight and hopefully get some rest.

Title: Re: BrianY needs our support
Post by suzy617 on Dec 20^th, 2003, 9:49am

I think you just need to take it before bedtime. It prevents you from going into REM sleep which is when the beast normally comes to play. I havent tried it as yet myself but heard it has good results for some.

Feel better Brian, hope you have a pf night,
Suzy

Title: Re: BrianY needs our support
Post by ZAIRA on Dec 20^th, 2003, 9:49am

Brian,
when you get a chance to read this please know that you have many friends and we are all pulling for you and wishing you the best.

Be strong...... Zaira :'(

Title: Re: BrianY needs our support
Post by Roxy on Dec 20^th, 2003, 9:56am

Brian,

Sorry you are having a bad time right now.

There really isn't a tip to taking the dramamine, just take two before bed. I think Benadryl will do the same, but I've never used it. If you get a breakthrough with two dramamine, take three the next night. It will let you sleep through the night, the only problem is, that it's not REM sleep, so you don't get the real rest you need.......but, it's still better than getting slammed every hour.

PFDAN,
Tracey

Title: Re: BrianY needs our support
Post by Brian_Y on Dec 20^th, 2003, 10:13am

Hmmm.

Thank you all. I normally do not "do" this, but, ....

Well, I am not sure what to say.

Thank you.

I'll give this a try.

Title: Re: BrianY needs our support
Post by don on Dec 20^th, 2003, 10:22am

I always use it in cycle.

Title: Re: BrianY needs our support
Post by Peppermint on Dec 20^th, 2003, 10:28am

Brian...

You never know what will work. What has worked for you in the past can change, as you have witnessed on this board.

Hope it works for you....

Pepper

Title: Re: BrianY needs our support
Post by Jackie on Dec 20^th, 2003, 10:31am

Brian...
Sorry you're having a rough time... >:(

I don't know what abort meds. you have...
Blake has taken a Zomig at bedtime (during the really bad times when he knows he's gonna get hit). It holds him for up to 8 hours usually.
The Dramamine has worked for him too....

Good Luck,
Jacks 8)

Title: Re: BrianY needs our support
Post by Brian_Y on Dec 20^th, 2003, 11:07am

Thanks again, y'all. I'll try these things.

This is a first for me, I suppose. I never discuss my own suffering. Maybe a lesson will be learned. I dunno.

I felt quite certain I was strong enough. We shall see...

B

Title: Re: BrianY needs our support
Post by pubgirl on Dec 20^th, 2003, 11:26am

Brian

The Zomig (or Imigran) pill as a short term preventive has worked for me sometimes too, just to buy a few hours pain free sleep.

Worth a try

Wendy

Title: Re: BrianY needs our support
Post by Jayne on Dec 20^th, 2003, 11:47am

any tricks we can teach Brian right now will help him, as by what he has been telling me, the beast has been an unrelenting bastard to him!!!!

Title: Re: BrianY needs our support
Post by Ree on Dec 20^th, 2003, 12:31pm

Ok what Dave does also if you have some is to pop an Imatrex pill before he falls asleep because by the time the pill takes effect if he is about to get hit it lessens the severity of the attack... I know you arent supposed to use it as a preventative but it worked for Dave... God Bless you Brian Y and Jayne you are such a great supporter......love ree

Title: Re: BrianY needs our support
Post by Patrick_A on Dec 20^th, 2003, 1:45pm

Check your PM bro, I am only a little more than 1 hour from you.

Patrick

Title: Re: BrianY needs our support
Post by OneEyeBlind on Dec 20^th, 2003, 3:14pm

Brian, I am sending pain free vibes for ya !!!!!!!! Hope that helps. Never had to do the tricks listed above .. only ever got hit once per night ..... but it was like clockwork ! Good luck Bro !

Title: Re: BrianY needs our support
Post by thomas on Dec 20^th, 2003, 4:16pm

Hang in there bro., hopefully good times are right around the corner. :)

Title: Re: BrianY needs our support
Post by Charlie on Dec 20^th, 2003, 7:40pm

Keep fightin'

Ya know; if you can handle the abuse you get here, you can handle anything.

Pulling for ya.

Charlie

Title: Re: BrianY needs our support
Post by Woobie on Dec 20^th, 2003, 7:57pm

VIBES to ya Brian! Dont know no dramamine tip - but I hope it werks for ya!

