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        New Message Board Archives >> 2003 Posts >> OUCH in the news
        
(Message started by: Bob P on Dec 19th, 2003, 8:29pm)
Title: OUCH in the news
Post by Bob P on Dec 19th, 2003, 8:29pm
The lady from St. Joseph, MO has her article on the web.  Sorry Don, looks like you lost your job.
http://www.stjoenews-press.com/Main.asp?SectionID=152&SubSectionID=281&ArticleID=48049
Title: Re: OUCH in the news
Post by Carl_D on Dec 19th, 2003, 8:43pm
Now THAT is TFA!!!

Peace,
Carl D


p.s. - TFA is TOTALLY FUCKING AWESOME!
Title: Re: OUCH in the news
Post by BlueMeanie on Dec 19th, 2003, 8:58pm
Great News.
Submitted my 2 cents.
Title: Re: OUCH in the news
Post by jonny on Dec 19th, 2003, 9:00pm
People are desperate. They want anything to make them stop.?

Nuff said......CHRIST!!!!

.................................................jonny
Title: Re: OUCH in the news
Post by BobG on Dec 19th, 2003, 9:08pm
Way-ta-go Bob. I also have left a little message of thanks.
Title: Re: OUCH in the news
Post by Jayne on Dec 19th, 2003, 9:11pm
That is the best media write up on CH I have ever read!!!!
AWESOME!!!!!!!!!!!!!!!!
Title: Re: OUCH in the news
Post by Elaine on Dec 19th, 2003, 9:32pm
WOW !!!!!!
Title: Re: OUCH in the news
Post by catlind on Dec 19th, 2003, 10:13pm
Good stuff Maynard!!!!!!!!!!

I forwarded the article to the NECH, who knows, maybe they will have feedback for it :)

Cat
Title: Re: OUCH in the news
Post by Not4Hire on Dec 19th, 2003, 10:18pm
just a little something for Ms Zielinski:


Quote:
Dear Ms. Zielinski:

I applaud your article in ... www.stjoenews-press.com .... this is the kind of exposure we (clusterheads) are looking for and are actively trying to bring to the attention of neurologists, general practicioners (who are in the FrontLines) and pharmacy companies who may, hopefully, provide a medicine that will help us...

There are a few inaccuracies in your article, but you have done a very good job of  presenting *our* case...

Mr. Hoyt, your *contact/cluster-headache-sufferer* has accurately described the *Beast*... the headache that invades our lives...leaves us exhausted...frightens our wives and children... and is dismissed by most people as a *headache*....

well... it IS a headache, but until YOU have one... there are NO words....

many people have tried to describe it, and some have come close... "an exquisite pain"... "worse than child-birth"... "a thing that has robbed me of my life"....

but we suffer such a "rare" affliction, that there is nothing to be gained financially by the drug companies to explore a palliative or, hopefully, a cure to this thief of our lives....

I am an *episodic* sufferer ( 4-8 weeks/year) and some suffer EveryDamnDay (chronics)... their courage is beyond my ken....

thank you for bringing this to the attention of your readers.... i sincerely hope that the *word* gets out to a wider audience....

Steve Lichens... newly-elected Vice President of OUCH (Organization for Understanding Cluster Headaches)

...and Don Young is the President....Bob Pahlow is taking a break.....heh!
Title: Re: OUCH in the news
Post by Marc on Dec 19th, 2003, 10:18pm
Actually, I'm impressed too.

I didn't realize that the Bylaws Committee had gained enough power to change Presidents! Sorry to hear it Don……… ;)
Title: Re: OUCH in the news
Post by Mastifflvr28 on Dec 19th, 2003, 10:55pm
Yeah Bob, I thought you was busy throwing tomatos??

Thanks for posting the article :)
Mast
Title: Re: OUCH in the news
Post by don on Dec 20th, 2003, 12:39am
Severance pay ??
Title: Re: OUCH in the news
Post by Linda_Howell on Dec 20th, 2003, 12:55am
I want to know where he/they  came up with the...85% of sufferers are male.

BobP may not answer this one.  lol


LindaH
Title: Re: OUCH in the news
Post by Callico_Kid on Dec 20th, 2003, 1:09am
By and large I thought it was a well written piece by someone who has never suffered with a cluster.  I posted a note of appreciation.  Sorry you lost the election Don.  I did vote for you ;;D, but I had hopes I could borrow the yacht.

jc
Title: Re: OUCH in the news
Post by Bob P on Dec 20th, 2003, 8:03pm
It appears to me that she took some info from the ACHE site.  I'd bet that's where she got the low figure of 85%.

I'll confess to you guys.  It was just last month that I realized the auto e-mail that is sent to each new member by the srever was signed, Bob P, President.
Title: Re: OUCH in the news
Post by Kirk on Dec 21st, 2003, 3:51am
Put my O2 worth in. For what its worth.
Severance pay Don? Didn't you get your plastic back from St. FUD?

TTFN
Title: Re: OUCH in the news
Post by ave on Dec 21st, 2003, 8:56am
Excellent!
Title: Re: OUCH in the news
Post by Prense on Dec 21st, 2003, 9:56am
Hell of alot better than the 2-3 paragraphs published a couple of weeks ago...
Title: Re: OUCH in the news
Post by thomas on Dec 21st, 2003, 11:43am
Left my  [smiley=twocents.gif]
Title: Re: OUCH in the news
Post by Cerberus on Dec 21st, 2003, 6:26pm
Fuckineh!

Ramon
Title: Re: OUCH in the news
Post by Mac on Dec 21st, 2003, 8:11pm
Any coverage is great coverage ;;D.


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