Kickk some beast ass!!!!!!!!!!!

tina

Title: Re: BrianY needs our support
Post by Little Deb on Dec 20^th, 2003, 8:30pm

PF Vibes from Raleigh, dude. Feel better soon.

Little Deb

Title: Re: BrianY needs our support
Post by BlueMeanie on Dec 20^th, 2003, 8:39pm

Brian,

Pain Free Vibes Coming Your Way !!

Hope it works for you. You can also try an Amerge tablet. Works about the same as an Imitrex tablet for me. As REE said, it's not suppose to be a preventive, but it works for me most of the time if I take one before falling asleep.

Title: Re: BrianY needs our support
Post by BobG on Dec 20^th, 2003, 9:38pm

Another trick that may help is to sleep in the La-Z-Boy. Or in bed with the head elevated. Won't stop an attack from coming on but may help a little.

Title: Re: BrianY needs our support
Post by Big_Dan on Dec 20^th, 2003, 10:38pm

Brian you stubborn old bastard... take the vibes... ;;D

... and here are mine along with some prayers to follow...

-Big Dan

Title: Re: BrianY needs our support
Post by TxBasslady on Dec 21^st, 2003, 1:59am

Brian......I agree with Bob about sleeping in a somewhat upright position. I slept for 3 weeks on the sofa, with lots of pillows. It was more of a reclined position. Seems when I went to bed and in the horizontal position, I was more susceptible to a really bad hit. Just one of those things that seemed to work for me.

Hope you get some relief, sweetie.

PF vibes,

Jean

Title: Re: BrianY needs our support
Post by JDH on Dec 21^st, 2003, 2:13am

Brian,
Hoping you get some relief AND some sleep.
It's gonna pass so hang in there.
pfdan's

Jim

Title: Re: BrianY needs our support
Post by sandie99 on Dec 21^st, 2003, 7:54am

:) Good vibes are on the way to Brian! :)
I'll send a prayer for him, too.

Wishing everyone CH-free holidays,
sandie99

Title: Re: BrianY needs our support
Post by Peppermint on Dec 21^st, 2003, 11:23am

yup. Exactly what Big Dan said.

- Big Ditto-er

p.s. Bri, Did you try it? Hope today is a better day.

Title: Re: BrianY needs our support
Post by nancyc on Dec 21^st, 2003, 11:41am

Bro, read your email...Tristan and I were very sick...now, I am working overtime all the time...but I had no idea you were gettting hit when you left that message for me the other day...I have some ammunition for you...call ME again! I am here for you and dont you forget that, my friend...Clusterbuds stick together....smiles,nancyc

Title: Re: BrianY needs our support
Post by Melissa on Dec 21^st, 2003, 12:12pm

Thinking of you Brian and sending positive thoughts your way!!!

:)mel

Title: Re: BrianY needs our support
Post by Brian_Y on Dec 21^st, 2003, 12:41pm

Thanks, y'all. I do not know what to say. I AM touched. And that is difficult for me. :)

Last night was VERY bad. 5 KIP 7+'s visited me. I think I had around 1 1/2 hours of sleep. This visit from Le Beast does not like REM sleep evidently.

...sigh...

If I can stay sane, I'll be OK.

P.S. Dan--I am NOT old...

Title: Re: BrianY needs our support
Post by Jayne on Dec 21^st, 2003, 2:24pm

You need to call your doctor in the AM and go "Y" on his ass Brian!!!!!!!!!!!
You don't need to be suffering like this....

Title: Re: BrianY needs our support
Post by Jayne on Dec 21^st, 2003, 2:25pm

P.S did you try any of these tricks dear??

Title: Re: BrianY needs our support
Post by Brian_Y on Dec 21^st, 2003, 2:59pm

Yes, I tried the tricks. It is, as we all know, a process of finding that which works for you individually. The ole process of elimination... I'll find it. I have not given up yet.

LBB

Title: Re: BrianY needs our support
Post by CathiP on Dec 21^st, 2003, 4:18pm

HMMM>>>> YES YOU WILL!
and NO YOU WILL NOT!

B- You KNOw I hate that you are getting hit so hard right now, and you know I send you encouragement to keep on fighting. I also know it is difficult for you to accept this outpouring of affection and support.....BUT-
I know you are exhausted, and in pain......there are many here who are sending you vibes and suggestions and encouragement. Please accept these as you have, and continue to stop in here for refills whenever you can...just let us know how you're doing, please.
YOU, ya lazy Suhthun Genleman, are a Clusterhead...and you WILL put this cycle behind you!
Rest when you can, keep yourself healthy, and try every trick that has been posted here.......and MAKE your DR understand you need something MORE right now.
Sending you the vibes I have, too.....
Cathi

Title: Re: BrianY needs our support
Post by Brian_Y on Dec 21^st, 2003, 4:26pm

I know, I know. You see, we are not an affectionate people. Our idea of affection is getting someone a whiskey sour without asking. ;;D

You know, last night, my father hugged me when I saw him. He was concerned about me and what I am going through.

All right, which one of you took my Daddy and what the fuck did you do with him?

Did someone break one of the seven seals of the apocaplypse?

I asked him if he was OK. He smiled back at me and said "Of course. Let's go get a drink". Well, none for me, but it is strange.

And of course, I did not tell him I was nearing the end of my rope, which I am. His reaction may have been different had he known that.

Title: Re: BrianY needs our support
Post by Cerberus on Dec 21^st, 2003, 6:00pm

B,

Nothin but love Bro' You know it.

Ramon

Title: Re: BrianY needs our support
Post by Peppermint on Dec 21^st, 2003, 9:58pm

on 12/21/03 at 16:26:47, Brian_Y wrote:

And of course, I did not tell him I was nearing the end of my rope, which I am. His reaction may have been different had he known that.

I don't like the sound of that Brian. I hope you can comprehend in the middle of this incredible lack of sleep that there is a lot more rope being handed to you right here.

DON'T wait to see the NEURO... pay him an URGENT visit.
FIGHT Dammit!!

Title: Re: BrianY needs our support
Post by TomM on Dec 22^nd, 2003, 8:30am

BY--loosen the Bow Tie and let some O2 get to your brain, for goodness sake! ;)
Hang in there. You're not alone as I am going through a rough spell, too.
TomM

Title: Re: BrianY needs our support
Post by Brian_Y on Dec 22^nd, 2003, 8:57am

on 12/22/03 at 08:30:50, TomM wrote:

BY--loosen the Bow Tie and let some O2 get to your brain, for goodness sake! ;)
Hang in there. You're not alone as I am going through a rough spell, too.
TomM

Problem solved!!! It's the bow tie. [smiley=laugh.gif]

Be well yourself, Tom. I am hitting O2 like a madman right now. I love the inert gases. Is it inert? I fergit.

I wonder if CHs can destroy brain cells. Mine are certainly depleted if so. I am in hell.

Title: Re: BrianY needs our support
Post by TomM on Dec 22^nd, 2003, 4:06pm

on 12/22/03 at 08:57:12, Brian_Y wrote:

Be well yourself, Tom. I am hitting O2 like a madman right now. I love the inert gases. Is it inert? I fergit.

I wonder if CHs can destroy brain cells. Mine are certainly depleted if so. I am in hell.

Bee Why--(BY)--We are in this hell together. I've never tried O2 but am looking for a supplier today. I have re-breather masks @ home and I got an Rx from my new Neuro last week.

Main Entry: noble gas
Function: noun
Date: 1902
: any of a group of rare gases that include helium, neon, argon, krypton, xenon, and sometimes radon and that exhibit great stability and extremely low reaction rates -- called also inert gas .

O2 is NOT inert. Chem lesson 101.
Tom

Title: Re: BrianY needs our support
Post by Carl_D on Dec 22^nd, 2003, 4:11pm

Brian,
Hang in there. Hopefully better days are soon on the horizon.

Peace,
Carl D

Title: Re: BrianY needs our support
Post by Brian_Y on Dec 22^nd, 2003, 4:26pm

on 12/22/03 at 16:06:47, TomM wrote:

So...It IS inert?

I am inert.

BTW, thanks, CarlD...

B

Title: Re: BrianY needs our support
Post by TomM on Dec 23^rd, 2003, 8:15am

Michael J is a prevert. Jimmy Swaggart is a convert.

You are not Inert, you are Noble. :)

Title: Re: BrianY needs our support
Post by Brian_Y on Dec 23^rd, 2003, 8:46am

on 12/23/03 at 08:15:12, TomM wrote:

You are not Inert, you are Noble. :)

Indeed.

Title: Re: BrianY needs our support
Post by gmlevenhagen on Dec 23^rd, 2003, 10:06am

Dear BY

I don't know you all that well, but you are a fellow clusterhead, and you going through a bad spell. Please have hope, and know that everyone is here for you.

Sending PF vibes your way.

Gena

Title: Re: BrianY needs our support
Post by goaway on Dec 23^rd, 2003, 8:44pm

BRIAN!

JUST NOW CATCHING UP WITH THE POSTS. MAN OH MAN, I SURE HOPE THAT YOU HAVE KICKED THE BEAST BY NOW. PAIN FREE VIBES AND A BIG MERRY XMAS COMING AT YOU!!!

AND REMEMBER:

Draco dormiens nunquam titillandus!

Mike

Title: Re: BrianY needs our support
Post by BlueMeanie on Dec 23^rd, 2003, 8:55pm

Hang in there Brian. I know you don't see it know, but there will be some good days coming. Everytime I get hit really hard, I think the same. Eventually you will get some good days and you will feel better. IT SUCKS, but you can survive this. As you see from all the post we all work together here to get through the hard times. You will be posting funny stuff soon I'm sure.

Title: Re: BrianY needs our support
Post by Brian_Y on Dec 24^th, 2003, 9:15am

on 12/23/03 at 20:44:57, goaway wrote:

Draco dormiens nunquam titillandus!

Thanks, Mike. And don't I KNOW it.....

Yours,

B

Title: Re: BrianY needs our support
Post by Gofishgriff on Dec 26^th, 2003, 10:25pm

B dawg,

Sorry to hear your still getting hit. Hopefully you've found some relief since the last post on this thread.

I know how much you love vibes, so I'll send a couple your way as well ;). Hang in there, we've got a golf date, remember?

I've mentioned in the past how fortunate I've been with CH, having cycles that last only a month or so with 1-2 HA per day. The best thing that's worked for me so far are the trex nasal sprays. These sprays have nipped a couple of HA's in the bud for me. I've not gotten to the trex injections or o2 yet, so I can't comment on those.

Whatever works my friend, you do it. I was bashed some time ago for mentioning darvocet helped dull the pain. But when your hurting, anything that will take the pain away and give you a couple hours of relief is worth it.

I was a little surprized to see this much emotion coming from you, with you being the literary genius I've come to know. Nice to know you have a emotional side. Loosen the knots on those Ben Silver bow ties and you'll be okay. ;;D

It's golfin weather right now in Orlando, any chance of you bringing the family down for a Disney visit any time soon?

Andy

Title: Re: BrianY needs our support
Post by kim on Dec 26^th, 2003, 10:39pm

Brian,

Don't let the sun catch ya cryin :)

This post is sent in support of BrianY along with prayers for his mom****

Yeah yeah yeah, 'love will bring us back alive'........

sendin warm breeze from Atlantic with calm hands a holdin****

Title: Re: BrianY needs our support
Post by ClusterChuck on Dec 26^th, 2003, 11:39pm

Brian, my hot stud muffin, I am up in New England right now. Do I have to come on down there and give you another of my famous liplocks?

You know I am pulling for you! Kick some ASS!

Your secret lover (nobody knows about us!) Chuck

Title: Re: BrianY needs our support
Post by StanTheMan on Dec 26^th, 2003, 11:45pm

...not much I can add, Brian...

Hang in there! Your family here is pulling for you!

Prayers...

Stan :)

Title: Re: BrianY needs our support
Post by Ouch on Dec 27^th, 2003, 10:37am

Were all with you. 8)

Title: Re: BrianY needs our support
Post by Brian_Y on Dec 27^th, 2003, 9:05pm

I am touched by this affection, folks. I really am. Thank you.

Also, mom appears to be a bit better. She may make it.

Keep y'all's fingers crossed for me!!!

Title: Re: BrianY needs our support
Post by Peppermint on Dec 28^th, 2003, 10:14am

on 12/27/03 at 21:05:27, Brian_Y wrote:

I am touched by this affection, folks. I really am. Thank you.
Also, mom appears to be a bit better. She may make it.
Keep y'all's fingers crossed for me!!!

That is great news Brian.... really great. My fingers are crossed. [smiley=hug.gif]

Pepper